Guest guest Posted June 24, 2003 Report Share Posted June 24, 2003 I couldn't think od what I need to say today. It is a great deal and then it is nothing. I had the CTscan yesterday and my surgeon was in surgery all day. I am hoping that he will call in the next day or so. In the mean time I am going todo more research on all the surgerys that may be presented to me. I love all my hugs that I got. I felt them all. I am accepting again that if I need the medicine to keep me from being miserable then I need to take it and not feel guilty. All I really wan t to say in this e-mail is thank you for all your higs and support. I know that if I didn't have this group I would be so lonely. This disease keeps one in the house a great deal. I love you all and will be in touch.........:)Paget Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2003 Report Share Posted June 25, 2003 --- I know that if I didn't have this group I would be so > lonely. This disease keeps one in the house a great deal. I love you all and will > be in touch.........:)Paget > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2005 Report Share Posted December 3, 2005 Hi all today they came to do all of the paper work for hospice, and explain every thing and how it all works, the nurse thinks that he has a UTI because of his confusion, she called the doctor and he said no to an antibiotic. I don't know how I feel about that I am thinking why not what do we have to loose. I an uneasy about this next stage He got up at 4pm and went back to bed at 8:30 the nurse told me not to force feed him or make him get up if he doesn't want to. Of course I have mixed feeling I still want to fight,yet I know what Duane's wishes were. This SUCKS sorry no other word fit. Hugs Jan thanks for listening Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2005 Report Share Posted December 3, 2005 Dear Jan, I am sorry that you are going through this right now, actually any time would not be a good time. The emotions that are running wild in your mind and the heaviness in your heart must be overwhelming for you. It is easier to say Okay and to agree with our loved ones when we discuss what our wishes are when we are healthy, but when it comes to fulfilling those wishes when they become sick is a whole different world. We wonder how we are going to live without them in our lives, how are we going to make it through one day without them, how will I be able to get out of bed once they are gone, will my life have any meaning once they are no longer with me? I can't imagine what you are going through but I want you to know that I am praying for you both and hope that Duane doesn't suffer. Do you know if Duane changed his mind and wants to fight now? Has he given you any indication that he doesn't want to give up? I believe if it were me in your situation that I too would have mixed feelings and want to keep on fighting even though I knew my beloved other half didn't want to. We just don't want to give up or in, it is in our nature to continue to fight for the lives of our loved ones. But if he is suffering than to continue to fight would be wrong. Why won't the doctor let Duane have any antibiotics? Why doesn't hospice want you to make him get up or to feed him? This would make me very confused and my feelings would be so mixed, especially if I wasn't allowed to let him have the basics(food and water) to live. I agree with you this disease sucks and so does what you are going through right now. I pray that God will stay close by and help you through these difficult times, and please know that I am here for you if you need anyone to talk to or just need a shoulder to cry on. I have two strong ones !!! Thinking of you and keeping you and Duane in my prayers. Hugs, Ann-Marie Original Message ----- From: Jan To: Sent: Sunday, December 04, 2005 2:06 AM Subject: today Hi all today they came to do all of the paper work for hospice, and explain every thing and how it all works, the nurse thinks that he has a UTI because of his confusion, she called the doctor and he said no to an antibiotic. I don't know how I feel about that I am thinking why not what do we have to loose. I an uneasy about this next stage He got up at 4pm and went back to bed at 8:30 the nurse told me not to force feed him or make him get up if he doesn't want to. Of course I have mixed feeling I still want to fight,yet I know what Duane's wishes were. This SUCKS sorry no other word fit. Hugs Jan thanks for listening Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2005 Report Share Posted December 4, 2005 Jan, I have never been very good with putting my feelings to words but i want you toknow that I have you and Duane in my prayers and I want you to know that i will do whatever I can to support you both. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2005 Report Share Posted December 4, 2005 Jan, my heart goes out to you. This must be a very difficult part of the journey. I would find it just awful. Shelby > Hi all > > today they came to do all of the paper work for hospice, and explain > every thing and how it all works, the nurse thinks that he has a UTI > because of his confusion, she called the doctor and he said no to an > antibiotic. > I don't know how I feel about that > I am thinking why not what do we have to loose. > I an uneasy about this next stage > He got up at 4pm and went back to bed at 8:30 the nurse told me not to > force feed him or make him get up if he doesn't want to. > Of course I have mixed feeling I still want to fight,yet I know what > Duane's wishes were. > This SUCKS > sorry no other word fit. > > Hugs Jan thanks for listening > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2005 Report Share Posted December 4, 2005 Jan My thoughts are with both of you. You need to do what makes you and Duane comfortable. It may mean that you shouldn't fight with Duane to get up or eat. Encouraging him as you have so lovingly done throughout this ordeal can't be wrong if that is what is best for both of you. Continue to stand up for what you feel is right - others don't know who you both are and how you deal with things. My support is here for you along with others on the list. Come to us when you need to and we will be here. Day or night, someone is almost always on-line. Hugs, laurie > Hi all > > today they came to do all of the paper work for hospice, and explain every > thing and how it all works, the nurse thinks that he has a UTI because of > his confusion, she called the doctor and he said no to an antibiotic. > I don't know how I feel about that > I am thinking why not what do we have to loose. > I an uneasy about this next stage > He got up at 4pm and went back to bed at 8:30 the nurse told me not to > force feed him or make him get up if he doesn't want to. > Of course I have mixed feeling I still want to fight,yet I know what > Duane's wishes were. > This SUCKS > sorry no other word fit. > > Hugs Jan thanks for listening > > > Quote Link to comment Share on other sites More sharing options...
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