New poll for nosurgery4clubfoot

March 13, 2005

I agree, our doc is Ponseti Certified and dedicated and less than 25 miles

away. We could not ask for more...unless of course he lived in our

neighborhood..lol !

Freeman

In a message dated 3/13/2005 9:45:07 PM Pacific Standard Time,

frogabog@... writes:

> Could whoever created this poll please make an option for *local*

> treatment? Meaning, some of us have treatment available within just few

> miles of our home. Sure it qualifies as less than 100 miles, but I think

> it would be interesting to know how many of us are fortunate enough to have

> someone at our local hospital or clinic who is Ponseti certified.

>

> See... I could say our doc who is Ponseti Certified, yet modifying big

> time is local. Meaning it takes me about 20 minutes to get to an

> appointment. And I bet there are a number of people who don't have to

> travel too far to get treatment, certainly much less than 100 miles. Which

> if our doc was doing it properly would be very cool...

>

> So I couldn't answer the poll myself... but someone might have a local doc

> who is for real. I'm just thinking there needs to be a category for us

> city rats :~}

>

> Kori

http://groups.yahoo.com/group/Unioncounty_freecycle/

March 13, 2005

Could whoever created this poll please make an option for *local*

treatment? Meaning, some of us have treatment available within just few

miles of our home. Sure it qualifies as less than 100 miles, but I think

it would be interesting to know how many of us are fortunate enough to have

someone at our local hospital or clinic who is Ponseti certified.

See... I could say our doc who is Ponseti Certified, yet modifying big

time is local. Meaning it takes me about 20 minutes to get to an

appointment. And I bet there are a number of people who don't have to

travel too far to get treatment, certainly much less than 100 miles. Which

if our doc was doing it properly would be very cool...

So I couldn't answer the poll myself... but someone might have a local doc

who is for real. I'm just thinking there needs to be a category for us

city rats :~}

Kori

At 05:53 PM 3/13/2005, you wrote:

>Enter your vote today! A new poll has been created for the

>nosurgery4clubfoot group:

>

>How far does your family travel to see

>Dr. Ponseti or a Ponseti qualified

>doctor in the course of treating your

>clubfooted child?

>

> o 100 miles or less

> o 100 to 200 miles

> o 300 to 400 miles

> o 400 to 500 miles

> o 500 to 600 miles

> o 600 to 700 miles

> o 700 to 800 miles

> o 800 to 900 miles

> o 1000 miles or more

> o We travel inside the USA

> o We travel from a foreign country to the U SA

> o We travel inside a foreign country NOT the USA for treatment

>

>To vote, please visit the following web page:

>http://groups.yahoo.com/group/nosurgery4clubfoot/surveys?id=1709012

>

>Note: Please do not reply to this message. Poll votes are

>not collected via email. To vote, you must go to the Yahoo! Groups

>web site listed above.

>

>Thanks!

>

March 14, 2005

I voted for the 100 miles or less, but I was also in the same boat,

and the category " local, 25 miles or less " didn't fit either. I

consider Dr. Dobbs " local " but he is about 45 miles from home (I call

it local because I drive that distance everyday for work). If anyone

wants to add a " local, 50 miles or less " category I will change my

vote, otherwise I guess I can leave it at 100 miles or less.

>

> >Enter your vote today! A new poll has been created for the

> >nosurgery4clubfoot group:

> >

> >How far does your family travel to see

> >Dr. Ponseti or a Ponseti qualified

> >doctor in the course of treating your

> >clubfooted child?

> >

> > o 100 miles or less

> > o 100 to 200 miles

> > o 300 to 400 miles

> > o 400 to 500 miles

> > o 500 to 600 miles

> > o 600 to 700 miles

> > o 700 to 800 miles

> > o 800 to 900 miles

> > o 1000 miles or more

> > o We travel inside the USA

> > o We travel from a foreign country to the U SA

> > o We travel inside a foreign country NOT the USA for treatment

> >

> >To vote, please visit the following web page:

> >http://groups.yahoo.com/group/nosurgery4clubfoot/surveys?id=1709012

> >

> >Note: Please do not reply to this message. Poll votes are

> >not collected via email. To vote, you must go to the Yahoo! Groups

> >web site listed above.

> >

> >Thanks!

> >

March 14, 2005

My, aren't we a picky group. I'm sorry I bothered. Seemed pretty straight

forward to me, but what do I know. Yes, for those of you who requested it, I

changed the $%()$&$)!!~~* miles options.

s.

