Facing Reality

[Guest guest]

Today my husband and I had to make a really difficult decision, but

we think it is going to be best for Max and his education.

Max has not made it through a full day of school for the two weeks

since he was in the hospital. He is nauseous, throwing up, weak, in

pain or something. Today he mistakenly took a full pill of Klonopin

and was so out of it that he had to come home almost as soon as he

got to school. He slept for hours.

Because of all the absences and the anxiety he has because of

missing so much school, we decided to implement an option that we,

fortunately, had put into his IEP. Max is going to go to school for

only two hours each morning, or four class periods, whichever is

longer, and then have home instruction in the afternoons when school

gets out for the day. At least this way Max won't feel overwhelmed

by thinking he has to make it through 7 hours and even if he does

not feel well, he can know that he only has to go for a couple and

then he can go home.

This was such a hard realization to come to. It hurts, too. We

have to face the fact that we have a chronically ill child who just

cannot cope for now. We've pushed and pushed, but it did not work,

so we must face up to the truth. We can only hope that in time he

will become stronger and be able to function more independently.

As an aside, I have contacted Max's GI to ask him if he thinks Max

could have this H Pylori infection again. He's had it a few times

and been quite sick and in pain from it. He has all the signs.

I'll let you know what he says.

I just keep taking life one day, sometimes one hour, at a time. Oh -

I DO have GOOD news! The budget passed in the town where I teach,

so it looks like I will have a full-time teaching job next year!

Jodi Z.

[Guest guest]

Jodi,

Given the circumstances, I think you guys have come up with a

wonderful idea for Max's education. It seems like it will take a

load of pressure off of him, and you'll have peace knowing he's home

if he needs the rest instead of struggling to get thru a day of

school. It sounds like the perfect compromise. I'm sorry to hear

of how sick he's been, but he's a strong kid and will make it thru.

Cheryl

[Guest guest]

Hi Jodi,

We've been very busy here and it's taken me a while to get through

all of the posts. We're very sorry that you have to go through all

of this, especially Max, man what a tough kid he is!! From all of

you posts his personality sounds a lot like my God son who is now 23

yrs and he's a great kid also. What a great idea to have the 4

period schooling and afternoon instruction at home. I hope it all

goes well and that it takes a huge weight off of Max's shoulders.

Hugs to all

Leah, mom to Ash 9 and Olivia 4.5 RSS

> Today my husband and I had to make a really difficult decision,

but

> we think it is going to be best for Max and his education.

>

> Max has not made it through a full day of school for the two weeks

> since he was in the hospital. He is nauseous, throwing up, weak,

in

> pain or something. Today he mistakenly took a full pill of

Klonopin

> and was so out of it that he had to come home almost as soon as he

> got to school. He slept for hours.

>

> Because of all the absences and the anxiety he has because of

> missing so much school, we decided to implement an option that we,

> fortunately, had put into his IEP. Max is going to go to school

for

> only two hours each morning, or four class periods, whichever is

> longer, and then have home instruction in the afternoons when

school

> gets out for the day. At least this way Max won't feel

overwhelmed

> by thinking he has to make it through 7 hours and even if he does

> not feel well, he can know that he only has to go for a couple and

> then he can go home.

>

> This was such a hard realization to come to. It hurts, too. We

> have to face the fact that we have a chronically ill child who

just

> cannot cope for now. We've pushed and pushed, but it did not

work,

> so we must face up to the truth. We can only hope that in time he

> will become stronger and be able to function more independently.

>

> As an aside, I have contacted Max's GI to ask him if he thinks Max

> could have this H Pylori infection again. He's had it a few times

> and been quite sick and in pain from it. He has all the signs.

> I'll let you know what he says.

>

> I just keep taking life one day, sometimes one hour, at a time.

Oh -

> I DO have GOOD news! The budget passed in the town where I

teach,

> so it looks like I will have a full-time teaching job next year!

>

> Jodi Z.