Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 I too have had arrythmias most of my adult life. i have always been told they are not life threatening. They seem undercontrol at times and go crazy at others.I did take a beta blocker at one time, but it made my pulse go so low I could hardly function. My pulse is quite low when it is not racing. since the death of my nephew last month, I have had 4 very bad episodes of racing, in which I thought I would have to go to the hospital. My dr. wants me to take toporol. I know some of you take this medicatio. i would like to know if you have had any side effects, if it works well for you, how much do you take and any other info you can give.i am very nervous to start the meds. I know the added stress is causing alot of this, but it won't be leaving anytime soon.Thanks Carmen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 > .......toporol. I know some of you take this medicatio. i would like > to know > if you have had any side effects, if it works well for you, how much > do you take > and any other info you can give.i am very nervous to start the meds. > I know the added stress > is causing alot of this, but it won't be leaving anytime soon.Thanks > Carmen > > Hi, Carmen I take Toprol XL 50 mg a day for hypertension. I have been observing closely, and I do not think I have any bad side-effects, and I tried to check to be sure it was not the list of meds not good for mito patients. BUT, I have to tell you that my pulse always has gone from a little high to middle high, and the Toprol HAS lowered it somewhat. Let me give you numbers - at its lowest, my resting pulse could be in the middle 80's, and now it might be in the middle 70's. I do not know what effect Toprol XL could have on your pulse, but a few additional thoughts: make sure you get the XL which is the extended release, which will keep you from getting too much at once; understand that once you are on it you must taper off it, you can't stop it all at once (part of the drug info given by the pharmacy, etc, as well as the doctor, I am sure); finally, if it makes sense to you, I would suggest asking for a very low dose first, and see what happens. My doctor started me on 25 mg, and moved up to 50mg after a month, while tapering me off another antihypertension med. But, hypertension is a different problem than a racing pulse and arrythmia- please keep in mind I am only sharing my experience as I take it for hypertension. I was very sorry to hear about the death of your nephew last month, and I hope you sister and your family will find peace eventually. At that time others gave some good support resources and I hope you will find help in some of them. Be patient with yourself and have confidence in yourself that you can regain control and find meaning in life again. Know you have people wishing you well. Sunny > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 I had horrible side effects from Toporal XL and had to stop it. I did not have terrible high blood pressure, so I don't know if they may have also had something to do with it, but after telling my cardiologist about the side effects, he told me that toporal was not for me. I know some with mito have had problems with extended release medication in general because a lot of us don't metabolize meds at the same rate as non-mito folks do so we don't get the gradual release of the med like we should. z39z@... wrote: >> .......toporol. I know some of you take this medicatio. i would like >>to know >>if you have had any side effects, if it works well for you, how much >>do you take >> and any other info you can give.i am very nervous to start the meds. >>I know the added stress >> is causing alot of this, but it won't be leaving anytime soon.Thanks >> Carmen >> >> >> >> >Hi, Carmen > >I take Toprol XL 50 mg a day for hypertension. I have been observing >closely, and I do not think I have any bad side-effects, and I tried to >check to be sure it was not the list of meds not good for mito >patients. BUT, I have to tell you that my pulse always has gone from a >little high to middle high, and the Toprol HAS lowered it somewhat. >Let me give you numbers - at its lowest, my resting pulse could be in >the middle 80's, and now it might be in the middle 70's. I do not >know what effect Toprol XL could have on your pulse, but a few >additional thoughts: make sure you get the XL which is the extended >release, which will keep you from getting too much at once; understand >that once you are on it you must taper off it, you can't stop it all at >once (part of the drug info given by the pharmacy, etc, as well as the >doctor, I am sure); finally, if it makes sense to you, I would suggest >asking for a very low dose first, and see what happens. My doctor >started me on 25 mg, and moved up to 50mg after a month, while tapering >me off another antihypertension med. But, hypertension is a different >problem than a racing pulse and arrythmia- please keep in mind I am >only sharing my experience as I take it for hypertension. > >I was very sorry to hear about the death of your nephew last month, and >I hope you sister and your family will find peace eventually. At that >time others gave some good support resources and I hope you will find >help in some of them. Be patient