Re: New poll for nosurgery4clubfoot

I voted for the 100 miles or less, but I was also in the same boat,

and the category " local, 25 miles or less " didn't fit either. I

consider Dr. Dobbs " local " but he is about 45 miles from home (I call

it local because I drive that distance everyday for work). If anyone

wants to add a " local, 50 miles or less " category I will change my

vote, otherwise I guess I can leave it at 100 miles or less.

>

> >Enter your vote today! A new poll has been created for the

> >nosurgery4clubfoot group:

> >

> >How far does your family travel to see

> >Dr. Ponseti or a Ponseti qualified

> >doctor in the course of treating your

> >clubfooted child?

> >

> > o 100 miles or less

> > o 100 to 200 miles

> > o 300 to 400 miles

> > o 400 to 500 miles

> > o 500 to 600 miles

> > o 600 to 700 miles

> > o 700 to 800 miles

> > o 800 to 900 miles

> > o 1000 miles or more

> > o We travel inside the USA

> > o We travel from a foreign country to the U SA

> > o We travel inside a foreign country NOT the USA for treatment

> >

> >To vote, please visit the following web page:

> >http://groups.yahoo.com/group/nosurgery4clubfoot/surveys?id=1709012

> >

> >Note: Please do not reply to this message. Poll votes are

> >not collected via email. To vote, you must go to the Yahoo! Groups

> >web site listed above.

> >

> >Thanks!

> >

March 14, 2005

Sorry ee! Didn't mean to be so picky.

I will just answer the question next time.

> >

> > >Enter your vote today! A new poll has been created for the

> > >nosurgery4clubfoot group:

> > >

> > >How far does your family travel to see

> > >Dr. Ponseti or a Ponseti qualified

> > >doctor in the course of treating your

> > >clubfooted child?

> > >

> > > o 100 miles or less

> > > o 100 to 200 miles

> > > o 300 to 400 miles

> > > o 400 to 500 miles

> > > o 500 to 600 miles

> > > o 600 to 700 miles

> > > o 700 to 800 miles

> > > o 800 to 900 miles

> > > o 1000 miles or more

> > > o We travel inside the USA

> > > o We travel from a foreign country to the U SA

> > > o We travel inside a foreign country NOT the USA for treatment

> > >

> > >To vote, please visit the following web page:

> > >http://groups.yahoo.com/group/nosurgery4clubfoot/surveys?id=1709012

> > >

> > >Note: Please do not reply to this message. Poll votes are

> > >not collected via email. To vote, you must go to the Yahoo! Groups

> > >web site listed above.

> > >

> > >Thanks!

> > >

March 14, 2005

ee,

I was wondering if you were having a bad day or something...my jaw dropped

when I read your response! If it makes you feel any better I had to change the

response choices to a poll I posted a while back, can't imagine who was being

picky back then...no names....;-p lol...

Freeman

In a message dated 3/14/2005 5:22:58 PM Pacific Standard Time,

number23@... writes:

>

> Aw you know I was just giving you all a hard time.

> s.

>

March 14, 2005

Aw you know I was just giving you all a hard time.

s.

Sorry ee! Didn't mean to be so picky.

I will just answer the question next time.

> >

> > >Enter your vote today! A new poll has been created for the

> > >nosurgery4clubfoot group:

> > >

> > >How far does your family travel to see

> > >Dr. Ponseti or a Ponseti qualified

> > >doctor in the course of treating your

> > >clubfooted child?

> > >

> > > o 100 miles or less

> > > o 100 to 200 miles

> > > o 300 to 400 miles

> > > o 400 to 500 miles

> > > o 500 to 600 miles

> > > o 600 to 700 miles

> > > o 700 to 800 miles

> > > o 800 to 900 miles

> > > o 1000 miles or more

> > > o We travel inside the USA

> > > o We travel from a foreign country to the U SA

> > > o We travel inside a foreign country NOT the USA for treatment

> > >

> > >To vote, please visit the following web page:

> > >http://groups.yahoo.com/group/nosurgery4clubfoot/surveys?id=1709012

> > >

> > >Note: Please do not reply to this message. Poll votes are

> > >not collected via email. To vote, you must go to the Yahoo! Groups

> > >web site listed above.

> > >

> > >Thanks!

