Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 In three weeks my son will be having his tenotomy done. They have decided it would be best to do this at the hospital and put him under. I am actually relieved as I think this will be less stressful for him. Can any of you tell me your tenotomy experiences? Good or bad. Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 How old is your son? I am just curious why they chose to 'put him under'. I know they usually do for older babies. Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 Lynne, My son's first tenotomy was done with just a local anesthetic. However, it was done at the hospital's main OR (not in the dr office) because our dr at the time wanted to have other things available if he needed them. Because of the " possibility " of needing a general anesthetic, we had to be careful about when Jake had eaten the last time (I think he was not supposed to eat within 4 hrs of the procedure). This was kind of a pain- Jake was to be the first procedure of the day so I had to get up really early to nurse him that last time. And of course he was hungry again shortly before he was to go back for the procedure!! Anyways, I wasn't allowed to stay with him for the procedure, since they did it in the OR, but he was only away from us for maybe 15-20 min. The actual procedure is really quick and easy- our dr told us he has a special scalpel which is teeny-tiny. (the scar looked to be 1/8-1/4 inch! so very small) They kept him for maybe a half hour afterwards just to observe him, but I was able to nurse Jake in the recovery room. He was very sleepy afterwards. He had another full-leg cast on- it stayed on for 2 wks, and then he had another cast for 2 wks, and then he went to the shoes with the fab. The day of Jake's tenotomy was really rough on me. Seth (my husband) wasn't able to stay home due to some issues going on at his work (he was there for the tenotomy but had to go to work afterwards), so I was home alone with Jake. He slept a lot of the day, but he was very very painful when he was awake. He would start waking up, and then I'd have about 30 seconds to get him on the breast and nursing before he'd start shrieking! We were allowed to give him baby tylenol but only every 4 hrs. By that evening, though, he was doing soooo much better. He was still fussy but wasn't shrieking anymore (of course, he started feeling better shortly before my husband was due home from work lol). I think he was fussy for a day or two but after that was just fine. We were warned that we might see some blood seeping through the cast in the heel area, and that's ok (depending on the amount of course), but we didn't see any. When they took the cast off two weeks later, you could barely see (already!) where the incision was. It was very tiny and now that Jake's 4 yrs old you can hardly see it. Your dr's office should give you instructions about the procedure including how long beforehand he can eat etc. He may also have to stay longer at the hospital if they use general anesthetic. Be sure to ask if you'll be able to be with him in the recovery room- most hospitals are ok with that, especially with babies & children, since their parents are who the child is going to need afterwards. My best advice, though, is to make sure there is someone available to help you out afteryou get home, especially if you've got older kids. I remember that by the afternoon of the day of Jake's tenotomy I was just about ready to cry! It would have been much better if Seth had been able to be with me. Hope this helps! Let me know if you have any questions. Kassia 3/22/01 (Lt clubfoot, ATTT surgery April 2004) and 11/22/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 Livi has had two tenotomies... the first at 4 months old, was just an in-office procedure - took all of 15 minutes - the longest part is getting the casts on afterwards. The gave her some emla cream to numb the area about 2 hours before and we also gave her tylenol. Her second tenotomy at 1 yr of age was done in the hospital - I think it's easier on the baby to get real anesthesia if he/she is older. She wasn't completely knocked out, they called it conscious sedation I believe. She wwas given some yummy anti-anxiety med before they took her back, so she was not upset at all when they took her. She acted drunk which was really funny. We had enough time to go to the car, get to the cafeteria and sit down with a plate of breakfast when we were paged back to receive her. It was that quick. She was crying hysterically - just coming off the drugs. She cried for about 45 minutes while we held her. It was OK because the nurses said it was normal... we just comforted her the best we could, then took her home. Tylenol was given for the pain- we only had to give it a couple times. Wasn't too bad at all. THe worst part was the anticipation since I was worried about the anesthesia. THe docs at Children's were very good and made us feel much more comfortable. HTH - Good luck! Darby Livi 3/15/04 bi cf > In three weeks my son will be having his tenotomy done. They have > decided