Question regarding Activity Stations

[Guest guest]

Hi, all!

Please forgive me if this message gets sent out twice (or more)--I've been

having some issues with yahoo.

In any case, I wanted to know what your thoughts were regarding Exersaucers and

such activity centers. While I was pregnant, I had done research on all baby

gear and came up with lots of negatives regarding these types of stationary

activity centers. Many therapists have said that they delay proper development,

teach babies to stand incorrectly, etc. What are your thoughts? I'd like to

know if any of you whose kids are in PT or OT have any opinions from your own

therapists specifically for CF children.

Thank you!

rt cf 12/15/04 FAB 23/7

Kassia Ksfultz@...> wrote:

Hello everyone,

You might remember me from about a year ago, I was posting fairly

regularly back then. My son, , was born with a left clubfoot.

He was treated using the Ponseti method by a doctor here in Cedar

Rapids, IA, but relapsed when he was a little over 2 yrs old. We were

referred to Dr. Dietz at the U of IA. Jake had ATTT surgery done last

spring, when he was 3 yrs old. With that procedure, he also had an

achilles tenotomy done.

We've had an eventful year. Jake's surgery went well, and he was up

and running around like normal (but with a limp) within a couple weeks

of cast removal. Unfortunately he fell and fractured his left femur

(same leg as the clubfoot) the end of last November and was in a hip

spica cast for 8.5 wks. He now is back up and running around like usual.

In any case...he had a follow-up appt with Dr. Dietz this past

Wednesday, and he thinks that Jake's ATTT surgery was not entirely

successful. Apparently the tendon has not strengthened like it should

have, and the dr thinks it may have pulled out a little. He is

recommending that he have the surgery again, this time with a screw to

hold the tendon in place rather than just a suture, as well as yet

another achilles tenotomy (this would be the 3rd one, counting the one

he had done as a baby), and some work on his arch (apparently it's too

high or something).

Needless to say, the prospect of MORE surgery is really frightening to

us. Dr. Dietz will be seeing Jake next on June 29- he's giving him

some more time for that tendon to hopefully strengthen. We do plan on

asking about the tenotomy and arch work- if they're not totally

necessary then we don't want to have them done. My husband put it

well, that if it potentially could create a problem, why do it? Dr.

Dietz seemed to indicate that there's a window (he didn't say how

long) where the surgery can be done...if we wait too long, his foot

will stiffen up and then he'd need surgery done on his joints, which

is much more painful and would cause him issues as an adult.

I was just wondering if anyone has any input...things we should ask

the dr etc. We are very disappointed because we were told the failure

rate of ATTT surgery is very minimal, and here Jake seems to have

fallen in that category. We don't want him to continue to need more

surgery!! (that said, we do know that no one can give us a 100%

guarantee) We are also wondering if anyone has any ideas for

strengthening his muscles, and if anyone has had to have repeat

surgeries like it appears Jake will need.

Thanks,

Kassia

mom to 3/22/01 (Lt clubfoot, ATTT surgery April 2004)

and 11/22/02

[Guest guest]

Hi

Our Physio told us that all these things were ok in small quantities. The

trouble starts when kids are left in them for hours on end. My son was born

with b/l c/f and he had a baby walker, a door jumper, a stationery activity

centre - you name it he had it. The stationery activity centre - he wouldn't

even go in cause he didn't like it and the walker I hardly used, sometimes

used to put him in it when I prepared tea. The door jumper he loved and I

would put him in there for rounghly ten minutes at a time. I can't really

see what the issue is with door jumpers and it gives them chance to feel

their legs which is all we do when we hold them up on our laps. He walked at

1yr and has no other issues with anything. The activity mat with things

hanging off - he used the most and I tried to put him on his tummy on it -

but he didn't like that much either.

Now I just can't get him off his trike

Rach, Steve & Connor

-- Question regarding Activity Stations

Hi, all!

Please forgive me if this message gets sent out twice (or more)--I've been

having some issues with yahoo.

In any case, I wanted to know what your thoughts were regarding Exersaucers

and such activity centers. While I was pregnant, I had done research on all

baby gear and came up with lots of negatives regarding these types of

stationary activity centers. Many therapists have said that they delay

proper development, teach babies to stand incorrectly, etc. What are your

thoughts? I'd like to know if any of you whose kids are in PT or OT have

any opinions from your own therapists specifically for CF children.

