Re: Tylenol can cause clubfoot???

[Guest guest]

That's great! So in the future is there a way to prevent cf or just identify

those at risk?

s.

Re: Tylenol can cause clubfoot???

Faith,

Just an update, Dr. Dobbs has actually isolated the gene and the last

I heard he had also found a mutation in the gene.

>> he is perfect in my eyes:)

>

>

>

> That is what it is all about Someone here once said that if it

were not for the walking factor, she would have gladly left her childs

foot as it was because that is how it was given. I agree with this.

I think we shocked the nurses at the hospital when they mourningly

told us Kai had a cf and our response was, " That's ok, his sister has

crooked, crazy feet too! " followed by a laugh. I never minded the way

it looked (it was 3 weeks before he was casted) nor did I ever mourn

his not having a " perfect " foot. To me, it *was* perfect (and kind of

cute at that!). Any person who looks at their baby and says they are

not perfect needs their head examined!

>

>

[Guest guest]

We do it once and it just ain't good enough. So we do it again. I feel for you

Jenni. Throw up until you can't throw up again, but you still manage to throw

up again. Then you eat so you can keep the baby alive and throw it up again.

Morning sickness? It's morning, noon, and night sickness for nine months

sickness. Been there, done that, got the mommy curves to prove it. I don't

like taking drugs when I am pregnant and usually don't. I have never been

seriously ill and needed an antibiotic, but I sometimes have to be drugged up

just to keep a baby alive. And sometimes means most of the time. I try hard

not to do it, I fight as long as I can. But with every pregnancy there comes a

time when the baby needs nourishment more than the toilet. It is either take

the stuff and keep a bit of food down or just throw up until I kill my baby and

myself. (and my husband usually has to force me to do it cause I am just too

out of it to think rationally) Some pregnancies are better most are worse, but

I have four babies with straight feet and one with club foot. For me the club

foot was the least of my worries, I was just happy he was alive. But I am

lucky, I have never been hospitalized and can usually keep a bowl of oatmeal

down once in a while. So, I am sorry you have had such a rough time of it. I

am so sorry you had to be so sick. My babies are worth it, and I am too dumb to

learn cause I do it all again. If I was there I would give you a hug. It is

worth it, and I would do it all again (most of the time-but not right now

thanks). But I agree, sometimes you have to take the medication to keep the

baby alive and trust that the baby will be okay.

mom to five sleeping angels (cause they are asleep)

Re: Tylenol can cause clubfoot???

I have been reading these posts about this possible

Tylenol and medication links to clubfoot with much

interest. I have 2 children, one clubfoot, one

nonclubfoot. With both children, I had miserable

pregnancies. With my first child, my " morning

sickness " did not end until I was into my 3rd

trimester and was severe requiring medication. By

that time, I was in so much pain that I could pretty

much no longer leave my home. Finally, my OB had to

prescribe Tylenol with codeine for me to be able to

sleep at all. was born with no clubfoot.

My pregnancy with Kelsey was worse requiring

hospitalization several times because I could not keep

anything down including water. No vitamins, folica

acid, anything. Everything that touched my stomach

came back up for the first 16 weeks of pregnancy if I

was not on medication. Then, because my Doctor refused

to give me antibiotics for a sinus infection while

pregnant, I ended up with a severe sinus infection,

bronchitis and two ear infections requiring even

stronger antibiotics (she also told me to just " deal

with it " ). On top of all of this we had to go

through all kinds of crap because there was a

possibility that she had Down's syndrome, then she had

clubfoot. Every time I went to the Doctor I was told

that something else was wrong with my child. when it

was all said and done all we had to deal with his her

left clubfoot.

Have I beaten myself up over the possibility that I

caused Kelsey's clubfoot? You bet. But I know for

certain that had I not taken the medication that I

did, we may have both died. Also, if it were not for

those medications, I might not have my precious child.

I understand that all medications during pregnancy

must be taken with careful consideration and

consultation with your OB, but I also believe that no

one wins any medals for suffering through 9 months of

hell with sinus problems, headaches, nausea whatever

when there are reasonably safe medications to help you

including epidurals. Nothing in pregnancy is without

risk and you may risk other problems by refusing to

treat problems as necessary.