> > >

March 14, 2005

Actually it's been a good day, just feeling froggy I reckon. Anyway, hope

you all are having a good night, I think I'll find my way to bed.

s.

ee,

I was wondering if you were having a bad day or something...my jaw dropped

when I read your response! If it makes you feel any better I had to change the

response choices to a poll I posted a while back, can't imagine who was being

picky back then...no names....;-p lol...

March 14, 2005

Okay ee, hate to bring this up, but I was going to answer the

poll--my answer wasn't there (I'm whispering this last part). We

would be in the 200-300 catagory and there's not a choice for that

(whispering again:).

Pam and (8-12-01)

> >

> > >Enter your vote today! A new poll has been created for the

> > >nosurgery4clubfoot group:

> > >

> > >How far does your family travel to see

> > >Dr. Ponseti or a Ponseti qualified

> > >doctor in the course of treating your

> > >clubfooted child?

> > >

> > > o 100 miles or less

> > > o 100 to 200 miles

> > > o 300 to 400 miles

> > > o 400 to 500 miles

> > > o 500 to 600 miles

> > > o 600 to 700 miles

> > > o 700 to 800 miles

> > > o 800 to 900 miles

> > > o 1000 miles or more

> > > o We travel inside the USA

> > > o We travel from a foreign country to the U SA

> > > o We travel inside a foreign country NOT the USA for treatment

> > >

> > >To vote, please visit the following web page:

> > >http://groups.yahoo.com/group/nosurgery4clubfoot/surveys?

id=1709012

> > >

> > >Note: Please do not reply to this message. Poll votes are

> > >not collected via email. To vote, you must go to the Yahoo!

Groups

> > >web site listed above.

> > >

> > >Thanks!

> > >

March 14, 2005

well, I was actually thinking local as in +/-10 miles. Meaning, living in

the same town the doc is in. If you have to drive to another city it's not

quite *that* local. I was curious how many of us are really, really close.

Oh yeah... I'm picky! lol... Mostly just curious about this, since you had

the poll up seemed a good time to ask the question. But technically I

can't even participate in the poll because I can't in any honesty say we

see a Ponseti Doc. :~{

Kori

At 08:54 AM 3/14/2005, you wrote:

>My, aren't we a picky group. I'm sorry I bothered. Seemed pretty

>straight forward to me, but what do I know. Yes, for those of you who

>requested it, I changed the $%()$&$)!!~~* miles options.

>s.

>

> Re: New poll for nosurgery4clubfoot

>

>I voted for the 100 miles or less, but I was also in the same boat,

>and the category " local, 25 miles or less " didn't fit either. I

>consider Dr. Dobbs " local " but he is about 45 miles from home (I call

>it local because I drive that distance everyday for work). If anyone

>wants to add a " local, 50 miles or less " category I will change my

>vote, otherwise I guess I can leave it at 100 miles or less.

>

> >

> > >Enter your vote today! A new poll has been created for the

> > >nosurgery4clubfoot group:

> > >

> > >How far does your family travel to see

> > >Dr. Ponseti or a Ponseti qualified

> > >doctor in the course of treating your

> > >clubfooted child?

> > >

> > > o 100 miles or less

> > > o 100 to 200 miles

> > > o 300 to 400 miles

> > > o 400 to 500 miles

> > > o 500 to 600 miles

> > > o 600 to 700 miles

> > > o 700 to 800 miles

> > > o 800 to 900 miles

> > > o 1000 miles or more

> > > o We travel inside the USA

> > > o We travel from a foreign country to the U SA

> > > o We travel inside a foreign country NOT the USA for treatment

> > >

> > >To vote, please visit the following web page:

> > >http://groups.yahoo.com/group/nosurgery4clubfoot/surveys?id=1709012

> > >

> > >Note: Please do not reply to this message. Poll votes are

> > >not collected via email. To vote, you must go to the Yahoo! Groups

> > >web site listed above.

> > >

> > >Thanks!

> > >

March 14, 2005

> My, aren't we a picky group. I'm sorry I bothered. Seemed pretty

straight forward to me, but what do I know. Yes, for those of you

who requested it, I changed the $%()$&$)!!~~* miles options.

> s.

WOW!!!

March 15, 2005

Okay everyone! ee was being sarcastic when she wrote this post.

Don't you know her personality by now? She is just giving you all a hard

time in fun.