Thank you!

rt cf 12/15/04 FAB 23/7

Kassia Ksfultz@...> wrote:

Hello everyone,

You might remember me from about a year ago, I was posting fairly

regularly back then. My son, , was born with a left clubfoot.

He was treated using the Ponseti method by a doctor here in Cedar

Rapids, IA, but relapsed when he was a little over 2 yrs old. We were

referred to Dr. Dietz at the U of IA. Jake had ATTT surgery done last

spring, when he was 3 yrs old. With that procedure, he also had an

achilles tenotomy done.

We've had an eventful year. Jake's surgery went well, and he was up

and running around like normal (but with a limp) within a couple weeks

of cast removal. Unfortunately he fell and fractured his left femur

(same leg as the clubfoot) the end of last November and was in a hip

spica cast for 8.5 wks. He now is back up and running around like usual.

In any case...he had a follow-up appt with Dr. Dietz this past

Wednesday, and he thinks that Jake's ATTT surgery was not entirely

successful. Apparently the tendon has not strengthened like it should

have, and the dr thinks it may have pulled out a little. He is

recommending that he have the surgery again, this time with a screw to

hold the tendon in place rather than just a suture, as well as yet

another achilles tenotomy (this would be the 3rd one, counting the one

he had done as a baby), and some work on his arch (apparently it's too

high or something).

Needless to say, the prospect of MORE surgery is really frightening to

us. Dr. Dietz will be seeing Jake next on June 29- he's giving him

some more time for that tendon to hopefully strengthen. We do plan on

asking about the tenotomy and arch work- if they're not totally

necessary then we don't want to have them done. My husband put it

well, that if it potentially could create a problem, why do it? Dr.

Dietz seemed to indicate that there's a window (he didn't say how

long) where the surgery can be done...if we wait too long, his foot

will stiffen up and then he'd need surgery done on his joints, which

is much more painful and would cause him issues as an adult.

I was just wondering if anyone has any input...things we should ask

the dr etc. We are very disappointed because we were told the failure

rate of ATTT surgery is very minimal, and here Jake seems to have

fallen in that category. We don't want him to continue to need more

surgery!! (that said, we do know that no one can give us a 100%

guarantee) We are also wondering if anyone has any ideas for

strengthening his muscles, and if anyone has had to have repeat

surgeries like it appears Jake will need.

Thanks,

Kassia

mom to 3/22/01 (Lt clubfoot, ATTT surgery April 2004)

and 11/22/02

[Guest guest]

Hi ,

Development? In what regard?

In my opinion, I have used the Step N Play, Exersaucers and walkers including

the ny Jumper and my daughter has had no issues with development. Lhea has

BCF, wearing her shoes 16/7 and for at least 2 to 3 hours she's walking around

in her walker and for the remainder she's doing her thing or involved in other

activitites. In fact, the exersaucer has promoted her bouncing around to

bouncing herself to other places in the house. LOL!

Hope that helps.

Sinanis greekgddss@...> wrote:

Hi, all!

Please forgive me if this message gets sent out twice (or more)--I've been

having some issues with yahoo.

In any case, I wanted to know what your thoughts were regarding Exersaucers and

such activity centers. While I was pregnant, I had done research on all baby

gear and came up with lots of negatives regarding these types of stationary

activity centers. Many therapists have said that they delay proper development,

teach babies to stand incorrectly, etc. What are your thoughts? I'd like to

know if any of you whose kids are in PT or OT have any opinions from your own

therapists specifically for CF children.

Thank you!

rt cf 12/15/04 FAB 23/7

Kassia Ksfultz@...> wrote:

Hello everyone,

You might remember me from about a year ago, I was posting fairly

regularly back then. My son, , was born with a left clubfoot.

He was treated using the Ponseti method by a doctor here in Cedar

Rapids, IA, but relapsed when he was a little over 2 yrs old. We were

referred to Dr. Dietz at the U of IA. Jake had ATTT surgery done last

spring, when he was 3 yrs old. With that procedure, he also had an

achilles tenotomy done.

We've had an eventful year. Jake's surgery went well, and he was up

and running around like normal (but with a limp) within a couple weeks

of cast removal. Unfortunately he fell and fractured his left femur

(same leg as the clubfoot) the end of last November and was in a hip

spica cast for 8.5 wks. He now is back up and running around like usual.

