List of 27 Parents support groups for Clubfoot in 15 countries

[Guest guest]

Over the past 6 years, I have been keeping and updating a list of

the different parents support groups for Clubfoot that exist on the

internet. The following is the worldwide list of those that I am

aware of as of April 1, 2005. My assumption is that there are more

groups than these. If you are aware of others please let me know so

they can be added. Please advise me if you know of other support

groups here on this site or at martinegbert@...

Parents Internet Support Groups for Clubfoot as of April 1, 2005

This list is divided by region or country of origin and includes the

Group Names, number of Members, the date created, the Web Site

Address, and the number of messages or hits.

Some Library and Information Sites

Dr. Ponseti's web site at the U of Iowa, started approx. Jan-98

http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html

Trevillian's Ponseti method links library site, started in the

Summer 03 http://members.tripod.com/ponseti_links-ivil/

Parentsplace Clubfoot Library of Information - approx 2001 - This

library site has been lost as Parentsplace changed over to the

tripod system. If anyone knows how to bring it back that would be

appreciated.

http://pages.ivillage.com/clubfootboard/ 146 web sites

This site has a built in 24 - language translation system

North American / International Parents Support Web Sites - 3,500

clubfeet in the US per year, 350 in Canada, 2,300 in Mexico per year

Hodsells Clubfoot Board Members Site, 33 original members,

started in 1998?

http://www.angelfire.com/on4/clubfoot/clubfoot.html

Clubfoot at Parentsplace - over 500 members, started in Dec-97

http://messageboards.ivillage.com/iv-ppclubfoot More than 33,604

messages but there has not been a site message counter for a few

years

Clubfoot at Yahoo - 692 members, started 27-Oct-98

http://groups.yahoo.com/group/clubfoot/ 18,969 messages

Ponseti-Nosurgery4clubfoot at Yahoo - 697 members,started 29-Dec-

99 http://groups.yahoo.com/group/nosurgery4clubfoot/ 33,604 messages

Adults w/Clubfoot at Yahoo - 316 members, started 3-Jun-00

http://groups.yahoo.com/group/Thefeetclub/ 2,125 messages

French Physiotherapy at Yahoo - 148 members, started 6-Oct-00

http://groups.yahoo.com/group/clubfoot_French_method/ 172 messages

Inter. Rare Disease Support Network - 218 members, started 17-Apr-01

http://health.groups.yahoo.com/group/Club_Foot/ 398 messages

Clubfoot Canada - 87 members, started 3-Oct-02

http://health.groups.yahoo.com/group/clubfootcanada/ 250 messages

Surgical Clubfooters - 25 members, started 10-Mar-05

http://health.groups.yahoo.com/group/surgical_clubfooters/ 110

messages

United Kingdom, Australia - 1,000 clubfeet in the UK and Australia

per year

STEPS # members unknown, started in 1987

http://www.steps-charity.org.uk/ctev_discuss_frm.htm

TIPS 1-Oct-98

http://home.vicnet.net.au/~tips/index.htm# 68,000 hits

Talipes UK at Yahoo - 178 members, started 6-Feb-00

http://groups.yahoo.com/group/talipesuk/ 1,673 messages

Australian Talipes at Yahoo - 43 members, started 20-May-02

http://au.groups.yahoo.com/group/AustFoot/ 338 messages

France - 760 clubfeet in France /year

Pied Bot Free - at least 47 members, started Jun-01

http://piedbot.free.fr/ 35,912 hits

Hospital Debrousse, Lyon - Ponseti Specific, started Jan-03

http://ifrance.com/piedbot/ 37 messages

Germany - 740 clubfeet in Germany/year

Klumpfuss-Info - at least 100 members, started Oct-01

http://www.klumpfuss-info.de/ more than 91,322 hits

Klumpfusskinder appx 100 members, started Fall 2000

http://www.klumpfusskinder.de/ 59,682 hits (as of 7-2003)