There now I have jumped down off of my soapbox on the

other side of the coin.

Jenni

--- redskline123@...> wrote:

>

> I think the point is that there is no such thing as

> a " safe " drug.

> Tylenol is the product of an incredibly effective

> advertising campaign-

> -they've managed to convince most of the world that

> it's a completely

> safe & harmless drug--and that is simply NOT TRUE.

> There are risks

> with EVERYTHING AND ANYTHING, including Tylenol.

> Whether tylenol

> *caused* our babies club feet or not we may never

> know, but we SHOULD

> know that NO medication can be taken during

> pregnancy (or anytime, for

> that matter) without risks (including

> epidurals--despite what a doctor

> may say!). You should never just take something

> because it's easier.

> With any drug you must weigh the risks and benefits.

> If during

> pregnancy you have a severe headache or a high

> fever, sure you may

> want to go ahead and take a tylenol. But if it's

> something you could

> deal with, you may want to do just that--deal with

> it. Better safe

> than sorry. And that's the bottom line--not whether

> the tylenol we

> took x amount of years ago while pg gave our baby

> CF, but whether what

> we're doing NOW is the right thing to do. We're such

> a pill-popping

> society (and I'm not saying anything about anyone

> specifically on

> here). People get any little discomfort, and want

> the to take it away.

> And pharmaceutical companies only make money by

> convincing people it's

> okay to do that--it's " safe " .

> I don't want to sound like some sort of

> conspiracy-theory nutso, just

> wanted to add my 2 cents for the day!

> , mommy of:

> Guinevere, on, Ava 8/4/04 RCF ABS FAB 18/7

>

> > I agree that you shouldn't blame yourself for

> this. I used Tylenol

> quit

> > often with both of my pregnancies and my first son

> was born with

> perfectly

> > formed feet and my second one was born with a

> right club foot. I

> feel

> > that Tylenol has nothing to do with it and if it

> does, I agree with

> the

> > statement that we cannot punish ourselves for lack

> of information.

> >

> > No matter what, our children are perfect and we

> love them. That's

> all

> > that matters, not who's to blame.

>

>

>

>

Jenni-

Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB nights only for

left clubfoot.

__________________________________________________

[Guest guest]

Thanks . I would not trade my girls for

anything but I definitely learned my lesson with

Kelsey. I am done with pregnancy. Sometimes I have

that longing for another baby and if my pregnancies

were easier, I would do it again - no problem. But

when I think of being pregnant again, it makes me want

to cry. Making it with 5- WOW! That is amazing to

me. Anyone who can do that is a hero in my eyes.

Jenni

--- ph Grush jngrush@...> wrote:

> We do it once and it just ain't good enough. So we

> do it again. I feel for you Jenni. Throw up until

> you can't throw up again, but you still manage to

> throw up again. Then you eat so you can keep the

> baby alive and throw it up again. Morning sickness?

> It's morning, noon, and night sickness for nine

> months sickness. Been there, done that, got the

> mommy curves to prove it. I don't like taking drugs

> when I am pregnant and usually don't. I have never

> been seriously ill and needed an antibiotic, but I

> sometimes have to be drugged up just to keep a baby

> alive. And sometimes means most of the time. I try

> hard not to do it, I fight as long as I can. But

> with every pregnancy there comes a time when the

> baby needs nourishment more than the toilet. It is

> either take the stuff and keep a bit of food down or

> just throw up until I kill my baby and myself. (and

> my husband usually has to force me to do it cause I

> am just too out of it to think rationally) Some

> pregnancies are better most are worse, but I have

> four babies with straight feet and one with club

> foot. For me the club foot was the least of my

> worries, I was just happy he was alive. But I am

> lucky, I have never been hospitalized and can

> usually keep a bowl of oatmeal down once in a while.

> So, I am sorry you have had such a rough time of

> it. I am so sorry you had to be so sick. My babies

> are worth it, and I am too dumb to learn cause I do

> it all again. If I was there I would give you a

> hug. It is worth it, and I would do it all again

> (most of the time-but not right now thanks). But I

> agree, sometimes you have to take the medication to

> keep the baby alive and trust that the baby will be

> okay.

> mom to five sleeping angels (cause they are

> asleep)

> Re: Tylenol can

> cause clubfoot???

