Brady is doing much better

June 1, 2004

Hello Everyone,

First of all I want to thank all of you for your support. I think

this is the first time I just didn't know if I could deal with all

that was going on for one more day. If it weren't for all of you I

don't know what I would have done.

I'm just letting you all know that Brady is doing much better.

Friday night was the worst of the last 2 weeks. He was gagging so

much and we couldn't do anything for him because the damn doctors

around here never told me what I needed to get to vent Brady since

he had the J-tube. I tryed doing everything that I could to vent

him but nothing seemed to work. Brady's dad and I decided that

enough was enough and the J-tube wasn't helping him any so we pulled

it. A bunch of air came out of his belly as soon as the J-tube was

out. We just put another mickey button in and started giving him

the feedings. Saturday he wasn't being himself. He was just laying

around moaning but Saturday night he snapped out of it and now we

have our happy Brady back.

I know that pulling the j-tube didn't solve the whole problem

because he was also gagging without it and we got the j-tube because

we thought the gagging would stop. This Friday Brady is going to

the Children's Hospital of Pittsburgh to have an Endoscope done to

see if there is a problem that they can't see in the belly x-rays

the milk swollow, and the upper GI. They are also going to be

checking the hiatal hernia. I am a little scared about the endoscope

because they have to put him under for that and Brady never did well

with the anistetic. Hopefully he will be fine with it and won't

have to stay in the hospital very long after the test is done.

(mom to Brady 20 months 14 pounds 7 ounces RSS G-tube,

Reglan, Zantac, fundoplication, and 2 parents who think they are

doctors. Kiersten 4 months non RSS 13 pounds 6 ounces)

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