J-tube

[Guest guest]

Yes, the J-tube is the feeding tube that goes in below the stomach into the

jujentum (small intestine). My husband is on Boost HP, 8 cans a day, for

maintenance feeding until he goes back to the doctor in 3 weeks. We hope

after that he can start eating (low fat) again.

Ginny White

[Guest guest]

Hi everyone,

We have been having problems with trying to change Brady's formula

from Enfamil. We have tryed pedisure and also Peptamen JR. Brady

has a problem with both of these. For some reason he starts to gag

when he has only had 1 ounce. We have had an Upper GI done and it

showed that he has a paraesophogial hiatle hernia. Sorry if the

spelling is wrong. The info I got off the internet says that this is

a medical emergency because it is unlike a sliding hiatle hernia.

This type of hernia is when the part of the stomach that goes

outside of the diaphram doesn't slide back in and strangulates and

the tissue begins to die. The 2 doctors that Brady sees doesn't

seem to be worried about it. They seem to be thinking that it is a

sliding hiatle hernia. The doctor that he sees in Pittsburgh, PA

thinks that the answer to all of this is a J-tube and I absolutly

refused it because I know that Brady's stomach will shink and then

it will be like starting from day 1 and also because I don't feel

that he has done everything he can to find out why Brady gags all of

the time with this other formula and sometimes even with the

Enfamil. Now since I refused J-tube placement we have a GI consult

on April 15 and I'm hoping that doctor will tell me something

different than the other 2 doctors are telling me. In the meantime

of all of this happening Brady has also quit eating as much as he

has been orally. I think our next step is a feeding clinic. So

anyways if anyone has any insite on these topic please let me know.

I could use all the info I can get right now.

(mom of Brady, Rss,18 months G-tube,Zantac,15lbs, 25

1/4inches, Kiersten, nonRSS, 2 months, 11 pounds 22 1/4

inches

[Guest guest]

,

Did the doctor explain that you can have a g and a j tube at the

same time? You can get the majority of Brady's nutrition through

the j port and use the g at a slow rate so that his stomach will

not " shrink " or not be used to food going in there. It is also good

because you can vent from the g-tube while you are feeding through

the j tube. You need something called a Farrell Valve which is a

pressure release system that vents him while he is sleeping and

taking in j-tube feedings.

As for the hiatal hernia, Max just had one repaired last summer when

he had the triple procedure. He complained and complained about

pain in that area, but no one listened to him. When they were in

there doing the other surgeries, they found the hernia and repaired

it. It seems to me that if they want to put in a g-j tube, you

might as well go for the hernia repair, too. They can get it all

done at the same time. Interventional radiology would do the

placement of the tube, but you could try to arrange for a surgeon to

be present and repair the hernia as well. No sense in putting him

under two different times.

Jodi Z.

[Guest guest]

Jodi

Thank you so much for the information. The doctors that Brady sees

here in PA hasn't ever told me about the g-j-tube combonation but it

does sound like a good idea. We have a GI consult coming up on

April 15th and we will see what that Doctor has to say. I just hope

that she will actually sit down and talk to me about this hernia

because it really sounds serious but these other doctors are just

blowing it off like it is nothing and that scares me to death. We

have went through alot already with Brady and I don't know how I

would deal with him getting another serious infection. I also think

that the hernia is really bothering Brady because he could be

playing with all of his toys and then he just lays on the floor

holding his belly. That is when I got very concerned about what is

going on with him.

So anyways, how old is Max and how extreme is his RSS? I'm not on

here very often, and I just need to catch up on things. Again thank

you for the information and I hope to here from you soon. Hope all

is well with Max.

(mom of Brady RSS 18 months 14lbs4oz 25 1/4 inches

fundoplication G-tube Zantac, Kiersten nonRSS 2 months 11lbs 22 1/4

inches)

> ,

>

> Did the doctor explain that you can have a g and a j tube at the

> same time? You can get the majority of Brady's nutrition through

> the j port and use the g at a slow rate so that his stomach will

> not " shrink " or not be used to food going in there. It is also

good

> because you can vent from the g-tube while you are feeding through

> the j tube. You need something called a Farrell Valve which is a

> pressure release system that vents him while he is sleeping and

> taking in j-tube feedings.

>

> As for the hiatal hernia, Max just had one repaired last summer

when

> he had the triple procedure. He complained and complained about

> pain in that area, but no one listened to him. When they were in

> there doing the other surgeries, they found the hernia and

repaired

> it. It seems to me that if they want to put in a g-j tube, you

> might as well go for the hernia repair, too. They can get it all

> done at the same time. Interventional radiology would do the

> placement of the tube, but you could try to arrange for a surgeon

to

> be present and repair the hernia as well. No sense in putting him

> under two different times.

>

> Jodi Z.