Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Dear Friends, Thank you so much for the wonderful advice and helpful hints. Today I emailed our Pediatric GI specialist who is in as best of contact with Dr. H. right now as he can be (wink wink - moving woes, etc). I'm waiting to hear back from him regarding Connor's lack of real food intake and the dilemna of Pediasure. A quick question - how much corn starch do you add to an 8 oz bottle? I need a measurement. If we change the formula, do you need a prescription for Peptamen Jr.? Where do you get it and how much is it? Do you know if insurance companies pay for it if it's ordered by a Dr? I was contacted by Jenn at Magic and she said that a couple of families do the shopping in Chicago for incoming families to convention. Thank you so much to the people who volunteered to bring whatever formula we may find ourselves on in the near future. Hugs to all. I am so grateful for the collective wisdom of this group and their willingness to help. You all are a blessing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Hi , In order of your questions... I believe it is 1 tablespoon cornstarch for a 8 ounce bottle. You do not need a prescription for peptamen jr. It is made by Nestle and you can order it on the internet. However, it is very pricy. A 24 can case is $150. Our insurance company pays for it since has a gtube. If you don't have a tube, I don't know if they will pay. I do know that some insurance companies don't want to pay for it even if the child has a gtube. Good luck, Judith, Steve, (RSS) and (non RSS) 4 year old twins Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 We used 1/2 of the powdered formula scoop! Conny, 's great aunt > Hi , > > In order of your questions... > > I believe it is 1 tablespoon cornstarch for a 8 ounce bottle. > > You do not need a prescription for peptamen jr. It is made by Nestle > and you can order it on the internet. However, it is very pricy. A > 24 can case is $150. Our insurance company pays for it since > has a gtube. If you don't have a tube, I don't know if they will > pay. I do know that some insurance companies don't want to pay for > it even if the child has a gtube. > > Good luck, > > Judith, Steve, (RSS) and (non RSS) 4 year old twins Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 , Judith is lucky. I don't know where she gets her Peptamen, Jr., but we have to pay $185/case of unflavored. If we were to get vanilla, then it would be $206!! Insurance won't pay for it for us, but we are appealing that decision. Also, I have been in close touch with our district's Assemblyman and Senator to get a bill passed in NJ to make it law that insurance has to pay. They also sent a letter to the Commissioner of Banking and Insurance to ask him to intervene. When Max gets sick, as he is now, it costs us over $200/week for enteral feeds. I could go on and on about this subject!!! I assume that you are going to try the cornstarch idea. I hope it works. It sure helped Max and he was a very unstable child if he went all night without feeds. Jodi Z. Quote Link to comment Share on other sites More sharing options...
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