Help!!!

April 15, 2003

Dear Pam,

I so understand what you are saying. I have been in that boat.

Finally have started digging myself out of it. Suggestions? I have

found therapy helpful every so often. It's usually not more then 5 or 6

sessions, just enough to keep on track. As for portable snacks, I try

things like string cheese, nuts, peanut butter and crackers, and protein

bars. Infact, I try to keep a protein bar or two in my purse for

emergencies.

Lori Owen - Denton, Texas

CHF 4/14/01 479 lbs.

SRVG 7/16/01 401 lbs.

Current Weight 335

Dr. Ritter/Dr. Bryce

On Wed, 16 Apr 2003 00:04:37 -0000 " dixiedew70 "

writes:

> I had my surgerry 11/27/01 and I have lost 145#. Yes, that is

> wonderful, but now I feel like the church " backslider " . I am

> cheating some, and I'm terrified of regaining my weight, but for

> some reason, I can't get my motivation headed in the right direction

>

> again. So, when I eat things I should not, I force myself to throw

> them back up. I know this is not healthy or logical. I need some

> ideas and support. Any help would be GREATLY APPRECIATED!!!! I

> would like some ideas on some portable snacks...so I will run from

> the chips and fries. (I still do not touch the " white stuff " ----

> sugar-----) But I do have a problem with bread cravings. Help me

>

> please. Pam

>

April 15, 2003

Dear Pam,

I so understand what you are saying. I have been in that boat.

Finally have started digging myself out of it. Suggestions? I have

found therapy helpful every so often. It's usually not more then 5 or 6

sessions, just enough to keep on track. As for portable snacks, I try

things like string cheese, nuts, peanut butter and crackers, and protein

bars. Infact, I try to keep a protein bar or two in my purse for

emergencies.

Lori Owen - Denton, Texas

CHF 4/14/01 479 lbs.

SRVG 7/16/01 401 lbs.

Current Weight 335

Dr. Ritter/Dr. Bryce

On Wed, 16 Apr 2003 00:04:37 -0000 " dixiedew70 "

writes:

> I had my surgerry 11/27/01 and I have lost 145#. Yes, that is

> wonderful, but now I feel like the church " backslider " . I am

> cheating some, and I'm terrified of regaining my weight, but for

> some reason, I can't get my motivation headed in the right direction

>

> again. So, when I eat things I should not, I force myself to throw

> them back up. I know this is not healthy or logical. I need some

> ideas and support. Any help would be GREATLY APPRECIATED!!!! I

> would like some ideas on some portable snacks...so I will run from

> the chips and fries. (I still do not touch the " white stuff " ----

> sugar-----) But I do have a problem with bread cravings. Help me

>

> please. Pam

>

April 15, 2003

Pam, this is said with all caring and concern. You have developed a very

serious eating disorder that requires attention of a therapist. The side

effects, beside psychological, are enormous. Teeth, esophagus, etc. Thanks

for your honesty, that makes you half there to recovery. Let us know how you

are doing.

Fay Bayuk

**300/173

10/23/01

Dr.

Open RNY 150 cm

April 15, 2003

Pam, this is said with all caring and concern. You have developed a very

serious eating disorder that requires attention of a therapist. The side

effects, beside psychological, are enormous. Teeth, esophagus, etc. Thanks

for your honesty, that makes you half there to recovery. Let us know how you

are doing.

Fay Bayuk

**300/173

10/23/01

Dr.

Open RNY 150 cm

June 15, 2004

I am having to monitor my sugars as well, and they have asked me to monitor

1 hour postprandial also. Mine are running high at 1 hour, but normal at 2

hours. Not sure what the significance for gestational and 1 hour

postprandials is, but that seems to be the regular time frame for checking them

as far as

gestational diabetes goes.

I am getting numbers as high as 195 or so one hour postprandial but am

completely normal fasting (70s-80s) and also completely normal 2 hours

postprandial. The foods they suggested I eat totally turned me off. They want

you to

have TONS of carbs now as opposed to last time I was pregnant. It's just all

spaced out and the diet to me seems nerve-wracking. I think I'm just not

going to worry about it unless they get abnormally high and stay that way

consistently.

Good luck to you. Let me know what you hear from your docs. I'm not so

sure I'm going to go back to my diabetes nurse educator just because I have 5

million other things going on with this pregnancy (kidney stones and repeat

kidney infections) and 3 kids at home from school for the summer. Just making

it to my regular appointments these days is a stretch for me. I figure I'll

keep track of my sugars and show them to my doc. If they want me to go back I

will, but I would rather not.

Good luck again!!

Mandi in Concord, NC

Postop Distal RNY 09/23/02

32 weeks pregnant with #4.

