Re: dosage - I am confused

[Guest guest]

Jenn-

Sometimes I have a hard time understanding and this is one of those

times. Dominic takes . 6 mg of gh each day. This has not changed

from the initial shot (9/02). So, has Dr. H not increased it b/c he

has not demonstrated good weight gain?

F.

-- In RSS-Support , " magicrss " wrote:

> - Hopefully I can help you, here. But I am confused. When

> you say she is at the same " dosage " for the last year, there are

> some issues:

>

> First and foremost, as a child gains weight, the " dose " that the

> child is on for ANY medication that is weight-based has to be

> adjusted upwards for weight increases to keep the " dose " the same.

> Does this make sense???? Growth hormone is prescribed in a

> mg/kg/day method, here in the United States.

>

> SO.... for a dose to be the " same " over a year, either the child

> doesn't gain any weight in that year, and hence there are no unit

> changes. OR.... the child gains weight, so the child is given

> more " units " of the medicine to keep the " dosage " of the med the

> same.

>

> Am I making sense so far?

>

> So, when you say that her " dose " has stayed the same -- are you

> referring to the actual DOSAGE amount (in a mg/kg/day format) or

are

> you referring to the number of units (actual " amount " ) of GH she is

> getting.

>

> My daughter has stayed at the same DOSE of GH for the last year,

> because, as your doctor has said and Dr. Harbison agrees for

> , her growth velocity is doing really well -- so there is no

> reason to increase her dosage. HOWEVER, the number of units we are

> giving her as INCREASED every 3 months, because in order to keep

her

> dosage the SAME, as her weight has increased we have had to

increase

> the units.

>

> Whew. I think you will understand where I am going.

>

> So.... if your doctor has NOT increased the units your daughter is

> getting, despite the 8 pound weight gain, this is SHOCKING, because

> this would mean that he is giving her LESS AND LESS growth hormone.

>

> Write me back and let me know if you are referring to a flat dosage

> or units.

>

> Salem

>

>

>

>

> > Hi Everyone,

> >

> > I has been a while since I have posted.

> > We just came back from the Endo. He refused to increase my

> daughter's

> > dosage again. It is the same as the dosage we started on last

year

> in

> > April at 28 pounds. Now Mercedes 36 pounds. He is basing this on

> her

> > rate of growth.

> >

> > He was becoming angry as I questioned him about it futher and

> > reminded me of the side effects of too much GH, but did not

> mention

> > anything about the side effects of too little GH.

> >

> > Has anyone ever had the same dosage all year and more?

> > Any sugesttions?

> >

> >

> >

> > Mom to Mercedes IUGR/SGA, 36 inches and 5 years old, hypotonia,

> and

> > many RSS issues but no RSS diagnosis.

[Guest guest]

No, the dosage is .6mg. But I am guessing that you have him, let's

say for example " 24 units/ccs " one quarter. And maybe the next

quarter she moved it to 25 units/ccs. etc. She would increase the

amount that you draw up in the syringe, she would adjust this amount

as the child gains weight.

Jenn

has been at .

> > > Hi Everyone,

> > >

> > > I has been a while since I have posted.

> > > We just came back from the Endo. He refused to increase my

> > daughter's

> > > dosage again. It is the same as the dosage we started on last

> year

> > in

> > > April at 28 pounds. Now Mercedes 36 pounds. He is basing this

on

> > her

> > > rate of growth.

> > >

> > > He was becoming angry as I questioned him about it futher and

> > > reminded me of the side effects of too much GH, but did not

> > mention

> > > anything about the side effects of too little GH.

> > >

> > > Has anyone ever had the same dosage all year and more?

> > > Any sugesttions?

> > >

> > >

> > >

> > > Mom to Mercedes IUGR/SGA, 36 inches and 5 years old,

hypotonia,

> > and

> > > many RSS issues but no RSS diagnosis.

[Guest guest]

Well - he is on the pen device so it is always just . 6mg - or three

clicks of the pen. Does that make sense?

I might not ever get it but that's ok...I will have you explain it to

me in person at the convention : )

F.

-- In RSS-Support , " magicrss " wrote:

> No, the dosage is .6mg. But I am guessing that you have him, let's

> say for example " 24 units/ccs " one quarter. And maybe the next

> quarter she moved it to 25 units/ccs. etc. She would increase the

> amount that you draw up in the syringe, she would adjust this

amount

> as the child gains weight.

>

> Jenn

>

> has been at .

>

>

> > > > Hi Everyone,

> > > >

> > > > I has been a while since I have posted.

> > > > We just came back from the Endo. He refused to increase my

> > > daughter's

> > > > dosage again. It is the same as the dosage we started on last

> > year

> > > in

> > > > April at 28 pounds. Now Mercedes 36 pounds. He is basing this

> on

> > > her

> > > > rate of growth.

> > > >

> > > > He was becoming angry as I questioned him about it futher and

> > > > reminded me of the side effects of too much GH, but did not

> > > mention

> > > > anything about the side effects of too little GH.

> > > >

> > > > Has anyone ever had the same dosage all year and more?

> > > > Any sugesttions?

> > > >

> > > >

> > > >

> > > > Mom to Mercedes IUGR/SGA, 36 inches and 5 years old,

> hypotonia,

> > > and

> > > > many RSS issues but no RSS diagnosis.