>

>

> I have been reading these posts about this

> possible

> Tylenol and medication links to clubfoot with much

> interest. I have 2 children, one clubfoot, one

> nonclubfoot. With both children, I had miserable

> pregnancies. With my first child, my " morning

> sickness " did not end until I was into my 3rd

> trimester and was severe requiring medication. By

> that time, I was in so much pain that I could

> pretty

> much no longer leave my home. Finally, my OB had

> to

> prescribe Tylenol with codeine for me to be able

> to

> sleep at all. was born with no clubfoot.

> My pregnancy with Kelsey was worse requiring

> hospitalization several times because I could not

> keep

> anything down including water. No vitamins, folica

> acid, anything. Everything that touched my stomach

> came back up for the first 16 weeks of pregnancy

> if I

> was not on medication. Then, because my Doctor

> refused

> to give me antibiotics for a sinus infection while

> pregnant, I ended up with a severe sinus

> infection,

> bronchitis and two ear infections requiring even

> stronger antibiotics (she also told me to just

> " deal

> with it " ). On top of all of this we had to go

> through all kinds of crap because there was a

> possibility that she had Down's syndrome, then she

> had

> clubfoot. Every time I went to the Doctor I was

> told

> that something else was wrong with my child. when

> it

> was all said and done all we had to deal with his

> her

> left clubfoot.

> Have I beaten myself up over the possibility that

> I

> caused Kelsey's clubfoot? You bet. But I know

> for

> certain that had I not taken the medication that I

> did, we may have both died. Also, if it were not

> for

> those medications, I might not have my precious

> child.

> I understand that all medications during pregnancy

> must be taken with careful consideration and

> consultation with your OB, but I also believe that

> no

> one wins any medals for suffering through 9 months

> of

> hell with sinus problems, headaches, nausea

> whatever

> when there are reasonably safe medications to help

> you

> including epidurals. Nothing in pregnancy is

> without

> risk and you may risk other problems by refusing

> to

> treat problems as necessary.

>

> There now I have jumped down off of my soapbox on

> the

> other side of the coin.

>

> Jenni

>

>

>

> --- redskline123@...> wrote:

> >

> > I think the point is that there is no such thing

> as

> > a " safe " drug.

> > Tylenol is the product of an incredibly

> effective

> > advertising campaign-

> > -they've managed to convince most of the world

> that

> > it's a completely

> > safe & harmless drug--and that is simply NOT

> TRUE.

> > There are risks

> > with EVERYTHING AND ANYTHING, including Tylenol.

> > Whether tylenol

> > *caused* our babies club feet or not we may

> never

> > know, but we SHOULD

> > know that NO medication can be taken during

> > pregnancy (or anytime, for

> > that matter) without risks (including

> > epidurals--despite what a doctor

> > may say!). You should never just take something

> > because it's easier.

> > With any drug you must weigh the risks and

> benefits.

> > If during

> > pregnancy you have a severe headache or a high

> > fever, sure you may

> > want to go ahead and take a tylenol. But if it's

> > something you could

> > deal with, you may want to do just that--deal

> with

> > it. Better safe

> > than sorry. And that's the bottom line--not

> whether

> > the tylenol we

> > took x amount of years ago while pg gave our

> baby

> > CF, but whether what

> > we're doing NOW is the right thing to do. We're

> such

> > a pill-popping

> > society (and I'm not saying anything about

> anyone

> > specifically on

> > here). People get any little discomfort, and

> want

> > the to take it away.

> > And pharmaceutical companies only make money by

> > convincing people it's

> > okay to do that--it's " safe " .

> > I don't want to sound like some sort of

> > conspiracy-theory nutso, just

> > wanted to add my 2 cents for the day!

> > , mommy of:

> > Guinevere, on, Ava 8/4/04 RCF ABS FAB 18/7

> >

> > > I agree that you shouldn't blame yourself for

> > this. I used Tylenol

> > quit

> > > often with both of my pregnancies and my first

> son

> > was born with

> > perfectly

> > > formed feet and my second one was born with a

> > right club foot. I

> > feel

> > > that Tylenol has nothing to do with it and if

> it

> > does, I agree with

> > the

> > > statement that we cannot punish ourselves for

> lack

> > of information.