June 15, 2004

> I have a question for you all about blood sugar...First of all let

me

...

I am type 2 diabetic, but not preggers. I know that the biggest

thing about blood sugars is to keep them as steady as possible. As

for the high after eating, that is normal, and the fact that it came

right back down is a good sign. best way to check is first thing in

the am...after 12 hrs fasting. If your numbers are normal, you can

relax a bit. Also, my nutritionist has told me not to test until at

least 2 hours after a meal, as that allows your body to do what it

does.

You might also try very hard to watch your carb intake. If you can

maintain a steady flow without insulin or other intervention, the

better for you and baby.

I had 3 miscarriages prior to being diagnosed with my diabetes, and

it is a suggestion of my doc that my raging blood sugars may have

been the cause, as early on it can cause great fetal distress and

heart problems with the baby.

All in all, best thing to do is keep monitoring, and do your best to

eat healthy. Your OB knows what is best (one hopes). Also, you may

want to request an alternative glucose test when the time comes. I

have heard many say that the standard test makes them sick.

June 15, 2004

Hi ,

Here in Canada, we do what Donna suggests and test at 2hrs after a

meal. After one hr, your blood sugar will normally be high.

As long as you are not symptomatic, I would advise that you not

check them every 10-15 mins - that will only make you stress and

worry about the numbers, and as with alot of things medical and

numbers orientated - they are guidelines that go along with how you

are feeling and are not the be all and end all of diagnosis. My

father has a BP monitor and has been having problems with low BP's

lately. You talk to my mom who takes it every ten mins when he is

low and all it does is freak her out..

Also, machines have been known to sometimes be wrong, so you may

want to get your Dr to order a lab/meter comparison if you will have

to be doing blood sugars regularily, just to make sure your machine

is not in need of being calibrated.

As for blood sugars dipping, I have seen that happen in pts and in

myself - I had a glucose tolerance test about four yrs ago (preop,

not pregnant at the time)...my blood sugar started out as normal, I

drank the orange crush sugar drink from heck and my blood sugar

steadily dropped to way below normal by the two hr mark...And by the

two hr mark, I felt like crap and had to eat something to be able to

drive home (even though the drink had the equivalent carbs of 5

slices of bread=75g)....This is what is sometimes known as

hypoglycemia or insulin sensitivity - where your insulin kicks in

like crazy when you eat carbs, bringing your blood sugar wayyyyy

down. It can be a precursor to diabetes, and since you have a

history of it, its good that you are keeping an eye on it...

Best thing to do is eating small frequent balanced meals - with

enough protein to help keep your blood sugar stabilized for longer

periods of time. Carbs + proteins together are often a good bet for

this (and we combine alot on my unit where we take care of type 1

diabetic kids)...the protein will outlast the carb in your blood

stream and keep blood sugars more steady...

Hope this info helps you...And congrats and good luck in this

pregnancy!!!

All the best,

RN

VBG May/03 -104lb in 9 mos

Now prego with #1! EDC Nov 10th...19 weeks today!

> > I have a question for you all about blood sugar...First of all

let

> me

>

> ...

> I am type 2 diabetic, but not preggers. I know that the biggest

> thing about blood sugars is to keep them as steady as possible. As

> for the high after eating, that is normal, and the fact that it

came

> right back down is a good sign. best way to check is first thing

in

> the am...after 12 hrs fasting. If your numbers are normal, you can

> relax a bit. Also, my nutritionist has told me not to test until

at

> least 2 hours after a meal, as that allows your body to do what it

> does.

>

> You might also try very hard to watch your carb intake. If you can

> maintain a steady flow without insulin or other intervention, the

> better for you and baby.

>

> I had 3 miscarriages prior to being diagnosed with my diabetes,

and

> it is a suggestion of my doc that my raging blood sugars may have

> been the cause, as early on it can cause great fetal distress and

> heart problems with the baby.

>

> All in all, best thing to do is keep monitoring, and do your best

to

> eat healthy. Your OB knows what is best (one hopes). Also, you may

> want to request an alternative glucose test when the time comes. I

> have heard many say that the standard test makes them sick.

June 16, 2004

I had to test mine for a little while and they were weird too. I went for my

fasting test and then to eat and 2 hours later a blood draw and the numbers

were 85 fasting but 64 2 hours after eating a Mcdonalds bisquit, hashbrown and

orange juice. The doc said the sugar levels in the food and oj will make you

raise but not stay with you long and will make them crash. The girls online told

me that protein will make your levels more stable longer and the carbs and

sugar crap will just make it go up faster. So if my sugar were low I could eat a

carb to get it up there faster but to maintain it I needed to eat small

servings of protein regularly. I am not good with this either but my best guess

is

for you to try to eat a more balanced diabetic type diet to keep it regular. I

was also diabetic for both my previous prenancies including twins, lol, but

so far I guess I am good with this one Good Luck and I hope someone can help

you out here more than I could.

