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December 19, 2005

I am so sorry that you are having such pain. I get severe cramping all

over the body, but haven't seen neuro since last round of tests.

Something that the doc might want to try is Lamictal for the movement

problems. It has worked well for me. Another thing to try might be

Quinine.

I have just discovered an article about Dystonia that it mtDNA

connected with a defect in complex I. Let me know if you have a defect

in complex I and had genetic tessting done. I will then send you the

article. I have not shown the article to my neuro, but since at least

4 members of the family with mito have this defect, I'm hoping that

this might give us some answers. One of the drugs used for dystonia in

sinamet, but there are also others. The neck is one of the most common

areas of the body affected by dystonia.

These are just some of my thoughts, since I am not a doctor.

laurie

> Hello Everyone!

>

> I have been lurking lately because I have been having serious pain

> issues with head and neck pain. My PT coverage ran out already for

> the yr because " hubbies " fiscal yr starts July 1. That means I am

> done until NEXT July! I have tried everything the docs and I can

> think of and I still am suffering several times a week to the point

> of lying in bed on an icepack.

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