it would be best to do this at the hospital and put him under. > I am actually relieved as I think this will be less stressful for him. > Can any of you tell me your tenotomy experiences? Good or bad. > > Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 Hi, Tori had her Tenotomy done at about 4 months of age. They actually did it a cast change earlier than expected because of how well her feet corrected so I didn't have a chance to get overly concerned so that was kind of nice. She had hers done in IC and it was under local anesthesia. I got to be in the room with her the whole time. They put some numbing jell on and she kind of fussed for that and they said it kind of stings. Then they gave her a couple of shots for more numbing witch she didn't seem to mind. Then they used a small scalpel and did the Achilles tendon and then they put the cast on. She cried a little bit but it wasn't any major screaming like she was in severe pain just fussing. Then they did the other foot and we were done. We did have some bleeding through the cast about the size of a quarter and we could take it off after 2 ½ weeks at home and went right into her brace. When we took the casts off I couldn't even tell where they had done it at. Still can't. Over all it was very easy. She slept a lot the first day and I gave her Tylenol. I think she cried the most when the nurse accidentally dropped a toy on her head before we got started. J HTH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 my daughter, grace, has had the procedure done twice... once by a non-ponseti doctor and once by a ponseti trained.. it was a breeze both times... i was so nervous and cried the first time.. and don't get me wrong.. was nervous the second time but knew it was not that bad... they put her under both times... but she was older for both... 8 months for one foot, 12 months for the other foot, and then 14 months for the second on both feet.. she was not allowed to eat for 4 hours before.. but she had very early appt times.. her surgeries were at 7:00 or 8:00 in the morning.. and she's so nosey and was too busy watching the people walking around to think about needing to eat... so that was a relief.. they make a very small incision and cut the tendon.. then cast the leg up to the diaper for 4 weeks.. with a cast change in there some where.. then they go to the FAB.. the scar is very very tiny... the same if you took a felt tip marker and made a dot on the back of her leg.. grace has 2 dots on each heel.. that's it.. she didn't have any pain that i could really tell after... i gave her tylenol every four hours just in case.. but she was pulling up and standing on the casts in the crib in the hospital after she got out of recovery... and was laughing.. so i don't think it was bad... and she walked around the tables when we got home that evening.. so don't fret too much over it.. it really is a very simple procedure.. and it really does wonders... hth... mommy to Grace 12-03-03 BCF Dobb's Brace 16/7 chten mad4madison@...> wrote: In three weeks my son will be having his tenotomy done. They have decided it would be best to do this at the hospital and put him under. I am actually relieved as I think this will be less stressful for him. Can any of you tell me your tenotomy experiences? Good or bad. Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 My son Sammy had the tenotomy done under general anesthesia when he was about 11 weeks old. We were told that normally it is easier for the little ones to be put to sleep so that no one has to hold them still while the doctor does the procedure. They said it is more common to have general anesthesia at Children's Hospitals because they are all about making sure the children feel no pain. Sammy was in and out of the OR in about 40 minutes. I was able to go in and nurse him in the post-op area. He slept a lot that day and the next but otherwise was his usual cheerful self. > In three weeks my son will be having his tenotomy done. They have > decided it would be best to do this at the hospital and put him under. > I am actually relieved as I think this will be less stressful for him. > Can any of you tell me your tenotomy experiences? Good or bad. > > Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 they also gave grace some meds for anxiety before they took her back... and i tell you... that's the funniest stuff i've seen in a long while.. she was way drunk acting and even did the " drunk laugh " ... she liked looking at her hands and tried to hold them in front of her face... and would laugh uncontrollably... was pretty cute.. i got it all on camcorder but then my house got broken into and they stole the camcorder... i was sooooo upset... won't get that back... oh well... mommy to Grace 12-03-03 BCF Dobb's Brace 16/7 Caroland lcaroland@...