In the paper

[Guest guest]

Hi all this is s mom even through all the

sadness here I wanted to just say I had a great day with the kids

yesterday we went to a local swimming pool, well A guy from our

local newspaper was there taking pictures of kids in the pool and he

spotted and asked if he could photograph him playing in the

water I said sure.. I saw him taking several pictures of different

kids... well I got the paper today and he is on the front page of our

local newspaper!! I was so excited to see this and he looks soooo

cute!! I wish I knew how to put it on here... just thought I would

let you all know this was such a special feeling seeing this out of

all the kids he photographed he picked him!!! Also wanted to say we

got in our new shipment of the plain Nutropin Growth hormone and it

is not burning him, I am so glad we decided to change!! He still

isn't crazy about the needle , we had quite a struggle and he ended

up breaking my glasses but we are working through this with a lot of

encouraging words and trying to keep his spirits up, he just doesn't

understand why he has to have this for he says " I am big " He will be

going to kindercamp and I am so nervous about this but it will be

great preparation for him, He graduated from pre-school last Sunday

and he was so precious, of course I cried!!! Well I am rambling

just wanted to touch base with everone!!! Hugs

5yrs, prevacid and nutropin G H.

[Guest guest]

Hi ,

What a wonderful story! I bet he was the cutest kid there! I'm

glad the new GH is working for you. Braeden is going to go on GHT

when he is two. Right now though he has a fever and I think his J-

tube flipped in his tummy. He has a fever and really gagging. I

spoke to the ER dr tonight and she said to bring him to the ER

tomorrow morning. (We are a few hours away and on a ferry system).

It seems like every holiday we end up at Children's Hospital!

Anyway, your story really lifted my spirits! Have a wonderful

weekend!

Saundra Mom to Braeden (RSS) and Delaney 19 month twins

[Guest guest]

--Hi well of course I think he was the cutest kid there, but so did

he charm the life gaurds as well by the time we were there he had 2

of the life (girls) head over heals for him!! He even got them to go

down the big water slide with him!! He has a way with his cute voice

and personality!! I hope things go well for you, I don't know about

the Jtube thing but hope everything is o.k., I know about those Dr's.

appointments, we have 9 doctors and 4 therapist and he has Mild RSS,

he has other problems charecteristics of RSS to not that many of the

RSS kids have he is just a bundle of disorders and syndrome, he has

high spirits to and nothing can stop him!!!! Hope things go well

and you are in my thoughts and prayers glad I could put a smile on

your face, I sure needed one to!!!

- In RSS-

Support , " momtodandb " wrote:

> Hi ,

> What a wonderful story! I bet he was the cutest kid there! I'm

> glad the new GH is working for you. Braeden is going to go on GHT

> when he is two. Right now though he has a fever and I think his J-

> tube flipped in his tummy. He has a fever and really gagging. I

> spoke to the ER dr tonight and she said to bring him to the ER

> tomorrow morning. (We are a few hours away and on a ferry system).

> It seems like every holiday we end up at Children's Hospital!

> Anyway, your story really lifted my spirits! Have a wonderful

> weekend!

>

> Saundra Mom to Braeden (RSS) and Delaney 19 month twins