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

fax

March 15, 2005

Uh-Oh, I'm reading from the bottom up today so I suspect I am about to get

bombarded as I continue..... Aw that's OK, a little comic relief makes the

world go around, eh? I don't mind being a target.

s.

Okay everyone! ee was being sarcastic when she wrote this post.

Don't you know her personality by now? She is just giving you all a hard

time in fun.

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

fax

March 15, 2005

Hmmm, I see your point. I figure if you can drive there in an hour so it's

local, but maybe that's coming from my rural point of view. Not sure, I've

been to a few cities that took an hour of cross-town traffic to go ten miles!

LOL! Yet where I live an hour would cover 50 or 60 miles. OK, maybe 70....hee

hee

I am surprised you don't see a Ponseti doctor - are you using the Poneti

method?

s.

well, I was actually thinking local as in +/-10 miles. Meaning, living in

the same town the doc is in. If you have to drive to another city it's not

quite *that* local. I was curious how many of us are really, really close.

Oh yeah... I'm picky! lol... Mostly just curious about this, since you had

the poll up seemed a good time to ask the question. But technically I

can't even participate in the poll because I can't in any honesty say we

see a Ponseti Doc. :~{

Kori

At 08:54 AM 3/14/2005, you wrote:

>My, aren't we a picky group. I'm sorry I bothered. Seemed pretty

>straight forward to me, but what do I know. Yes, for those of you who

>requested it, I changed the $%()$&$)!!~~* miles options.

>s.

>

> Re: New poll for nosurgery4clubfoot

>

>I voted for the 100 miles or less, but I was also in the same boat,

>and the category " local, 25 miles or less " didn't fit either. I

>consider Dr. Dobbs " local " but he is about 45 miles from home (I call

>it local because I drive that distance everyday for work). If anyone

>wants to add a " local, 50 miles or less " category I will change my

>vote, otherwise I guess I can leave it at 100 miles or less.

>

> >

> > >Enter your vote today! A new poll has been created for the

> > >nosurgery4clubfoot group:

> > >

> > >How far does your family travel to see

> > >Dr. Ponseti or a Ponseti qualified

> > >doctor in the course of treating your

> > >clubfooted child?

> > >

> > > o 100 miles or less

> > > o 100 to 200 miles

> > > o 300 to 400 miles

> > > o 400 to 500 miles

> > > o 500 to 600 miles

> > > o 600 to 700 miles

> > > o 700 to 800 miles

> > > o 800 to 900 miles

> > > o 1000 miles or more

> > > o We travel inside the USA

> > > o We travel from a foreign country to the U SA

> > > o We travel inside a foreign country NOT the USA for treatment

> > >

> > >To vote, please visit the following web page:

> > >http://groups.yahoo.com/group/nosurgery4clubfoot/surveys?id=1709012

> > >

> > >Note: Please do not reply to this message. Poll votes are

> > >not collected via email. To vote, you must go to the Yahoo! Groups

> > >web site listed above.

> > >

> > >Thanks!

> > >

March 15, 2005

AHHHHH! I GIVE UP!

(HAHAHAHHAHAHAHAHAHAH) Really? How did I miss that? Can I pleade I suffer

from Mommy Brain?

s.

Re: New poll for nosurgery4clubfoot

Okay ee, hate to bring this up, but I was going to answer the

poll--my answer wasn't there (I'm whispering this last part). We

would be in the 200-300 catagory and there's not a choice for that

(whispering again:).

Pam and (8-12-01)

> >

> > >Enter your vote today! A new poll has been created for the

> > >nosurgery4clubfoot group:

> > >

> > >How far does your family travel to see

> > >Dr. Ponseti or a Ponseti qualified

> > >doctor in the course of treating your

> > >clubfooted child?

> > >

> > > o 100 miles or less

> > > o 100 to 200 miles

> > > o 300 to 400 miles

> > > o 400 to 500 miles

> > > o 500 to 600 miles

> > > o 600 to 700 miles

> > > o 700 to 800 miles

> > > o 800 to 900 miles

> > > o 1000 miles or more

> > > o We travel inside the USA

> > > o We travel from a foreign country to the U SA

> > > o We travel inside a foreign country NOT the USA for treatment

> > >

> > >To vote, please visit the following web page:

> > >http://groups.yahoo.com/group/nosurgery4clubfoot/surveys?

id=1709012

> > >

> > >Note: Please do not reply to this message. Poll votes are

> > >not collected via email. To vote, you must go to the Yahoo!

