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Re: Aspergers? GFCF

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My son (5 yrs, 7 mo) has an Asperger's dx and is getting very close to not

qualifying for his diagnosis thanks to a significant degree to the GFCF

diet. He has been on the diet for 13 months. I can't tell you exactly what

gains came from the gluten as we went GFCF on the same day. I do not that we

tested for food allergies and gluten did come up as an issue.

The gains experienced from this diet - GFCF and he has many other allergies,

e.g. soy, corn, beans, phenols, etc. - are extensive. Specifically

autistic-type behaviors increase when there are dietary infractions. Areas

where gains have been noted include:

- better balance, coordination

- MUCH less sensory issues including less of a need - in fact, I believe

this has been extinguished - to put things in his mouth, e.g. necks of

shirts, etc.

- significantly more socially reciprocal

- MUCH more calm; MUCH less irritable - no more MELTDOWNS

- less hyperactive

- much more attentive to tasks

- perseverative behaviors - including verbage - eliminated.

That list is probably most of the biggies although I know that there are

many other subtle ones. BIG FAT HUGE difference here.

Ann, mom to Tim, 5 yrs 7 mo Aspergers and right up against the fence with

his diagnosis...

>From: JoyceW10@...

>Reply-To: GFCFKids

>To: GFCFKids

>Subject: Aspergers? GFCF

>Date: Tue, 24 Apr 2001 07:12:52 EDT

>

>boy, am I stubborn or what, but I'm still wondering how many who are

>Aspergers found the GFCF helped?

>How long have you been on the GFCF?

>what did it help?

>thanks - still wondering what I can gain from the Gluten free; it's a big

>change for us; the casein free was pretty easy

>

>[private email always preferred as I very often miss notes in the digests]

>JoyceW, So Calif, divorced, work FT, Homeschool TWTM;

>5y7m old son, 33 wk preemie; HFA or AS/DSI/Receptive CAPD/Meltdowns

> Verbal/Reader; Good Eater; Feingold 6 mths; almost CF 1 mth; might do

>GF

>

>

>

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My son's been on the diet almost a year, and some days we think it's

working, other days we don't. This summer we are going to try a challenge

and see what happens.

Aspergers? GFCF

> boy, am I stubborn or what, but I'm still wondering how many who are

> Aspergers found the GFCF helped?

> How long have you been on the GFCF?

> what did it help?

> thanks - still wondering what I can gain from the Gluten free; it's a big

> change for us; the casein free was pretty easy

>

> [private email always preferred as I very often miss notes in the digests]

> JoyceW, So Calif, divorced, work FT, Homeschool TWTM;

> 5y7m old son, 33 wk preemie; HFA or AS/DSI/Receptive CAPD/Meltdowns

> Verbal/Reader; Good Eater; Feingold 6 mths; almost CF 1 mth; might do

GF

>

>

>

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Autism, PDD, Aspergers, ADD, ADHD, Sensory Integration Disorder... They're all

part of one big spectrum. GFCF will help most. My very high functioning

daughter said her head no longer felt " icky " when we removed gluten - she was

already off casein at the time. Big change.

K.

| boy, am I stubborn or what, but I'm still wondering how many who are

| Aspergers found the GFCF helped?

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Joyce,

My son was 9 and a half when we started this diet 2 years ago. He is an

extremely birght little aspie, but he used to make us crazy with his

tantrums and inflexibility, his relentless obessions, his lack of

awareness, etc. We noticed dramatic improvements within 2 days of going

casein free. A month later we instituted the much more difficult effort

of eliminating gluten also, and endured some real ups and downs with the

withdrawal. The inevitable infractions resulted in horrific regressions

and served to further convince us of the effectiveness of the GFCF diet.

We now have an " almost normal " eleven year old who is fully

mainstreamed, except for math, his weakness. OK, he's still socially

clueless, and anyone who knew what to look for could pick him out in a

crowd as being autistic, but I can't remember the last time we had a

tantrum, his eye contact is pretty good, he tries to socialize, he makes

great effort to please, his obessions have lightened up considerably,

and he is far more flexible and reasonable. This diet has saved his

life. It is hard, but I would do it if it were ten times harder. It's

worth it!

Best wishes-

in FL

>I'm still wondering how many who are Aspergers found the GFCF helped? How long

have you been on the GFCF? what did it help? thanks - still wondering

what I can gain from the Gluten free; it's a big change for us;

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We have one w/Autism and one w/Aspergers Syndrome...both are GF/Cf. The Aspy

also does not make most stomach acids or digestive enzymes

so we supplemrnt and he is gaining muscle and

weight for the first time and he is 17.

Miriam

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