(Laurie) Please help with a question

[Guest guest]

Laurie,

Thanks so much for responding. I will definitely question about a blood

patch when the time comes. I have a large family of suspected mito kids and

definitely don't more issues than we already have, especially if it can be

avoided.

Hugs,

Marie (just keep swimming...just keep swimming) :-)

_____

From: [mailto: ] On Behalf

Of Laurie Fitzgerald

Sent: Wednesday, January 11, 2006 3:58 PM

To:

Subject: Re: Please help with a question

and Marie

I would suggest asking for a blood patch following the procedure, just

to be safe. We don't need the stress of such a horrible headache.

Many of us had an MS diagnosis or at least a work-up for it at one

time or another. Good luck with all the testing.

laurie

> Marie,

> Hi! I don't have alot to offer except that I had the lumbar puncture a

> couple of years ago.( they were trying to rule out MS) The procedure

itself

> was almost painless but I ended up with a spinal headache.As a nurse, I

have

> taken care of patients with this but had no idea how painful it was.I was

> told by an anestheologist friend that typically the radiologists who do

> lumbar punctures use a larger bore needle than the anestheologists do. I

> ended up with a blood patch after 4 days of being very sick. I am not

> telling you this to scare you - just fyi in case you have to have it done

-

> that maybe they won't use a large bore needle. I hope you get some answers

> soon.

>

>

>

> Marie DiPietro md8senuf@...> wrote:

> Hi all,

>

>

>

> Several months ago I had a Cervical MRI w/contrast done due to numerous

> symptoms from my neck down on (mostly) my right side as well as some

bowel

> and bladder issues and memory issues.

>

>

>

> The MRI diagnosed a nonspecific myelopathy with a differential diagnosis

of

> a demylinating disease. It also mentioned the possibility of artifact;

> however, previous MRI done in 2002 did not show what this one did.

>

>

>

> My neuro exam and symptoms back up the MRI findings. Doc says

presentation

> is similar to MS but she has seen this in Mito patients before. She

feels

> we need to rule whether this is truly MS or Mito progression.

>

>

>

> MDA Neuro has given me scripts for a large number of labs and has

requested

> I have an EMG and evoked potentials as well as an EEG and I can't

remember

> what else at the moment.

>

>

>

> She also gave me orders for a Lumbar Puncture to hold onto. She would

like

> to have all the other tests done first.

>

>

>

> If there is anyone who has similar findings or experience I would greatly

> appreciate any advice you could give.

>

>

>

> Thanks for reading.

>

>

>

> Hugs,

>

> Marie

>

>

>

>

>

>