Guest guest Posted May 2, 2005 Report Share Posted May 2, 2005 ok.. so i know that i am being impatient... grace is 17 months old tomorrow... YEAH!!.... she was treated non-ponseti for the first 13 months and then by doctor dobb's in st louis more recently.. she was reduced from 23/7 to 16/7 2 1/2 weeks ago... and she is standing of course.. and she will " walk " short distnaces holding my hands.. around the house... but she has not taken any initiative to take steps on her own... she doesn't even try to stand alone... she was never walking before this last tenotomy... she was in casts all that time mostly... and i am soooo anxious for her to start walking.. dr dobb's said that it could be 6-8 weeks before she start walking.. but i was thinking that she would have some sort of progress within 2 weeks... am i rushing her? am i too impatient? also.. i am starting to feel really bad... she is very tall and looks older than she is... people think she's almost 2 years old... and she has a cousin that is 10 weeks younger that is walking... and i feel bad because people are starting to look at her because she's still crawling... and i don't want anyone to look at her that way... am i being mean for getting so over protective? i am having a lot of mixed emotions right now.. sorry... mommy to Grace 12-03-03 BCF Dobb's Brace 16/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2005 Report Share Posted May 2, 2005 I can't tell you when you child will walk, my cf baby is not quite to that point yet. I can sympathize with the baby not walking and everyone wondering what is wrong syndrome. My boy that is now two and half didn't walk until he was 16 months (and he feet are as normal as they could be). He was very content to crawl. He did, however, have excellent verbal skills and was talking to us in two and three word sentences before he could walk. He cousin who is 5 months younger than he is walked at 9 months. My sweet m-in-l who just wants her grandchildren to be perfect, was having fits about my son. What is wrong with him, why won't he walk, walks you know, and he is only 9 months, blah, blah, blah? It does get old. pretty quick. So take a big breath, and ignore everyone else. It is hard, but it is the only way to stay sane. Your Grace will walk, she has had a busy 17 months so far, she just has a mind of her own. I am not an expert on development and such, I can just give you a hug in this message and say. Hang in there, and try to ignore the busybodies. Most mean well, some have no tact, and some definately rub you the wrong way. Soon Grace will be running away from you, let us know when it happens so we can celebrate. -- In nosurgery4clubfoot , " lcaroland " wrote: > ok.. so i know that i am being impatient... grace is 17 months old > tomorrow... YEAH!!.... she was treated non-ponseti for the first 13 > months and then by doctor dobb's in st louis more recently.. she was > reduced from 23/7 to 16/7 2 1/2 weeks ago... and she is standing of > course.. and she will " walk " short distnaces holding my hands.. around > the house... but she has not taken any initiative to take steps on her > own... she doesn't even try to stand alone... she was never walking > before this last tenotomy... she was in casts all that time mostly... > and i am soooo anxious for her to start walking.. dr dobb's said that > it could be 6-8 weeks before she start walking.. but i was thinking > that she would have some sort of progress within 2 weeks... am i > rushing her? am i too impatient? also.. i am starting to feel really > bad... she is very tall and looks older than she is... people think > she's almost 2 years old... and she has a cousin that is 10 weeks > younger that is walking... and i feel bad because people are starting > to look at her because she's still crawling... and i don't want anyone > to look at her that way... am i being mean for getting so over > protective? i am having a lot of mixed emotions right now.. sorry... > > mommy to Grace 12-03-03 BCF Dobb's Brace 16/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2005 Report Share Posted May 2, 2005 I can understand where you are coming from. My son , is going on 15 months old and we are in the middle of our second round of casting. We did the whole casting, DBB when he was first born but our doctor was not following the method correctly. He relapsed so We found a new doctor and had to start the whole process all over again. He was not walking before but was pulling himself up to stand. By the time we are through all of this and he learns to walk he will probably be close to two!! It's a lot different when you are going through the process with an older child. The way I think of it though is that when he finally is walking it will hopefully be on two good functioning feet that don't hurt him. Hang in there and try not to worry too much about what other people think. They are not in your situation. You are doing what is best for Grace and she will be grateful for it later!! Lots of luck to you, Geneva, mommy to 2/17/04, BCF > ok.. so i know that i am being impatient... grace is 17 months old > tomorrow... YEAH!!.... she was treated non-ponseti for the first 13 > months and then by doctor dobb's in st louis more recently.. she was > reduced from 23/7 to 16/7 