Guest guest Posted November 30, 2005 Report Share Posted November 30, 2005 I posted the following message to my tubefeeding group, but since there are people in this group with tubes, I would appreciate any feedback from those with experience with silver nitrate or any nurses in the group. Thanks. Barbara Hello--I've not been posting or reading for several months but have a problem and would like some feedback. All last week I had bleeding around my j-tube stoma which appeared to be coming from a piece of granulation tissue. It looked like a little bud of tissue under the tube, a little smaller than a pencil eraser. Monday I went in to the surgeon who takes care of my tube issues and he used silver nitrate-- -which I was expecting. What I did not expect is that he burned the WHOLE stoma all the way around, not just the granulation tissue. He didn't tell me he was going to do this, just did it. Quite honestly, it didn't hurt that much, just felt like sparks on my skin. I couldn't see what he was doing so didn't protest at the time. Now the whole stoma is a royal mess, as you can imagine. Gray mush, loose pieces of skin mixed with blood. I called his office this morning and he is out for the day. The nurse promised to call me back after she consulted with him. I am using polysporin and cleaning with diluted peroxide several times a day, which I do anyway, and changing the dressings frequently. It looks bad but doesn't hurt as much as I would expect. This surgeon is a gracious man with a wonderful reputation, though he doesn't do much tube care. I just have NO idea why he burned the whole stoma, good tissue and all. It makes no sense to me. It seems to me that now all that necrotic tissue needs to come out of there, be thoroughly cleaned and treated the way a burn would be treated. I am concerned about infection, given the bowel secretions. All you nurses out there--how would you handle this? I'm wondering about scarring too, as I'm 60, in poor health, a slow healer and prone to excessive scarring. What would scarring do to the stoma? As always, any input much appreciated. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2005 Report Share Posted November 30, 2005 Barbara, I don't have a tube so I have nothing pragmatic to say. I'm just sorry you're going through this and I hope it gets resolved in a timely and not-too-difficult manner. Best, Shayna > > I posted the following message to my tubefeeding group, but since there are > people in this group with tubes, I would appreciate any feedback from those > with experience with silver nitrate or any nurses in the group. > > Thanks. > Barbara > > > Hello--I've not been posting or reading for several months but have > a problem and would like some feedback. All last week I had bleeding > around my j-tube stoma which appeared to be coming from a piece of > granulation tissue. It looked like a little bud of tissue under the > tube, a little smaller than a pencil eraser. Monday I went in to the > surgeon who takes care of my tube issues and he used silver nitrate-- > -which I was expecting. What I did not expect is that he burned the > WHOLE stoma all the way around, not just the granulation tissue. He > didn't tell me he was going to do this, just did it. Quite honestly, > it didn't hurt that much, just felt like sparks on my skin. I > couldn't see what he was doing so didn't protest at the time. Now > the whole stoma is a royal mess, as you can imagine. Gray mush, > loose pieces of skin mixed with blood. I called his office this > morning and he is out for the day. The nurse promised to call me > back after she consulted with him. I am using polysporin and > cleaning with diluted peroxide several times a day, which I do > anyway, and changing the dressings frequently. It looks bad but > doesn't hurt as much as I would expect. This surgeon is a gracious > man with a wonderful reputation, though he doesn't do much tube > care. I just have NO idea why he burned the whole stoma, good tissue > and all. It makes no sense to me. It seems to me that now all that > necrotic tissue needs to come out of there, be thoroughly cleaned > and treated the way a burn would be treated. I am concerned about > infection, given the bowel secretions. All you nurses out there-- how > would you handle this? I'm wondering about scarring too, as I'm 60, > in poor health, a slow healer and prone to excessive scarring. What > would scarring do to the stoma? > > As always, any input much appreciated. > Barbara > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2005 Report Share Posted November 30, 2005 --- Barbara Seaman wheatchild@...> wrote: .. All last > week I had bleeding > around my j-tube stoma which appeared to be coming > from a piece of > granulation tissue. Physicians say that it doesn't hurt to use silver nitrate on granulation tissue. Our , who has a high pain tolerance, would wake up from a sound sleep screaming when we used silver nitrate on her stoma. This is what we did... We used EMLA or LMX cream before using the silver nitrate. We used the silver nitrate at home. You must do it several days to a week in a row if you have significant tissue build-up. DON'T use any hydrogen peroxide in any form on any granulation tissue. It will cause irritation which will increase the granulation tissue. Use only mild soap and water. Take baths in water above the stoma. This helps dry out the stoma (soaking and then drying off). I wouldn't think you'd need any neosporin either. I'd keep bandages off as much as possible. Just keep things as clean and as dry as possible. We never used the silver nitrate on healthy tissue. Granulation tissue is scar tissue. Mom to the two best kids in the