na

[Guest guest]

Hi na~

I too had horrible gas! No constipation tho. Some nights the gas hurt so

much, I would wake up from sleeping in tears. My OB told me that GasX was ok to

take, and it worked like a charm!! The morning sickness and gas seemed to

pass around week 12-14. Good Luck! I feel your pain............ LOL

~

[Guest guest]

Hi,

Lynne Levitsky at Mass General Hospital is very familiar with RSS

kids. She is head of pediatric endocrinology there. She worked with

Crawford who was rumored to have a lot of the RSS kids in MA

but he retired recently. I took my daughter Jillie to see her last

year and I loved her. Very thorough and knowledgable. Great with

kids. If I wasn't seeing Dr " H " in NYC, Dr Levitsky would be the one

I would use for my girl. How old is na? She is only slightly

bigger than my daughter.

Best of luck,

> I am looking for doctor in the Boston area that specializes in

> Russel -Silver syndrome. My daughter has been seen by genetics

and

> said this is what she has however her primary isn't convinced. She

> has many of the characteristics. She was 5lbs and birth feed by

> suringe, reflux that would turn heads, she has asysmetic her right

> side is bigger than left side from neck down. She is loving and

> beautiful.She has never been on a chart except her own and fell

off

> that but now back on it. She had her tonsils out which helped her

> gain 2lbs but now we are back to not eating much. She is 33inches

and

> 24lbs. I want to see an endocrinologist around us. There are so

many

> but when i call they say we are not familar with russel silver but

we

> can see her. i don't want to drag her from doctor to doctor unless

> need be I would rather get a recomendation from some one who has

> been there. We called New York and will eventually go there but

waant

> things check out now because what I read is the quicker we help

her

> the better off in the long run. If any one has suggetions please

let

> us know. Thanks