Re: Thanks for sharing with us

[Guest guest]

hey jodi!!

i am so glad to hear about max not needing the ST anymore and hope

that his cold doent lead to anything worse!! you guys really deserve

a break!! i will keep you in my thoughts and prayers!! talk to you

soon!!

jodie

> Thank you all for sharing in our good news regarding Max and not

> longer needing ST. Just like weaning him off some of his meds, it

> is one less thing to think about.

>

> In general, Max is doing better. The doctor was right - time has

> eased the pains in his stomach/abdomen. We are not going to let

> anyone fool around with the button for a long time now! We are

> fortunate that Zofran works to help the nausea he still feels at

> times and the pains are bearable enough that Max can get through

the

> episodes without distress. Unfortunately, he is getting sick with

a

> cold, so we will see what happens. In the past it would lead to

> some GI problems, so I am not giving up the pump yet. I'd hate to

> send it back tomorrow and then need it again next week.

>

> When we saw Dr. H. last week, she arranged for us to get all of

> Max's meds through mail order pharmacy. I called them yesterday

to

> see what is going on - why we have not gotten them yet - and they

> told me it will be at least another week until delivery. Yuck.

> Then they asked me to pay for the co-pay over the phone. Are you

> ready for this? It was $500!!!! I did not realize that we were

> paying this much every single month at our local pharmacy. Now,

at

> least, we will pay this only every three months. Thank you, Dr.

H.,

> for setting this up for us.

>

> For anyone who has read this far and is worried about Dr. H.'s

move,

> remember she has most of the email addresses for you. She intends

> to contact, via email, anyone who does not have the correct

> paperwork on file. Don't panic. And I, too, have tried to reach

> Yadira at Mt. Sinai, to no avail. Just give it time. It will all

> work out.

>

> Jodi Z.