> wrote: my daughter, grace, has had the procedure done twice... once by a non-ponseti doctor and once by a ponseti trained.. it was a breeze both times... i was so nervous and cried the first time.. and don't get me wrong.. was nervous the second time but knew it was not that bad... they put her under both times... but she was older for both... 8 months for one foot, 12 months for the other foot, and then 14 months for the second on both feet.. she was not allowed to eat for 4 hours before.. but she had very early appt times.. her surgeries were at 7:00 or 8:00 in the morning.. and she's so nosey and was too busy watching the people walking around to think about needing to eat... so that was a relief.. they make a very small incision and cut the tendon.. then cast the leg up to the diaper for 4 weeks.. with a cast change in there some where.. then they go to the FAB.. the scar is very very tiny... the same if you took a felt tip marker and made a dot on the back of her leg.. grace has 2 dots on each heel.. that's it.. she didn't have any pain that i could really tell after... i gave her tylenol every four hours just in case.. but she was pulling up and standing on the casts in the crib in the hospital after she got out of recovery... and was laughing.. so i don't think it was bad... and she walked around the tables when we got home that evening.. so don't fret too much over it.. it really is a very simple procedure.. and it really does wonders... hth... mommy to Grace 12-03-03 BCF Dobb's Brace 16/7 chten mad4madison@...> wrote: In three weeks my son will be having his tenotomy done. They have decided it would be best to do this at the hospital and put him under. I am actually relieved as I think this will be less stressful for him. Can any of you tell me your tenotomy experiences? Good or bad. Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 Kassia, Thank you for the info. That is exactly what I wanted to know. Lynn > Lynne, > > My son's first tenotomy was done with just a local anesthetic. However, > it was done at the hospital's main OR (not in the dr office) because our > dr at the time wanted to have other things available if he needed them. > Because of the " possibility " of needing a general anesthetic, we had to > be careful about when Jake had eaten the last time (I think he was not > supposed to eat within 4 hrs of the procedure). This was kind of a > pain- Jake was to be the first procedure of the day so I had to get up > really early to nurse him that last time. And of course he was hungry > again shortly before he was to go back for the procedure!! Anyways, I > wasn't allowed to stay with him for the procedure, since they did it in > the OR, but he was only away from us for maybe 15-20 min. The actual > procedure is really quick and easy- our dr told us he has a special > scalpel which is teeny-tiny. (the scar looked to be 1/8-1/4 inch! so > very small) They kept him for maybe a half hour afterwards just to > observe him, but I was able to nurse Jake in the recovery room. He was > very sleepy afterwards. He had another full-leg cast on- it stayed on > for 2 wks, and then he had another cast for 2 wks, and then he went to > the shoes with the fab. > > The day of Jake's tenotomy was really rough on me. Seth (my husband) > wasn't able to stay home due to some issues going on at his work (he was > there for the tenotomy but had to go to work afterwards), so I was home > alone with Jake. He slept a lot of the day, but he was very very > painful when he was awake. He would start waking up, and then I'd have > about 30 seconds to get him on the breast and nursing before he'd start > shrieking! We were allowed to give him baby tylenol but only every 4 > hrs. By that evening, though, he was doing soooo much better. He was > still fussy but wasn't shrieking anymore (of course, he started feeling > better shortly before my husband was due home from work lol). I think > he was fussy for a day or two but after that was just fine. We were > warned that we might see some blood seeping through the cast in the heel > area, and that's ok (depending on the amount of course), but we didn't > see any. When they took the cast off two weeks later, you could barely > see (already!) where the incision was. It was very tiny and now that > Jake's 4 yrs old you can hardly see it. > > Your dr's office should give you instructions about the procedure > including how long beforehand he can eat etc. He may also have to stay > longer at the hospital if they use general anesthetic. Be sure to ask > if you'll be able to be with him in the recovery room- most hospitals > are ok with that, especially with babies & children, since their parents > are who the child is going to need afterwards. My best advice, though, > is to make sure there is someone available to help you out afteryou get > home, especially if you've got older kids. I remember that by the > afternoon of the day of Jake's tenotomy I was just about ready to cry! > It would have been much better if Seth had been able to be with me. > > Hope this helps! Let me know if you have any questions. > > Kassia > 3/22/01 (Lt clubfoot, ATTT surgery April 2004) > and 11/22/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2005 Report Share Posted April 29, 2005 Kelsey had the tenotomy done when she was 12 months old and general snesthesia was used for her. I was with her right up until