Re: Olivia's Dental Surgery... Question

[Guest guest]

Leah - I would recommend that you call MAGIC and order article #H-

35 " Anesthesia for a Child with -Silver Syndrome " by Anne

Dickison; and H-38 " -Silver Syndrome " Anesthetic

Implications " by Dinner, Goldin Ward & Levy (printed in the medical

journal Anesthesia & Analogics). I would also recommend #H-43,

letter by Dr. Harbison which states about RSS/SGA kids not going

more than 4 hours without eating.

If your daughter spills ketones in the morning often anyway,

ABSOLUTELY I would recommend having the IV in if she is to NPO after

midnight. Without a doubt, although I am not a doctor.

Assuming she will have the procedure around 8 or 9, and not come out

of it until what, 10am let's say, and then not feel like eating for

a bit -- very dangerous it sounds like for her.

This is a time where you have to demand. I made the BIG mistake for

my own daughter Dec '02 and I paid for it dearly. Do NOT let the

doctors dismiss your fears -- if you aren't comfortable voicing the

information, hand them the medical journal published information.

Good luck!

>

> Olivia's going in on Tuesday to get 4-8 stainless steel crowns

on

> her molars, we went over every option with the dentist and putting

> her under is the only way we can do it. Osteogenesis Imperfecta

> (brittle bone disease) is the main reason that she has to be put

> under, if she fights him her jaw can break or if we had to hold

her

> down we could break her shoulder, arm, etc. The dentist was open

to

> RSS and listened to what I had to say about fasting and hypo-g but

> passed it off to the anesthetist (sp). I had a 5 min argument

with

> the booking lady as to why Olivia needed the anesthetic consult

the

> day before surgery not the morning of surgery, well I finally got

my

> way but I'm not sure if she understood the seriousness of it.

> My question is, if they won't admit her the night before (monday

> night) for an IV do I scrap the whole thing?? Olivia spills

ketones

> almost every morning as it is and the booking lady wouldn't tell

me

> what time Olivia is booked for, then with it being dental she

can't

> eat for a while after. I will be bringing all of my RSS info from

> MAGIC with me but I was wondering if there is anything else that

I

> can say or do that will help.

>

> Thanks!

> Leah, mom to Ash 9yrs, and Olivia 4.5 yrs, RSS, OI, 18lbs, 33 " ,

> lactulose, senokot, zantac, cyproheptadine (periactin)