2 1/2 weeks ago... and she is standing of > course.. and she will " walk " short distnaces holding my hands.. around > the house... but she has not taken any initiative to take steps on her > own... she doesn't even try to stand alone... she was never walking > before this last tenotomy... she was in casts all that time mostly... > and i am soooo anxious for her to start walking.. dr dobb's said that > it could be 6-8 weeks before she start walking.. but i was thinking > that she would have some sort of progress within 2 weeks... am i > rushing her? am i too impatient? also.. i am starting to feel really > bad... she is very tall and looks older than she is... people think > she's almost 2 years old... and she has a cousin that is 10 weeks > younger that is walking... and i feel bad because people are starting > to look at her because she's still crawling... and i don't want anyone > to look at her that way... am i being mean for getting so over > protective? i am having a lot of mixed emotions right now.. sorry... > > mommy to Grace 12-03-03 BCF Dobb's Brace 16/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2005 Report Share Posted May 2, 2005 me and you are in the same boat. I too was hoping would be walking by now but she still has that fear of letting go. she does great holding on to furniture and either one or both of my hands but still nothing.. she is scared on our hardwood floors i just recently noticed because when we are in a carpeted room she will let go and try to take a step and it must make her feel funny cause she laughs and laughs, so cute to watch. but now she gets around holding on to furniture and when there is no more she will hold onto the walls. me and my dh think she will take off maybe in the next few weeks. this is all new to her since us too started the ponseti method late and before that she could not stand but on the outside of her feet cause her feet were not corrected so it makes me mad to wishing i would have known about the ponseti method from the start and started treatment way sooner! ugh! but as they say there's no use in crying over spilled milk right? so im enjoying her. we get the looks too about her crawling but you know people that i have talked to just tell me " my daughter was a late walker too " or " she'll do it when she is ready " . this weekend i met a lady and her daughter(15months) and she was walking all around and she asked me how old she was and i told her 16months but i said she still hasnt started walking on her own. and her husband said " well it looks like she has got the hang of it pretty good " i had not noticed she was walking holding on from the stroller to the table to the chair then she would let go and try to balance herself and then she would laugh as to say " mom im getting there. " so dont worry i know its soo hard to be patient but just enjoy her. believe me when the times comes for her to walk i am going to cry my eyes out! im sure you feel the same! by the way i saw her file. Sooo cute!! and BL CF 12/16/03 > ok.. so i know that i am being impatient... grace is 17 months old > tomorrow... YEAH!!.... she was treated non-ponseti for the first 13 > months and then by doctor dobb's in st louis more recently.. she was > reduced from 23/7 to 16/7 2 1/2 weeks ago... and she is standing of > course.. and she will " walk " short distnaces holding my hands.. around > the house... but she has not taken any initiative to take steps on her > own... she doesn't even try to stand alone... she was never walking > before this last tenotomy... she was in casts all that time mostly... > and i am soooo anxious for her to start walking.. dr dobb's said that > it could be 6-8 weeks before she start walking.. but i was thinking > that she would have some sort of progress within 2 weeks... am i > rushing her? am i too impatient? also.. i am starting to feel really > bad... she is very tall and looks older than she is... people think > she's almost 2 years old... and she has a cousin that is 10 weeks > younger that is walking... and i feel bad because people are starting > to look at her because she's still crawling... and i don't want anyone > to look at her that way... am i being mean for getting so over > protective? i am having a lot of mixed emotions right now.. sorry... > > mommy to Grace 12-03-03 BCF Dobb's Brace 16/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 You know everyone expected Everett to walk when he was 7 months old. From then on all I heard was that he'd be walking in no time (because he could stand up well and acted as if he did want to walk). But he did not walk until he was 14 months old, and then after a few steps, he quit for a solid month. Once he decided to do it again though, there was no stopping him. All in due time when they decide they can, they will! s. Re: Older Tenotomy Children me and you are in the same boat. I too was hoping would be walking by now but she still has that fear of letting go. she does great holding on to furniture and either one or both of my hands but still nothing.. she is scared on our hardwood floors i just recently noticed because when we are in a carpeted room she will let go and try to take a step and it must make her feel funny cause she laughs and laughs, so cute to watch. but now she