before the OR. I walked her to the door of the OR and handed her to the anesthesiologist. She was not under the influence of anything yet as they wanted to make sure she was in a controlled environment. Kelsey actually handled this part better than I did. We went to the waiting room and about 30 minutes later, the surgeon was back out and it was over. My husband and I were called back into the recovery room shortly after that. Kelsey was screaming to beat the band and they wanted us to assess whether it was pain related or just scared, upset etc. She calmed down a little bit after that but was still crying pretty hard which was very much a pain thing for Kelsey. The recovery nurse called and got an OK for more IV pain meds and after that, Kelsey calmed right down. They were giving her juice to drink and some Tylenol as well. I rocked her and as I did that, she fell asleep. They then took the IV out and let us taker her home. On the way home (about an hour in the car), she did throw up which was not surprising to me because I also have a difficult time with anesthesia. But after that, she went to sleep and I put her straight in her crib when we got home. She slept for about 5 hours, woke up, ate a little and then went back to sleep for the night. I continued to give her Tylenol and after she woke up the next day, she was fine and no longer even needed that. Good luck with the procedure but it will be over before you know it. The hardest part for me was handing my baby over to these people I had just met and trusting them with her. As usual, Kelsey handled everything much better than I did. Jenni --- lynnekruchten mad4madison@...> wrote: > In three weeks my son will be having his tenotomy > done. They have > decided it would be best to do this at the hospital > and put him under. > I am actually relieved as I think this will be less > stressful for him. > Can any of you tell me your tenotomy experiences? > Good or bad. > > Thank you > > > > Jenni- Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB nights only for left clubfoot. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2005 Report Share Posted April 29, 2005 My son was 6 months when he his tenotomy and he was also under anethesia. Our doc calls his older babies wildmen. My buddy is definately one of those. He broke several casts with one kick after the doc was sure the plaster was dry. I noticed the cast the doc put on after the tenotomy was pretty thick just in case. We were told no food after midnight and his surgery was scheduled for 7. He did fine, which surprised me, and was more wide eyed and looking at everything than fussy. I think the worst part of it was getting him to stop crying after the procedure. The nurse, who was trying to help, gave him a bottle of sugar water. He has a very sensitive belly and the sugar water (the little he would drink cause he won't let a bottle in his mouth most of the time) combined with the upset routine, combined with the anesthesia made his belly really upset. It took about a hour to get him to calm down enough to burp. Then we were fine. He cried if he clunked his cast on the floor good for a day or so after, but that was all. And thank goodness I have an angel mother who drove three hours to my house so I could leave my other kids and drive three hours the other direction. I didn't have to worry about my kids and the procedure was really quick. Tenotomy Procedure In three weeks my son will be having his tenotomy done. They have decided it would be best to do this at the hospital and put him under. I am actually relieved as I think this will be less stressful for him. Can any of you tell me your tenotomy experiences? Good or bad. Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2005 Report Share Posted April 29, 2005 Hi Lynne Berry had her tenotomy at 11 weeks old, last February. It is standard procedure in the UK it to be undertaken using general anaesthetic (although some clinics still don't). We had to go to hospital the morning before the operation, which in itself was long and tedious and put Berry out of sorts, I guess it was just a different environment. She was checked over throughout the day and we were told we wouldn't be able to feed her after midnight, which I was absolutely dreading, how do you tell a three month old baby that sorry but mummy's not going to give you milk tonight! Anyhow that was then changed to no feed after 5am which was much much better, but still a little bit of a trial. Berry was taken off for the op at around 9am, and one parent (I nominated myself) was allowed to stay with her until she was under general anaesthetic. This was indeed the worst bit, I held her as the surgeon put a mask over her face, (which she was obviously upset by and struggled with), and she went floppy. I then had to leave her and my husband and I went for a cup of tea in the cafe. by the time we reached the ward 30 mins later, they were on their way to fetch us and we were allowed to fetch Berry from the resussitation (sp?) area. We were greeted by loud cries but she immediately took by breast for a drink and she was quiet. She was a little unsettled for a few days following but had a mild painkiller. To be honest, all was fine, and it was a much worse experience for my husband and I than for the baby. Hope all goes well for you too, please let us all know how you get on. --- " ph Grush " jngrush@...