> > >

> > > No matter what, our children are perfect and

> we

> > love them. That's

>

=== message truncated ===

Jenni-

Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB nights only for

left clubfoot.

__________________________________________________

[Guest guest]

That's such wonderful news! I can't wait to read more on his findings.

However glad I am, however, is only the third generation clubfooter in

our fam - guess that means we're at risk! LOL (You need to have a sense of

humor about these things after awhile...*sigh*)

11.23.03

>> he is perfect in my eyes:)

> >

> >

> >

> > That is what it is all about Someone here once said that if it

> were not for the walking factor, she would have gladly left her childs

> foot as it was because that is how it was given. I agree with this.

> I think we shocked the nurses at the hospital when they mourningly

> told us Kai had a cf and our response was, " That's ok, his sister has

> crooked, crazy feet too! " followed by a laugh. I never minded the way

> it looked (it was 3 weeks before he was casted) nor did I ever mourn

> his not having a " perfect " foot. To me, it *was* perfect (and kind of

> cute at that!). Any person who looks at their baby and says they are

> not perfect needs their head examined!

> >

> >

[Guest guest]

I agree, sometimes these things can be very alarmist. Notice there

was NO

research or any findings indicated in the article on clubfoot so how

are we

supposed to follow up? How are we supposed to know it's true? Just

because

it was listed on the web doesn't make it fact.

That said, sometimes even one isolated incident gets listed in the

findings.

For instance, the medication I take for ulcerative colitis is

necessary because

if I don't take it, all kinds of nasty things can happen. I could

suffer malnutrition

and so could my baby. And, ironically, hormonal changes during

pregnancy

can make it flare up. I dealt with that and a host of other problems

for nearly a

month before I sought treatment during my pregnancy, and taking

medication

that would make me " normal " again was a Godsend. Sure I was worried,

I did

my research and everything, but sometimes you have to weigh the

benefits

and risks and decide which is healthier for you and the baby.

Sometimes we are angry or need to blame someone or something, as

another poster mentioned, because we don't understand or know CF's

source. I'm not saying that's not normal - but to beat ourselves up

over it isn't

normal. Sometimes its hard to admit to ourselves at first that this

is something

in our genetic makeup, even if we can't see it. I can trace my

family's history

back nearly five centuries and not one of those things is going to

tell me if they

had clubfoot - and I don't think it really matters anyway. You just

do what you

have to do and try to get on with your life. Easier said than done, I

know - but

what else can you do. At least it's not life threatening.

Perhaps there is something better for you to take for nausea, BTW. It

sounds

like you have...hyperemesis? Can't spell it but it's basically severe

morning

sickness that never goes away. Your doc probably told you that, LOL.

I would

think the codeiene would make you sicker as it tends to upset the

stomach.

Although herbal remedies are usually not good either during

pregnancy,

maybe there is something else you could try.

Good luck.

11.23.03

> Whoa and back up. You didn't *DO* this. I agree with the other

post about

the alarmist attitude. Please don't go blaming yourself for

something that

doctors are really not sure what causes it. And even if we find out

next year

that Tylenol does cause cf, we cannot punish ourselves for lack of

information

when there was none to be had.

> s.

>

> . OMG i did this??? How come the

> drs. dont know about this.

> goodness,Angie

> momi to Dominick right club foot

>

>

>

[Guest guest]

The codeine was not for the nausea - that was for pain

in my back and legs that allowed me to not be able to

sleep. I was on a few different anti-nausea

medications.

Jenni

--- pudgemuffin_2003@...> wrote:

>

> I agree, sometimes these things can be very

> alarmist. Notice there

> was NO

> research or any findings indicated in the article on

> clubfoot so how

> are we

> supposed to follow up? How are we supposed to know

> it's true? Just

> because

> it was listed on the web doesn't make it fact.

>

> That said, sometimes even one isolated incident gets

> listed in the

> findings.

> For instance, the medication I take for ulcerative

> colitis is

> necessary because

> if I don't take it, all kinds of nasty things can

> happen. I could

> suffer malnutrition

> and so could my baby. And, ironically, hormonal

> changes during

> pregnancy

> can make it flare up. I dealt with that and a host

> of other problems

> for nearly a

> month before I sought treatment during my pregnancy,

> and taking

> medication

> that would make me " normal " again was a Godsend.