Groups

> > >web site listed above.

> > >

> > >Thanks!

> > >

March 15, 2005

At 06:54 AM 3/15/2005, you wrote:

>Hmmm, I see your point. I figure if you can drive there in an hour so

>it's local, but maybe that's coming from my rural point of view. Not

>sure, I've been to a few cities that took an hour of cross-town traffic to

>go ten miles! LOL! Yet where I live an hour would cover 50 or 60

>miles. OK, maybe 70....hee hee

same here, but the Shriners hospital is seriously about 15min even in

traffic from my house. It's on the same campus as our hospital, Dr's

offices and really quite close. I feel lucky. I'm in Portland, OR. Which

is a pretty good size city, not quite as large as Seattle but close. We

have less traffic but it is getting progressively worse. (shhhh... don't

tell! I want the traffic to stay in Seattle lol)

> I am surprised you don't see a Ponseti doctor - are you using the Poneti

> method?

I *do* see a Ponseti doc. He's even on the list. But he modifies as far

as bracing times, last cast abduction and FAB settings... AND now most of

his patients use AFO's because they can't tolerate the

FAB. Hummm.... he's only abducting to 55 degrees, FAB set at 50

degrees... What exactly does he expect? Now Darbi's foot came out fine

and fully corrected but that was nearly 2 years ago. Today I would NOT say

he was a Ponseti doc and I would NOT recommend anyone seeing him. So

technically, to see a Ponseti Doc I'd have to drive to Seattle to see Dr.

Mosca. That's about 250 miles.

He's the one I sent all that info to and wrote back (4w later) with thanks

and saying they're still deciding where they want to go with bracing there

at Shriners. I'm hoping they're using the info I sent and will go back to

the FAB but I don't know. I should email him again asking for an update.

Kori

>s.

>

>well, I was actually thinking local as in +/-10 miles. Meaning, living in

>the same town the doc is in. If you have to drive to another city it's not

>quite *that* local. I was curious how many of us are really, really close.

>

>Oh yeah... I'm picky! lol... Mostly just curious about this, since you had

>the poll up seemed a good time to ask the question. But technically I

>can't even participate in the poll because I can't in any honesty say we

>see a Ponseti Doc. :~{

>

>Kori

>

>At 08:54 AM 3/14/2005, you wrote:

>

> >My, aren't we a picky group. I'm sorry I bothered. Seemed pretty

> >straight forward to me, but what do I know. Yes, for those of you who

> >requested it, I changed the $%()$&$)!!~~* miles options.

> >s.

> >

> > Re: New poll for nosurgery4clubfoot

> >

> >I voted for the 100 miles or less, but I was also in the same boat,

> >and the category " local, 25 miles or less " didn't fit either. I

> >consider Dr. Dobbs " local " but he is about 45 miles from home (I call

> >it local because I drive that distance everyday for work). If anyone

> >wants to add a " local, 50 miles or less " category I will change my

> >vote, otherwise I guess I can leave it at 100 miles or less.

> >

> > >

> > > >Enter your vote today! A new poll has been created for the

> > > >nosurgery4clubfoot group:

> > > >

> > > >How far does your family travel to see

> > > >Dr. Ponseti or a Ponseti qualified

> > > >doctor in the course of treating your

> > > >clubfooted child?

> > > >

> > > > o 100 miles or less

> > > > o 100 to 200 miles

> > > > o 300 to 400 miles

> > > > o 400 to 500 miles

> > > > o 500 to 600 miles

> > > > o 600 to 700 miles

> > > > o 700 to 800 miles

> > > > o 800 to 900 miles

> > > > o 1000 miles or more

> > > > o We travel inside the USA

> > > > o We travel from a foreign country to the U SA

> > > > o We travel inside a foreign country NOT the USA for treatment

> > > >

> > > >To vote, please visit the following web page:

> > > >http://groups.yahoo.com/group/nosurgery4clubfoot/surveys?id=1709012

> > > >

> > > >Note: Please do not reply to this message. Poll votes are

> > > >not collected via email. To vote, you must go to the Yahoo! Groups

> > > >web site listed above.

> > > >

> > > >Thanks!

> > > >

March 15, 2005

Ya I hope he goes back to protocol - it would be a couple years before he gets

the bad results of modifying it, but in the mean time lots of babies get bad

results and Ponseti's method gets lots of bad press.

s.

