Re: hearing loss/kids with same symptoms

[Guest guest]

Quetzie( 3 yrs in April- RSS) has been tested repeatedly for hearing within

the last 2-3 months. For the most part she hears most levels and tones of

sounds, acceptable for speech and language. But is having some difficulty with

certain tones in the left ear, and her tympanic readings keep coming back flat.

I don't know too much about it yet since we are only at the beginning, this

is new for us. I'll let you know more as I learn more

[Guest guest]

Hi Jen,

My son has hearing loss in the mid-range. He can't hear soft

constants like " ph " or " sh " so swish would sound like " swi " to him.

His hearing loss was diagnosed in the NICU at 2 weeks old. Braeden

has had hearing aides since he was 4 months/7 pounds. His small

ears haven't been a problem to fit with aides because the

audiologist makes molds of his ears. The hearing aides are attached

to the ear molds. So, now that he is 17 months/18 pounds he is still

using the same hearing aides but, the molds are adjusted

periodically for his growth. Now keeping the aides on are a whole

different issue. Braeden always grabs at them when they are on and

how can you sneak on hearing aides? It is getting a little better

though as he gets older and he realizes the benefit of having them

on and hearing new sounds.

I hope this helps.

Saundra, mom to Braeden (RSS) and Delaney 17 month old twins

[Guest guest]

My son, , is profoundly deaf in both ears. He has a nerve

stem hearing loss which means his hair cells are permanently

damaged. He received no benefit by the use of hearing aids and was

a candidate for a Cochlear Implant. He received his first implant

at age 2. It really didn't give him much sound benefit, so we opted

to reimplant him with a second Cochlear Implant. This one hasn't

gotten us far either. He does hear some sounds, but definately does

not hear language well enough at all. He's currently at a school

for the deaf which uses voice, sign, visuals - basically everything

to get the language into him. He's doing very well, but really

relies on the visual to understand what you're talking about (i.e.

lip reading, sign language). As far as I know, I have the only

child that has RSS and a Cochlear Implant. By the way, he's also a

triplet.

Hope this helps.

Cheryl

Mom to , , and (RSS) - all 6 years old