Re: neuro update

[Guest guest]

Hi Laurie! I will certainly hold you in my thoughts and keep you in my

prayers. Please tell me more about the new med he prescribed for you and the

cramping due to position. As yo know I have an interest in this. By the way my

internist prescribed valium for me for the times when my muscles seize

(different than the cramps) Thanks. Vivian

[Guest guest]

this happens with my feet and toes. But it is unlike the seizures I get in

my large muscle groups....this seems to happen usually with climate

changes/temp changes.....it lasts several days and I am then weak in those

muscles. The

toes and feet are cramps like a charlie horse....am I making sense?

I hope the new med helps and you get some relief! Vivian

[Guest guest]

Vivian

Thanks for your thoughts and prayers. Baclofen is considered a muscle

relaxent, but it doesn't make you sleepy and works more specifically

with the calcium mechanism in the muscle.

Your muscles may be like mind from what you describe. If I turn my

foot inward, so sole is pointing toward other foot, then the foot and

big toe twist and stay that way. I can stop it most times, but it will

return if I move at all. The same thing happens in my theighs and

hands. Once my hands twist, then I may as well hang up whatever I am

doing as they will continue to return with movement. I can force them

into a normal position, but they won't stay that way unless I keep

them straight in some way. This can last for several hours. The fact

that they can be triggered, along with inability to relax them hints

at dystonia. I found an article that documents adult on-set dystonia

that is connected with a specific complex I gene defect. Our family

has this. He is going to look at it in more depth. The article was

only the abstract, so he is going to get the entire article and talke

with some other docs. I hope you can understand what I mean - I need

my body parts to explain, as I am one of those people who talk with

their hands.

laurie

> Hi Laurie! I will certainly hold you in my thoughts and keep you in my

> prayers. Please tell me more about the new med he prescribed for you and

> the

> cramping due to position. As yo know I have an interest in this. By the

> way my

> internist prescribed valium for me for the times when my muscles seize

> (different than the cramps) Thanks. Vivian

>

>

>

[Guest guest]

Vivian

I think I understand you. I get cramps like charlie horses, but the

others put my body in wierd positions that I can't duplicate

volunteerily. There was a day that I thought a cramp was a cramp, but

now know there are many different kinds. I hope the valium works for

you.

laurie

> this happens with my feet and toes. But it is unlike the seizures I get in

> my large muscle groups....this seems to happen usually with climate

> changes/temp changes.....it lasts several days and I am then weak in those

> muscles. The

> toes and feet are cramps like a charlie horse....am I making sense?

> I hope the new med helps and you get some relief! Vivian

>

>

>