Klumpfuss - Ein Erfahrungsbericht

http://home.arcor.de/hhallbauer/

Switzerland - 80 clubfeet in Switzerland / year

Klumpfuss-Info (Switzerland) - Ponseti specific, started Sep-03

http://www.klumpfuss-info.ch

Netherlands - 204 clubfeet in Netherlands / year

Vereniging Oudergroep Klompvoetjes - 89 members, started in 1984

http://www.klompvoet.nl/

Finland - 62 clubfeet in Finland / year

kampurajalka-subscribe@... - 92 members, started in Nov 2001

http://health.groups.yahoo.com/group/Kampurajalka/ 2,168 messages

Brazil - 3,060 clubfeet in Brazil / year

Pe Torto - Dr. Noguira's Ponseti Specific

http://www.petorto.com.br/

Portugal - 118 clubfeet in Portugal / year

Pe Boto Ponseti Specific

http://www.peboto.grupos.com.pt/

South Africa - 1,000 clubfeet in S. Africa / year

karen@... - Moss, started in the Fall 2003

http://www.clubfoot.co.za

Israel - 132 clubfeet in Israel / year

Truly Clubfoot, Truly Yours - Oded & Idit, started late 2003

http://truly_clubfoot.tripod.com/

Clubfoot Israel at Yahoo - 15 members, started 1-Oct-03

http://health.groups.yahoo.com/group/clubfoot_israel/ 62messages

Sweden - 89 clubfeet in Sweden / year

Wiggo Wikbergs lilla vrå, started in 2004

http://w1.652.telia.com/~u65203641/baby/indexa.htm

Bulgaria - 72 clubfeet in Bulgaria / year

The Nikolova Family, started in 2004

http://equinovarus.hit.bg/

I hope that this information is of help and can be added to by

finding the other parents support groups that may exist.

and (born March 17, 1999)

[Guest guest]

Thanks . You're a wealth of information. Have read your other posts, but

never replied. Thank you for info and updates you submit. Checked out the links

for other parent groups in Australia, TIPS contact link doesn't seem to be

working, but have made contact with the AUSTFEET people.

Cheers

Sharon

Charlie 28/12/04

Billy 20/4/04 RCF DBB nights only

Melbourne, Australia.

Egbert martinegbert@...> wrote:

Over the past 6 years, I have been keeping and updating a list of

the different parents support groups for Clubfoot that exist on the

internet. The following is the worldwide list of those that I am

aware of as of April 1, 2005. My assumption is that there are more

groups than these. If you are aware of others please let me know so

they can be added. Please advise me if you know of other support

groups here on this site or at martinegbert@...

Parents Internet Support Groups for Clubfoot as of April 1, 2005

This list is divided by region or country of origin and includes the

Group Names, number of Members, the date created, the Web Site

Address, and the number of messages or hits.

Some Library and Information Sites

Dr. Ponseti's web site at the U of Iowa, started approx. Jan-98

http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html

Trevillian's Ponseti method links library site, started in the

Summer 03 http://members.tripod.com/ponseti_links-ivil/

Parentsplace Clubfoot Library of Information - approx 2001 - This

library site has been lost as Parentsplace changed over to the

tripod system. If anyone knows how to bring it back that would be

appreciated.

http://pages.ivillage.com/clubfootboard/ 146 web sites

This site has a built in 24 - language translation system

North American / International Parents Support Web Sites - 3,500

clubfeet in the US per year, 350 in Canada, 2,300 in Mexico per year

Hodsells Clubfoot Board Members Site, 33 original members,

started in 1998?

