Daughter blackouts, rapid heart ? POTS dysautonomia etc

February 28, 2006

thks laurie (hug) and rh (info) - penny is still in hospital as i think the high

heart rate in Emergency (after standing quickly) scared everyone - it went up

from 70 to 225 ! was repeated a half hour later going from 65 to 120. but

today it's normal. she has been put under a regular physician and I gave her

some info re mito and melas which she read and gave her an echo which was

normal... she is also going to be seen by a cardiologist and they were

wondering how far to go with the testing - apparently to check for the cardiac

pathways there is some sort of invasive test (like an angiogram) and she hasn't

even been confirmed with melas yet so they're not keen on doing that one at this

stage. i had a whole list of things to ask the doc to exclude, including

seizures strokes and cardiac things that I have collected from the documents and

all your notes - starting running through it and she said - what, do you want to

be the doctor? I said oh no of course not.... i mentioned brain mri to look

for lactic acidosis or signs of seizure activity (my prof gave me a special one

which you are probably all familiar with not sure of the name) and she

challenged that saying that mri doesnt show lactic acidosis... anyway at

least she's keeping her in to do some tests. if i get another chance i'll

throw a few of your extra words in rh (absence seizures etc) although she said

if penny had had a seizure she would have been shaking afterwards.... pamela

(melas a3243g)

Re: Daughter - another blackout - does sound like

dysautonomia

I guess I didn't pay much attention to my blackouts - they were never

diagnosed as one particular thing or another. Although I do have

absence seizures, and fall if I'm standing when I have one. I almost

never feel dizzy before a blackout or absence seizure.

I believe my blackouts are due to metabolic issues - " dysautonomia "

is a symptom to me, not a condition. The messed up mitochondria are

what I believe to be the culprit. As I treat that, my blackouts went

away (mostly LOL).

Eating too much or having a sensitive stomach can cause blackouts,

due to interactions between the (is it vagus?) nerve controlling the

heart rate and the digestive tract. Supposedly that is why the Pres.

blacked out from the pretzel, got stuck in his esophagus and

stimulated the nerve to slow the heart rate enough to black out.

Take care,

RH

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