Janet Laurie Joanne - worried about daughter's blackout

February 25, 2006

Thanks for the feedback - it is really good. Janet - would a " ministroke "

like the one you describe with your son be the same as the stroke like events

others talk about having frequently, or more serious? I am still trying to

work out the difference between these and then " seizures " or " focal/partial

seizures, and also plain old fainting or low blood sugar attacks like Laurie's

(lucky you were ina hospital). And then there is neurocardiogenic syncope

which Joanne's girls have and the orthostatic tension which 's son has (or

are they the same)! And I suppose what I really want to know is do you all

attribute these things to mito... At any rate I am much happier after hearing

from you all and to know your kids are all alive and kicking, despite all their

challenges. pamela

worried about daughter's blackout

As some are aware my 21yo daughter has been struggling with dysmenorrhea on

a daily basis. She has also just got over a chest infection, and also has hurt

her wrist. Anyway on the way to work today she blacked out in the street -

ambulance was called and when she came to a short while later they said her

blood sugar was low. She has not been diagnosed yet but gets potential mito

symptoms such as numbness down one side, headaches, dizzy spells, nausea. On

the spot ECG was normal but Dr has ordered blood tests and halter monitor 24 hrs

to check for cardiac things. My main concern was could this have been a

seizure or a stroke but the gen practitioner thought if it was a grand mal

seizure she wouldn't have recovered so quickly, and if it was a partial (focal)

seizure it wouldn't have made her black out, and said the ambulance officers

would have recognized it if she had had a mini stroke. He ended up saying she

probably just had been overdoing it and wasn't quite over the chest infection

but it seems a bit bizarre to me. She said it just happened out of the blue and

she didn't feel it coming on - has never happened to her before. I was

wondering if anyone has any clues. thanks Pamela (MELAS A3243G)

February 25, 2006

Pamela

All of the above could be mito related or not. The general population

has these things, but the mechanism behind them might be different.

This is why it is so important to rule out the " normal " causes before

assuming it is from mito. Even if from mito, they can often be treated

the same as for the " normal " folks.

laurie

> Thanks for the feedback - it is really good. Janet - would a " ministroke

> " like the one you describe with your son be the same as the stroke like

> events others talk about having frequently, or more serious? I am still

> trying to work out the difference between these and then " seizures " or

> " focal/partial seizures, and also plain old fainting or low blood sugar

> attacks like Laurie's (lucky you were ina hospital). And then there is

> neurocardiogenic syncope which Joanne's girls have and the orthostatic

> tension which 's son has (or are they the same)! And I suppose what I

> really want to know is do you all attribute these things to mito... At any

> rate I am much happier after hearing from you all and to know your kids are

> all alive and kicking, despite all their challenges. pamela

> worried about daughter's blackout

>

> As some are aware my 21yo daughter has been struggling with

> dysmenorrhea on a daily basis. She has also just got over a chest

> infection, and also has hurt her wrist. Anyway on the way to work today she

> blacked out in the street - ambulance was called and when she came to a

> short while later they said her blood sugar was low. She has not been

> diagnosed yet but gets potential mito symptoms such as numbness down one

> side, headaches, dizzy spells, nausea. On the spot ECG was normal but Dr

> has ordered blood tests and halter monitor 24 hrs to check for cardiac

> things. My main concern was could this have been a seizure or a stroke but

> the gen practitioner thought if it was a grand mal seizure she wouldn't have

> recovered so quickly, and if it was a partial (focal) seizure it wouldn't

> have made her black out, and said the ambulance officers would have

> recognized it if she had had a mini stroke. He ended up saying she probably

> just had been overdoing it and wasn't quite over the chest infection but it

> seems a bit bizarre to me. She said it just happened out of the blue and

> she didn't feel it coming on - has never happened to her before. I was

> wondering if anyone has any clues. thanks Pamela (MELAS A3243G)

>

February 25, 2006

Hi Pamela,

Yes, every mito doc that follows my girls has openly said their issues are ALL

related to mito and differing, organ specific affect, ie as different organ

system(s) involvement is/are the casue of the clinical symptom. The

neurocardiogenic syncope is the result of faulty neurological and cardiac

systems.

Want to know is do you all attribute these things to mito...

Joanne Kocourek (mom to , lies, and )

visit us at: http://www.caringbridge.org/il/annakris

February 25, 2006

pamelama33 pamelama33@...> wrote: And then there is

neurocardiogenic syncope which Joanne's girls have and the orthostatic tension

which 's son has (or are they the same)!

Yes, they are the same thing. It's controlled by the autonomic nervous system.

They used to always call this a prolapsed mitral valve (even with a normal

valve) because people with a prolapsed mitral valve get orthostatic hypotension.

What happens is that (especially when rising from seated position) your blood

pressure changes rapidly and your body can't compensate so you lose

consciousness.

Mom to the two best kids in the world!

http://www.caringbridge.org/visit/thomasandkatie

---------------------------------

Yahoo! Mail

Bring photos to life! New PhotoMail makes sharing a breeze.

February 25, 2006

I have never really investigated the difference between what the mito doc called

a mini stroke and a major one--my sister had what he considered a major one

about a month after coming out of her coma in 1996. She used wrong words like

seaworks instead of seaworld is what I remember most. She also had a hard time

walking as it affected her left leg.

I think the seizures might be caused by something different chemically. To me I

really have not pursued it except if actual seizures would start then would get

on some sort of anti seizure med. A person from one of the other lists whose

wife died from Melas said that it became standard procedure ast their local

hospital when she had a seizure they gave her bicarb via iv. She had grand mal

seizures for 3 hrs that nothing would stop but the bicarb did.

Janet Sample

worried about daughter's blackout

As some are aware my 21yo daughter has been struggling with dysmenorrhea

on a daily basis. She has also just got over a chest infection, and also has

hurt her wrist. Anyway on the way to work today she blacked out in the street -