In any case...he had a follow-up appt with Dr. Dietz this past

Wednesday, and he thinks that Jake's ATTT surgery was not entirely

successful. Apparently the tendon has not strengthened like it should

have, and the dr thinks it may have pulled out a little. He is

recommending that he have the surgery again, this time with a screw to

hold the tendon in place rather than just a suture, as well as yet

another achilles tenotomy (this would be the 3rd one, counting the one

he had done as a baby), and some work on his arch (apparently it's too

high or something).

Needless to say, the prospect of MORE surgery is really frightening to

us. Dr. Dietz will be seeing Jake next on June 29- he's giving him

some more time for that tendon to hopefully strengthen. We do plan on

asking about the tenotomy and arch work- if they're not totally

necessary then we don't want to have them done. My husband put it

well, that if it potentially could create a problem, why do it? Dr.

Dietz seemed to indicate that there's a window (he didn't say how

long) where the surgery can be done...if we wait too long, his foot

will stiffen up and then he'd need surgery done on his joints, which

is much more painful and would cause him issues as an adult.

I was just wondering if anyone has any input...things we should ask

the dr etc. We are very disappointed because we were told the failure

rate of ATTT surgery is very minimal, and here Jake seems to have

fallen in that category. We don't want him to continue to need more

surgery!! (that said, we do know that no one can give us a 100%

guarantee) We are also wondering if anyone has any ideas for

strengthening his muscles, and if anyone has had to have repeat

surgeries like it appears Jake will need.

Thanks,

Kassia

mom to 3/22/01 (Lt clubfoot, ATTT surgery April 2004)

and 11/22/02

[Guest guest]

I guess I didn't think to ask Jake's PT (at the time) about

exersaucers. We had one and used it with both kids- but neither one of

my kids liked it all that well. I pretty much just used it while I was

in the shower (a place to put the kids so they couldn't crawl around all

over the bathroom!), so my kids were only in it for maybe 15 min a day.

Kassia

3/22/01 (Lt clubfoot, ATTT surgery April 2004)

and 11/22/02

[Guest guest]

Hi my son used an exersaucer with his clubfoot and loved it. I don't think

it delayed him. He started walking at 15 months.

and (rt club foot, ponseti method, 3.5 years old)

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Question regarding Activity Stations

>Date: Sat, 30 Apr 2005 19:27:11 -0700 (PDT)

>

>Hi, all!

>

>Please forgive me if this message gets sent out twice (or more)--I've been

>having some issues with yahoo.

>

>In any case, I wanted to know what your thoughts were regarding Exersaucers

>and such activity centers. While I was pregnant, I had done research on

>all baby gear and came up with lots of negatives regarding these types of

>stationary activity centers. Many therapists have said that they delay

>proper development, teach babies to stand incorrectly, etc. What are your

>thoughts? I'd like to know if any of you whose kids are in PT or OT have

>any opinions from your own therapists specifically for CF children.

>

>Thank you!

>

>

> rt cf 12/15/04 FAB 23/7

>

>Kassia Ksfultz@...> wrote:

>

>

>Hello everyone,

>

>You might remember me from about a year ago, I was posting fairly

>regularly back then. My son, , was born with a left clubfoot.

>He was treated using the Ponseti method by a doctor here in Cedar

>Rapids, IA, but relapsed when he was a little over 2 yrs old. We were

>referred to Dr. Dietz at the U of IA. Jake had ATTT surgery done last

>spring, when he was 3 yrs old. With that procedure, he also had an

>achilles tenotomy done.

>

>We've had an eventful year. Jake's surgery went well, and he was up

>and running around like normal (but with a limp) within a couple weeks

>of cast removal. Unfortunately he fell and fractured his left femur

>(same leg as the clubfoot) the end of last November and was in a hip

>spica cast for 8.5 wks. He now is back up and running around like usual.

>

>In any case...he had a follow-up appt with Dr. Dietz this past

>Wednesday, and he thinks that Jake's ATTT surgery was not entirely

>successful. Apparently the tendon has not strengthened like it should

>have, and the dr thinks it may have pulled out a little. He is

>recommending that he have the surgery again, this time with a screw to

>hold the tendon in place rather than just a suture, as well as yet

>another achilles tenotomy (this would be the 3rd one, counting the one

>he had done as a baby), and some work on his arch (apparently it's too

>high or something).

