Guest guest Posted March 3, 2005 Report Share Posted March 3, 2005 I wish I could help you, but Monday evenings we already have some commitments for. I hope you are able to find some women to help you out. I can imagine it would be hard to dedicate every Monday to the cause. I also just want to so thank you for all your dedication. Knowing you deal with Mito like we all do on the group, makes me totally understand why you want help. Sure wish I could help you, but it probably is a good thing I am busy on Mondays as it is hard for me to say no to this type of a thing, and I am a bit busy lately with the transition of the twins. Best wishes finding help. See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see a photo look into what Mito looks like Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting, bladder issues, wheelchair for distances, eye issues, autistic behaviors, gastric emptying issues... Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD, dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy, hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency, ... Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), & Marquis (3), Joey & (12 months) (some with Mito symptoms) Monday Night Mito Chats at MDA Site Could Be Discontinued Without Your Help > > > I have to say that I was disappointed yesterday when I sent the > message to this group and to the Mitoldies group requesting > assistance with moderating the MDA Chats. Out of two groups with > over 1000 total memberships, I received 1 answer for a volunteer. > > Unfortunately, this is not enough. The MDA requires moderators for > their chats thus this may be a signal to me to end those Monday > night chats. I personally am not able to be a regular chat host > because of my own medical issues. Cindy has family responsibilities > on Monday nights. Laurie and Kristie have been handling the job > pretty much every week but this is too much for them and it's not > really fair to expect them to do it. There have been many new faces > in the chat over the last few weeks. You can witness this by > reading the last chat at > > http://database.azstarnet.com/html/mda/transcripts/20050228Mitochondr > ialChat.html > > I frequently line up guest physicians who chat with the group and we > have a guest physician scheduled for 3/21. Her specialty is > Endocrinology and Metabolism. Previous guests have been Dr Cohen, > Dr Boles, Dr Saneto and many other well known mito doctors but the > upcoming guest chat could very well be the last without your help. > > The lack of response tells me that there isn't enough interest in > the chat to keep it going. If I am unable to find at least 2 more > volunteers, I am going to request that the Mito chat on the MDA site > is dissolved. > > Again - if you are interested - please e mail me at > alice@... > > Thank you. > > Alice > > > > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2005 Report Share Posted December 3, 2005 Alice Thank you so much for your response, people are literally running away from us at this point, I think out of fear they don't know what to say or do, not every one, but some people have not even responded ( like family) to my E-Mail, and yours was so sweet and warm thank you so much, it was greatly appreciated. Hugs Jan Re: Update on Duane > Jan, > > I read this message from you with a heavy heart. I am so sorry. I have > been in awe of your strong support for Duane since you joined this > list - probably 2 years ago or perhaps more. You can hold your head > high for everything you have provided him and others on this list. > > We are here for you always and if prayer is what you are now seeking > for strength to go thru this part of the journey, please know that I > will keep you all continually in my prayers. I hope you are > remembering to take care of yourself too as this is as important as > taking care of everyone else. > > We are always here when you need our support too. Please don't forget > that. > > Hugs! > Alice > > > > > > > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
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