http://www.angelfire.com/on4/clubfoot/clubfoot.html

Clubfoot at Parentsplace - over 500 members, started in Dec-97

http://messageboards.ivillage.com/iv-ppclubfoot More than 33,604

messages but there has not been a site message counter for a few

years

Clubfoot at Yahoo - 692 members, started 27-Oct-98

http://groups.yahoo.com/group/clubfoot/ 18,969 messages

Ponseti-Nosurgery4clubfoot at Yahoo - 697 members,started 29-Dec-

99 http://groups.yahoo.com/group/nosurgery4clubfoot/ 33,604 messages

Adults w/Clubfoot at Yahoo - 316 members, started 3-Jun-00

http://groups.yahoo.com/group/Thefeetclub/ 2,125 messages

French Physiotherapy at Yahoo - 148 members, started 6-Oct-00

http://groups.yahoo.com/group/clubfoot_French_method/ 172 messages

Inter. Rare Disease Support Network - 218 members, started 17-Apr-01

http://health.groups.yahoo.com/group/Club_Foot/ 398 messages

Clubfoot Canada - 87 members, started 3-Oct-02

http://health.groups.yahoo.com/group/clubfootcanada/ 250 messages

Surgical Clubfooters - 25 members, started 10-Mar-05

http://health.groups.yahoo.com/group/surgical_clubfooters/ 110

messages

United Kingdom, Australia - 1,000 clubfeet in the UK and Australia

per year

STEPS # members unknown, started in 1987

http://www.steps-charity.org.uk/ctev_discuss_frm.htm

TIPS 1-Oct-98

http://home.vicnet.net.au/~tips/index.htm# 68,000 hits

Talipes UK at Yahoo - 178 members, started 6-Feb-00

http://groups.yahoo.com/group/talipesuk/ 1,673 messages

Australian Talipes at Yahoo - 43 members, started 20-May-02

http://au.groups.yahoo.com/group/AustFoot/ 338 messages

France - 760 clubfeet in France /year

Pied Bot Free - at least 47 members, started Jun-01

http://piedbot.free.fr/ 35,912 hits

Hospital Debrousse, Lyon - Ponseti Specific, started Jan-03

http://ifrance.com/piedbot/ 37 messages

Germany - 740 clubfeet in Germany/year

Klumpfuss-Info - at least 100 members, started Oct-01

http://www.klumpfuss-info.de/ more than 91,322 hits

Klumpfusskinder appx 100 members, started Fall 2000

http://www.klumpfusskinder.de/ 59,682 hits (as of 7-2003)

Klumpfuss - Ein Erfahrungsbericht

http://home.arcor.de/hhallbauer/

Switzerland - 80 clubfeet in Switzerland / year

Klumpfuss-Info (Switzerland) - Ponseti specific, started Sep-03

http://www.klumpfuss-info.ch

Netherlands - 204 clubfeet in Netherlands / year

Vereniging Oudergroep Klompvoetjes - 89 members, started in 1984

http://www.klompvoet.nl/

Finland - 62 clubfeet in Finland / year

kampurajalka-subscribe@... - 92 members, started in Nov 2001

http://health.groups.yahoo.com/group/Kampurajalka/ 2,168 messages

Brazil - 3,060 clubfeet in Brazil / year

Pe Torto - Dr. Noguira's Ponseti Specific

http://www.petorto.com.br/

Portugal - 118 clubfeet in Portugal / year

Pe Boto Ponseti Specific

http://www.peboto.grupos.com.pt/

South Africa - 1,000 clubfeet in S. Africa / year

karen@... - Moss, started in the Fall 2003

http://www.clubfoot.co.za

Israel - 132 clubfeet in Israel / year

Truly Clubfoot, Truly Yours - Oded & Idit, started late 2003

http://truly_clubfoot.tripod.com/

Clubfoot Israel at Yahoo - 15 members, started 1-Oct-03

http://health.groups.yahoo.com/group/clubfoot_israel/ 62messages

Sweden - 89 clubfeet in Sweden / year

Wiggo Wikbergs lilla vrå, started in 2004

http://w1.652.telia.com/~u65203641/baby/indexa.htm

Bulgaria - 72 clubfeet in Bulgaria / year

The Nikolova Family, started in 2004

http://equinovarus.hit.bg/

I hope that this information is of help and can be added to by

finding the other parents support groups that may exist.

and (born March 17, 1999)

[Guest guest]

I had missed at least two other parents support groups so far. They

are:

United Kingdom

Clubfoot.co.uk, 303 members, starting approx, 2000

http://www.clubfoot.co.uk/

Spain, 400 children affected in Spain / year

Pie Zambo, Ponseti specific, Cristina and started approx 2003?

http://www.piezambo.com/

52,193 hits

>

> Over the past 6 years, I have been keeping and updating a list of

> the different parents support groups for Clubfoot that exist on

the

> internet. The following is the worldwide list of those that I am

> aware of as of April 1, 2005. My assumption is that there are

more

> groups than these. If you are aware of others please let me know

so

> they can be added. Please advise me if you know of other support

> groups here on this site or at martinegbert@e...

>

> Parents Internet Support Groups for Clubfoot as of April 1, 2005

>

> This list is divided by region or country of origin and includes

the

> Group Names, number of Members, the date created, the Web Site

> Address, and the number of messages or hits.

>

>

> Some Library and Information Sites

>

> Dr. Ponseti's web site at the U of Iowa, started approx. Jan-98

>

http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html

>

> Trevillian's Ponseti method links library site, started in

the

> Summer 03 http://members.tripod.com/ponseti_links-ivil/

>

> Parentsplace Clubfoot Library of Information - approx 2001 - This

> library site has been lost as Parentsplace changed over to the

> tripod system. If anyone knows how to bring it back that would be

> appreciated.

> http://pages.ivillage.com/clubfootboard/ 146 web sites

> This site has a built in 24 - language translation system

>

>

> North American / International Parents Support Web Sites - 3,500

> clubfeet in the US per year, 350 in Canada, 2,300 in Mexico per

year

>

> Hodsells Clubfoot Board Members Site, 33 original members,

> started in 1998?