world! http://www.caringbridge.org/visit/thomasandkatie __________________________________ Yahoo! Music Unlimited Access over 1 million songs. Try it free. http://music.yahoo.com/unlimited/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2005 Report Share Posted November 30, 2005 Pain was not the issue for me with silver nitrate. I didn't need any deadening of tissue or the surgeon would have done it. It's the result that is the issue--- raw, blistered skin, an open wound all around my tube that is seeping and bleeding and now has a line of what looks like pus going down into the stoma. It does need to be covered. Otherwise my clothes rub against the raw, bleeding skin. All the people I know with tubes use a daily dressing to absorb secretions anyway and I need that too. I have ordered a tube of Critic-Aid Skin Paste which was recommended several months back by another patient to protect the skin more on a daily basis. It's won't help with the current situation, but may help prevent more problems once this is healed. I was specifically told not to take tub baths above the stoma by both my doctor and the visiting nurse, only showers, as tub baths increase the risk of infection. Unfortunately, the surgeon is out of the office today, but I will see him tomorrow when he is back. Barbara > Re: silver nitrate mess > > > > --- Barbara Seaman wheatchild@...> > wrote: > . All last > > week I had bleeding > > around my j-tube stoma which appeared to be coming > > from a piece of > > granulation tissue. > > Physicians say that it doesn't hurt to use silver > nitrate on granulation tissue. Our , who has a > high pain tolerance, would wake up from a sound sleep > screaming when we used silver nitrate on her stoma. > This is what we did... We used EMLA or LMX cream > before using the silver nitrate. We used the silver > nitrate at home. You must do it several days to a week > in a row if you have significant tissue build-up. > DON'T use any hydrogen peroxide in any form on any > granulation tissue. It will cause irritation which > will increase the granulation tissue. Use only mild > soap and water. Take baths in water above the stoma. > This helps dry out the stoma (soaking and then drying > off). I wouldn't think you'd need any neosporin > either. I'd keep bandages off as much as possible. > Just keep things as clean and as dry as possible. > > We never used the silver nitrate on healthy tissue. > Granulation tissue is scar tissue. > > > > > > > > > > Mom to the two best kids in the world! > http://www.caringbridge.org/visit/thomasandkatie > > > > __________________________________ > Yahoo! Music Unlimited > Access over 1 million songs. Try it free. > http://music.yahoo.com/unlimited/ > > > > Medical advice, information, opinions, data and statements contained herein are > not necessarily those of the list moderators. The author of this e mail is entirely > responsible for its content. List members are reminded of their responsibility to > evaluate the content of the postings and consult with their physicians regarding > changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2005 Report Share Posted November 30, 2005 Thanks, and Shayna. Kristie suggested silvadene cream for burns which she said helped her heal after silver nitrate. I will inquire. Still working on finding someone to take me to the doc tomorrow. My reg chauffeurs are out of town or otherwise tied down. We will find someone tonight. Barbara > Barbara, > > I have no experience or advise to give you, but wanted you to know that > I think when this guy did was way strange. I would sure want to get an > answer from him as to why he did it. > > I sure hope someone else can give you some help. > > Thinking of you, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2005 Report Share Posted November 30, 2005 Barbara, I have no experience or advise to give you, but wanted you to know that I think when this guy did was way strange. I would sure want to get an answer from him as to why he did it. I sure hope someone else can give you some help. Thinking of you, Barbara Seaman wrote: >I posted the following message to my tubefeeding group, but since there are >people in this group with tubes, I would appreciate any feedback from those >with experience with silver nitrate or any nurses in the group. > >Thanks. >Barbara > > >Hello--I've not been posting or reading for several months but have >a problem and would like some feedback. All last week I had bleeding >around my j-tube stoma which appeared to be coming from a piece of >granulation tissue. It looked like a little bud of tissue under the >tube, a little smaller than a pencil eraser. Monday I went in to the >surgeon who takes care of my tube issues and he used silver nitrate-- >-which I was expecting. What I did not expect is that he burned the >WHOLE stoma all the way around, not just the granulation tissue. He >didn't tell me he was going to do this, just did it. Quite honestly, >it didn't hurt that much, just felt like sparks on my skin. I >couldn't see what he was doing so didn't protest at the time. Now >the whole stoma is a royal mess, as you can imagine. Gray mush, >loose pieces of skin mixed with blood. I called his office this >morning and he is out for the day. The nurse promised to call me >back after she consulted with him. I am using polysporin and >cleaning with diluted peroxide several times a day, which I do >anyway, and changing the dressings frequently. It looks bad but >doesn't hurt as much as I would expect. This surgeon is a gracious >man with a wonderful reputation, though he doesn't do much tube >care. I just have NO idea why he burned the whole stoma, good tissue >and all. It makes no sense to me. It