God Bless,

Robin, NorthEastern, NY

Age- 41

EDD- July 27th, 2004

IT'S A BOY!!!!!!

Mommy to:

&

(twin boys 8 years),

Madison, daughter, 5 years and

Wife to Pup 15 years (October 31, 1988)

Gastric Bypass Surgery-

October 18th 2002

Start-378, current- 246(pregnant)

goal 170 after baby

It's a BOY!!!!!

Emerson Roger

June 25, 2004

I read on the group that tylenol pm was okay tot ake to get some rest, i

personaly have not tried it though. I would suggest not getting in the habit of

it

though. I also think you can use a stool softener safely such as colace to

help soften the stool, it is not a laxative but a softener and works well.

God Bless,

Robin, NorthEastern, NY

Age- 41

EDD- July 27th, 2004

IT'S A BOY!!!!!!

Mommy to:

&

(twin boys 8 years),

Madison, daughter, 5 years and

Wife to Pup 15 years (October 31, 1988)

Gastric Bypass Surgery-

October 18th 2002

Start-378, current- 246(pregnant)

goal 170 after baby

It's a BOY!!!!!

Emerson Roger

June 25, 2004

I can't seem to get more than 4 and a half hours of sleep at a time is there

anything I can take to help me sleep more that wont affect or harm the baby?

Cause i am so tired and very bitchy and I hate that. The other thing is is that

i am constipated can i take a laxative to try and help or what works best?

thanks for you help

erica

---------------------------------

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June 25, 2004

I can't comment on the sleep thing but as for the constipation.... In

the beginning I was so constipated I'd say it was the worst pragnancy

symptom that I had. It was horrible. I tried benefiber and it made it

worse! The doctor told me to take colace up to 3 a day for a stool

softener. When I still needed things to move I could taks Milk of

Magnesia. That did the trick. I'd say the MOM worked better for me

but the stool softener helped the passing. I since added 1 packet of

instant oatmeal a day to my diet and being further along eat a larger

variety of foods and have not had the problem in months. Also make

sure you are drinking at least 64-90 oz of water a day. Good luck I

hope this is a phase that passes for you too. - Diane

> I can't seem to get more than 4 and a half hours of sleep at a time

is there anything I can take to help me sleep more that wont affect

or harm the baby? Cause i am so tired and very bitchy and I hate

that. The other thing is is that i am constipated can i take a

laxative to try and help or what works best?

> thanks for you help

> erica

>

> ---------------------------------

> Post your free ad now! Yahoo! Canada Personals

>

June 25, 2004

Thamk you som much for the replys to my post i am so glad to be a member of this

group.

---------------------------------

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June 25, 2004

4.5 hours of sleep at a time!?! You lucky girl you! LOLOL

Not sure how far along you are, but 4.5 at a stretch, for me (33rd

week with twins) is like a blessing. You may find yourself getting

less hours in at a stretch and having to catch naps throughout the

day.

I would talk to your doc and/or pharmacist to find out what kind of

sleep aids would be okay. Tylenol PM or Benadryl may be worth asking

about.

Toi

> I can't seem to get more than 4 and a half hours of sleep at a time

is there anything I can take to help me sleep more that wont affect

or harm the baby? Cause i am so tired and very bitchy and I hate

that. The other thing is is that i am constipated can i take a

laxative to try and help or what works best?

> thanks for you help

> erica

>

> ---------------------------------

> Post your free ad now! Yahoo! Canada Personals

>

June 25, 2004

4.5 hours of sleep would be wonderful. I am starting my 34th week

and just last night I was telling my husband that I am gonna cry if I

dont get a good nights sleep. I toss and turn, get up to pee and I

am always hungry!! I have take Tylenol PM a few times and it seem to

help some. Talk to you doc to be sure.

June 25, 2004

I think i need to take some typing lesons.

SapphyreSunn sapphyresunn@...> wrote:Thamk you som much for the replys to

my post i am so glad to be a member of this group.

---------------------------------

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April 27, 2008

Doug,

Thank you for doing the footwork your dad is not able to do--sincerely. We all need an advocate that is able to help!

USC-LA, Dr. Om Sharma is wonderful with sarcoidosis. I know that Nat'l Jewish in Denver has a sarcoid-center-- but not sure of which docs are there.

I did search by Denver CO sarcoidosis specialists and Marc Judson, MD is a critical care/pulm in Denver. He has alot of articles that are sited-- and I know he was part of the ACCESS study.