Re: New poll for nosurgery4clubfoot

> >

> >I voted for the 100 miles or less, but I was also in the same boat,

> >and the category " local, 25 miles or less " didn't fit either. I

> >consider Dr. Dobbs " local " but he is about 45 miles from home (I call

> >it local because I drive that distance everyday for work). If anyone

> >wants to add a " local, 50 miles or less " category I will change my

> >vote, otherwise I guess I can leave it at 100 miles or less.

> >

> > >

> > > >Enter your vote today! A new poll has been created for the

> > > >nosurgery4clubfoot group:

> > > >

> > > >How far does your family travel to see

> > > >Dr. Ponseti or a Ponseti qualified

> > > >doctor in the course of treating your

> > > >clubfooted child?

> > > >

> > > > o 100 miles or less

> > > > o 100 to 200 miles

> > > > o 300 to 400 miles

> > > > o 400 to 500 miles

> > > > o 500 to 600 miles

> > > > o 600 to 700 miles

> > > > o 700 to 800 miles

> > > > o 800 to 900 miles

> > > > o 1000 miles or more

> > > > o We travel inside the USA

> > > > o We travel from a foreign country to the U SA

> > > > o We travel inside a foreign country NOT the USA for treatment

> > > >

> > > >To vote, please visit the following web page:

> > > >http://groups.yahoo.com/group/nosurgery4clubfoot/surveys?id=1709012

> > > >

> > > >Note: Please do not reply to this message. Poll votes are

> > > >not collected via email. To vote, you must go to the Yahoo! Groups

> > > >web site listed above.

> > > >

> > > >Thanks!

> > > >

May 2, 2005

Enter your vote today! A new poll has been created for the

nosurgery4clubfoot group:

Would you be interested in participating in Dr. Dobbs'

genetic study to locate the clubfoot gene?

o Yes, I am interested, please contact me via email.

o Yes, I am interested, I will contact Dr. Dobbs myself at

mattdobbs@...

o Yes, I am already a participant

o No, I would not like to participate at this time

To vote, please visit the following web page:

http://groups.yahoo.com/group/nosurgery4clubfoot/surveys?id=1801646

Note: Please do not reply to this message. Poll votes are

not collected via email. To vote, you must go to the Yahoo! Groups

web site listed above.

Thanks!

May 2, 2005

My daughter was already used in Dobb's study, unbeknownst to us. She was put

under for her tenotomy and Dobb's came to us afterwards and informed us that

blood was taken from her foot as part of research. It would have been nice if he

had asked first and it came to our knowledge that he was using Abbi as research

more and more as her treatment went on due to her complexity. We switched

because we personally did not want to be research, we wanted Abbi to be treated

properly. Abbi is doing well despite her possible foot turning in; although, I

have to say--she was standing normally today so maybe after a few times

standing, she will stand straight versus on the side or on her toes.

We shall see,,,,Becky

nosurgery4clubfoot wrote:

Enter your vote today! A new poll has been created for the

nosurgery4clubfoot group:

Would you be interested in participating in Dr. Dobbs'

genetic study to locate the clubfoot gene?

o Yes, I am interested, please contact me via email.

o Yes, I am interested, I will contact Dr. Dobbs myself at

mattdobbs@...

o Yes, I am already a participant

o No, I would not like to participate at this time

To vote, please visit the following web page:

http://groups.yahoo.com/group/nosurgery4clubfoot/surveys?id=1801646

Note: Please do not reply to this message. Poll votes are

not collected via email. To vote, you must go to the Yahoo! Groups

web site listed above.

Thanks!

May 2, 2005

Forgive me if this has already been explained, but I've missed a lot of

threads recently and am unsure how to answer the poll. Is the study

focused primarily on families who show CF in more than one person or are

they looking at all CF families? There is an answer on the poll indicating

interest but we only have one family member with CF. Are those of us who

fit this category needing to check this answer as opposed to the first

*interested, contact me* choice or can we just say yes because we want to

participate? I sound like an idiot... sorry. Just not sure what to

choose. I would like to participate regardless of multiple family members...

Was there a call for participants sent here that I missed? Did it say who

was eligible?

Thanks for any info to help clear a muddled mind.