seems to me that now all that >necrotic tissue needs to come out of there, be thoroughly cleaned >and treated the way a burn would be treated. I am concerned about >infection, given the bowel secretions. All you nurses out there--how >would you handle this? I'm wondering about scarring too, as I'm 60, >in poor health, a slow healer and prone to excessive scarring. What >would scarring do to the stoma? > >As always, any input much appreciated. >Barbara > > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Barbara, I don't have any answers for you but wanted to give you some information about what we did for Branden's granulation when he used to get it. I was a member of the g-tube list a long time ago and a nurse posted about having found something for her client that decreases granulation significantly. So, I had to e-mail her because we dealt with it on an on going basis. She told me about Eucalyptus Globulus. What we would do is dilute it half strength with water and use an old syringe and put it on the IV sponges that you can use around the tube. We never had to use the silver nitrate again or peroxide. He had been dealing with granulation for over a year at this point and it was gone within 2 changes of the sponge. If you try this make sure you wait until the skin around your stoma is healed now though. Cindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Thanks, Cindy. I tried eucalyptus oil full strength, not knowing it should be diluted. I like the idea of putting it on the sponges. Will try when all this mess heals. BTW, just got back from seeing the surgeon. He was very concerned and realized that the silver nitrate had made things much worse--said so himself. I now have aquacel patches to treat the burns and a course in antibiotics. If no better by Monday, he will see me again and get the stoma therapist at the hospital involved. Also talked about doing a CT next week. Barbara > Re: silver nitrate mess > > Barbara, > > I don't have any answers for you but wanted to give you some information about > what we did for Branden's granulation when he used to get it. > > I was a member of the g-tube list a long time ago and a nurse posted about having > found something for her client that decreases granulation significantly. So, I had to > e-mail her because we dealt with it on an on going basis. > > She told me about Eucalyptus Globulus. What we would do is dilute it half strength > with water and use an old syringe and put it on the IV sponges that you can use > around the tube. We never had to use the silver nitrate again or peroxide. He had > been dealing with granulation for over a year at this point and it was gone within 2 > changes of the sponge. If you try this make sure you wait until the skin around your > stoma is healed now though. > > Cindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 We have a g-tube without an J tube. We only bandaged when the stomas were new (we've had two so far). had granulation tissue and infections at first but we stopped it by using a product called Technicare surgical scrub. It is a surgical scrub that's safe for mucus membranes. We put a drop or two on four times daily when it was infected and gradually reduced it to an on needed basis. An 8 oz bottle has lasted five years. When a pump is used we keep the tube still by using a tubular dressing (looks kind of like a belt but has air holes in it). takes baths and swims. The children at a local school for profoundly disabled children all swim. The water actually drys the area out more and keeps it much better, I think. We used bandages only when stomas were new. She NEVER used them any other time. A little bit of drainage may get on the inside of a shirt but has never soaked through. Biz bleach gets it out without any problem if soap doesn't work. You must remember that doctors and nurses in GI and surgery clinics don't have these things at home and don't know how they work in real life. I am a nurse who takes care of two children with tubes in their home and neither avoids baths or wears a bandage. They don't have any drainage at all. has a little. Gauze can keep a stoma wet, warm, and dark, things that can harbor bacteria. Emla is a script and LMX is OTC (but behind the counter at a pharmacy). They are lidocaine preparations that numb the skin. Mom to the two best kids in the world! http://www.caringbridge.org/visit/thomasandkatie __________________________________ Start your day with Yahoo! - Make it your home page! http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Barbara I'm glad the surgeon was concerned and I hope things improve quickly. I'll keep you in my thoughts. laurie > Thanks, Cindy. I tried eucalyptus oil full strength, not knowing it should > be diluted. I like the idea of putting it on the sponges. Will try when all > this mess heals. > > BTW, just got back from seeing the surgeon. He was very concerned and > realized that the silver nitrate had made things much worse--said so > himself. I now have aquacel patches to treat the burns and a course in > antibiotics. If no better by Monday, he will see me again and get the stoma > therapist at the hospital involved. Also talked about doing a CT next week. > > Barbara > > > Re: silver nitrate mess > > > > Barbara, > > > > I don't have any answers for you but wanted to give you some information > about > > what we did for Branden's granulation when he used to get it. > > > > I was a member of the g-tube list a long time ago and a nurse posted > about > having > > found something for her client that decreases granulation significantly. > So, I had to > > e-mail her because we dealt with it on an on going basis. > > > > She told me about Eucalyptus