Re: Please help with a question

[Guest guest]

Marie,

Hi! I don't have alot to offer except that I had the lumbar puncture a couple

of years ago.( they were trying to rule out MS) The procedure itself was almost

painless but I ended up with a spinal headache.As a nurse, I have taken care of

patients with this but had no idea how painful it was.I was told by an

anestheologist friend that typically the radiologists who do lumbar punctures

use a larger bore needle than the anestheologists do. I ended up with a blood

patch after 4 days of being very sick. I am not telling you this to scare you -

just fyi in case you have to have it done - that maybe they won't use a large

bore needle. I hope you get some answers soon.

Marie DiPietro md8senuf@...> wrote:

Hi all,

Several months ago I had a Cervical MRI w/contrast done due to numerous

symptoms from my neck down on (mostly) my right side as well as some bowel

and bladder issues and memory issues.

The MRI diagnosed a nonspecific myelopathy with a differential diagnosis of

a demylinating disease. It also mentioned the possibility of artifact;

however, previous MRI done in 2002 did not show what this one did.

My neuro exam and symptoms back up the MRI findings. Doc says presentation

is similar to MS but she has seen this in Mito patients before. She feels

we need to rule whether this is truly MS or Mito progression.

MDA Neuro has given me scripts for a large number of labs and has requested

I have an EMG and evoked potentials as well as an EEG and I can't remember

what else at the moment.

She also gave me orders for a Lumbar Puncture to hold onto. She would like

to have all the other tests done first.

If there is anyone who has similar findings or experience I would greatly

appreciate any advice you could give.

Thanks for reading.

Hugs,

Marie

[Guest guest]

and Marie

I would suggest asking for a blood patch following the procedure, just

to be safe. We don't need the stress of such a horrible headache.

Many of us had an MS diagnosis or at least a work-up for it at one

time or another. Good luck with all the testing.

laurie

> Marie,

> Hi! I don't have alot to offer except that I had the lumbar puncture a

> couple of years ago.( they were trying to rule out MS) The procedure itself

> was almost painless but I ended up with a spinal headache.As a nurse, I have

> taken care of patients with this but had no idea how painful it was.I was

> told by an anestheologist friend that typically the radiologists who do

> lumbar punctures use a larger bore needle than the anestheologists do. I

> ended up with a blood patch after 4 days of being very sick. I am not

> telling you this to scare you - just fyi in case you have to have it done -

> that maybe they won't use a large bore needle. I hope you get some answers

> soon.

>

>

>

> Marie DiPietro md8senuf@...> wrote:

> Hi all,

>

>

>

> Several months ago I had a Cervical MRI w/contrast done due to numerous

> symptoms from my neck down on (mostly) my right side as well as some bowel

> and bladder issues and memory issues.

>

>

>

> The MRI diagnosed a nonspecific myelopathy with a differential diagnosis of

> a demylinating disease. It also mentioned the possibility of artifact;

> however, previous MRI done in 2002 did not show what this one did.

>

>

>

> My neuro exam and symptoms back up the MRI findings. Doc says presentation

> is similar to MS but she has seen this in Mito patients before. She feels

> we need to rule whether this is truly MS or Mito progression.

>

>

>

> MDA Neuro has given me scripts for a large number of labs and has requested

> I have an EMG and evoked potentials as well as an EEG and I can't remember

> what else at the moment.

>

>

>

> She also gave me orders for a Lumbar Puncture to hold onto. She would like

> to have all the other tests done first.

>

>

>

> If there is anyone who has similar findings or experience I would greatly

> appreciate any advice you could give.

>

>

>

> Thanks for reading.

>

>

>

> Hugs,

>

> Marie

>

>

>

>

>

>

[Guest guest]

I'd avoid the lumbar puncture unless absolutely necessary. If you're

having a bunch of other tests, perhaps they will be conclusive

enough. I had a failed lumbar puncture that gave me temporary

paralysis, although I have scar tissue near my spine that probably

contributed to the problems.

Take care,

RH

> Hi all,

>

>

>

> Several months ago I had a Cervical MRI w/contrast done due to

numerous

> symptoms from my neck down on (mostly) my right side as well as

some bowel

> and bladder issues and memory issues.

>

>

>

> The MRI diagnosed a nonspecific myelopathy with a differential

diagnosis of

> a demylinating disease. It also mentioned the possibility of

artifact;

> however, previous MRI done in 2002 did not show what this one did.

>

>

>

> My neuro exam and symptoms back up the MRI findings. Doc says

presentation

> is similar to MS but she has seen this in Mito patients before.

She feels

> we need to rule whether this is truly MS or Mito progression.

>

>

>

> MDA Neuro has given me scripts for a large number of labs and has

requested

> I have an EMG and evoked potentials as well as an EEG and I can't

remember

> what else at the moment.

>

>

>

> She also gave me orders for a Lumbar Puncture to hold onto. She

would like

> to have all the other tests done first.

>

>

>

> If there is anyone who has similar findings or experience I would

greatly

> appreciate any advice you could give.

>

>

>

> Thanks for reading.

>

>

>

> Hugs,

>

> Marie

>

>

>

>

>

>