Guest guest Posted March 23, 2005 Report Share Posted March 23, 2005 Hi Everyone, Thanks for all your advice regarding and Atypical cf. Anyway my daughter Aurora has had her Tenotomy, it was quite stressful. As Ive got a son with a rare condition Systemic Mastocytosis, part of it is they cant have anaethetics. Their is no test for my new daughter so it was very nerve wrecking, but she was ok. She gets her cast off next week. After all your advice I contacted Dr Ponseti who also recommended the boots. So contacted (what a lovely kind man). He made my daughter the boots and sent them very quickly to us in the UK. Im very pleased and impressed with the boots. They look fab and think it was worth every penny. Now its just days away for her getting the boots. What tips and hints do you have for the boots? Also what do you usually do in the hour off from the boots? Any hints and tips appreciated. Julz and Aurora 17wks. Quote Link to comment Share on other sites More sharing options...
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