Kori

At 10:22 AM 5/2/2005, you wrote:

>Enter your vote today! A new poll has been created for the

>nosurgery4clubfoot group:

>

>Would you be interested in participating in Dr. Dobbs'

>genetic study to locate the clubfoot gene?

>

> o Yes, I am interested, please contact me via email.

> o Yes, I am interested, I will contact Dr. Dobbs myself at

> mattdobbs@...

> o Yes, I am already a participant

> o No, I would not like to participate at this time

>

>To vote, please visit the following web page:

>http://groups.yahoo.com/group/nosurgery4clubfoot/surveys?id=1801646

>

>Note: Please do not reply to this message. Poll votes are

>not collected via email. To vote, you must go to the Yahoo! Groups

>web site listed above.

>

>Thanks!

>

May 3, 2005

Becky,

I can't say what happened in this case but I do know they are required

to have your permission to use Abbi's blood in the study. Probably

someone forgot to do their part and get you to sign off on it first;

but if you had told Dr. Dobbs that you didn't want to be in the study

I'm sure he would have respected your wishes. I personally don't see

how being a part of the research study would have compromised her

treatment. The way I see it, if you participate in the study

extensively, your child would be on the forefront of the doctor's mind

and would probably get better treatment, not worse. But, of course

you are certainly entitled to your own opinion. Just curious who you

see now if you are not seeing Dr. Dobbs anymore.

Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs Brace 16-18/7)

nosurgery4clubfoot , Engman wrote:

> My daughter was already used in Dobb's study, unbeknownst to us. She

was put under for her tenotomy and Dobb's came to us afterwards and

informed us that blood was taken from her foot as part of research. It

would have been nice if he had asked first and it came to our

knowledge that he was using Abbi as research more and more as her

treatment went on due to her complexity. We switched because we

personally did not want to be research, we wanted Abbi to be treated

properly. Abbi is doing well despite her possible foot turning in;

although, I have to say--she was standing normally today so maybe

after a few times standing, she will stand straight versus on the side

or on her toes.

> We shall see,,,,Becky

>

> nosurgery4clubfoot wrote:

>

> Enter your vote today! A new poll has been created for the

> nosurgery4clubfoot group:

>

> Would you be interested in participating in Dr. Dobbs'

> genetic study to locate the clubfoot gene?

>

> o Yes, I am interested, please contact me via email.

> o Yes, I am interested, I will contact Dr. Dobbs myself at

mattdobbs@e...

> o Yes, I am already a participant

> o No, I would not like to participate at this time

>

> To vote, please visit the following web page:

> http://groups.yahoo.com/group/nosurgery4clubfoot/surveys?id=1801646

>

> Note: Please do not reply to this message. Poll votes are

> not collected via email. To vote, you must go to the Yahoo! Groups

> web site listed above.

>

> Thanks!

>

May 3, 2005

Kori,

Yup, you missed it. I sent out a plea for participants for his study

last week. He is mostly interested in families w/ more than one

member who has clubfoot but I added that one about " yes, interested

but only one family member " to identify people who would like to

participate if he needs them even if they don't have 2 family members.

Thanks for the interest!

>

> >Enter your vote today! A new poll has been created for the

> >nosurgery4clubfoot group:

> >

> >Would you be interested in participating in Dr. Dobbs'

> >genetic study to locate the clubfoot gene?

> >

> > o Yes, I am interested, please contact me via email.

> > o Yes, I am interested, I will contact Dr. Dobbs myself at

> > mattdobbs@e...

> > o Yes, I am already a participant

> > o No, I would not like to participate at this time

> >

> >To vote, please visit the following web page:

> >http://groups.yahoo.com/group/nosurgery4clubfoot/surveys?id=1801646

> >

> >Note: Please do not reply to this message. Poll votes are

> >not collected via email. To vote, you must go to the Yahoo! Groups

> >web site listed above.

> >

> >Thanks!

> >

May 3, 2005

he asked us first and we had to sign a form and all that... so that is strange

that they took the blood without the signature first... but i'm sure that was

just an accident.. i am really hoping that this study will ensure that by the

time grace is having kids, he will be able to either prevent the CF gene or

" turn it off " as they say.. i am also pretty sure that CF runs in our family and

am curious as to whether i had the gene also... but i forgot to ask him last

time we were there... i was so excited to get reduced hours that i was in a

happy fog.. lol...

mommy to Grace 12-03-03 BCF Dobb's Brace 16/7

jagrindon@...> wrote: