Re: 3 year old-questions, questions, questions!

[Guest guest]

Kim,

I think you are smart for sticking to your guns on this one. You Go Momma!

However, the shoes are made for smaller, atypical feet. I believe it

was the Markell company that was working on bigger shoes. You might contact

them to find out. I suppose you could also contact () about bigger

shoes but I don't know if he could do that for you or not. Also, you might

contact a shriners to see what they can offer you.

Good luck and let us know how it goes!

Chris

3 year old-questions, questions, questions!

Hi everyone! My son Jaren who turned 3 today is still in his brace

at night. He was treated since birth with a " modified " Ponseti

method-the dr. kept him in the brace 23/7 until he was walking. (Dr.

P did see my son when he was 11 months old-he said he looked great.)

Our dr. said about 6 months or so ago that he could stop wearing the

brace; that Jaren's foot looked great, no probs, etc. I still wanted

him to wear the brace so I got the dr. to prescribe another set of

shoes. The lab guy said that this was the biggest set of shoes he

could get, and now they are too small. I know I posted before about

bigger shoes and someone replied about I believe it was the

shoe. Can anyone give me more info about this? I know the dr. was

not too happy the last time I asked for bigger shoes because he said

they were not necessary, and I told him about the recent findings in

IA about older children relapsing. Am I being overprotective by

wanting him to stay in the shoes? Could I possibly be doing him more

harm than good?

I know I need to make another appt. with our dr. because Jaren has

recently started to kind of limp on his right foot (clubfoot). He

says it doesn't hurt or anything, but I am concerned. His foot does

not seem to be turning in or anything, but he is still walking kind

of goofy-he doesn't do it all the time either. He runs fine-it's

just the walking sometimes. Anyway, if someone can arm me with some

good info for some bigger shoes I will feel better when we see the

doc.

Thanks!

-Kim

Jaren 4/18/02 uni cf

[Guest guest]

I think Markell's go to either size 8 1/2 or 9. is still in

his brace also.

Pam and (8-12-01)

>

> Hi everyone! My son Jaren who turned 3 today is still in his brace

> at night. He was treated since birth with a " modified " Ponseti

> method-the dr. kept him in the brace 23/7 until he was walking.

(Dr.

> P did see my son when he was 11 months old-he said he looked

great.)

> Our dr. said about 6 months or so ago that he could stop wearing

the

> brace; that Jaren's foot looked great, no probs, etc. I still

wanted

> him to wear the brace so I got the dr. to prescribe another set of

> shoes. The lab guy said that this was the biggest set of shoes he

> could get, and now they are too small. I know I posted before

about

> bigger shoes and someone replied about I believe it was the

> shoe. Can anyone give me more info about this? I know the dr. was

> not too happy the last time I asked for bigger shoes because he

said

> they were not necessary, and I told him about the recent findings

in

> IA about older children relapsing. Am I being overprotective by

> wanting him to stay in the shoes? Could I possibly be doing him

more

> harm than good?

> I know I need to make another appt. with our dr. because Jaren has

> recently started to kind of limp on his right foot (clubfoot). He

> says it doesn't hurt or anything, but I am concerned. His foot

does

> not seem to be turning in or anything, but he is still walking kind

> of goofy-he doesn't do it all the time either. He runs fine-it's

> just the walking sometimes. Anyway, if someone can arm me with

some

> good info for some bigger shoes I will feel better when we see the

> doc.

> Thanks!

> -Kim

> Jaren 4/18/02 uni cf

[Guest guest]

Sorry, I disagree. I think the /Ponseti shoes are being pegged on this

group for Atypical feet but that is not the set in stone rule. Dr. Ponseti

recommends them completely now for every cf due to their fit and comfort, not

just Atypical.

s.

However, the shoes are made for smaller, atypical feet. I

[Guest guest]

Dr. Ponseti recommends them completely now for every cf due to their

fit and comfort, not just Atypical.

>

> s.

That's the impression I got from my doc too...Dr. P is recommending

s for everyone. My daughter was originally going to be fitted

for them (she's not atypical...I guess you could call her typical

CF!).