Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Hopefully so! I want that surgeon at his very best top form. Barbara > Hi Barbara now I understand why you dont want to go off tripping round the world > .... maybe if you make a lot of noise about it you will put the fear of God into them > and they will be super careful - pamela Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2006 Report Share Posted January 22, 2006 Barbara, Good luck with your surgeon appointment tomorrow. Let us know what the docs says. Barbara Seaman wrote: >! Mother Hen of Mitoldies, keeping track of all boo boos! Are you >ready for this saga? Well, the silver nitrate burns have healed but the >granulation tissue is still raw and bleeding--no solution for that part yet. >A CT scan revealed a lot of intestinal adhesions around my tube, and my >local surgeon did not want to deal with that complication. So now I have an >appointment at KUMC with the original surgeon Jan 23. The tube needs to be >pulled and replaced with something different to stop the formation of more >adhesions, but all the scarring around the tube really raises the risk of >perforated intestine when they try to pull it. > >The stoma therapist at our local hospital was shaking her head, saying the >original surgeon may not want to pull it either, but surely he has to do >something. I need my gut! We will take the CT scan and see what the he says. >If it won't come out manually, I may be in for laparoscopic surgery or even >major open surgery. That would be worst case scenario, which hopefully won't >happen. > >The thought of perforated intestine is especially chilling since I have a >good friend with FSH muscular dystrophy who had a perforation two years ago >and has been in and out of hospital and nursing homes ever since. For her it >was the beginning of the end of independence. Having observed this >first-hand recently, I have to work at not " awfulizing " my own situation. > >The stoma therapist did give me a tube stabilizer so the tube won't move and >rub so much--quite a large, funny-looking gizmo that sticks on the skin. >With that on my belly yesterday I felt like the bionic woman. Unfortunately >it turns out I'm allergic to the sticky stuff and had to take it off after a >few hours---which in itself was an interesting operation, squeezing one part >while simultaneously pushing another to release my tube from the grip. But I >finally did it, klutzy hands and all. Life is such an adventure..... > >Barbara > > > > Quote Link to comment Share on other sites More sharing options...
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