gets around holding on to furniture and when there is no more she will hold onto the walls. me and my dh think she will take off maybe in the next few weeks. this is all new to her since us too started the ponseti method late and before that she could not stand but on the outside of her feet cause her feet were not corrected so it makes me mad to wishing i would have known about the ponseti method from the start and started treatment way sooner! ugh! but as they say there's no use in crying over spilled milk right? so im enjoying her. we get the looks too about her crawling but you know people that i have talked to just tell me " my daughter was a late walker too " or " she'll do it when she is ready " . this weekend i met a lady and her daughter(15months) and she was walking all around and she asked me how old she was and i told her 16months but i said she still hasnt started walking on her own. and her husband said " well it looks like she has got the hang of it pretty good " i had not noticed she was walking holding on from the stroller to the table to the chair then she would let go and try to balance herself and then she would laugh as to say " mom im getting there. " so dont worry i know its soo hard to be patient but just enjoy her. believe me when the times comes for her to walk i am going to cry my eyes out! im sure you feel the same! by the way i saw her file. Sooo cute!! and BL CF 12/16/03 > ok.. so i know that i am being impatient... grace is 17 months old > tomorrow... YEAH!!.... she was treated non-ponseti for the first 13 > months and then by doctor dobb's in st louis more recently.. she was > reduced from 23/7 to 16/7 2 1/2 weeks ago... and she is standing of > course.. and she will " walk " short distnaces holding my hands.. around > the house... but she has not taken any initiative to take steps on her > own... she doesn't even try to stand alone... she was never walking > before this last tenotomy... she was in casts all that time mostly... > and i am soooo anxious for her to start walking.. dr dobb's said that > it could be 6-8 weeks before she start walking.. but i was thinking > that she would have some sort of progress within 2 weeks... am i > rushing her? am i too impatient? also.. i am starting to feel really > bad... she is very tall and looks older than she is... people think > she's almost 2 years old... and she has a cousin that is 10 weeks > younger that is walking... and i feel bad because people are starting > to look at her because she's still crawling... and i don't want anyone > to look at her that way... am i being mean for getting so over > protective? i am having a lot of mixed emotions right now.. sorry... > > mommy to Grace 12-03-03 BCF Dobb's Brace 16/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 Two functional feet that don't hurt - wow that is the prize so you all keep your eyes on it! finally managed to walk wearing his AFO's when he was about 18 months old or so. Prior to that he mostly hobbled and fell and was in a lot of pain. He wanted to walk so bad and he would try so hard to get around on feet. Just hang in there, starting over is frustrating at times but stick it out! s. Re: Older Tenotomy Children I can understand where you are coming from. My son , is going on 15 months old and we are in the middle of our second round of casting. We did the whole casting, DBB when he was first born but our doctor was not following the method correctly. He relapsed so We found a new doctor and had to start the whole process all over again. He was not walking before but was pulling himself up to stand. By the time we are through all of this and he learns to walk he will probably be close to two!! It's a lot different when you are going through the process with an older child. The way I think of it though is that when he finally is walking it will hopefully be on two good functioning feet that don't hurt him. Hang in there and try not to worry too much about what other people think. They are not in your situation. You are doing what is best for Grace and she will be grateful for it later!! Lots of luck to you, Geneva, mommy to 2/17/04, BCF > ok.. so i know that i am being impatient... grace is 17 months old > tomorrow... YEAH!!.... she was treated non-ponseti for the first 13 > months and then by doctor dobb's in st louis more recently.. she was > reduced from 23/7 to 16/7 2 1/2 weeks ago... and she is standing of > course.. and she will " walk " short distnaces holding my hands.. around > the house... but she has not taken any initiative to take steps on her > own... she doesn't even try to stand alone... she was never walking > before this last tenotomy... she was in casts all that time mostly... > and i am soooo anxious for her to start walking.. dr dobb's said that > it could be 6-8 weeks before she start walking.. but i was thinking > that she would have some sort of progress within 2 weeks... am i > rushing her? am i too impatient? also.. i am starting to feel really > bad... she is very tall and looks older than she is... people think > she's almost 2 years old... and she has a cousin that is 10 weeks > younger that is walking... and i feel bad because people are starting > to look at her because she's still crawling... and i don't want anyone > to