Re: Questions, questions, questions

[Guest guest]

On the school snack front, you can send in stuff that all the kids could

share...you could send him in with all his faves...if your teacher is even

half willing, she will come around. My guy's (3 1/2 year old) teacher was

oblivious when we started, but as the year has progressed, she sends home

labels now for me to let her know if something that she got in hopes that

can eat it with the class. THat is such a sign of hope. But if

you can make sure he has somthing comparable...his own cereal snack if they

have cereal, his own cookies for when they do cookies...etc. I send my guy

in with a box of Capri Suns rather than the bulk powder mixed juices they

buy. The teacher tells us when we're out of anything, and we restock.

We've had less than a handful of infractions, and that was early in the

process. And they saw the results in his behavior a few days later

themselves, so they got more diligent with enforcing it...

I understand that the tests will still read okay even if you already started

the diet because they hang around for awhile in their systems...I

understand gluten hangs around the longest...

Congratulations to you!!!

Lynn in MD

[Guest guest]

Don't worry too much about what he eats in the beginning. It seems that most

of the kids start out not eating much because it is hard to make such a big

transition. You'll figure out the way soon enough.

The snack thing. Well there are plenty of snacks you can make which is what

I usually do. Cookies, gfcf rice krispies snacks, cupcakes, or little snack

packs of Lays potato chips, French's potato sticks, and there are other

things. It's very hard at first because all the other kids get to eat what

they want but once you get into the diet you'll realize it's all junk and

that your child is eating better now. As we all know in this group most of

us have a baking day where we get alot of breads and snacks made. You will

soon have one too. If you need some recipes for snacks and can't find them

in the archives let me know and I will e-mail them to you. Just take it one

day at a time. It's overwhelming at first but so well worth it and plus

everyone here is always willing to help.

MA

[Guest guest]

In a message dated 5/1/2001 11:34:07 PM Pacific Daylight Time,

jcannon@... writes:

> One more questions...I have heard that it is okay to test for peptides even

> though I have already started the diet. What do you think? Or should I

> take him off for a few days to get an accurate read. (I understand that

> the test is not accurate. I will still continue the diet if it comes back

> in normal range...but I will be even more motivated if it is high).

>

>

HI and welcome. I had my son on the diet for the week before I

finally saw a DAN doc who was ordering peptide tests. I decided to put him

back on milk and gluten for a few days. I noticed an immediate change

especially with the milk, he was cranky and really out of sorts. Once the

tests were done I put him back GFCF but boy I felt so guilty those few days

because I saw what the milk did to him. His casemorphin came back high even

with those few days of milk, his gluten came back normal but Im not convinced

its not a problem for him. I will also get an IGg to see any wheat

sensitivity. My advice is if the diet is going well and you see some changes

dont take him off. Within a months time of being on the diet, Jake has made

amazing strides. His eye contact and interaction are just amazing. Although I

know seeing the results on paper is confirming, but the results are far more

convincing. It really depends on when you test for the peptides, if its not

for another month or so, dont switch him back. It may take time for the

peptides to build back up. Good luck to you, and also ask your doc what

he/she thinks about that.

[Guest guest]

In a message dated 5/2/01 2:34:15 AM Eastern Daylight Time, jcannon@...

writes:

> And preschool today....it breaks my heart to send my little guy to

> preschool today with his rice cakes and crackers while the rest of the kids

> are " living it up " . I know it's gonna kill him! Any suggestions? I'm

> thinking about taking him out for " snack with Mom " .

>

>

I worried about this but it was weird how my son seemed actually relieved to

have his own snack. He is over 5 though, and has shown a great deal of

understanding that this diet is helping him. I am not limiting as much as

you are so the only thing I can say is as soon as you can add something, make

it along the snack line that your son will like...The gluten free Panty makes

a great brownie and choc. chip cookie mix. I give these to my son when he

needs to feel special. I even visited my special swiss choc. store at the

mall the other day and he was very good. I told him in advance that we were

going but that the choc. had diary and he no longer could have any BUT that I

would bring him 2 special brownies to eat while we were there. He was

perfectly content. I think sometimes once they realize that they actually

feel better compliance is easier.

Oh and about the peptide test....all I can say is that both of my children

have responded so positively to this diet and then the addition of supps.

that I may not pursue testing for peptides. I mean if they are doing better

and I can see it why spend the money? I have all the motivation I need just

seeing the improvements. The proof is in the pudding so to speak not the

numbers.

Debbie