> wrote: Date: Fri, 29 Apr 2005 09:12:18 -0600 To: nosurgery4clubfoot > Subject: Re: Tenotomy Procedure My son was 6 months when he his tenotomy and he was also under anethesia. Our doc calls his older babies wildmen. My buddy is definately one of those. He broke several casts with one kick after the doc was sure the plaster was dry. I noticed the cast the doc put on after the tenotomy was pretty thick just in case. We were told no food after midnight and his surgery was scheduled for 7. He did fine, which surprised me, and was more wide eyed and looking at everything than fussy. I think the worst part of it was getting him to stop crying after the procedure. The nurse, who was trying to help, gave him a bottle of sugar water. He has a very sensitive belly and the sugar water (the little he would drink cause he won't let a bottle in his mouth most of the time) combined with the upset routine, combined with the anesthesia made his belly really upset. It took about a hour to get him to calm down enough to burp. Then we were fine. He cried if he clunked his cast on the floor good for a day or so after, but that was all. And thank goodness I have an angel mother who drove three hours to my house so I could leave my other kids and drive three hours the other direction. I didn't have to worry about my kids and the procedure was really quick. Tenotomy Procedure In three weeks my son will be having his tenotomy done. They have decided it would be best to do this at the hospital and put him under. I am actually relieved as I think this will be less stressful for him. Can any of you tell me your tenotomy experiences? Good or bad. Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2005 Report Share Posted April 29, 2005 Depending on age I think. My son Everett was about a month old, they did it in the office with dh holding him. s. Tenotomy Procedure In three weeks my son will be having his tenotomy done. They have decided it would be best to do this at the hospital and put him under. I am actually relieved as I think this will be less stressful for him. Can any of you tell me your tenotomy experiences? Good or bad. Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2005 Report Share Posted May 2, 2005 My son had his tenotomy 3 weeks ago when he was 8 weeks old. They also did his under general anesthetic, which made me very nervous. I stressed about it for 2 weeks. The day of the surgery, I could not feed him after 2:00 a.m. and was scheduled to be at the hospital at 6:00 a.m. He was one of the first surgeries scheduled for that day, which I believe started at 7:30 (I cannot remember for sure, I had very little sleep the night before). My mother-in-law went with me the day of the surgery (my family does not live close by). We went back with him and were there as they got him ready. I met the anesthesiologist, all of the people that were going to be in with him, and the doctor went over again what they were going to do and what to expect. My MIL and I got to stay with him until they carried him away for surgery (crying, he was hungry).The doctor came out about 20 minutes later and gave me the report on how it had gone and that they were moving him to recovery. A little while later (I'm not sure how much later, I was tired and it all went so fast) I was allowed to go be with him in recovery. I could hear him crying as I approached the recovery area. He didn't really open his eyes, but he was doing well, so they let me nurse him. He ate for awhile and then fell right back to sleep. They moved us to another room and allowed my MIL to come back. We sat there awhile longer while they monitored him and then I was told if I felt comfortable doing it, he was okay to go home. We left around 9:15. I did give him a little Tylenol when we got home, but other than being a little sleepy, he never seemed to be in pain or have any other noticable reaction to the surgery/anesthesia. He did have the red spot on his cast from where they did the incision like they said he probably would, but everything has gone as they predicted. So far the results have been favorable and he has gained alot more movement in that foot. Having Tysen put completely out also allowed the doctor to get a good look at a crease that Tysen had on the outer portion of the bottom of his foot. Turns out the worst part of the whole thing was my stress the 2 weeks before! HTH, Lorinda and Tysen (lcf - 2/18/05) > In three weeks my son will be having his tenotomy done. They have > decided it would be best to do this at the hospital and put him under. > I am actually relieved as I think this will be less stressful for him. > Can any of you tell me your tenotomy experiences? Good or bad. > > Thank you Quote Link to comment Share on other sites More sharing options...
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