> Sure I was worried,

> I did

> my research and everything, but sometimes you have

> to weigh the

> benefits

> and risks and decide which is healthier for you and

> the baby.

>

> Sometimes we are angry or need to blame someone or

> something, as

> another poster mentioned, because we don't

> understand or know CF's

> source. I'm not saying that's not normal - but to

> beat ourselves up

> over it isn't

> normal. Sometimes its hard to admit to ourselves at

> first that this

> is something

> in our genetic makeup, even if we can't see it. I

> can trace my

> family's history

> back nearly five centuries and not one of those

> things is going to

> tell me if they

> had clubfoot - and I don't think it really matters

> anyway. You just

> do what you

> have to do and try to get on with your life. Easier

> said than done, I

> know - but

> what else can you do. At least it's not life

> threatening.

>

> Perhaps there is something better for you to take

> for nausea, BTW. It

> sounds

> like you have...hyperemesis? Can't spell it but it's

> basically severe

> morning

> sickness that never goes away. Your doc probably

> told you that, LOL.

> I would

> think the codeiene would make you sicker as it tends

> to upset the

> stomach.

> Although herbal remedies are usually not good either

> during

> pregnancy,

> maybe there is something else you could try.

>

> Good luck.

>

>

> 11.23.03

>

> > Whoa and back up. You didn't *DO* this. I

> agree with the other

> post about

> the alarmist attitude. Please don't go blaming

> yourself for

> something that

> doctors are really not sure what causes it. And

> even if we find out

> next year

> that Tylenol does cause cf, we cannot punish

> ourselves for lack of

> information

> when there was none to be had.

> > s.

> >

> > . OMG i did this??? How come the

> > drs. dont know about this.

> > goodness,Angie

> > momi to Dominick right club foot

> >

> >

> > [Non-text portions of this message have been

> removed]

> >

> >

> >

> >

> >

[Guest guest]

Yea, but I wasn't ever as sick as it sounds like you were. I even almost feel

good for a day or two sometimes. And I have learned how to control the throw up

thing a bit more-know my limits and such. But I still spend more time

" worshipping the porcelain goddess " than is needful or healthy. With my last

baby I lived on a meal replacement/weight gainer shake-and I think it is they

only reason I made it through. Most day I wouldn't trade my kids for anything,

and I know they were all supposed to be part of our family. Do it again? I

just don't know.

Re: Tylenol can

> cause clubfoot???

>

>

> I have been reading these posts about this

> possible

> Tylenol and medication links to clubfoot with much

> interest. I have 2 children, one clubfoot, one

> nonclubfoot. With both children, I had miserable

> pregnancies. With my first child, my " morning

> sickness " did not end until I was into my 3rd

> trimester and was severe requiring medication. By

> that time, I was in so much pain that I could

> pretty

> much no longer leave my home. Finally, my OB had

> to

> prescribe Tylenol with codeine for me to be able

> to

> sleep at all. was born with no clubfoot.

> My pregnancy with Kelsey was worse requiring

> hospitalization several times because I could not

> keep

> anything down including water. No vitamins, folica

> acid, anything. Everything that touched my stomach

> came back up for the first 16 weeks of pregnancy

> if I

> was not on medication. Then, because my Doctor

> refused

> to give me antibiotics for a sinus infection while

> pregnant, I ended up with a severe sinus

> infection,

> bronchitis and two ear infections requiring even

> stronger antibiotics (she also told me to just

> " deal

> with it " ). On top of all of this we had to go

> through all kinds of crap because there was a

> possibility that she had Down's syndrome, then she

> had

> clubfoot. Every time I went to the Doctor I was

> told

> that something else was wrong with my child. when

> it

> was all said and done all we had to deal with his

> her

> left clubfoot.

> Have I beaten myself up over the possibility that

> I

> caused Kelsey's clubfoot? You bet. But I know

> for

> certain that had I not taken the medication that I

> did, we may have both died. Also, if it were not

> for

> those medications, I might not have my precious

> child.

