Shayna, Irene. Dtr penny - home from hosp - neurocardiogenic syncope

[Guest guest]

Thks Shayna, Laurie. Good point Shayna either directly or indirectly I am sure

the chronic 'dysmenorrhea' is implicated. (The body can only take so much!)

Irene just to fill you in my daughter has for the last 9 mths had really bad

pain which is thought to be gynaecological. However it certainly does seem to

be either triggered or relieved somewhat with the passage of urine, gas or

bowel movement. Hard to tell the cause sometimes as all those organs are so

close to each other. Shayna can tell you about her pain which she says has

been going on for years! pamela Re: Re: Dtr penny - home from hosp - neurocardiogenic

syncope

Hi , I was reading e mails, and noticed in this

particular e mail you mention abdomen hurting and

bloating. Can you tell me more on the stomach

problems. I have been having a terrible time with

pains, excrutiating pain in stomach and bloating, till

I pass gas, or bowel movement. I have been depending

on Beano and Gas X to save the day. I wanted to see if

you were having similar problems.

--- shaynapearl happyclam8@...> wrote:

> Hi Pamela,

> I'm so glad your daughter is home and that she did

> OK with the

> electrophysiology study. I'm glad you're feeling a

> bit calmer about

> it. By the way, on the question of pain as part of

> the trigger, my two

> cents is that it's very hard to eat enough when the

> " dysmenorrhea " (or

> whatever we've got!) is really bad. With my abdomen

> hurting and

> bloated I have several times felt like passing out

> when I realized how

> little I'd eaten that day. I'm now making myself eat

> no matter what.

> Anyway, I'll be interested to hear how things go

> with her (and you)

> over time.

> Best,

> Shayna

>

>

>

>

> >

> > Hi all thanks for your support (again..). I

> think panic attacks

> are part of mito sometimes - well if so I am sure

> getting them. A

> few days ago I was panicking about 21yo daughter

> blacking out and she

> was put in hospital for a week as the docs took me

> seriously about (my

> definite and her possible) MELAS and the possible

> cardiac conduction

> problems that sometimes go along with it. They gave

> her an

> electrophysiological study which they normally

> wouldn't consider in

> someone her age (EPS is like an angiogram only

> instead of going up an

> artery they apparently go up through a vein, so not

> quite as

> dramatic). Although they found some abnormal

> pathways and

> tachycardia they said they were quite common in the

> normal population

> and were not enough to cause her to black out. They

> concluded that

> she probably has NCS neurocardiogenic syncope which

> one or two of you

> told me about also. He doesn't think she has

> orthostatic hypotension.

> He is sending her for a tilt table test (Also by

> that time she may

> have a dx from the mito doc whom will start testing

> her for melas

> soon.) I am sure all will be revealed eventually.

> In the meantime it

> helps enormously to find out the information and

> hear the stories .

> So - at this stage they have told her regardless of

> whether she has

> mito, the blackouts were probably a result of recent

> extended chest

> infection, not getting enough sleep or not eating

> properly, plus

> possible pain triggers (from her endless extreme

> " dysmenorrhea " which

> we haven't gotten to bottom of). All makes sense

> to me, and I won't

> be at all surprised if she is dx with mito. So as

> well as all the

> fluids and rest the doc has ordered, she has sports

> drinks with her at

> all times, is being careful about getting up too

> quickly, having extra

> salt, eating regular meals and am also looking at

> cocktail for her.

> pamela

> >

> > [Non-text portions of this message have been

> removed]

> >

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