Guest guest Posted September 16, 2001 Report Share Posted September 16, 2001 --- cath2000 wrote: > Hi : > > Cath here. > He did not know > the power of God's > love in my life and how he has blessed me throughout > this whole > process. God gave me the strenght to keep going > when I had nothing > left, and has helped keep my faith and belief even > stronger than it has > ever been. I am so grateful for all that God has > done in my life. > Take care, > > Cath What a wonderful tribute to the faithfulness of God. Thank you for sharing. Love, Sharon ===== __________________________________________________ Terrorist Attacks on U.S. - How can you help? Donate cash, emergency relief information http://dailynews.yahoo.com/fc/US/Emergency_Information/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2001 Report Share Posted September 16, 2001 In a message dated 9/16/01 5:51:44 AM Pacific Daylight Time, CATH2000@... writes: << Bless everyone in the group and I so wish I could have gone to Ok for the reunion. I will be there next time no matter what. That is a promise I have made myself. >> Cath, it is soooo good to hear from you.... You have truly been blessed and I can't think of anyone who deserves it more... God does provide. I'm so glad that things are finally working out for you and Caitlin... A lot of prayers have been said and now we see the rewards... Thank you so much for participating in dr Buckners study. I will send your name to Lu. I'm sure Dr. B will be interested in your treatments. She wants to know ALL about this disease... You had better be at the next reunion.. I just have to meet you.... What an inspiration you are to all of us.. Thanks for posting and hope to hear from you soon.. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2001 Report Share Posted September 16, 2001 --- cath2000 wrote: > Hi : > > Cath here. > He did not know > the power of God's > love in my life and how he has blessed me throughout > this whole > process. God gave me the strenght to keep going > when I had nothing > left, and has helped keep my faith and belief even > stronger than it has > ever been. I am so grateful for all that God has > done in my life. > Take care, > > Cath What a wonderful tribute to the faithfulness of God. Thank you for sharing. Love, Sharon ===== __________________________________________________ Terrorist Attacks on U.S. - How can you help? Donate cash, emergency relief information http://dailynews.yahoo.com/fc/US/Emergency_Information/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2001 Report Share Posted September 16, 2001 In a message dated 9/16/01 5:51:44 AM Pacific Daylight Time, CATH2000@... writes: << Bless everyone in the group and I so wish I could have gone to Ok for the reunion. I will be there next time no matter what. That is a promise I have made myself. >> Cath, it is soooo good to hear from you.... You have truly been blessed and I can't think of anyone who deserves it more... God does provide. I'm so glad that things are finally working out for you and Caitlin... A lot of prayers have been said and now we see the rewards... Thank you so much for participating in dr Buckners study. I will send your name to Lu. I'm sure Dr. B will be interested in your treatments. She wants to know ALL about this disease... You had better be at the next reunion.. I just have to meet you.... What an inspiration you are to all of us.. Thanks for posting and hope to hear from you soon.. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2001 Report Share Posted September 17, 2001 Congratulations Cathy, I was wondering how you were doing. I'm so glad to here your good news. You went through so much horrible stuff with Blain, I'm glad to see that the courts saw through his craziness and voted in your favour. Once again, congratulations!!!! Elaine PS I finally got my divorce and married the most wonderful guy in the world. Hi everyone Hi :Cath here. Haven't been posting lately due to job change and numerousother situations.I just wanted the ones who know me to know that I am doing ok. I amfeeling better although still have aches and pains. I am going to joinwith Dr. Bruckner and let her know of some of my unconventionalmedication being used that my docs think are keeping doing so well andpreventing respiratory damage. I figure any info she can get may helpwith research.I can finally now say to those who know what a horrible divorce I wentthrough, that God once again provided for me. The house is now in myname only and the PMI insurance was dropped which does help with makingthe house payment a little better. I don't know how God did it, but themortgage company waived all of their qualifying assumption charges to dothis and since I had quit claimed the house from Cathy Enderle (marriedname) to Cathy Conrad (maiden name), I was able to forego hundreds ofdollars in docs stamp fees. The court recording department says theyhave never seen anyone pull off something like this with the quit claimsand department of revenue had to check the records to see thateverything was legal, and it was. Even the mortgage company said Iwould not be able to do it. Everyone says it was a different route todo transfer without Blain's signiture (due to restraining orders etc)but thatthey would all try to help others in my spot if this situation is everpresented again.To those of you who don't know me, I went through a horrible divorce inwhich he promised to destroy me. He did not know the power of God'slove in my life and how he has blessed me throughout this wholeprocess. God gave me the strenght to keep going when I had nothingleft, and has helped keep my faith and belief even stronger than it hasever been. I am so grateful for all that God has done in my life.I try to keep up with the postings, but it is hard since I am workingalot to try to pay all the bills.Please add my name to the list for Dr. Bruckner to contact, since maybesomething I'm doing has helped keep me off Pred and any methotrexateetc.I pray that no one in our group lost loved ones in the recent disaster,but even if no one has, we have all lost greatly. I know I personallyfaced evil and although it was horrible, my trust in God was rewardedand God won. I also know that God will conquer this most horrible evilthat was done last tuesday, it may take some time, but God will win forall of us.Bless everyone in the group and I so wish I could have gone to Ok forthe reunion. I will be there next time no matter what. That is apromise I have made myself.My prayers as always are with everyone in the group and I am so proud ofwhat you are all doing. I don't have a lot of time, but if I can helpin any way, please let me know. You are all the best that God has tooffer and he again took a horrible disease and gave us a blessing witheach other.Take care,CathDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2001 Report Share Posted September 17, 2001 Congratulations Cathy, I was wondering how you were doing. I'm so glad to here your good news. You went through so much horrible stuff with Blain, I'm glad to see that the courts saw through his craziness and voted in your favour. Once again, congratulations!!!! Elaine PS I finally got my divorce and married the most wonderful guy in the world. Hi everyone Hi :Cath here. Haven't been posting lately due to job change and numerousother situations.I just wanted the ones who know me to know that I am doing ok. I amfeeling better although still have aches and pains. I am going to joinwith Dr. Bruckner and let her know of some of my unconventionalmedication being used that my docs think are keeping doing so well andpreventing respiratory damage. I figure any info she can get may helpwith research.I can finally now say to those who know what a horrible divorce I wentthrough, that God once again provided for me. The house is now in myname only and the PMI insurance was dropped which does help with makingthe house payment a little better. I don't know how God did it, but themortgage company waived all of their qualifying assumption charges to dothis and since I had quit claimed the house from Cathy Enderle (marriedname) to Cathy Conrad (maiden name), I was able to forego hundreds ofdollars in docs stamp fees. The court recording department says theyhave never seen anyone pull off something like this with the quit claimsand department of revenue had to check the records to see thateverything was legal, and it was. Even the mortgage company said Iwould not be able to do it. Everyone says it was a different route todo transfer without Blain's signiture (due to restraining orders etc)but thatthey would all try to help others in my spot if this situation is everpresented again.To those of you who don't know me, I went through a horrible divorce inwhich he promised to destroy me. He did not know the power of God'slove in my life and how he has blessed me throughout this wholeprocess. God gave me the strenght to keep going when I had nothingleft, and has helped keep my faith and belief even stronger than it hasever been. I am so grateful for all that God has done in my life.I try to keep up with the postings, but it is hard since I am workingalot to try to pay all the bills.Please add my name to the list for Dr. Bruckner to contact, since maybesomething I'm doing has helped keep me off Pred and any methotrexateetc.I pray that no one in our group lost loved ones in the recent disaster,but even if no one has, we have all lost greatly. I know I personallyfaced evil and although it was horrible, my trust in God was rewardedand God won. I also know that God will conquer this most horrible evilthat was done last tuesday, it may take some time, but God will win forall of us.Bless everyone in the group and I so wish I could have gone to Ok forthe reunion. I will be there next time no matter what. That is apromise I have made myself.My prayers as always are with everyone in the group and I am so proud ofwhat you are all doing. I don't have a lot of time, but if I can helpin any way, please let me know. You are all the best that God has tooffer and he again took a horrible disease and gave us a blessing witheach other.Take care,CathDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 Carol, So glad you found us and so glad that you think we are great! I think this group is the greatest also. They are the most wonderful group of people anyone could have the opportunity to meet. It is great to be able to post to others who actually know what we are talking about. One good thing about this group is that we can post anything we want. We laugh and joke and then we can be serious too! That is because we support the whole person not just the one with RP! My name is Glenda and I live in Oregon. I have had RP for over 7 years and only have occassional flares. I was lucky to get a good rheumy who treated the RP aggressively and got it under control. I have been married to Mike for over 27 years, we have two grown children and are raising our 6 year old grand daughter. There is never a dull moment in my life but I wouldn't want it anyother way!LOL Take care and good luck with the new Rhuemy! Post when you can or would like! Lots of LoveGlenda Yesterday is History....Tomorrow is a Mystery...Today is a Gift! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 Carol, So glad you found us and so glad that you think we are great! I think this group is the greatest also. They are the most wonderful group of people anyone could have the opportunity to meet. It is great to be able to post to others who actually know what we are talking about. One good thing about this group is that we can post anything we want. We laugh and joke and then we can be serious too! That is because we support the whole person not just the one with RP! My name is Glenda and I live in Oregon. I have had RP for over 7 years and only have occassional flares. I was lucky to get a good rheumy who treated the RP aggressively and got it under control. I have been married to Mike for over 27 years, we have two grown children and are raising our 6 year old grand daughter. There is never a dull moment in my life but I wouldn't want it anyother way!LOL Take care and good luck with the new Rhuemy! Post when you can or would like! Lots of LoveGlenda Yesterday is History....Tomorrow is a Mystery...Today is a Gift! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2001 Report Share Posted December 3, 2001 Glenda, Im so glad you have a good rheumy!!!! I go to a rheumy for the first time Dec 14th and pray he will be able and willing to know how to control my RP also. If there is any info you can give me that your Dr did that I can tell this Dr I would appreciate it. Like people say in this site, WE HAVE TO SOMETIMES TELL THE DRS WHAT TO DO!!!!! Thanks Carol --- Glenda McClennen wrote: > Carol, > So glad you found us and so glad that you think we > are great! I think this group is the greatest also. > They are the most wonderful group of people anyone > could have the opportunity to meet. > > It is great to be able to post to others who > actually know what we are talking about. One good > thing about this group is that we can post anything > we want. We laugh and joke and then we can be > serious too! That is because we support the whole > person not just the one with RP! > > My name is Glenda and I live in Oregon. I have had > RP for over 7 years and only have occassional > flares. I was lucky to get a good rheumy who > treated the RP aggressively and got it under > control. I have been married to Mike for over 27 > years, we have two grown children and are raising > our 6 year old grand daughter. There is never a > dull moment in my life but I wouldn't want it > anyother way!LOL > > Take care and good luck with the new Rhuemy! Post > when you can or would like! > > Lots of Love > Glenda > > Yesterday is History....Tomorrow is a > Mystery...Today is a Gift! > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2001 Report Share Posted December 3, 2001 Glenda, Im so glad you have a good rheumy!!!! I go to a rheumy for the first time Dec 14th and pray he will be able and willing to know how to control my RP also. If there is any info you can give me that your Dr did that I can tell this Dr I would appreciate it. Like people say in this site, WE HAVE TO SOMETIMES TELL THE DRS WHAT TO DO!!!!! Thanks Carol --- Glenda McClennen wrote: > Carol, > So glad you found us and so glad that you think we > are great! I think this group is the greatest also. > They are the most wonderful group of people anyone > could have the opportunity to meet. > > It is great to be able to post to others who > actually know what we are talking about. One good > thing about this group is that we can post anything > we want. We laugh and joke and then we can be > serious too! That is because we support the whole > person not just the one with RP! > > My name is Glenda and I live in Oregon. I have had > RP for over 7 years and only have occassional > flares. I was lucky to get a good rheumy who > treated the RP aggressively and got it under > control. I have been married to Mike for over 27 > years, we have two grown children and are raising > our 6 year old grand daughter. There is never a > dull moment in my life but I wouldn't want it > anyother way!LOL > > Take care and good luck with the new Rhuemy! Post > when you can or would like! > > Lots of Love > Glenda > > Yesterday is History....Tomorrow is a > Mystery...Today is a Gift! > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2001 Report Share Posted December 23, 2001 ... You have a Merry Christmas too. AND have lots of fun !!! Great to see family you haven't seen for a long time... Enjoy and let us know when you get back. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2001 Report Share Posted December 23, 2001 ... You have a Merry Christmas too. AND have lots of fun !!! Great to see family you haven't seen for a long time... Enjoy and let us know when you get back. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 welcome lynn, keep posting. lori h. > Hi, > My name is Lynn I'm from Wisconsin and new to the group. > Tomorrow 1-23 I have my psychiatric evaluation. My dietitian is also > sending a letter for the insurance company. > Anyone from wisconsin?? > > Thanks Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 welcome lynn, keep posting. lori h. > Hi, > My name is Lynn I'm from Wisconsin and new to the group. > Tomorrow 1-23 I have my psychiatric evaluation. My dietitian is also > sending a letter for the insurance company. > Anyone from wisconsin?? > > Thanks Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2004 Report Share Posted September 12, 2004 Welcome to the group. I was also 7 months post-op when I became pregnant and I understand your fears. I believe that WLS is not a huge issue in pregnancy....it does take some added precautions such as vitamins are a must even more so I belive. I hope to see you posting more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2004 Report Share Posted September 12, 2004 Welcome to the group. I was also 7 months post-op when I became pregnant and I understand your fears. I believe that WLS is not a huge issue in pregnancy....it does take some added precautions such as vitamins are a must even more so I belive. I hope to see you posting more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Thank you Pamela, you will see me more > >Reply-To: OSSG-pregnant >To: OSSG-pregnant >Subject: Re: Hi everyone >Date: Mon, 13 Sep 2004 02:59:12 -0000 > > Welcome to the group. I was also 7 months post-op when I became >pregnant and I understand your fears. I believe that WLS is not a >huge issue in pregnancy....it does take some added precautions such >as vitamins are a must even more so I belive. I hope to see you >posting more. > > > > _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! hthttp://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Thank you Pamela, you will see me more > >Reply-To: OSSG-pregnant >To: OSSG-pregnant >Subject: Re: Hi everyone >Date: Mon, 13 Sep 2004 02:59:12 -0000 > > Welcome to the group. I was also 7 months post-op when I became >pregnant and I understand your fears. I believe that WLS is not a >huge issue in pregnancy....it does take some added precautions such >as vitamins are a must even more so I belive. I hope to see you >posting more. > > > > _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! hthttp://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Thanks for the welcome! I must say, it was quite a relief for me to find that so many women had actually been in my same situation (or even " worse " in some cases). Now I can be excited about it and not just worried. ===== Pinewood Heathen Society */*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/* * One's self only knows what is near one's heart, * * each reads but himself aright; * * no sickness seems to sound mind worse * * than to have lost all liking for life. * * - Hávamál, 95 * */*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/* __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Thanks for the welcome! I must say, it was quite a relief for me to find that so many women had actually been in my same situation (or even " worse " in some cases). Now I can be excited about it and not just worried. ===== Pinewood Heathen Society */*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/* * One's self only knows what is near one's heart, * * each reads but himself aright; * * no sickness seems to sound mind worse * * than to have lost all liking for life. * * - Hávamál, 95 * */*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/*/* __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 Hi Jack, You have found a great starting point with this listserve. I do suggest, however, that you visit the website of the Magic Foundation (in Chicago, Illinois, USA) which is a foundation for children with growth disorders. Their biggest division is RSS. Their website is www.magicfoundation.org There is an endocrinologist in England (those who live there can help better with the name and location) who is a specialist with RSS. There is also another foundation group in England and again those who live in that area can help. Your best bet though is to check out the Magic Foundation if you have not done so already. They provide so much information and help. This listserve will provide you with wonderful, caring people and a lot of insight and knowledge. Good Luck B 4 3/4 RSS and Kelli 2 Non RSS --- Jacinto wrote: > > > Hi I'm Jack from holland, > > A while back I met a woman from Peru (I have a latin > background so > speak spanish). She has a little girl of 5 years old > which lately had > been experiencing leg pain. She told me the child > was once diagnosed > as having Russel Silver syndrome. Her financial > situation is such > that she cannot provide proper health care for her > child. I've > decided to help her in any way I can and maybe you > people here can > help me out as I have a lot of questions. I've just > now started my > research on this syndrome and am surprised by it's > seriousness. I do > not want to imagine what will happen to this girl if > she continues > like this with minimal medical care and support. > > So my foremost questions at this moment are: > > - as far as your experience goes, could her leg > (bone) pain be > related to the syndrome? > - She's 5 years old. What are the most important > things to do (health > wise) for a child that age with this problem? Are > there some > guidelines, or is this something which must be > diagnosed and > determined by specialists? > - are there any known experts on this subject? or > " must-have " links? > Any known hospitals in europe/us conserning this? > (I'm in holland atm) > - what are the standard treatments for this > syndrome(I've read about > growth hormones a bit, such things).. > > I'm just starting on this quest, so my apologies if > I'm asking the > obvious on this list, > > Thanks for any information you can provide, > Jack > jack@... > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 I have experienced the twinges and muscle spasms in my head. I have also felt the sensation of the eyes feeling like they could cross. This is usually during a stroke like episode. I don't have MELAS, but many doctors have said that I have MELAS-like mito. I have not found anything to relieve it yet, as the eye issues have just started. Sorry I couldn't be of help, but wanted you to know you are not alone. Smiles, a > > I would like to know if anyone out there has this problem. Since I > am > stillnew to this group and new to this disease, I wanted to see if > it > was just me or someone else can relate to it. I have MELAS mito and > I > do have those stroke like episodes, but this is something new with > in > the past month or two. I have been experiencing twinges, or muscle > spasms in the head. And when this happens it feels like my eyes > could > cross, but they don't, but the twinges/spasms come quick and it does > > something in the eye, the eyes feel it while it happens,. They > become > very sensitive after that short twinge/spasm. Then the eye ball > hurts > and it hurst when I move it side to side or up and down. But it's > the > twinges/spasms that are getting to me. It's like someone taking two > > wires that are electrical and touch one another. Something goes out > of > kilta. Just would like to know if anyone can relate to this. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 I missed Monday's chat group. I was very disappointed. I had to have my computer re done. Now I am back. I finally tried a mito cocktail. It consists of riboflavin,coQ10,creaetine,vitamin E. It's been about a week. I am glad to have finally started something. I am to try these for a while. I wanted to know should I feel something right away, or in a few days? I also have written in e mails about my stomach pains. I said that the pain was terrible,bloating, and gas build up was unbelievable. I had been originally using Gas X. Then that stopped working. Then I started taking Beano before every meal. That was doing great. But....I started to notice my sugar level going up and up. I stopped the Beano and my sugar has been going down. So maybe that was it. Has anyone else ever used Beano and had it effect their sugar level?Now I am trying omnigest ez. So far so good. I hopefully will talk to you alll on this Monday's chat group. I really did miss you guys. Is there a way I could check on that group chat, to see what I missed? Take care hope you are all hanging in there ok. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 Hi Irene, Sorry to hear that you missed the Chat on Monday. My computer crashed about 6 months ago, so I know what it is like. Glad it is fixed. When I don't have computer access I feel so lonely, miss all of my friends and my support groups. It is a life line for so many of us. If you go to www.mda.org click on " Chats " (top of page) on the next page click on " transcripts " and then go down the page to the right date and the chat that you are interested in viewing. Hope this helps!! I hope my instructions are correct, if not sorry.... About the mito cocktail: people with Mito should try one component of the Cocktail at a time. Take it for a few weeks (or longer)and than add another part of the cocktail. If you take more than one vitamin or co-factor at once it will be hard to know what is working and what isn't working for you. I also know that a lot of people think that just taking vitamins or co-factors won't harm them but with Mito they can. Our bodies are very different than " Normal People " we are not Normal!! Most of us start with CoQ10 and go on from there. You really should be under the care of a doctor before starting the cocktail. Your doctor will be able to do blood work on you to see if you really do need the extra vitamins and co-factors. Some people's levels are high enough and they don't need any extra. Also the creatine should be used with caution. Some experts say that you can take it on a " on going " basis and others state that it should only be used during a " crisis " . This is why it is important to have a doctor overseeing you and the cocktail you take. Do you have a Mito doctor or do you go to a MDA Clinic? These doctors would be able to help you with the proper vitamins and co-factors that your body needs. I don't have any experience with Beano or Gas X products. I am sure someone here does. Although you might want to try some kind of acidophilus. There is also a product called " Primadophilus Bifidus which is coated to protect your stomach. It also has 10 Billion microorganisms per Gram. The Primadophilus Bifidus is especially for " Intestinal Release " , and it is in the refrigerated section of the Health food Stores. If you continue to have pain, bloating and gas you might want to see a GI Specialist. Lots of people with Mito also have severe GI problems, I know I do. Good Luck and I hope I was able to help in some small way. Hugs, Ann-Marie Hi everyone I missed Monday's chat group. I was very disappointed. I had to have my computer re done. Now I am back. I finally tried a mito cocktail. It consists of riboflavin,coQ10,creaetine,vitamin E. It's been about a week. I am glad to have finally started something. I am to try these for a while. I wanted to know should I feel something right away, or in a few days? I also have written in e mails about my stomach pains. I said that the pain was terrible,bloating, and gas build up was unbelievable. I had been originally using Gas X. Then that stopped working. Then I started taking Beano before every meal. That was doing great. But....I started to notice my sugar level going up and up. I stopped the Beano and my sugar has been going down. So maybe that was it. Has anyone else ever used Beano and had it effect their sugar level?Now I am trying omnigest ez. So far so good. I hopefully will talk to you alll on this Monday's chat group. I really did miss you guys. Is there a way I could check on that group chat, to see what I missed? Take care hope you are all hanging in there ok. Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 Hi, I'm new to whole Mito thing. Is it your experience that Mito. people are able to collect Social Security? I'm being retired from the military and I'm worried I'll lose everything. Thanks, Alan peetie peetie@...> wrote: Hi Irene, Sorry to hear that you missed the Chat on Monday. My computer crashed about 6 months ago, so I know what it is like. Glad it is fixed. When I don't have computer access I feel so lonely, miss all of my friends and my support groups. It is a life line for so many of us. If you go to www.mda.org click on " Chats " (top of page) on the next page click on " transcripts " and then go down the page to the right date and the chat that you are interested in viewing. Hope this helps!! I hope my instructions are correct, if not sorry.... About the mito cocktail: people with Mito should try one component of the Cocktail at a time. Take it for a few weeks (or longer)and than add another part of the cocktail. If you take more than one vitamin or co-factor at once it will be hard to know what is working and what isn't working for you. I also know that a lot of people think that just taking vitamins or co-factors won't harm them but with Mito they can. Our bodies are very different than " Normal People " we are not Normal!! Most of us start with CoQ10 and go on from there. You really should be under the care of a doctor before starting the cocktail. Your doctor will be able to do blood work on you to see if you really do need the extra vitamins and co-factors. Some people's levels are high enough and they don't need any extra. Also the creatine should be used with caution. Some experts say that you can take it on a " on going " basis and others state that it should only be used during a " crisis " . This is why it is important to have a doctor overseeing you and the cocktail you take. Do you have a Mito doctor or do you go to a MDA Clinic? These doctors would be able to help you with the proper vitamins and co-factors that your body needs. I don't have any experience with Beano or Gas X products. I am sure someone here does. Although you might want to try some kind of acidophilus. There is also a product called " Primadophilus Bifidus which is coated to protect your stomach. It also has 10 Billion microorganisms per Gram. The Primadophilus Bifidus is especially for " Intestinal Release " , and it is in the refrigerated section of the Health food Stores. If you continue to have pain, bloating and gas you might want to see a GI Specialist. Lots of people with Mito also have severe GI problems, I know I do. Good Luck and I hope I was able to help in some small way. Hugs, Ann-Marie Hi everyone I missed Monday's chat group. I was very disappointed. I had to have my computer re done. Now I am back. I finally tried a mito cocktail. It consists of riboflavin,coQ10,creaetine,vitamin E. It's been about a week. I am glad to have finally started something. I am to try these for a while. I wanted to know should I feel something right away, or in a few days? I also have written in e mails about my stomach pains. I said that the pain was terrible,bloating, and gas build up was unbelievable. I had been originally using Gas X. Then that stopped working. Then I started taking Beano before every meal. That was doing great. But....I started to notice my sugar level going up and up. I stopped the Beano and my sugar has been going down. So maybe that was it. Has anyone else ever used Beano and had it effect their sugar level?Now I am trying omnigest ez. So far so good. I hopefully will talk to you alll on this Monday's chat group. I really did miss you guys. Is there a way I could check on that group chat, to see what I missed? Take care hope you are all hanging in there ok. Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. Quote Link to comment Share on other sites More sharing options...
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