look at her that way... am i being mean for getting so over > protective? i am having a lot of mixed emotions right now.. sorry... > > mommy to Grace 12-03-03 BCF Dobb's Brace 16/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 thank you very much... she doesn't talk yet and that has struck a nerve... she has an appt with the Steps people thursday and they have already told me that she may not start talking until she starts walking.. they feel she has had to concentrate so much so far on getting around and being moile that she hasn't really paid any attention to the verbal part... that once he gets to a mode of mobility that she is comfortable with then she will start talking... so i am trying to be patient... but it's hard some times... but thank you for your words of encouragement... mommy to Grace 12-03-03 BCF Dobb's Brace 16/7 jngrush jngrush@...> wrote: I can't tell you when you child will walk, my cf baby is not quite to that point yet. I can sympathize with the baby not walking and everyone wondering what is wrong syndrome. My boy that is now two and half didn't walk until he was 16 months (and he feet are as normal as they could be). He was very content to crawl. He did, however, have excellent verbal skills and was talking to us in two and three word sentences before he could walk. He cousin who is 5 months younger than he is walked at 9 months. My sweet m-in-l who just wants her grandchildren to be perfect, was having fits about my son. What is wrong with him, why won't he walk, walks you know, and he is only 9 months, blah, blah, blah? It does get old. pretty quick. So take a big breath, and ignore everyone else. It is hard, but it is the only way to stay sane. Your Grace will walk, she has had a busy 17 months so far, she just has a mind of her own. I am not an expert on development and such, I can just give you a hug in this message and say. Hang in there, and try to ignore the busybodies. Most mean well, some have no tact, and some definately rub you the wrong way. Soon Grace will be running away from you, let us know when it happens so we can celebrate. love, lisa before i made you in the womb, i knew you... love God. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 You may have tried this already, but I've been told by other parents that they had their babies hold on to clothespins (the older wooden ones) instead of their fingers. Then, when their child was walking well while holding the clothespins, they'd let go of the clothespins and let their child walk. I guess it tricks the child into thinking they are still holding onto something, but really they are just carrying clothespins. I haven't tried it; my son is only 5 months. But it seemed like a novel idea and may be worth a shot. > > ok.. so i know that i am being impatient... grace is 17 months old > > tomorrow... YEAH!!.... she was treated non-ponseti for the first > 13 > > months and then by doctor dobb's in st louis more recently.. she > was > > reduced from 23/7 to 16/7 2 1/2 weeks ago... and she is standing > of > > course.. and she will " walk " short distnaces holding my hands.. > around > > the house... but she has not taken any initiative to take steps on > her > > own... she doesn't even try to stand alone... she was never > walking > > before this last tenotomy... she was in casts all that time > mostly... > > and i am soooo anxious for her to start walking.. dr dobb's said > that > > it could be 6-8 weeks before she start walking.. but i was > thinking > > that she would have some sort of progress within 2 weeks... am i > > rushing her? am i too impatient? also.. i am starting to feel > really > > bad... she is very tall and looks older than she is... people > think > > she's almost 2 years old... and she has a cousin that is 10 weeks > > younger that is walking... and i feel bad because people are > starting > > to look at her because she's still crawling... and i don't want > anyone > > to look at her that way... am i being mean for getting so over > > protective? i am having a lot of mixed emotions right now.. > sorry... > > > > mommy to Grace 12-03-03 BCF Dobb's Brace 16/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 thank you michelle...i can always count on you to put me right again... she has started holding onto the walls as she runs out of furniture.... she thinks that's the neatest.. to walk down the hallway holding onto the wall... so i guess i didn't think of that as an improvement.. but you are right.. that is... i am a little nervous... she has figured out how to get the velcro straps un-done on her braces last night... she " helped " me put them on and i guess she didn't like the way i had it.. she undid the middle velcro and redid it... although i was freaked out about her getting it loose i thought it was too funny.. she's picky now... mommy to Grace 12-03-03 BCF Dobb's Brace 16/7 michelle andyandsamanthamom@...