Looking for someone in Alabama

[Guest guest]

I'm looking to see if there is any families with that may live in

Alabama or close to Alabama or North Alabama. Just mainly wanting

someone I can talk to that lives nearby. Most everyone I have seen

on the website lives up north.

H. Mom to 6yrs. RSS, gh, 24lbs.,

[Guest guest]

Hi,

I have been a member for sometime but pretty much just remain a lurker. I

have a daughter who turned 7 in December and is my " little " angel. I read the

posts daily but for the most part consider my daughter to have a very mild case

of RSS. She was DX when she was 3 months old by an endroconologist at the

University of Louisville. The first year was the hardest. (her and I both

smile when we look back to how far we have come) She did receive early

intervention the first year for OT and PT. She proved all the dr.'s wrong as

far as her

milestones go....she walked at 11 months...rode a trike, started riding her

bike without training wheels at age 4, she is in gymnastics, rides a motorized

scooter , cheerleads, plays soccer, swims etc. She excelled in grade K and

now as a 1st grader she is doing very well....she reads on a end of year 3rd

grader and does 2nd grade math. She has a personality that just melts your

heart

and will explain her syndrome to anyone that calls her a shrimp...lol

Right now we are dealing with the dental issue. She has several caps on her

teeth and has already lost 7 teeth (all on her own) We do know however that

we will have to have some teeth pulled as the permenant teeth come in...in fact

we are going to the dentist in the morning as one of her silver caps is

causing her some pain.

Shelby was on Periactin but I have sense stopped giving it to her as I now

have to remind her that " I think she has had enough " Gee, who would have ever

thought I would use those words. She seems to have taken on a growth

spurt...she is now wearing between a 5 reg or 6 slim in pants just depending on

the

maker...a 6x shirt and a size 10 shoe...man I NEVER thought we would make it

this

far. (big SMILE)

I guess it may sound like I am boasting (maybe I am just a little) but I

wanted to give you first time moms (as Shelby is my one and only...I can not

have

anymore due to cancer) that there is some light on this rough journey. I live

in Indiana...just across the bridge from Louisville, KY...please feel free to

email at smithjrtazracing@...

(proud mommy to Shelby~~age 7 RSS 43~44 lbs and 46 inches tall

[Guest guest]

Hi I am , mom to s.. I know how you feel I

am near there but in Tennessee I am looking also I live near

Nashville how far is that from you? Good luck.. is 5 RSS

Mild... Hugs to

ya

> I'm looking to see if there is any families with that may live in

> Alabama or close to Alabama or North Alabama. Just mainly wanting

> someone I can talk to that lives nearby. Most everyone I have seen

> on the website lives up north.

>

> H. Mom to 6yrs. RSS, gh, 24lbs.,

[Guest guest]

Jennie,

Oh how I know Shelby wishes that she could fit into a size 13 shoe. Just

getting into a 10 was a BIG milestone for us. She likes to keep up with all the

trends and with the girls in her class and with such a small shoe size that

was almost next to impossible. I do have LOTS of pictures of Shelby and when

hubby gets in this weekend will have him hook up the scanner, teach me how to

use it and if all goes well, I will post some pictures of her.

Have a good day,

~Mom to Shelby RSS age 7

[Guest guest]

Your daughter is the same as my daughter too! She will be eight in June.

Do you have a picture to share? I just got my daughter Lindsey's school picture

yesterday that I will post in a minute.

Oh, the only thing different is Lindsey has a long skinny feet! she can wear

size 13.

Jennie

[Guest guest]

I tried posting Lindsey's picture but the photo section's not working again.

Lindsey wears size 5 pants,6 shirt and 13 -1 shoe! It must be from her odd

couple parents! I'm a petite 5'1 with little feet,and her dad is a big man at

6'3!Doesn't really match her body lol! they're very skinny feet, shoes are hard

to find,because of that. She was just 40 pounds a month ago,but she put on alot

of weight from the Zyprexa medication. I need to weigh her!

i would love to see your daughter, hooking up the scanner is very very simple

Jennie

[Guest guest]

I don't think you'd get any argument form anyone here that the term " failure

to thrive " is one of the crappiest terms going and should really be re-phrased

asap. I've been quite tempted on many occasions to harp in with " failure to

diagnos " or " failure to properly treat MY SON! "

Kathy