> I understand that all medications during pregnancy

> must be taken with careful consideration and

> consultation with your OB, but I also believe that

> no

> one wins any medals for suffering through 9 months

> of

> hell with sinus problems, headaches, nausea

> whatever

> when there are reasonably safe medications to help

> you

> including epidurals. Nothing in pregnancy is

> without

> risk and you may risk other problems by refusing

> to

> treat problems as necessary.

>

> There now I have jumped down off of my soapbox on

> the

> other side of the coin.

>

> Jenni

>

>

>

> --- redskline123@...> wrote:

> >

> > I think the point is that there is no such thing

> as

> > a " safe " drug.

> > Tylenol is the product of an incredibly

> effective

> > advertising campaign-

> > -they've managed to convince most of the world

> that

> > it's a completely

> > safe & harmless drug--and that is simply NOT

> TRUE.

> > There are risks

> > with EVERYTHING AND ANYTHING, including Tylenol.

> > Whether tylenol

> > *caused* our babies club feet or not we may

> never

> > know, but we SHOULD

> > know that NO medication can be taken during

> > pregnancy (or anytime, for

> > that matter) without risks (including

> > epidurals--despite what a doctor

> > may say!). You should never just take something

> > because it's easier.

> > With any drug you must weigh the risks and

> benefits.

> > If during

> > pregnancy you have a severe headache or a high

> > fever, sure you may

> > want to go ahead and take a tylenol. But if it's

> > something you could

> > deal with, you may want to do just that--deal

> with

> > it. Better safe

> > than sorry. And that's the bottom line--not

> whether

> > the tylenol we

> > took x amount of years ago while pg gave our

> baby

> > CF, but whether what

> > we're doing NOW is the right thing to do. We're

> such

> > a pill-popping

> > society (and I'm not saying anything about

> anyone

> > specifically on

> > here). People get any little discomfort, and

> want

> > the to take it away.

> > And pharmaceutical companies only make money by

> > convincing people it's

> > okay to do that--it's " safe " .

> > I don't want to sound like some sort of

> > conspiracy-theory nutso, just

> > wanted to add my 2 cents for the day!

> > , mommy of:

> > Guinevere, on, Ava 8/4/04 RCF ABS FAB 18/7

> >

> > > I agree that you shouldn't blame yourself for

> > this. I used Tylenol

> > quit

> > > often with both of my pregnancies and my first

> son

> > was born with

> > perfectly

> > > formed feet and my second one was born with a

> > right club foot. I

> > feel

> > > that Tylenol has nothing to do with it and if

> it

> > does, I agree with

> > the

> > > statement that we cannot punish ourselves for

> lack

> > of information.

> > >

> > > No matter what, our children are perfect and

> we

> > love them. That's

>

=== message truncated ===

Jenni-

Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB nights only for

left clubfoot.

__________________________________________________

[Guest guest]

I'm sorry, I don't know how I missed that. But I think the codiene would only

contribute to an already yucky stomach. I have heard that papaya (which

comes in chewables, I think) can help to curb nausea. Don't know if it works,

though.

> > > Whoa and back up. You didn't *DO* this. I

> > agree with the other

> > post about

> > the alarmist attitude. Please don't go blaming

> > yourself for

> > something that

> > doctors are really not sure what causes it. And

> > even if we find out

> > next year

> > that Tylenol does cause cf, we cannot punish

> > ourselves for lack of

> > information

> > when there was none to be had.

> > > s.

> > >

> > > . OMG i did this??? How come the

> > > drs. dont know about this.

> > > goodness,Angie

> > > momi to Dominick right club foot

> > >

> > >

> > > [Non-text portions of this message have been

> > removed]

> > >

> > >

> > >

> > >

> > >

[Guest guest]

,

I use papaya for my daughter who has gastroparesis and other issues that cause

stomach upset and other issues as a part of her regular life. While she's too

little to tell us if it helps, it sure seems to make her more comfortable in the

long run. So you are correct - it is suggested and in my experience it works!

Chris

Re: Tylenol can cause clubfoot???

I'm sorry, I don't know how I missed that. But I think the codiene would only

contribute to an already yucky stomach. I have heard that papaya (which

comes in chewables, I think) can help to curb nausea. Don't know if it works,

though.