> wrote: me and you are in the same boat. I too was hoping would be walking by now but she still has that fear of letting go. she does great holding on to furniture and either one or both of my hands but still nothing.. she is scared on our hardwood floors i just recently noticed because when we are in a carpeted room she will let go and try to take a step and it must make her feel funny cause she laughs and laughs, so cute to watch. but now she gets around holding on to furniture and when there is no more she will hold onto the walls. me and my dh think she will take off maybe in the next few weeks. this is all new to her since us too started the ponseti method late and before that she could not stand but on the outside of her feet cause her feet were not corrected so it makes me mad to wishing i would have known about the ponseti method from the start and started treatment way sooner! ugh! but as they say there's no use in crying over spilled milk right? so im enjoying her. we get the looks too about her crawling but you know people that i have talked to just tell me " my daughter was a late walker too " or " she'll do it when she is ready " . this weekend i met a lady and her daughter(15months) and she was walking all around and she asked me how old she was and i told her 16months but i said she still hasnt started walking on her own. and her husband said " well it looks like she has got the hang of it pretty good " i had not noticed she was walking holding on from the stroller to the table to the chair then she would let go and try to balance herself and then she would laugh as to say " mom im getting there. " so dont worry i know its soo hard to be patient but just enjoy her. believe me when the times comes for her to walk i am going to cry my eyes out! im sure you feel the same! by the way i saw her file. Sooo cute!! and BL CF 12/16/03 love, lisa before i made you in the womb, i knew you... love God. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 , I empathize with you completely! Devlin will be 16 months old in a couple of days and she will only walk holding our hands. She has been doing only that since around Christmas. I have a very close friend who was a pediatric nurse practitioner for 30 years. She reminds me all the time that not walking until 18 months is still perfectly " normal " (on the scale of development for kids without any special conditions). Her own daughter didn't walk until 18 months, almost to the day, so she remembers every baby she's seen through her career that didn't walk until then---and there are a lot. People are stupid and weird. Seeing things as black-or-white is so easy. Small minded people like to jump to conclusions quickly so they don't have to think too hard. Conclusions such as " there's something wrong with that kid " will allow them to dismiss the situation and stop having to tax their brains with the " grey areas " of life. Having a daughter with club foot has been such an eye-opener for me. I feel like I have a filter now. I can see people for who and what they are. Remember that all kids develop at different rates and focus on different areas at a time. If a baby is developing well in the social or cognitive areas, they tend to neglect the physical for a while. So, the way I see it is if we have a child that isn't as physically advanced, they are smarter or more socially adept instead. At some point everything catches up. I know it's hard when the physical skills are the first thing people notice, but try not to worry about it. Just think of how well she IS doing, considering what she's had to overcome, and remember she'll be all caught up soon and you'll be the only one who remembers this. By the way, Early Intervention is coming on Thursday to evaluate Devlin. We think she may be delayed by the poor muscle development in her lower calfs (she's all tendon and no muscle). When she walks holding our hands she puts a lot of weight on us (we've used a scale at the orthotists office and she never takes on more than 17 of her 25 lbs. when walking). I want an outside evaluation just to see if we are headed for an official " delay " in her development. Maybe seeing them (EI) could give you peace of mind? At any rate, I'll post back after that if they have anything helpful to say. Hang in there---she'll be walking by the time it's really important! Mommy to Devlin 1/7/2004 Bilateral Atypical CF > ok.. so i know that i am being impatient... grace is 17 months old > tomorrow... YEAH!!.... she was treated non-ponseti for the first 13 > months and then by doctor dobb's in st louis more recently.. she was > reduced from 23/7 to 16/7 2 1/2 weeks ago... and she is standing of > course.. and she will " walk " short distnaces holding my hands.. around > the house... but she has not taken any initiative to take steps on her > own... she doesn't even try to stand alone... she was never walking > before this last tenotomy... she was in casts all that time mostly... > and i am soooo anxious for her to start walking.. dr dobb's said that > it could be 6-8 weeks before she start walking.. but i was thinking > that she would have some sort of progress within 2 weeks... am i > rushing her? am i too impatient? also.. i am starting to feel really > bad... she is very tall and looks older than she is... people think > she's almost 2 years old... and she has a cousin that is 10 weeks > younger that is walking... and i feel bad because people are starting > to look at her because she's still crawling... and i don't want anyone > to look at her that way... am i being mean for getting so over > protective? i am having a lot of mixed emotions right