>

>Needless to say, the prospect of MORE surgery is really frightening to

>us. Dr. Dietz will be seeing Jake next on June 29- he's giving him

>some more time for that tendon to hopefully strengthen. We do plan on

>asking about the tenotomy and arch work- if they're not totally

>necessary then we don't want to have them done. My husband put it

>well, that if it potentially could create a problem, why do it? Dr.

>Dietz seemed to indicate that there's a window (he didn't say how

>long) where the surgery can be done...if we wait too long, his foot

>will stiffen up and then he'd need surgery done on his joints, which

>is much more painful and would cause him issues as an adult.

>

>I was just wondering if anyone has any input...things we should ask

>the dr etc. We are very disappointed because we were told the failure

>rate of ATTT surgery is very minimal, and here Jake seems to have

>fallen in that category. We don't want him to continue to need more

>surgery!! (that said, we do know that no one can give us a 100%

>guarantee) We are also wondering if anyone has any ideas for

>strengthening his muscles, and if anyone has had to have repeat

>surgeries like it appears Jake will need.

>

>

>Thanks,

>Kassia

>mom to 3/22/01 (Lt clubfoot, ATTT surgery April 2004)

>and 11/22/02

>

>

>

>

>

>

>

>

>

[Guest guest]

My son is in PT and OT and both say it is good for weight bearing. They did say

not to let them spent to much time in it (about 20 minutes/day) because it

allows them to see everything without working for it. They stated to make sure

most of his time was spent on the floor either on his tummy or back playing, but

that the exersaucers and jumpers are great toys to have.

11/19/04

Question regarding Activity Stations

>Date: Sat, 30 Apr 2005 19:27:11 -0700 (PDT)

>

>Hi, all!

>

>Please forgive me if this message gets sent out twice (or more)--I've been

>having some issues with yahoo.

>

>In any case, I wanted to know what your thoughts were regarding Exersaucers

>and such activity centers. While I was pregnant, I had done research on

>all baby gear and came up with lots of negatives regarding these types of

>stationary activity centers. Many therapists have said that they delay

>proper development, teach babies to stand incorrectly, etc. What are your

>thoughts? I'd like to know if any of you whose kids are in PT or OT have

>any opinions from your own therapists specifically for CF children.

>

>Thank you!

>

>

> rt cf 12/15/04 FAB 23/7

>

>Kassia Ksfultz@...Ksfultz@...>> wrote:

>

>

>Hello everyone,

>

>You might remember me from about a year ago, I was posting fairly

>regularly back then. My son, , was born with a left clubfoot.

>He was treated using the Ponseti method by a doctor here in Cedar

>Rapids, IA, but relapsed when he was a little over 2 yrs old. We were

>referred to Dr. Dietz at the U of IA. Jake had ATTT surgery done last

>spring, when he was 3 yrs old. With that procedure, he also had an

>achilles tenotomy done.

>

>We've had an eventful year. Jake's surgery went well, and he was up

>and running around like normal (but with a limp) within a couple weeks

>of cast removal. Unfortunately he fell and fractured his left femur

>(same leg as the clubfoot) the end of last November and was in a hip

>spica cast for 8.5 wks. He now is back up and running around like usual.

>

>In any case...he had a follow-up appt with Dr. Dietz this past

>Wednesday, and he thinks that Jake's ATTT surgery was not entirely

>successful. Apparently the tendon has not strengthened like it should

>have, and the dr thinks it may have pulled out a little. He is

>recommending that he have the surgery again, this time with a screw to

>hold the tendon in place rather than just a suture, as well as yet

>another achilles tenotomy (this would be the 3rd one, counting the one

>he had done as a baby), and some work on his arch (apparently it's too

>high or something).

>

>Needless to say, the prospect of MORE surgery is really frightening to

>us. Dr. Dietz will be seeing Jake next on June 29- he's giving him

>some more time for that tendon to hopefully strengthen. We do plan on

>asking about the tenotomy and arch work- if they're not totally

>necessary then we don't want to have them done. My husband put it

>well, that if it potentially could create a problem, why do it? Dr.

>Dietz seemed to indicate that there's a window (he didn't say how

>long) where the surgery can be done...if we wait too long, his foot

>will stiffen up and then he'd need surgery done on his joints, which

>is much more painful and would cause him issues as an adult.

>

>I was just wondering if anyone has any input...things we should ask

>the dr etc. We are very disappointed because we were told the failure

>rate of ATTT surgery is very minimal, and here Jake seems to have

>fallen in that category. We don't want him to continue to need more

>surgery!! (that said, we do know that no one can give us a 100%

>guarantee) We are also wondering if anyone has any ideas for

>strengthening his muscles, and if anyone has had to have repeat

>surgeries like it appears Jake will need.