Correspondence to: Marc A. Judson, MD, FCCP, Associate Professor, Division of Pulmonary and Critical Care Medicine, 96 Lucas St, ton, SC 29425; e-mail: judsonma@...

Although this shows him in So. Carolina, I believe he's in Denver. I'd be calling them-- and see who they can suggest, along with Dr. Sharma or Dr. Baughman. These 3 would be your best bets to get names of specialists from. ( Baughman, MD.--you can find him on the web.)

Start with Nat'l Jewish Sarcoidosis Clinic and ask them who treats NS in their area.

Know we'll keep your dad in our prayers, and do let us know what more we can do to help. As Marla said, your dad needs alot more than prednisone and plaquenil. I'm sure they don't want to confuse things and put him on too much before they know what it is they're treating-- as they don't want to misdiagnose-- but if he's not testing positive for TB- and they've got him on stuff to treat it-- they're probably already off-base.

I know this is so very hard on you and your mom, not to mention dad-- but this is one disease where they have to rule out all the other stuff and what is left over is sarcoidosis. Did his lymphs or any of the biopsies come back positive for sarcoidosis? Have they done a bronchoscopy to get the biopsies of the lungs? I know you said they did major surgery-- but they've not been able to tell you what has come back? There are a couple of centers that do take up to six weeks to culture the biopsies and stains-- so sometimes it does not happen fast-- so in the meantime they are trying to keep him going by high dose steroids (prednisone) while they wait for the results.

Hang in there,

Sincerely,

Tracie

NS Co-owner/moderator

Re: HELP!!!

Doug, I am very sorry to hear your Father is so ill, you said he lives in Denver, what clinics have you been to? Nat. Jewish is there and their great when dealing with the lungs, but it sounds like in your Father it's more related to Neuro, of which I myself had trouble getting dx at Nat. Jewish. Have you tried University hospital, they have some good neurologist. I am waiting to get started on a new drug. I have many of the same symptoms you are describing, pain, of which I found Lyrecia very very helpful, took away about 95% of the pain. I have trouble walking, weakness, etc. My tests were all neg and I was dx on symptoms, mental confusion, numbness and loss of use of L. side. Tell me more about where your Father has been treated, he needs more then Prednisone and Plaquanil. There are many here with even more information for you, so hang in there, getting the pain under

control is big, so talk about that with the doctors, there are drugs that can help. You have come to the right place, but many of us ourselves are very sick and may take a day or two for you to hear back from others. But we know what you are going through.

To Whom It May Concern:My name is Doug . I am writing on behalf of my father. He has been very ill and continues to get progressively worse and lives in the Denver area. He has been through every test imaginable(2 spinal taps, 2 surgeries to extract lymph nodes, 3 MRI's, 1 PET Scan to mention a few and has been treated for TB most recently as a precaution) and seen every specialist available to him and they cannot diagnose him definitively so he can find some sort of treatment. One minute they say he has Lymphoma, then they say it could be T.B. and the next it is Neuro Sarcoidosis. The two dangerous biopsy procedures that were done were a Media Stynum procedure to remove Lymph tissue from below his rib cage and a more intrusive procedure of opening up his chest and removing tissue from between his heart and lungs. They have not made a definitive

diagnosis after almost two months. We are scheduled to see his Neurologist again next Tuesday(which I feel is too late) with hopes once again that they will have a plan of action to treat what I think they are leaning toward in the Neuro Sarcoidosis. I implore you. Please!!! I am desperately trying to help my father who is suffering and has been going through this for months now. I feel that we must have the BEST doctors in order to figure this out and have more than lost confidence in his current doctors. His P. E.T.scan showed masses below his chest, in his spinal column and lesions in his brain. As I understand it, these "masses" are explained as inflammation of the spinal cord from the Thoracic spine up through the Cervical Spine and into the lower part of the brain.I found you on the web and hope you can stear me in the right direction for my father and dealing with his Neuro Sarcoidosis. PLEASE HELP!!! I'M DESPERATE to help my

father who is 69 years old and a great person. My folks are overwhelmed and don't know where to turn for answers. Their doctors seem baffled meanwhile the progession of his symptoms are worsening even though he is being medicated with Prednazone and Plaquenil, not to mention 5 T.B. medications and multiple pain killers. He is having more occurrences of memory loss, stabbing pain in his left side, paralysis in his left side such that he can hardly walk, and was walking on his own just a few weeks ago.Who or Where is the best Facility in the USA to recieve treatment for NeuroSarcoidosis?

I thank you sincerely for giving this email the attention it is due.>God Bless,

Doug dougjacksonguitar@...

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April 27, 2008