MyKayla's first genetics appointment on Monday

April 11, 2004

Can a geneticets doc diganose RSS or does it have to be an Endo? our Endo

has not dignosed RSS he just dignosed SGA, but we are waiting a genetics

appointment anytime now..... I was just wondering...

mom to Liam... age 3

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April 12, 2004

Liam's Endo never mentiond RSS...just SGA.. I am really starting to think he

has RSS.. I see alot of the features, mild but he has them... (webbed toes,

overlapped toes, incurved 5th fingers, Asymetricel, large forehead,small

chin) and his endo has agreed that he has not caught up and he is 3 years 4

months, and 35 " tall, 0%.... He did say if SGA kids do not catch up by age 3

they do not catch up.. Liam has also had the feeding issues (still has

those), Reflux, trouble gaining weight (not as bad now, but still not

great)..... He was in OT for SID still has senory issues and some

developmental delay's but our insurance does not cover OT.... and he does

not quilify for EI andymore, cause in Florida you need to have other issues

with in order to qulify.....

Orlando Florida

" Life should not be a journey to the grave with the

intention of arriving safely in a pretty and well

preserved body, but rather to skid in broadside,

thoroughly used up, totally worn out, and loudly

proclaiming '*WOW*! What A Ride!' "

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