Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 Carmen I had some arrthymias until I got my CoQ10 level up to the present level. Mine happened when I did too much (everyday when still working). I hope you find some answers. laurie > I had the EP study on my heart yesterday, and they did not find any > electrical problems with my heart that they could fix. I was hoping > they would be able to do the ablation and stop the arrthymias. Does > anyone have any thoughts about what else might be causing the > arrthymias? Anyone else have trouble with irregular heartbeats > associated with their mito. I will be wearing a monitor for 30 days > maybe that will show something. Thanks Carmen > > > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail > is entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with > their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 I also had a very similar experience until I got my CoQ10 level up high enough too. Laurie Fitzgerald wrote: >Carmen > >I had some arrthymias until I got my CoQ10 level up to the present >level. Mine happened when I did too much (everyday when still >working). > >I hope you find some answers. > >laurie > > > > >> I had the EP study on my heart yesterday, and they did not find any >> electrical problems with my heart that they could fix. I was hoping >> they would be able to do the ablation and stop the arrthymias. Does >> anyone have any thoughts about what else might be causing the >> arrthymias? Anyone else have trouble with irregular heartbeats >> associated with their mito. I will be wearing a monitor for 30 days >> maybe that will show something. Thanks Carmen >> >> >> >> >> >> Medical advice, information, opinions, data and statements contained herein >>are not necessarily those of the list moderators. The author of this e mail >>is entirely responsible for its content. List members are reminded of their >>responsibility to evaluate the content of the postings and consult with >>their physicians regarding changes in their own treatment. >> >> Personal attacks are not permitted on the list and anyone who sends one is >>automatically moderated or removed depending on the severity of the attack. >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 I have right bundle branch block, discovered a few years ago. But I wouldn't say it's " trouble " as I'm apparently asymptomatic, which my GP said was not uncommon. But when I went to an ER last Sept. for chest pains, they were VERY interested in that until I told them that I'd had it awhile, and then they lost interest. I was sent home because troponin was normal. Later had a pretty thorough cardiac series. This started by looking for enlarged heart which my new cardio doc thought could result from mito. This was based on the idea of triggered and hence increased (though ultimately futile) near-constant demand due to energy-starved muscle. And also based on his reasearch, which he kindly did just for me (and his buddy, the referring neuro). Eventually I had a chemical-induced stress test, and heart imaging (but static only). All told, there was nothing untoward, except the RBBB itself, as seen upon EKG. A 24-hour Holter turned up only rare insignificant arrthymia. I still have " unexplained " (but really not severe) intermittent chest pains. Much less than back then and I really don't know why, except that I doubled CoQ10 and carnitine (240 -> 480 mg. per day, and 1g. -> 2g. per day, respectively, not really a huge amount). And I also walk more, but not by a lot. Steve D. Heart Study I had the EP study on my heart yesterday, and they did not find any electrical problems with my heart that they could fix. I was hoping they would be able to do the ablation and stop the arrthymias. Does anyone have any thoughts about what else might be causing the arrthymias? Anyone else have trouble with irregular heartbeats associated with their mito. I will be wearing a monitor for 30 days maybe that will show something. Thanks Carmen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 Hi Carmen, My 2 children and I all have arhythmias. My daughter had multiple ablations (including 2 trips to OK to have the " father of ablation " surgery do them). Now, her EP doc says that they know ablations surgery does not help folks with mito disease. My daughter wound up with a pacemaker at 17. She gave up her license at 21 because we wouldn't allow he to drive with all her blackouts and we didn't want to keep paying the insurance. Her first ablation surgery actually made things worse because the doc " unleashed " aberrant electrical pathways that had been blocked by the ablated pathways. They gave her various cardiogenics that wound up paralyzing her for 4 months. Do you pass out often from the arrhythmias? We take aspirin daily to reduce the risk of strokes or clots. -Lyn Date: Wed, 15 Feb 2006 14:45:40 -0000 Subject: Heart Study I had the EP study on my heart yesterday, and they did not find any electrical problems with my heart that they could fix. I was hoping they would be able to do the ablation and stop the arrthymias. Does anyone have any thoughts about what else might be causing the arrthymias? Anyone else have trouble with irregular heartbeats associated with their mito. I will be wearing a monitor for 30 days maybe that will show something. Thanks Carmen Marie Codier Early Childhood Music & Movement Specialist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 Hi Carmen, My 2 children and I all have arhythmias. My daughter had multiple ablations (including 2 trips to OK to have the " father of ablation " surgery do them). Now, her EP doc says that they know ablations surgery does not help folks with mito disease. My daughter wound up with a pacemaker at 17. She gave up her license at 21 because we wouldn't allow he to drive with all her blackouts and we didn't want to keep paying the insurance. Her first ablation surgery actually made things worse because the doc " unleashed " aberrant electrical pathways that had been blocked by the ablated pathways. They gave her various cardiogenics that wound up paralyzing her for 4 months. Do you pass out often from the arrhythmias? We take aspirin daily to reduce the risk of strokes or clots. -Lyn Date: Wed, 15 Feb 2006 14:45:40 -0000 Subject: Heart Study I had the EP study on my heart yesterday, and they did not find any electrical problems with my heart that they could fix. I was hoping they would be able to do the ablation and stop the arrthymias. Does anyone have any thoughts about what else might be causing the arrthymias? Anyone else have trouble with irregular heartbeats associated with their mito. I will be wearing a monitor for 30 days maybe that will show something. Thanks Carmen Marie Codier Early Childhood Music & Movement Specialist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 Carmen, Do you have POTS -- postural orthostatic tacycardia syndrome? also called dysautonomia. Have you been diagnosed with either? If not, try this self-test. After you have been sitting down for awhile (15 minutes) take your pulse. Then stand up for a couple of minutes and take your pulse standing. A person with POTS will have a dramatic increase in pulse upon standing. I believe the standard is an increase of 30 beats per minute. If you find you have the increase, report this to your doctor and consider finding an autonomic specialist. Vist the DINET Dysautonomia Information Network site and read about dysautonomia and POTS. A person with POTS will have tacycardia and possibly other arythmias and an ablation for a person with POTS is generally not the way to go. Michigan Jan Heart Study I had the EP study on my heart yesterday, and they did not find any electrical problems with my heart that they could fix. I was hoping they would be able to do the ablation and stop the arrthymias. Does anyone have any thoughts about what else might be causing the arrthymias? Anyone else have trouble with irregular heartbeats associated with their mito. I will be wearing a monitor for 30 days maybe that will show something. Thanks Carmen Marie Codier Early Childhood Music & Movement Specialist Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. Quote Link to comment Share on other sites More sharing options...
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