Globulus. What we would do is dilute it > half > strength > > with water and use an old syringe and put it on the IV sponges that you > can use > > around the tube. We never had to use the silver nitrate again or > peroxide. He had > > been dealing with granulation for over a year at this point and it was > gone within 2 > > changes of the sponge. If you try this make sure you wait until the skin > around your > > stoma is healed now though. > > > > Cindy > > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail > is entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with > their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Thanks Laurie. " Concerned " was probably an understatement. He was very alarmed and said so--it's a serious infection with significant risk of spreading into the abdominal cavity. We are treating as aggressively as possible without hospitalization and hoping for positive outcome. Yesterday I was fighting fear and those " awfulizing " thoughts where you imagine the worst outcome. Quite honestly the antibiotics scare me as much as the infection as I have not had good experience with even the " safe " antibiotics. But today I feel more at peace now that we have treatment underway. I can always go 6 blocks to ER if necessary--they all know me over there and swing into action when I come in the door. That's a great aid for peace of mind! Barbara > Re: silver nitrate mess > > Barbara > > I'm glad the surgeon was concerned and I hope things improve quickly. > > I'll keep you in my thoughts. > > laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Barbara, The eucalyptus was a miracle worker on the granulation. His had been terrible since 2 weeks post op. I'm glad the surgeon was able to admit that he (by using the silver nitrate all around the stoma) had made things worse. I hope the patches help. I can remember when Branden had a g/j tube for a while the tube started leaking from the cap and it literally burned his leg and all around the stoma before we even caught it. Luckily we were at the hospital having a post op appt. from his hand surgery. The hand surgeon called his surgeon, told her what was going on. She wasn't even seeing patients that day and it was like 5 on a Friday afternoon and she met us at the door. We used these patch things as well, but I can't remember what they were... duoderm maybe..... to protect the area. Something that's really weird is that now that he no longer has the tube the whole scar is covered with ecxema. I hope your stoma heals quickly. Cindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Barbara Are you on IV antibiotics? They seem to work so much better and more quickly. I'm glad the ER is so close to you. laurie > Thanks Laurie. " Concerned " was probably an understatement. He was very > alarmed and said so--it's a serious infection with significant risk of > spreading into the abdominal cavity. We are treating as aggressively as > possible without hospitalization and hoping for positive outcome. Yesterday > I was fighting fear and those " awfulizing " thoughts where you imagine the > worst outcome. Quite honestly the antibiotics scare me as much as the > infection as I have not had good experience with even the " safe " > antibiotics. But today I feel more at peace now that we have treatment > underway. I can always go 6 blocks to ER if necessary--they all know me > over > there and swing into action when I come in the door. That's a great aid for > peace of mind! > > Barbara > > > Re: silver nitrate mess > > > > Barbara > > > > I'm glad the surgeon was concerned and I hope things improve quickly. > > > > I'll keep you in my thoughts. > > > > laurie > > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail > is entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with > their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 No, oral antibiotics. I know IVs work faster and if we have to, will do that. The aquacel patches also have antimicrobial properties, which helps too. So we do have a two-prong approach. He instructed me to change the patches every 24 hours rather than the usual 72 hours. We are trying to avoid hospitalization. I couldn't manage IVs at home. I'm keeping a close watch on everything, thinking positive thoughts and hoping. Thanks! B > Re: silver nitrate mess > > Barbara > > Are you on IV antibiotics? They seem to work so much better and more > quickly. I'm glad the ER is so close to you. > > laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Thanks, Cindy. Yes, this surgeon is a very caring person who made a mistake and admitted it. I give him high marks for honesty. He said the first problem was small compared to what he created. He looked at it and was stunned. Both he and his nurse said they had never seen this kind of reaction to silver nitrate. He is doing everything he can to prevent further disaster.....took my advice entirely on which antibiotics to try, which I appreciated. Surgeons as a species are not used to deferring to patients! I'm glad to hear your experience with eucalyptus. I have a bottle in the cupboard for future use. Thanks for all your help. Barbara > Barbara, > > The eucalyptus was a miracle worker on the granulation. His had been terrible > since 2 weeks post op. > > I'm glad the surgeon was able to admit that he (by using the silver nitrate all around > the stoma) had made things worse. I hope the patches help. I can remember > when Branden had a g/j tube for a while the tube started leaking from the cap and it > literally burned his leg and all around the stoma before we even caught it. Luckily > we were at the hospital having a post op appt. from his hand surgery. The hand > surgeon called his surgeon, told her what was going on. She wasn't even seeing > patients that day and it was like 5 on a Friday afternoon and she met us at the door. > We used these patch things as well, but I can't remember what they were... > duoderm maybe..... to protect the area. > > Something that's really weird is that now that he no longer has the tube the whole > scar is covered with ecxema. > > I hope your stoma heals quickly. > > Cindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2005 Report Share Posted December 4, 2005 Barbara, How are you doing? Are the antibiotics working at all? I have been keeping you in my thoughts that you will be able to stay out of the hospital with this. I get granulation tissue quite frequently with my G/J, although only did the silver nitrate once. It hurt worse than the granulation tissue, as my doctor went around the whole stoma as well, but did not do the damage that you have. I am like you and have to constantly keep a dressing on it. I put a 2x2 under the Mickey. It still gets some air. For others with the tube, I do get mine wet. I had to keep it dry for the first 2-4 weeks, but once healed, can get it wet, so I shower without it covered and make sure to wash with soap and water twice a day to keep it clean from all the oozing I sitll get. My doctors did say I could go without it covered, but it gets very irritated. I think in this situation, one has to do what is best for them. Smiles, a On Fri, 2 Dec 2005 09:30:01 -0600 " Barbara Seaman " wheatchild@...> writes: Thanks Laurie. " Concerned " was probably an understatement. He was very alarmed and said so--it's a serious infection with significant risk of spreading into the abdominal cavity. We are treating as aggressively as possible without hospitalization and hoping for positive outcome. Yesterday I was fighting fear and those " awfulizing " thoughts where you imagine the worst outcome. Quite honestly the antibiotics scare me as much as the infection as I have not had good experience with even the " safe " antibiotics. But today I feel more at peace now that we have treatment underway. I can always go 6 blocks to ER if necessary--they all know me over there and swing into action when I come in the door. That's a great aid for peace of mind! Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2005 Report Share Posted December 4, 2005 a! The bright spirit of Mitoldies! Yes, doing better. Yesterday the stoma looked a little better but today looks a lot better. Still raw but a nicer pink as opposed to ugly red and no bleeding for the first time. Yea! The Aquacel AG wound dressing (with silver) has done wonders even if--or maybe because--it costs a bunch. Last night I had very little pain with the feeding as long as I didn't turn on either side. The previous night I didn't get much sleep---no position was comfortable. I DO think the antibiotics are also doing good things for my middle. The internal pain is improved and I can move around with less aggravation. The only negative is that the antibiotics have done a number on muscle strength, but that will eventually get better once I'm done with the big red pills. Regardless I'm thankful to know this old body can still respond to aggressive treatment. Like you, I did go several months without a dressing at one point, but found I had more pain and irritation, even with cleansing at least 2x day. Did you get a MicKey button or do you still have the original long MicKey tube? I'm still wondering if a button might be more comfortable, but those have their own problems too. Sort of a trade off. Thanks for the thoughts. Much appreciated. Hugs, Barbara > Barbara, > How are you doing? Are the antibiotics working at all? I have > been keeping you in my thoughts that you will be able to stay out of the > hospital with this. I get granulation tissue quite frequently with my > G/J, although only did the silver nitrate once. It hurt worse than the > granulation tissue, as my doctor went around the whole stoma as well, but > did not do the damage that you have. I am like you and have to > constantly keep a dressing on it. I put a 2x2 under the Mickey. It > still gets some air. For others with the tube, I do get mine wet. I had > to keep it dry for the first 2-4 weeks, but once healed, can get it wet, > so I shower without it covered and make sure to wash with soap and water > twice a day to keep it clean from all the oozing I sitll get. My doctors > did say I could go without it covered, but it gets very irritated. I > think in this situation, one has to do what is best for them. > > Smiles, > a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2005 Report Share Posted December 4, 2005 Barbara, glad to hear you're on the road back. Smiles, Shayna > > a! The bright spirit of Mitoldies! Yes, doing better. Yesterday the > stoma looked a little better but today looks a lot better. Still raw but a > nicer pink as opposed to ugly red and no bleeding for the first time. Yea! > The Aquacel AG wound dressing (with silver) has done wonders even if--or > maybe because--it costs a bunch. Last night I had very little pain with the > feeding as long as I didn't turn on either side. The previous night I didn't > get much sleep---no position was comfortable. I DO think the antibiotics are > also doing good things for my middle. The internal pain is improved and I > can move around with less aggravation. The only negative is that the > antibiotics have done a number on muscle strength, but that will eventually > get better once I'm done with the big red pills. Regardless I'm thankful to > know this old body can still respond to aggressive treatment. > > Like you, I did go several months without a dressing at one point, but found > I had more pain and irritation, even with cleansing at least 2x day. Did you > get a MicKey button or do you still have the original long MicKey tube? I'm > still wondering if a button might be more comfortable, but those have their > own problems too. Sort of a trade off. > > Thanks for the thoughts. Much appreciated. > > Hugs, > Barbara > > > Barbara, > > How are you doing? Are the antibiotics working at all? I have > > been keeping you in my thoughts that you will be able to stay out of the > > hospital with this. I get granulation tissue quite frequently with my > > G/J, although only did the silver nitrate once. It hurt worse than the > > granulation tissue, as my doctor went around the whole stoma as well, but > > did not do the damage that you have. I am like you and have to > > constantly keep a dressing on it. I put a 2x2 under the Mickey. It > > still gets some air. For others with the tube, I do get mine wet. I had > > to keep it dry for the first 2-4 weeks, but once healed, can get it wet, > > so I shower without it covered and make sure to wash with soap and water > > twice a day to keep it clean from all the oozing I sitll get. My doctors > > did say I could go without it covered, but it gets very irritated. I > > think in this situation, one has to do what is best for them. > > > > Smiles, > > a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2005 Report Share Posted December 4, 2005 Barbara I'm glad to hear that things are improving. Hugs, laurie > a! The bright spirit of Mitoldies! Yes, doing better. Yesterday the > stoma looked a little better but today looks a lot better. Still raw but a > nicer pink as opposed to ugly red and no bleeding for the first time. Yea! > The Aquacel AG wound dressing (with silver) has done wonders even if--or > maybe because--it costs a bunch. Last night I had very little pain with the > feeding as long as I didn't turn on either side. The previous night I > didn't > get much sleep---no position was comfortable. I DO think the antibiotics > are > also doing good things for my middle. The internal pain is improved and I > can move around with less aggravation. The only negative is that the > antibiotics have done a number on muscle strength, but that will eventually > get better once I'm done with the big red pills. Regardless I'm thankful to > know this old body can still respond to aggressive treatment. > > Hugs, > Barbara > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2005 Report Share Posted December 4, 2005 --- Barbara Seaman wheatchild@...> wrote: > Like you, I did go several months without a dressing > at one point, but found > I had more pain and irritation, even with cleansing > at least 2x day. Did you > get a MicKey button or do you still have the > original long MicKey tube? I'm > still wondering if a button might be more > comfortable, but those have their > own problems too. Sort of a trade off. We found several things that helped reduce pain and irritation. First we used a tubular dressing when attached to feeding pump (buttons have extensions and they get irritated when they move around). You can go to a specialized pharmacy and ask for a box of tubular dressing. You can always buy it by the inch too. It looks way too narrow to fit around your middle but for a 40 pound kid we used stuff meant for a small arm. An adult may use a size for a large male or for a shoulder. Anyway, cut a piece about 18 inches long (or maybe a bit more) 'cause when you put it around your middle it shrinks in length. Use this to hold tubing securely in place. It has plenty of holes but keeps everything secure so it decreases irritation. http://froogle.google.com/froogle?q=tubular+dressing&hl=en&lr=&ie=UTF-8&sa=N&tab\ =ff&oi=froogler A whole box of dressings lasted years here. They don't tell you this but it can be washed and dried without problem. We changed our buttons to a silicone only type. We liked a Mini or a Nutriport. There is no other substance in the button. Some have some silicone and other parts too. Our life saving antimicrobial therapy had to be Techni-Care surgical scrub. At the slightest sign of irritation start using it. We used it four times daily. Then, after the site looks beautiful, reduce to three times daily, then two, then one and then on an as needed basis. We used this in place of IV antibiotics and it worked! We were at the point where we were going to have to remove the button and redo the stoma (for the second time) after trying IV abx. This worked better. Fortunately, we also found the tubular dressing and the Mini button at the same time. Their use prevented a the whole stupid merry-go-round from happening again. Our GI found this for us and it is now used by wound nurses for unhealing wounds around stomas. http://www.med-worldwide.com/care-tech-im-cec2228z.html http://www.med-worldwide.com/care-tech-im-cec22216z.html http://unimaxsupply.com/md/1technicare.htm http://static.highbeam.com/s/surgicalproducts/april012001/caretechrlaboratoriesi\ nctechnicaresurgicalscrub/ Mom to the two best kids in the world! http://www.caringbridge.org/visit/thomasandkatie __________________________________________ Yahoo! DSL – Something to write home about. Just $16.99/mo. or less. dsl.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2005 Report Share Posted December 4, 2005 , I gather that in your method the tubular dressing actually goes around the waist/belly like a belt and in that way stabilizes the button during feedings? Am I understanding correctly? I know what the button looks like internally, so I have that concept, just not sure I understand how you are using the tubular bandage to stabilize. I can't wear anything around my waist for various complicated reasons which I won't try to explain, so may not be an option in my case, though sounds ingenious. You get high marks for creativity. If I ever get over to the hospital to see the stoma therapist, I'm going to ask about your button suggestions--the Mini and the Nutriport. Will also ask our trusty pharmacist about the Techni-Care surgical scrub. He can get most anything for us. Thanks. Barbara > > --- Barbara Seaman wheatchild@...> > wrote: > > > Like you, I did go several months without a dressing > > at one point, but found > > I had more pain and irritation, even with cleansing > > at least 2x day. Did you > > get a MicKey button or do you still have the > > original long MicKey tube? I'm > > still wondering if a button might be more > > comfortable, but those have their > > own problems too. Sort of a trade off. > > We found several things that helped reduce pain and > irritation. First we used a tubular dressing when > attached to feeding pump (buttons have extensions and > they get irritated when they move around). You can go > to a specialized pharmacy and ask for a box of tubular > dressing. You can always buy it by the inch too. It > looks way too narrow to fit around your middle but for > a 40 pound kid we used stuff meant for a small arm. > An adult may use a size for a large male or for a > shoulder. Anyway, cut a piece about 18 inches long > (or maybe a bit more) 'cause when you put it around > your middle it shrinks in length. Use this to hold > tubing securely in place. It has plenty of holes but > keeps everything secure so it decreases irritation. > > http://froogle.google.com/froogle?q=tubular+dressing&hl=en&lr=&ie=UTF- > 8&sa=N&tab=ff&oi=froogler > A whole box of dressings lasted years here. They don't > tell you this but it can be washed and dried without > problem. > > We changed our buttons to a silicone only type. We > liked a Mini or a Nutriport. There is no other > substance in the button. Some have some silicone and > other parts too. > > Our life saving antimicrobial therapy had to be > Techni-Care surgical scrub. At the slightest sign of > irritation start using it. We used it four times > daily. Then, after the site looks beautiful, reduce to > three times daily, then two, then one and then on an > as needed basis. We used this in place of IV > antibiotics and it worked! We were at the point where > we were going to have to remove the button and redo > the stoma (for the second time) after trying IV abx. > This worked better. Fortunately, we also found the > tubular dressing and the Mini button at the same time. > Their use prevented a the whole stupid merry-go-round > from happening again. Our GI found this for us and it > is now used by wound nurses for unhealing wounds > around stomas. > > http://www.med-worldwide.com/care-tech-im-cec2228z.html > http://www.med-worldwide.com/care-tech-im-cec22216z.html > http://unimaxsupply.com/md/1technicare.htm > http://static.highbeam.com/s/surgicalproducts/april012001/caretechrlaborator iesinct > echnicaresurgicalscrub/ > > > > Mom to the two best kids in the world! > http://www.caringbridge.org/visit/thomasandkatie > > > > __________________________________________ > Yahoo! DSL - Something to write home about. > Just $16.99/mo. or less. > dsl.yahoo.com > > > > > Medical advice, information, opinions, data and statements contained herein are > not necessarily those of the list moderators. The author of this e mail is entirely > responsible for its content. List members are reminded of their responsibility to > evaluate the content of the postings and consult with their physicians regarding > changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2005 Report Share Posted December 5, 2005 ---barbara, Thanks for the update! It is great to hear that you are doing better. Keep resting and take care of yourself. I really appreciate your knowledge on this site. Fondly, dawn A In , " Barbara Seaman " wrote: > > a! The bright spirit of Mitoldies! Yes, doing better. Yesterday the > stoma looked a little better but today looks a lot better. Still raw but a > nicer pink as opposed to ugly red and no bleeding for the first time. Yea! > The Aquacel AG wound dressing (with silver) has done wonders even if--or > maybe because--it costs a bunch. Last night I had very little pain with the > feeding as long as I didn't turn on either side. The previous night I didn't > get much sleep---no position was comfortable. I DO think the antibiotics are > also doing good things for my middle. The internal pain is improved and I > can move around with less aggravation. The only negative is that the > antibiotics have done a number on muscle strength, but that will eventually > get better once I'm done with the big red pills. Regardless I'm thankful to > know this old body can still respond to aggressive treatment. > > Like you, I did go several months without a dressing at one point, but found > I had more pain and irritation, even with cleansing at least 2x day. Did you > get a MicKey button or do you still have the original long MicKey tube? I'm > still wondering if a button might be more comfortable, but those have their > own problems too. Sort of a trade off. > > Thanks for the thoughts. Much appreciated. > > Hugs, > Barbara > > > Barbara, > > How are you doing? Are the antibiotics working at all? I have > > been keeping you in my thoughts that you will be able to stay out of the > > hospital with this. I get granulation tissue quite frequently with my > > G/J, although only did the silver nitrate once. It hurt worse than the > > granulation tissue, as my doctor went around the whole stoma as well, but > > did not do the damage that you have. I am