> http://www.angelfire.com/on4/clubfoot/clubfoot.html

>

> Clubfoot at Parentsplace - over 500 members, started in Dec-97

> http://messageboards.ivillage.com/iv-ppclubfoot More than 33,604

> messages but there has not been a site message counter for a few

> years

>

> Clubfoot at Yahoo - 692 members, started 27-Oct-98

> http://groups.yahoo.com/group/clubfoot/ 18,969 messages

>

> Ponseti-Nosurgery4clubfoot at Yahoo - 697 members,started 29-Dec-

> 99 http://groups.yahoo.com/group/nosurgery4clubfoot/ 33,604

messages

>

> Adults w/Clubfoot at Yahoo - 316 members, started 3-Jun-00

> http://groups.yahoo.com/group/Thefeetclub/ 2,125 messages

>

> French Physiotherapy at Yahoo - 148 members, started 6-Oct-00

> http://groups.yahoo.com/group/clubfoot_French_method/ 172 messages

>

> Inter. Rare Disease Support Network - 218 members, started 17-Apr-

01

> http://health.groups.yahoo.com/group/Club_Foot/ 398 messages

>

> Clubfoot Canada - 87 members, started 3-Oct-02

> http://health.groups.yahoo.com/group/clubfootcanada/ 250 messages

>

> Surgical Clubfooters - 25 members, started 10-Mar-05

> http://health.groups.yahoo.com/group/surgical_clubfooters/ 110

> messages

>

>

> United Kingdom, Australia - 1,000 clubfeet in the UK and Australia

> per year

>

> STEPS # members unknown, started in 1987

> http://www.steps-charity.org.uk/ctev_discuss_frm.htm

>

> TIPS 1-Oct-98

> http://home.vicnet.net.au/~tips/index.htm# 68,000 hits

>

> Talipes UK at Yahoo - 178 members, started 6-Feb-00

> http://groups.yahoo.com/group/talipesuk/ 1,673 messages

>

> Australian Talipes at Yahoo - 43 members, started 20-May-02

> http://au.groups.yahoo.com/group/AustFoot/ 338 messages

>

>

> France - 760 clubfeet in France /year

>

> Pied Bot Free - at least 47 members, started Jun-01

> http://piedbot.free.fr/ 35,912 hits

>

> Hospital Debrousse, Lyon - Ponseti Specific, started Jan-03

> http://ifrance.com/piedbot/ 37 messages

>

>

> Germany - 740 clubfeet in Germany/year

>

> Klumpfuss-Info - at least 100 members, started Oct-01

> http://www.klumpfuss-info.de/ more than 91,322 hits

>

> Klumpfusskinder appx 100 members, started Fall 2000

> http://www.klumpfusskinder.de/ 59,682 hits (as of 7-2003)

>

> Klumpfuss - Ein Erfahrungsbericht

> http://home.arcor.de/hhallbauer/

>

>

> Switzerland - 80 clubfeet in Switzerland / year

> Klumpfuss-Info (Switzerland) - Ponseti specific, started Sep-03

> http://www.klumpfuss-info.ch

>

>

> Netherlands - 204 clubfeet in Netherlands / year

> Vereniging Oudergroep Klompvoetjes - 89 members, started in 1984

> http://www.klompvoet.nl/

>

>

> Finland - 62 clubfeet in Finland / year

> kampurajalka-subscribe@y... - 92 members, started in Nov 2001

> http://health.groups.yahoo.com/group/Kampurajalka/ 2,168 messages

>

>

> Brazil - 3,060 clubfeet in Brazil / year

> Pe Torto - Dr. Noguira's Ponseti Specific

> http://www.petorto.com.br/

>

>

> Portugal - 118 clubfeet in Portugal / year

> Pe Boto Ponseti Specific

> http://www.peboto.grupos.com.pt/

>

>

> South Africa - 1,000 clubfeet in S. Africa / year

> karen@s... - Moss, started in the Fall 2003

> http://www.clubfoot.co.za

>

>

> Israel - 132 clubfeet in Israel / year

> Truly Clubfoot, Truly Yours - Oded & Idit, started late 2003

> http://truly_clubfoot.tripod.com/

>

> Clubfoot Israel at Yahoo - 15 members, started 1-Oct-03

> http://health.groups.yahoo.com/group/clubfoot_israel/ 62messages

>

>

> Sweden - 89 clubfeet in Sweden / year

> Wiggo Wikbergs lilla vrå, started in 2004

> http://w1.652.telia.com/~u65203641/baby/indexa.htm

>

>

> Bulgaria - 72 clubfeet in Bulgaria / year

> The Nikolova Family, started in 2004

> http://equinovarus.hit.bg/

>

> I hope that this information is of help and can be added to by

> finding the other parents support groups that may exist.

>

> and (born March 17, 1999)

>

>

>

>

>

>