with yourself and have confidence in >yourself that you can regain control and find meaning in life again. >Know you have people wishing you well. > >Sunny > > > > > >> >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 > I had horrible side effects from Toporal XL and had to stop it. I did > not have terrible high blood pressure, so I don't know if they may > have > also had something to do with it, but after telling my cardiologist > about the side effects, he told me that toporal was not for me. I > know > some with mito have had problems with extended release medication in > general because a lot of us don't metabolize meds at the same rate as > non-mito folks do so we don't get the gradual release of the med like > we > should. > > Hi, Thank you for the comment on extended release medication. That is a good thing to keep in mind when looking at alternatives. I have been leary of beta blockers, and was pleasantly surprised that the Toprol seemed to agree with me. I had been on a different group of meds 5 years ago, including another beta blocker, that did not agree with me, so I was really worried. If it is not too much trouble and you still remember the details (and yes, we do try to forget, don't we sometimes,) could you tell me what your side-effects were? Information about possibilities is always good to have. And, I do NOT automatically get the side effects just because I know about them, much as some doctors think patients do that. lol Regards Sunny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 Carmen, I've been on toprol xl - 50 mg daily for well over a year now for tachycardia episodes. I have not had any negative side effects to the drug. My blood pressure was normal prior to starting toprol and the drug has not affected it. My doc told me I may continue to experience small/milder episodes and I have. They usually happen occasionally and last only a few minutes and are nothing like what I was living with. He also told me that the drug may not work forever. Given the frequency and severity of the episodes I was having and the residual weakness/exhaustion I dealt with afterwards, this med has been a blessing for me. If you make the decision to try it I hope you have similar good results. So very sorry about your nephew. Hugs, Marie _____ From: [mailto: ] On Behalf Of goodnessriver Sent: Wednesday, January 04, 2006 3:52 PM To: Subject: arrythmias and toporol I too have had arrythmias most of my adult life. i have always been told they are not life threatening. They seem undercontrol at times and go crazy at others.I did take a beta blocker at one time, but it made my pulse go so low I could hardly function. My pulse is quite low when it is not racing. since the death of my nephew last month, I have had 4 very bad episodes of racing, in which I thought I would have to go to the hospital. My dr. wants me to take toporol. I know some of you take this medicatio. i would like to know if you have had any side effects, if it works well for you, how much do you take and any other info you can give.i am very nervous to start the meds. I know the added stress is causing alot of this, but it won't be leaving anytime soon.Thanks Carmen Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 Sunny, I would love to, but just as you mentioned, I have forgotten. There isn't enough memory left in the old brain to remember things like that. Sorry. I even had a word file until recently with the side effects listed and deleted it over the Christmas holiday because I was trying to free up hard drive space. I can remember I will let you know, but I wouldn't hold my breath if I were you. :-D z39z@... wrote: >>I had horrible side effects from Toporal XL and had to stop it. I did >> not have terrible high blood pressure, so I don't know if they may >>have >> also had something to do with it, but after telling my cardiologist >> about the side effects, he told me that toporal was not for me. I >>know >> some with mito have had problems with extended release medication in >> general because a lot of us don't metabolize meds at the same rate as >> non-mito folks do so we don't get the gradual release of the med like >>we >> should. >> >> >> >> > > >Hi, > >Thank you for the comment on extended release medication. That is a >good thing to keep in mind when looking at alternatives. I have been >leary of beta blockers, and was pleasantly surprised that the Toprol >seemed to agree with me. I had been on a different group of meds 5 >years ago, including another beta blocker, that did not agree with me, >so I was really worried. If it is not too much trouble and you still >remember the details (and yes, we do try to forget, don't we >sometimes,) could you tell me what your side-effects were? Information >about possibilities is always good to have. And, I do NOT >automatically get the side effects just because I know about them, much >as some doctors think patients do that. lol > >Regards > >Sunny > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 Hi, Thanks for the response. You are always so helpful in sharing info, I am sure you would if you remembered. Thanks for all the input you give here. Regards Quote Link to comment Share on other sites More sharing options...
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