like you and have to > > constantly keep a dressing on it. I put a 2x2 under the Mickey. It > > still gets some air. For others with the tube, I do get mine wet. I had > > to keep it dry for the first 2-4 weeks, but once healed, can get it wet, > > so I shower without it covered and make sure to wash with soap and water > > twice a day to keep it clean from all the oozing I sitll get. My doctors > > did say I could go without it covered, but it gets very irritated. I > > think in this situation, one has to do what is best for them. > > > > Smiles, > > a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 Barbara, How is your boo boo doing now? Barbara Seaman wrote: >Thanks, and Shayna. Kristie suggested silvadene cream for burns which >she said helped her heal after silver nitrate. I will inquire. Still working >on finding someone to take me to the doc tomorrow. My reg chauffeurs are out >of town or otherwise tied down. We will find someone tonight. > >Barbara > > > > >>Barbara, >> >>I have no experience or advise to give you, but wanted you to know that >>I think when this guy did was way strange. I would sure want to get an >>answer from him as to why he did it. >> >>I sure hope someone else can give you some help. >> >>Thinking of you, >> >> >> > > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 ! Mother Hen of Mitoldies, keeping track of all boo boos! Are you ready for this saga? Well, the silver nitrate burns have healed but the granulation tissue is still raw and bleeding--no solution for that part yet. A CT scan revealed a lot of intestinal adhesions around my tube, and my local surgeon did not want to deal with that complication. So now I have an appointment at KUMC with the original surgeon Jan 23. The tube needs to be pulled and replaced with something different to stop the formation of more adhesions, but all the scarring around the tube really raises the risk of perforated intestine when they try to pull it. The stoma therapist at our local hospital was shaking her head, saying the original surgeon may not want to pull it either, but surely he has to do something. I need my gut! We will take the CT scan and see what the he says. If it won't come out manually, I may be in for laparoscopic surgery or even major open surgery. That would be worst case scenario, which hopefully won't happen. The thought of perforated intestine is especially chilling since I have a good friend with FSH muscular dystrophy who had a perforation two years ago and has been in and out of hospital and nursing homes ever since. For her it was the beginning of the end of independence. Having observed this first-hand recently, I have to work at not " awfulizing " my own situation. The stoma therapist did give me a tube stabilizer so the tube won't move and rub so much--quite a large, funny-looking gizmo that sticks on the skin. With that on my belly yesterday I felt like the bionic woman. Unfortunately it turns out I'm allergic to the sticky stuff and had to take it off after a few hours---which in itself was an interesting operation, squeezing one part while simultaneously pushing another to release my tube from the grip. But I finally did it, klutzy hands and all. Life is such an adventure..... Barbara > Barbara, > > How is your boo boo doing now? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 Hi Barbara now I understand why you dont want to go off tripping round the world ..... maybe if you make a lot of noise about it you will put the fear of God into them and they will be super careful - pamela RE: silver nitrate mess ! Mother Hen of Mitoldies, keeping track of all boo boos! Are you ready for this saga? Well, the silver nitrate burns have healed but the granulation tissue is still raw and bleeding--no solution for that part yet. A CT scan revealed a lot of intestinal adhesions around my tube, and my local surgeon did not want to deal with that complication. So now I have an appointment at KUMC with the original surgeon Jan 23. The tube needs to be pulled and replaced with something different to stop the formation of more adhesions, but all the scarring around the tube really raises the risk of perforated intestine when they try to pull it. The stoma therapist at our local hospital was shaking her head, saying the original surgeon may not want to pull it either, but surely he has to do something. I need my gut! We will take the CT scan and see what the he says. If it won't come out manually, I may be in for laparoscopic surgery or even major open surgery. That would be worst case scenario, which hopefully won't happen. The thought of perforated intestine is especially chilling since I have a good friend with FSH muscular dystrophy who had a perforation two years ago and has been in and out of hospital and nursing homes ever since. For her it was the beginning of the end of independence. Having observed this first-hand recently, I have to work at not " awfulizing " my own situation. The stoma therapist did give me a tube stabilizer so the tube won't move and rub so much--quite a large, funny-looking gizmo that sticks on the skin. With that on my belly yesterday I felt like the bionic woman. Unfortunately it turns out I'm allergic to the sticky stuff and had to take it off after a few hours---which in itself was an interesting operation, squeezing one part while simultaneously pushing another to release my tube from the grip. But I finally did it, klutzy hands and all. Life is such an adventure..... Barbara > Barbara, > > How is your boo boo doing now? > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. Quote Link to comment Share on other sites More sharing options...
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