OT: CLO/More scanning

[Guest guest]

Do you dilute the Knudsens juice. Gerber juice is not very strong at all.

It is meant for babies and is diluted. When I bought the Knudsen's juice, I

dilute 50/50 and my daughter was previously on regular juice. She drank it

fine mixed 50/50. It may be too strong without dilution?

Tamara

>

>Reply-To: GFCFKids

>To: GFCFKids >

>Subject: OT: CLO/More scanning

>Date: Tue, 24 Apr 2001 22:54:16 -0400

>

>I was so excited to get the liquid CLO in my son 3 days in a row but now he

>has increased his peripheral eye scanning at home and at school. We also

>switched from Gerber pear juice to Knudsens these past 3 days. The knudsens

>juice is much thicker(pulpier?) and I wonder if that makes a difference.

>Anyone else see stranger eye scanning than before CLO? Maybe we need to

>give it more time? Thanks

>

>

>

[Guest guest]

I was so excited to get the liquid CLO in my son 3 days in a row but now he has

increased his peripheral eye scanning at home and at school. We also switched

from Gerber pear juice to Knudsens these past 3 days. The knudsens juice is much

thicker(pulpier?) and I wonder if that makes a difference. Anyone else see

stranger eye scanning than before CLO? Maybe we need to give it more time?

Thanks

[Guest guest]

,

We got the same thing...CLO for 2 weeks now and she has done the weird

eye/spin around thing 3 or 4 times ( never did it before). I've got a

message into our DAN today. I'll let you know what's up if I get anything

concrete. Please let me know what you find too.

Thanks, in Chicago

OT: CLO/More scanning

>I was so excited to get the liquid CLO in my son 3 days in a row but now he

has increased his peripheral eye scanning at home and at school. We also

switched from Gerber pear juice to Knudsens these past 3 days. The knudsens

juice is much thicker(pulpier?) and I wonder if that makes a difference.

Anyone else see stranger eye scanning than before CLO? Maybe we need to give

it more time? Thanks

>

>

>

[Guest guest]

Are you supplementing EPO? Some feel that you need to do EPO for a few weeks

before starting the fish oil. My daughter goes downhill if I use too much fish

oil. She currently gets 9 1200 mg. EPO caps/day and 3 CLOs (kirkman) and 1

OmegaBrite fish oil (along with some other oils). Flax might work for some too.

K.

[Guest guest]

My son, who did have some visual stims before we started CLO,

developed several new ones right away. We felt it was an attempt to

get used to his new-and-improved vision. They did fade away over

about a month. However, his pupils remained excessively dialated.

When we added Evening Primrose oil to the supplements, his pupil size

normalized and has remained normal ever since.

BTW - the CLO is for the vitA, not the fatty acids, so fish body oil,

flax oil, etc., won't substitute for CLO in Dr. Megson's protocol.

I'm not saying they're not worth giving - we use CLO, flax oil, and

borage oil ourselves - just don't get confused about what you're

giving for what.

[Guest guest]

My son, who did have some visual stims before we started CLO,

developed several new ones right away. We felt it was an attempt to

get used to his new-and-improved vision. They did fade away over

about a month. However, his pupils remained excessively dialated.

When we added Evening Primrose oil to the supplements, his pupil size

normalized and has remained normal ever since.

BTW - the CLO is for the vitA, not the fatty acids, so fish body oil,

flax oil, etc., won't substitute for CLO in Dr. Megson's protocol.

I'm not saying they're not worth giving - we use CLO, flax oil, and

borage oil ourselves - just don't get confused about what you're

giving for what.

[Guest guest]

Just returned from Autism 2001...decided to really work on SI dysfunction to

see what results we get for the vision problem. Wonderful

conference!!!!First time to see Temple Grandin..she is great. Bought the Out

of sync child book,amazed how all the senses work together and the everyday

things we can be doing to help our children.I plan on turning our house into

a jungle gym(haven't told my husband this yet)

OT: CLO/More scanning

>

>

>>I was so excited to get the liquid CLO in my son 3 days in a row but now

he

>has increased his peripheral eye scanning at home and at school. We also

>switched from Gerber pear juice to Knudsens these past 3 days. The knudsens

>juice is much thicker(pulpier?) and I wonder if that makes a difference.

>Anyone else see stranger eye scanning than before CLO? Maybe we need to

give

>it more time? Thanks

>>

>>

>>

[Guest guest]

| My son, who did have some visual stims before we started CLO,

| developed several new ones right away. We felt it was an attempt to

| get used to his new-and-improved vision. They did fade away over

| about a month. However, his pupils remained excessively dialated.

| When we added Evening Primrose oil to the supplements, his pupil size

| normalized and has remained normal ever since.

| BTW - the CLO is for the vitA, not the fatty acids, so fish body oil,

| flax oil, etc., won't substitute for CLO in Dr. Megson's protocol.

| I'm not saying they're not worth giving - we use CLO, flax oil, and

| borage oil ourselves - just don't get confused about what you're

| giving for what.

This is fascinating - my daughter's pupils have gotten smaller (more normal)

with the addition of CLO - she'd already been on fish oil and EPO.

K.

[Guest guest]

| OK, I stopped CLO for 2 days and put in EPO...the eye stimming stopped.

| She also developed a facial tick on CLO (scarey) and w/o CLO it stopped.

| Today I did both oils and the facial tick came back. Soooo, is it a CLO

| problem OR is it that we need to do EPO for a few weeks before introducing

| CLO/ Help appreciated.

, Dr. Kane said do 6 weeks of EPO before adding in fish oil.

From a 10-14-99 Dr. Kane post...

" What are the right general fats to give a child with autistic spectrum

disorder? Begin with 6 capsules of Efamol Evening Prim Rose oil (squeeze out and

add to food (no taste really) and a few teaspoons of freshly ground organic

flax seed (Store in freezer!). After about 6 weeks you may add one capsule of

Efamol Omega Combination (non rancid fish oil) for a child who can swallow OR

two capsules Nordic Naturals DHA JR. (this contains full body fish oil that can

be chewed-tastes like strawberries-ok, the reality is it tastes like

strawberries... and then, and then... well you get the picture it has an

aftertaste that some children are fine with and some are not; I tend

to use the adult ProDHA from Nordic Naturals or Tyler Encapsulations Eskimo more

often with children; the majority of children though do accept the DHA/EPA

Junior strawberries and all).

COMPLETELY remove hydrogenated fats from your child's diet-margarine,processed

oils, hydrogenated fats, Crisco, Cool Whip, commercial salad dressing-it all has

to go. Nothing will shut your child's immune system down faster than margarine.

Oils to avoid that contain very long chain fats include canola oil, peanut oil

and peanut butter and mustard. These fatty acids irritate the nervous system and

the liver.

Use liberal amounts of pure oils such as Omega Nutrition or Flora

in your child's diet adding 1 to 2 Tablespoons of Sesame, Safflower,Sunflower,

or Walnut oil per MEAL. Just mix this good oil right into their food. If your

child loves french fries then fry organic frozen cut fries in Omega Nutrition

coconut butter. Use organic, raw ground seeds and nuts in your child's diet as

they are extremely rich in minerals and lipids. Grind dry in the blender and add

to homemade (hopefully gluten free)

muffins, pancakes, cookies, meatloaf, and so forth. "