Re: Update on Livi - back in the brace...

[Guest guest]

hey... what is capsule release? grace has a stubborn foot also... it is ok for

right now... but i want to know what to expect next... in case we get to " next

" .... what did the doctor say? does he feel that he will have to do something

else? but aren't you glad she can take a bath again!! YEAH!!! and get in the

swimming pool....

mommy to Grace 12-03-03 BCF Dobb's Brace 16/7

Darby dabrennan@...> wrote:

Livi got her casts off today and is going back in the FAB. Her second

tenotomy was about a month ago. Today Dr. Schmale said that Livi's

right foot (the easy one) had a good 15 degrees dorsiflexion, but the

left one (the stiff one) was only getting 5-7 degrees. I'm feeling

discouraged - oh how I pushed for the second tenotomy instead of the

capsule release - and it sounds to me like it didn't get the results

we want at all! It's better than it was beforehand, but it's still

not coming up.

I'm worried that she still will have issues keeping her shoes on since

her left foot isn't coming up like it should. We'll see....

Any advice?

Darby

Livi 3/15/04 bi cf

[Guest guest]

From my vague understanding of it, there is some soft tissue behind

the achilles tendon that also seems to cause some tightness. THey go

in and " release " it which I'm assuming means cutting into it.

Doc didn't say we'd need to do it when we saw him today, but when we

did the 2nd tenotomy it was advised that if this didn't work we would

probably do the release later on. Apparently they would want her to

be a bit older before doing it anyhow.

She sure did love her bath this morning! Now she's just trying to

figure out what to do with these legs she now has!!

Darby

Livi 3/15/04 bi cf

>

> Livi got her casts off today and is going back in the FAB. Her

second

> tenotomy was about a month ago. Today Dr. Schmale said that Livi's

> right foot (the easy one) had a good 15 degrees dorsiflexion, but

the

> left one (the stiff one) was only getting 5-7 degrees. I'm feeling

> discouraged - oh how I pushed for the second tenotomy instead of

the

> capsule release - and it sounds to me like it didn't get the

results

> we want at all! It's better than it was beforehand, but it's still

> not coming up.

>

> I'm worried that she still will have issues keeping her shoes on

since

> her left foot isn't coming up like it should. We'll see....

>

> Any advice?

>

> Darby

> Livi 3/15/04 bi cf

>

>

>

>

>

>

[Guest guest]

thank you for the info... i'm glad she loved her bath... that is one of grace's

favorite things in her whole day.. that and her new Little People's Car... she

thinks she's hot stuff riding in her car outside... lol...

mommy to Grace 12-03-03 BCF Dobb's Brace 16/7

Darby dabrennan@...> wrote:

From my vague understanding of it, there is some soft tissue behind

the achilles tendon that also seems to cause some tightness. THey go

in and " release " it which I'm assuming means cutting into it.

Doc didn't say we'd need to do it when we saw him today, but when we

did the 2nd tenotomy it was advised that if this didn't work we would

probably do the release later on. Apparently they would want her to

be a bit older before doing it anyhow.

She sure did love her bath this morning! Now she's just trying to

figure out what to do with these legs she now has!!

Darby

Livi 3/15/04 bi cf

love, lisa

before i made you in the womb, i knew you... love God.

__________________________________________________

[Guest guest]

Darby,

Best wishes to Livi, hope everything goes OK..

The only thought I have is that I've heard (from Dr. Morcuende) that

sometimes a lower amount of dorsiflexion isn't so terrible .. that

kids can work around it.. as long as it's not going into the negative

range.. my daughter's isn't the optimum amount, yet she has very good

function.

Maybe once she's walking it will help .. (Is she cruising when she's

not in the brace?) Maybe it's not worth doing anything invasive as

long as function is good..

Hope all works out..

>

> Livi got her casts off today and is going back in the FAB. Her

second

> tenotomy was about a month ago. Today Dr. Schmale said that Livi's

> right foot (the easy one) had a good 15 degrees dorsiflexion, but

the

> left one (the stiff one) was only getting 5-7 degrees. I'm feeling

> discouraged - oh how I pushed for the second tenotomy instead of

the

> capsule release - and it sounds to me like it didn't get the

results

> we want at all! It's better than it was beforehand, but it's still

> not coming up.

>

> I'm worried that she still will have issues keeping her shoes on

since

> her left foot isn't coming up like it should. We'll see....

>

> Any advice?

>

> Darby

> Livi 3/15/04 bi cf

[Guest guest]

I realize I'm posting very late with this one, but I thought I'd chime in

anyway... There was talk of this capsule release for my son also. I emailed Dr.

P and he said that it will cause a lot of scar tissue. If it can be avoided,

avoid it. I also heard that as long as dorseflexion is at least neutral it's

better than in equinus. And if Livi is at 5 to 7 than that's not so bad.

-------------- Original message --------------

From my vague understanding of it, there is some soft tissue behind

the achilles tendon that also seems to cause some tightness. THey go

in and " release " it which I'm assuming means cutting into it.

Doc didn't say we'd need to do it when we saw him today, but when we

did the 2nd tenotomy it was advised that if this didn't work we would

probably do the release later on. Apparently they would want her to

be a bit older before doing it anyhow.

She sure did love her bath this morning! Now she's just trying to

figure out what to do with these legs she now has!!

Darby

Livi 3/15/04 bi cf

>

> Livi got her casts off today and is going back in the FAB. Her

second

> tenotomy was about a month ago. Today Dr. Schmale said that Livi's

> right foot (the easy one) had a good 15 degrees dorsiflexion, but

the

> left one (the stiff one) was only getting 5-7 degrees. I'm feeling

> discouraged - oh how I pushed for the second tenotomy instead of

the

> capsule release - and it sounds to me like it didn't get the

results

> we want at all! It's better than it was beforehand, but it's still

> not coming up.

>

> I'm worried that she still will have issues keeping her shoes on

since

> her left foot isn't coming up like it should. We'll see....

>

> Any advice?

>

> Darby

> Livi 3/15/04 bi cf

>

>

>

>

>

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