Daughter - another blackout - does sound like dysautonomia

[Guest guest]

Now looks as though my daughter might have dysautonomia too - she had another

blackout this morning in the kitchen, just before she was about to drive off to

work!. Her blood sugar was normal. She's now in hospital under observation for

two days, but already they gave her what sounds like the pots test and her heart

rate doubled. They were surprised though she didnt remember blacking out,

didnt feel dizzy beforehand. pamela

Re: rapid heart beat

Hi Celia,

We were all tested for autonomic testing and my 20 year old son is the most

severe he has severe POTS/ Dysautonomia. My daughter and myself have POTS/

Dysautonomia to a more moderate degree. Before we were tested a friend of mine

who is a RN nurse and worked in Neurology for years she also has POTS. She told

us to do what she calls the poor man tilt test taking your blood pressure lying

and than standing it worked for us best of luck.

Smiles,

Donna K

---- cghng888 black_lake@...> wrote:

> Dear Lauire, I was just wandering about my rapid heart beat. It seems

> to go up an anytime... even most of the time now. I tried your little

> test for POTS the other day and standing after sitting doesn't seem to

> particularly bring it on. Can it still be classed as autonomic

> disfunction in this case. I have had ECGs and an echo and it just

> shows rapid heart beat (and a slight amount of mitral insufficiency,

> normal for my age the doc said) My doc has been treating me for my

> high BP and rapid heart beat with cardiazam(diitazem HCl, diltiaz) and

> it seems to work for a while then both HR and BP go up again so she

> increses the dose. I think this drug is more for thsoe suffering from

> coronary artery disease. I beleive you once said you took beta

> blockers for the raid HR. Is this the way to go? Should I be

> suggesting this to her. I am seeing her about this on Tuesday.Any

> advice appreciated, Celia

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

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>

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>

[Guest guest]

Pamela

I hope your daughter gets some answers and begins to feel better. Give

her a big hug from me.

Hug for you,

laurie

> Now looks as though my daughter might have dysautonomia too - she had

> another blackout this morning in the kitchen, just before she was about to

> drive off to work!. Her blood sugar was normal. She's now in hospital

> under observation for two days, but already they gave her what sounds like

> the pots test and her heart rate doubled. They were surprised though she

> didnt remember blacking out, didnt feel dizzy beforehand. pamela

> Re: rapid heart beat

>

>

> Hi Celia,

> We were all tested for autonomic testing and my 20 year old son is the

> most severe he has severe POTS/ Dysautonomia. My daughter and myself have

> POTS/ Dysautonomia to a more moderate degree. Before we were tested a

> friend of mine who is a RN nurse and worked in Neurology for years she also

> has POTS. She told us to do what she calls the poor man tilt test taking

> your blood pressure lying and than standing it worked for us best of luck.

> Smiles,

> Donna K

> ---- cghng888 black_lake@...> wrote:

> > Dear Lauire, I was just wandering about my rapid heart beat. It seems

> > to go up an anytime... even most of the time now. I tried your little

> > test for POTS the other day and standing after sitting doesn't seem to

> > particularly bring it on. Can it still be classed as autonomic

> > disfunction in this case. I have had ECGs and an echo and it just

> > shows rapid heart beat (and a slight amount of mitral insufficiency,

> > normal for my age the doc said) My doc has been treating me for my

> > high BP and rapid heart beat with cardiazam(diitazem HCl, diltiaz) and

> > it seems to work for a while then both HR and BP go up again so she

> > increses the dose. I think this drug is more for thsoe suffering from

> > coronary artery disease. I beleive you once said you took beta

> > blockers for the raid HR. Is this the way to go? Should I be

> > suggesting this to her. I am seeing her about this on Tuesday.Any

> > advice appreciated, Celia

> >

> >

> >

> >

> >

> > Medical advice, information, opinions, data and statements contained

> herein are not necessarily those of the list moderators. The author of this

> e mail is entirely responsible for its content. List members are reminded of

> their responsibility to evaluate the content of the postings and consult

> with their physicians regarding changes in their own treatment.

> >

> > Personal attacks are not permitted on the list and anyone who sends one

> is automatically moderated or removed depending on the severity of the

> attack.

> >

> >

[Guest guest]

I guess I didn't pay much attention to my blackouts - they were never

diagnosed as one particular thing or another. Although I do have

absence seizures, and fall if I'm standing when I have one. I almost

never feel dizzy before a blackout or absence seizure.

I believe my blackouts are due to metabolic issues - " dysautonomia "

is a symptom to me, not a condition. The messed up mitochondria are

what I believe to be the culprit. As I treat that, my blackouts went

away (mostly LOL).

Eating too much or having a sensitive stomach can cause blackouts,

due to interactions between the (is it vagus?) nerve controlling the

heart rate and the digestive tract. Supposedly that is why the Pres.

blacked out from the pretzel, got stuck in his esophagus and

stimulated the nerve to slow the heart rate enough to black out.

Take care,

RH

> > Dear Lauire, I was just wandering about my rapid heart beat. It

seems

> > to go up an anytime... even most of the time now. I tried your

little

> > test for POTS the other day and standing after sitting doesn't

seem to

> > particularly bring it on. Can it still be classed as autonomic

> > disfunction in this case. I have had ECGs and an echo and it

just

> > shows rapid heart beat (and a slight amount of mitral

insufficiency,

> > normal for my age the doc said) My doc has been treating me for

my

> > high BP and rapid heart beat with cardiazam(diitazem HCl,

diltiaz) and

> > it seems to work for a while then both HR and BP go up again so

she

> > increses the dose. I think this drug is more for thsoe

suffering from

> > coronary artery disease. I beleive you once said you took beta

> > blockers for the raid HR. Is this the way to go? Should I be

> > suggesting this to her. I am seeing her about this on

Tuesday.Any

> > advice appreciated, Celia

> >

> >

> >

> >

> >

> > Medical advice, information, opinions, data and statements

contained herein are not necessarily those of the list moderators.

The author of this e mail is entirely responsible for its content.

List members are reminded of their responsibility to evaluate the

content of the postings and consult with their physicians regarding

changes in their own treatment.

> >

> > Personal attacks are not permitted on the list and anyone who

sends one is automatically moderated or removed depending on the

severity of the attack.

> >

> >