Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 Has anyone been screened for familial hemiplegic migraine? There is a genetic test for it: http://www.geneclinics.org/profiles/fhm/index.html Also, here's a bit on SPECT: http://teachmefinance.com/Scientific_Terms/SPECT.html I first had a SPECT, where I needed contrast injected. Then I had a MR/SPECT without contrast. The MR SPECT was done at Columbia- Presbyterian in NYC, the SPECT locally. My MDA neuro was unhappy with the SPECT results (were like " a general sign of metabolic issues " ), and felt the MR SPECT would give more info, which it most definitely did (naming specific parts of the brain that showed high levels of lactic acid). Note that only three tests were positive for mito for me - blood lactate/pyruvate ratio, SPECT and MR-SPECT, and fresh muscle biopsy showing ox-phos activity. To the patient, a MR-SPECT is like a long MRI that's more expensive (mine was covered by insurance) and have to drive further to get one. Maybe we should put up a glossary for newcomers Take care, RH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 Good answer--I also never knew how a MR-spect was vs a MRI. Still do not really even after having one. I think things have changed a little from 1997 when I had mine but according to the doc who diagnosed my sister and then me the only machine in all of southeast and northeast WI was at the medical college in WI in Milwaukee (2 hrs from where I live). My understanding is that is can pickup on different chemicals in the brain. I have " evidence " of seizures told by neurologist but were waiting for the other doc who got caught in traffic. I never really went back to her as never really needed to see her. I believe that there are more of the specialized machines around today than in 1997 but probably only at the larger hospitals. Janet Sample Migraines and SPECT To the patient, a MR-SPECT is like a long MRI that's more expensive (mine was covered by insurance) and have to drive further to get one. Maybe we should put up a glossary for newcomers Take care, RH Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Yes, they use software to " attune it " to different chemicals, and that software is muyo expensive. Amazing though, it was the first test that made me think " wow, I'm not making this up " LOL... For those newcomers, many of us have had doctors and family and friends question whether we were making up symptoms or being hypochondriacs... Take care, RH > > Good answer--I also never knew how a MR-spect was vs a MRI. Still do not really even after having one. I think things have changed a little from 1997 when I had mine but according to the doc who diagnosed my sister and then me the only machine in all of southeast and northeast WI was at the medical college in WI in Milwaukee (2 hrs from where I live). My understanding is that is can pickup on different chemicals in the brain. I have " evidence " of seizures told by neurologist but were waiting for the other doc who got caught in traffic. I never really went back to her as never really needed to see her. > > I believe that there are more of the specialized machines around today than in 1997 but probably only at the larger hospitals. > > Janet Sample > Migraines and SPECT > > > > To the patient, a MR-SPECT is like a long MRI that's more expensive > (mine was covered by insurance) and have to drive further to get one. > > Maybe we should put up a glossary for newcomers > > Take care, > RH > > > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > > > > Quote Link to comment Share on other sites More sharing options...
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