>

>

>Thanks,

>Kassia

>mom to 3/22/01 (Lt clubfoot, ATTT surgery April 2004)

>and 11/22/02

>

>

>

>

>

>

>

>

>

[Guest guest]

My son is also in PT and his therapist recommended the exersaucer to us. I

hadn't gotten him one yet. She said it would help with balance, get some weight

on his feet and strengthen his back muscles. He loves it. After about 20

minutes though he's ready to get out!!

Goodin jgoodin10@...> wrote:My son is in PT and OT and both say it

is good for weight bearing. They did say not to let them spent to much time in

it (about 20 minutes/day) because it allows them to see everything without

working for it. They stated to make sure most of his time was spent on the

floor either on his tummy or back playing, but that the exersaucers and jumpers

are great toys to have.

11/19/04

Question regarding Activity Stations

>Date: Sat, 30 Apr 2005 19:27:11 -0700 (PDT)

>

>Hi, all!

>

>Please forgive me if this message gets sent out twice (or more)--I've been

>having some issues with yahoo.

>

>In any case, I wanted to know what your thoughts were regarding Exersaucers

>and such activity centers. While I was pregnant, I had done research on

>all baby gear and came up with lots of negatives regarding these types of

>stationary activity centers. Many therapists have said that they delay

>proper development, teach babies to stand incorrectly, etc. What are your

>thoughts? I'd like to know if any of you whose kids are in PT or OT have

>any opinions from your own therapists specifically for CF children.

>

>Thank you!

>

>

> rt cf 12/15/04 FAB 23/7

>

>Kassia Ksfultz@...Ksfultz@...>> wrote:

>

>

>Hello everyone,

>

>You might remember me from about a year ago, I was posting fairly

>regularly back then. My son, , was born with a left clubfoot.

>He was treated using the Ponseti method by a doctor here in Cedar

>Rapids, IA, but relapsed when he was a little over 2 yrs old. We were

>referred to Dr. Dietz at the U of IA. Jake had ATTT surgery done last

>spring, when he was 3 yrs old. With that procedure, he also had an

>achilles tenotomy done.

>

>We've had an eventful year. Jake's surgery went well, and he was up

>and running around like normal (but with a limp) within a couple weeks

>of cast removal. Unfortunately he fell and fractured his left femur

>(same leg as the clubfoot) the end of last November and was in a hip

>spica cast for 8.5 wks. He now is back up and running around like usual.

>

>In any case...he had a follow-up appt with Dr. Dietz this past

>Wednesday, and he thinks that Jake's ATTT surgery was not entirely

>successful. Apparently the tendon has not strengthened like it should

>have, and the dr thinks it may have pulled out a little. He is

>recommending that he have the surgery again, this time with a screw to

>hold the tendon in place rather than just a suture, as well as yet

>another achilles tenotomy (this would be the 3rd one, counting the one

>he had done as a baby), and some work on his arch (apparently it's too

>high or something).

>

>Needless to say, the prospect of MORE surgery is really frightening to

>us. Dr. Dietz will be seeing Jake next on June 29- he's giving him

>some more time for that tendon to hopefully strengthen. We do plan on

>asking about the tenotomy and arch work- if they're not totally

>necessary then we don't want to have them done. My husband put it

>well, that if it potentially could create a problem, why do it? Dr.

>Dietz seemed to indicate that there's a window (he didn't say how

>long) where the surgery can be done...if we wait too long, his foot

>will stiffen up and then he'd need surgery done on his joints, which

>is much more painful and would cause him issues as an adult.

>

>I was just wondering if anyone has any input...things we should ask

>the dr etc. We are very disappointed because we were told the failure

>rate of ATTT surgery is very minimal, and here Jake seems to have

>fallen in that category. We don't want him to continue to need more

>surgery!! (that said, we do know that no one can give us a 100%

>guarantee) We are also wondering if anyone has any ideas for

>strengthening his muscles, and if anyone has had to have repeat

>surgeries like it appears Jake will need.

>

>

>Thanks,

>Kassia

>mom to 3/22/01 (Lt clubfoot, ATTT surgery April 2004)

>and 11/22/02

>

>

>

>

>

>

>

>

>