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RE: Reflux & effectiveness of meds

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Hi Kim, We had some luck with prilosec. We had a compounding pharmacy

turn it in to a liquid for us. Also we switched to a very easy on the

stomach formula called neocate you order it by phone ask the GI if you

should try it. I have some left over and can mail it to you if you would

like.

Reflux & effectiveness of meds

Hi all,

I know that many of you have children with reflux and was wondering what

medications you found to be the most effective. , 10, RSS, had

reflux and no

medications we used worked despite the fact that he also had a

fundoplication. My

3-yr-old, also had reflux, but more of the silent type. He only

vomited

occasionally. His was pretty severe too, and he now has vocal nodules

because of it.

Now, my 6-week-old daughter has significant reflux. I can't stand to see

her in pain.

She screams a good part of the day because of it, as did . She is

on Zantac

now & will be seeing a GI doctor tomorrow. We have used Reglan, Zantac, and

Propulsid in the past with no luck.

I was wondering if others had the same results with these meds? I see that

many

kids here are on Prevacid or Prilosec. Have you found these medications to

be

effective? If so, do youknow if they can be used on neonates?

We have tried 4 different formulas already with as well as thickening

the feeds

with rice cereal. Nothing works! Her reflux has actually gotten worse as

we try

differnt treatments. The strange thing is that she is gaining weight really

well,

despite the amount she vomits. This is kind of mind boggling, as it is the

opposite to

what I am used to with my other kids in regards to weight gain.

If anyone can offer any suggestions, so I can be armed with questions for

the GI

tomorrow, it would be much appreciated!

Kim C.

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Kim,

This is how our awareness of Xavier's milk allergy started. When he was

about 6 weeks old my husband ran out of pumped breast milk while I was out, and

he

made him a bottle of enfamil. He projectile vomited that. We started to

notice that the crying, curling up in a ball, (like his stomach hurt) and

spitting

out thick clear mucous were way worse when he had the formula, but he also

did this after nursing. We started to suspect a milk allergy, and while I

stopped eating dairy for a few days, I gave him soy formula to see if it would

make

a difference...he was like a totally different baby. He did continue to have

reflux, but I feel that this was a separate issue, the milk allergy made him

vomit itself. (he got a hold of my older son's milk filled sippy cup a few

weeks ago and helped himself, and was trying to vomit and all of the above after

just a few drops. He couldn't actually vomit because of the fundo, but he

retches just the same)

Well, that was long and winded, but anyway, you might want to just try some

soy and see what happens!

Hope this helps

Jen and Lance

Xavier 15months, 16lbs!, 27in RSS, G-tube, Fundoplacation, 27 cal Soy

Formula, Myrilax, ST, OT, PT, FT

Emerald, 5, Non RSS

Wyatt, 4, Non RSS

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hi kim,

i dont know alot about this but a friend of mines baby had this

problem and after trying different formulas they ended up having to

use a soy based formula. but beside that they can only use the ready

feed, it cant be the powder or the concentrate, if they use that

they have the same problem, but for some reason if they use the

ready feed he is fine. it might be something to try. good luck!

jodie

(nicholas-6 nonrss, christopher-3 rss 23lbs 33 " ght genotropin .6,

johnathon-9m nonrss)

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Kim, I don't know if it is safe to use with , but for your

older kids, you should ask about a proton pump inhibitor. It turns

off the parts of the stomach that produce acid. Max uses Protonix

in the morning and if he is having some discomfort at night, we add

Nexium. The Nexium just neutralizes the acid, I believe. By the

end of the day, the proton pumps have regenerated and that is why he

feels the burning.

I do know that there are other proton pump inhibitors, but I get

Prevacid and Prilosec and others mixed up. It's all the P's. I

just stick with the Protonix unless Dr. H. says to use something

else.

Jodi Z.

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