> > > Whoa and back up. You didn't *DO* this. I

> > agree with the other

> > post about

> > the alarmist attitude. Please don't go blaming

> > yourself for

> > something that

> > doctors are really not sure what causes it. And

> > even if we find out

> > next year

> > that Tylenol does cause cf, we cannot punish

> > ourselves for lack of

> > information

> > when there was none to be had.

> > > s.

> > >

> > > . OMG i did this??? How come the

> > > drs. dont know about this.

> > > goodness,Angie

> > > momi to Dominick right club foot

> > >

> > >

> > > [Non-text portions of this message have been

> > removed]

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I tried papaya--pills & fruit...also mints, anti-nausea tea,

crackers, Coke syrup, eating smaller meals, eating larger meals,

eating anything...basically everything & anything I read about or

was recommended to me (as long as it was safe! LOL) I think you

really just have to keep trying things, and maybe, just MAYBE you'll

find something that works. For my 3 pregnancies, it was

NOTHING...lost 10 lbs., puked for 5 months. Everyone said how " GREAT

I LOOKED! " Suuuurrrreee....because I'm so SKINNY! And that glow?

That's because I was just heaving--it's broken blood vessels in my

SKIN!!!

All kidding aside, one thing I did find that helped was mint--but

because actual mints gave me heartburn (2 steps forward 1 step

back!) I would put some water in a pot on the stove & rip open some

peppermint teabags & add some vanilla or some mint extract & let it

simmer. Makes the house smell nice and the mint smell helped calm my

stomach. I would just sit in the kitchen & breath it in. I've never

read of that anywhere, but you know what they say-- " Necessity is the

MOTHER of invention " I wonder if 'necessity' had this much morning

sickness...??? ;-)

, mommy of:

Guinevere, on, Ava 8/4/04 RCF ABS FAB 18/7

[Guest guest]

This is kind of the point I was trying to make...I'm not anti-

medication at all, or condemning people who take it. I'm just saying

that people need to understand the risks involved--even with

something so " simple " as a Tylenol. I took cough medicine &

decongestant while pg with Ava...my grandfather had died & I was

really sick and I just couldn't handle all these things at once. But

I had a bad flu with on's pregnancy and basically just

suffered through it. And that's fine for me...everyone has

different " comfort " levels, if that's what you want to call it.

Which is why some moms take more medication during pregnancy, or an

epidural or other drugs during labor, and others don't. You just

have to understand that NOTHING is 100% safe. And as long as YOU'RE

comfortable with your decision (and it's not something outright

dangerous!) that's all that matters.

, mommy of:

Guinevere, on, Ava 8/4/04 RCF ABS FAB 18/7

> > Whoa and back up. You didn't *DO* this. I agree with the

other

> post about

> the alarmist attitude. Please don't go blaming yourself for

> something that

> doctors are really not sure what causes it. And even if we find

out

> next year

> that Tylenol does cause cf, we cannot punish ourselves for lack of

> information

> when there was none to be had.

> > s.

> >

> > . OMG i did this??? How come the

> > drs. dont know about this.

> > goodness,Angie

> > momi to Dominick right club foot

> >

> >

> >

[Guest guest]

Sorry I'm so behind on my replies. Yes, he is working towards that.

If all goes well they will be able to use gene therapy (which don't

ask me how that works, too technical for me at this point, but I'm

learning) to kind of " turn off " the gene. If I understand correctly

they would be able to correct the foot with casting as usual and then

turn off the gene so the foot would not relapse. They might even be

able to treat the baby in utero, or perhaps the mother?? This is

where I need to get more educated. But basically the bottom line is

that his research could make the need for this group obsolete; perhaps

by time our kids are having kiddos of their own.

Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobb's brace 16-18/7)

>> he is perfect in my eyes:)

> >

> >

> >

> > That is what it is all about Someone here once said that if it

> were not for the walking factor, she would have gladly left her childs

> foot as it was because that is how it was given. I agree with this.

> I think we shocked the nurses at the hospital when they mourningly

> told us Kai had a cf and our response was, " That's ok, his sister has

> crooked, crazy feet too! " followed by a laugh. I never minded the way

> it looked (it was 3 weeks before he was casted) nor did I ever mourn

> his not having a " perfect " foot. To me, it *was* perfect (and kind of

> cute at that!). Any person who looks at their baby and says they are

> not perfect needs their head examined!

> >

> >