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Re: CNS hypersomnolence

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That sounds like what my daughter-in-law has (no mito). She takes a

stimulent for it - can't remember which one. It helps to keep her more

focused as well as awake. She has no problem with being sleepy if

active, but can fall asleep at the dinner table without the meds.

laurie

>

> Anybody have this? I recently had a sleep study which

> found upper airway resistance syndrome (UARS). I also

> had an MSLT and I had hypersomnolence. My pulmo said

> that my sleepiness is pathologic. He says that my

> level of tiredness is much more significant than it

> should be for my degree of UARS. He thinks that I have

> CNS hypersomnolence. He wants me to take Provigil 200

> mg in the morning. I tried it today and after about

> two hours I felt a little better. But I had a huge

> letdown about 3:30 pm and have felt worse than ever

> since. I could have slept for the night at that point.

>

> He said that I'm as bad as somebody with apnea and

> narcolepsy even though I have neither. I did have one

> central apnea though.

>

>

>

> Mom to the two best kids in the world!

> http://www.caringbridge.org/visit/thomasandkatie

>

>

>

> __________________________________________

> Yahoo! DSL – Something to write home about.

> Just $16.99/mo. or less.

> dsl.yahoo.com

>

>

>

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Hope the Provigil helps you. I had been on it a few years ago and it

really helped me with severe fatigue!! Just remember to try it for

at least a few days, if it is wearing off in the afternoon let your

dr. know....possibly you need a second dose to help you get through

the day also.

I never felt worse or had it wear off..... maybe an afternoon dose,

then sleep at night will help you to feel better instead of having

the huge letdown.

Just a thought.

Hope you get as good results with it as I did.

>

>

> Anybody have this? I recently had a sleep study which

> found upper airway resistance syndrome (UARS). I also

> had an MSLT and I had hypersomnolence. My pulmo said

> that my sleepiness is pathologic. He says that my

> level of tiredness is much more significant than it

> should be for my degree of UARS. He thinks that I have

> CNS hypersomnolence. He wants me to take Provigil 200

> mg in the morning. I tried it today and after about

> two hours I felt a little better. But I had a huge

> letdown about 3:30 pm and have felt worse than ever

> since. I could have slept for the night at that point.

>

> He said that I'm as bad as somebody with apnea and

> narcolepsy even though I have neither. I did have one

> central apnea though.

>

>

>

> Mom to the two best kids in the world!

> http://www.caringbridge.org/visit/thomasandkatie

>

>

>

> __________________________________________

> Yahoo! DSL – Something to write home about.

> Just $16.99/mo. or less.

> dsl.yahoo.com

>

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--- larual2002 larual2002@...> wrote:

Just

> remember to try it for

> at least a few days, if it is wearing off in the

> afternoon let your

> dr. know....possibly you need a second dose to help

> you get through

> the day also.

>

> I never felt worse or had it wear off..... maybe an

> afternoon dose,

> then sleep at night will help you to feel better

> instead of having

> the huge letdown.

I think I need a higher dose, but... I couldn't sleep

that night even though I was so tired that I was

dizzy. I have to work so I can't feel worse even if it

means that I will eventually feel better. If I feel

worse, I'll have to miss work and we can't afford

that.

Mom to the two best kids in the world!

http://www.caringbridge.org/visit/thomasandkatie

__________________________________________

Yahoo! DSL – Something to write home about.

Just $16.99/mo. or less.

dsl.yahoo.com

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Sorry to hear you are having a difficult time with it and then

having to work...has to be miserable!! Hope you are able to adjust

to it. It just did wonders for me for the few years I was on it!

Hope you get good results too.

>

> I think I need a higher dose, but... I couldn't sleep

> that night even though I was so tired that I was

> dizzy. I have to work so I can't feel worse even if it

> means that I will eventually feel better. If I feel

> worse, I'll have to miss work and we can't afford

> that.

>

>

>

>

> Mom to the two best kids in the world!

> http://www.caringbridge.org/visit/thomasandkatie

>

>

>

> __________________________________________

> Yahoo! DSL – Something to write home about.

> Just $16.99/mo. or less.

> dsl.yahoo.com

>

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