now.. sorry... > > mommy to Grace 12-03-03 BCF Dobb's Brace 16/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 christine... that's funny... Early Intervention is also coming to see us thursday... so do you live in Tennessee? she is also behind in speech and is scheduled for a speech therapy consultation in about 3 weeks... they don't really feel it's a big problem (her ped.) but they want the evaluation done anyway... she will be almost 18 months when we go for that... so the Early Intervention is also going to examine her speech as well as her legs and walking issue... i have started to notice more and more in the last 1-2 months... her calves are starting to thin out... i really thought for a while there that she wasn't going to have the " CF " look in her calves... but they are starting to thin... it doesn't look bad though... so i am hoping a little physical therapy will stregthen them and help her along... she's such a slender little thing to begin with so it all matches... she's so tall but very skinny... takes after her dad... don't i wish i could say she takes after me!!! lol... mommy to Grace 12-03-03 BCF Dobb's Brace 16/7 Seel christine_seel@...> wrote: , I empathize with you completely! Devlin will be 16 months old in a couple of days and she will only walk holding our hands. She has been doing only that since around Christmas. I have a very close friend who was a pediatric nurse practitioner for 30 years. She reminds me all the time that not walking until 18 months is still perfectly " normal " (on the scale of development for kids without any special conditions). Her own daughter didn't walk until 18 months, almost to the day, so she remembers every baby she's seen through her career that didn't walk until then---and there are a lot. People are stupid and weird. Seeing things as black-or-white is so easy. Small minded people like to jump to conclusions quickly so they don't have to think too hard. Conclusions such as " there's something wrong with that kid " will allow them to dismiss the situation and stop having to tax their brains with the " grey areas " of life. Having a daughter with club foot has been such an eye-opener for me. I feel like I have a filter now. I can see people for who and what they are. Remember that all kids develop at different rates and focus on different areas at a time. If a baby is developing well in the social or cognitive areas, they tend to neglect the physical for a while. So, the way I see it is if we have a child that isn't as physically advanced, they are smarter or more socially adept instead. At some point everything catches up. I know it's hard when the physical skills are the first thing people notice, but try not to worry about it. Just think of how well she IS doing, considering what she's had to overcome, and remember she'll be all caught up soon and you'll be the only one who remembers this. By the way, Early Intervention is coming on Thursday to evaluate Devlin. We think she may be delayed by the poor muscle development in her lower calfs (she's all tendon and no muscle). When she walks holding our hands she puts a lot of weight on us (we've used a scale at the orthotists office and she never takes on more than 17 of her 25 lbs. when walking). I want an outside evaluation just to see if we are headed for an official " delay " in her development. Maybe seeing them (EI) could give you peace of mind? At any rate, I'll post back after that if they have anything helpful to say. Hang in there---she'll be walking by the time it's really important! Mommy to Devlin 1/7/2004 Bilateral Atypical CF love, lisa before i made you in the womb, i knew you... love God. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 , Kelsey is 18 months old now, had her tenotomy done at 12 months and she just started really walking within the last month. She has been out of her FAB full time since the end of February. She will still even hold on to furniture etc quite often but she walks more every day. Also, she doesn't talk yet either. She will say Mama sometimes and says " boo " which means book but that is it. Otherwise she just grunts all of the time. Jenni --- Caroland lcaroland@...> wrote: > thank you very much... she doesn't talk yet and that > has struck a nerve... she has an appt with the Steps > people thursday and they have already told me that > she may not start talking until she starts walking.. > they feel she has had to concentrate so much so far > on getting around and being moile that she hasn't > really paid any attention to the verbal part... that > once he gets to a mode of mobility that she is > comfortable with then she will start talking... so i > am trying to be patient... but it's hard some > times... but thank you for your words of > encouragement... > > mommy to Grace 12-03-03 BCF Dobb's Brace 16/7 > > jngrush jngrush@...