optic atrophy

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MQ - Just to let you know if you don't already that you can search for past

responses also - I did a quick search for Optic Atrophy and came up with

responses. " Search More " will keep looking back into the archives of thousands

of responses. It takes time but is worth it. However if you are looking for a

clearcut progression rate you may not have much luck as symptoms and progression

rates vary from person to person.

ps. I also have severe hearing loss, some peripheral neuropathy and ataxia, and

retinal pigmentation . I have MELAS but some symptoms are shared across the

board for different mito subtypes. pamela

Re: please help

I have never been told that I have optic atrophy, but that my retinas aRE

DEGENERATING. I also have right sided deafness. My retinal specialist doesn't

know if my retina degeneration is related to the mito or not because he doesn't

have anyone to compare me to.

medical_questionmark@...> wrote:

Hi Pamela,

OK, I will ask a specific question. Do any of you have optic nerve atrophy.

I was diagnosed with this condition in 1995, but it is only now that my vision

is declining very fast. Besides, this I have hearng loss, ataxia and peripheral

neuropathy.

I want to know how long will it take for my vision to be lost completely or

how long before I can no longer read. I am very depressed

Can alternative treatment like acupuncture help my vision?

Is stem cell treatment an option in mitochondrial disorders.

Since my doctor says that I am suffering from an unknown mito disease, many

of you may not have similar symptoms.

Regards

MQ

pamelama33 pamelama33@...> wrote: Hi MQ - I am fairly new but this

forum is a wealth of information - ask specific questions and you will get

responses. If you want a doctor to respond you can email the Ask the Mito Doc

on the UMDF site, at www.umdf.org/MitoDoc.aspx pamela

----- Original Message -----

My neurologist suspects that I am suffering from an unknown mitochondrial

disease. I am very depressed and worried. Can anyone provide me with the contact

address (preferably email address ), of some experts in mitochondrial disorders.

Regards,

MQ