> wrote: > I can't tell you when you child will walk, my cf > baby is not quite to > that point yet. I can sympathize with the baby not > walking and > everyone wondering what is wrong syndrome. My boy > that is now two > and half didn't walk until he was 16 months (and he > feet are as > normal as they could be). He was very content to > crawl. He did, > however, have excellent verbal skills and was > talking to us in two > and three word sentences before he could walk. He > cousin who is 5 > months younger than he is walked at 9 months. My > sweet m-in-l who > just wants her grandchildren to be perfect, was > having fits about my > son. What is wrong with him, why won't he walk, > walks you > know, and he is only 9 months, blah, blah, blah? It > does get old. > pretty quick. So take a big breath, and ignore > everyone else. It is > hard, but it is the only way to stay sane. Your > Grace will walk, she > has had a busy 17 months so far, she just has a mind > of her own. I > am not an expert on development and such, I can just > give you a hug > in this message and say. Hang in there, and try to > ignore the > busybodies. Most mean well, some have no tact, and > some definately > rub you the wrong way. Soon Grace will be running > away from you, let > us know when it happens so we can celebrate. > > > > > > love, lisa > before i made you in the womb, i knew you... love > God. > > > > > > > > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 , We have gone through similar things with our daughter Audrey. She didn't start walking until 17 months and isn't really talking much. She has been working with a speech therapist for the last couple of months. We were also told that Audrey's working on two big developmental tasks at one time can be very difficult for children (walking/talking). So, once walking is somewhat mastered, the talking will likely follow. Best wishes, Bess mommy to Elena (3/31/00) and Audrey (9/27/03), bcf, dbb 12 hrs/day At 05:24 AM 5/3/2005, you wrote: >thank you very much... she doesn't talk yet and that has struck a nerve... >she has an appt with the Steps people thursday and they have already told >me that she may not start talking until she starts walking.. they feel she >has had to concentrate so much so far on getting around and being moile >that she hasn't really paid any attention to the verbal part... that once >he gets to a mode of mobility that she is comfortable with then she will >start talking... so i am trying to be patient... but it's hard some >times... but thank you for your words of encouragement... > > mommy to Grace 12-03-03 BCF Dobb's Brace 16/7 > >jngrush jngrush@...> wrote: >I can't tell you when you child will walk, my cf baby is not quite to >that point yet. I can sympathize with the baby not walking and >everyone wondering what is wrong syndrome. My boy that is now two >and half didn't walk until he was 16 months (and he feet are as >normal as they could be). He was very content to crawl. He did, >however, have excellent verbal skills and was talking to us in two >and three word sentences before he could walk. He cousin who is 5 >months younger than he is walked at 9 months. My sweet m-in-l who >just wants her grandchildren to be perfect, was having fits about my >son. What is wrong with him, why won't he walk, walks you >know, and he is only 9 months, blah, blah, blah? It does get old. >pretty quick. So take a big breath, and ignore everyone else. It is >hard, but it is the only way to stay sane. Your Grace will walk, she >has had a busy 17 months so far, she just has a mind of her own. I >am not an expert on development and such, I can just give you a hug >in this message and say. Hang in there, and try to ignore the >busybodies. Most mean well, some have no tact, and some definately >rub you the wrong way. Soon Grace will be running away from you, let >us know when it happens so we can celebrate. > > > > > >love, lisa >before i made you in the womb, i knew you... love God. > > > > > > > > > > > > > > > > > > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 This sounds like a great idea, I will be sure to try it when the time comes. Thanks, > > > ok.. so i know that i am being impatient... grace is 17 months > old > > > tomorrow... YEAH!!.... she was treated non-ponseti for the first > > 13 > > > months and then by doctor dobb's in st louis more recently.. she > > was > > > reduced from 23/7 to 16/7 2 1/2 weeks ago... and she is standing > > of > > > course.. and she will " walk " short distnaces holding my hands.. > > around > > > the house... but she has not taken any initiative to take steps > on > > her > > > own... she doesn't even try to stand alone... she was never > > walking > > > before this last tenotomy... she was in casts all that time > > mostly... > > > and i am soooo anxious for her to start walking.. dr dobb's said > > that > > > it could be 6-8 weeks before she start walking.. but i was > > thinking > > > that she would have some sort of progress within 2 weeks... am i > > > rushing her? am i too impatient? also.. i am starting to feel > > really > > > bad... she is very tall and looks older than she is... people > > think > > > she's almost 2 years old... and she has a cousin that is 10 weeks > > > younger that is walking... and i feel bad because people are > > starting > > > to look at her because she's still crawling... and i don't want > > anyone > > > to look at her that way... am i being mean for getting so over > > > protective? i am having a lot of mixed emotions right now.. > > sorry... > > > > > > mommy to Grace 12-03-03 BCF Dobb's Brace 16/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 A suggestion about encouraging your child to walk- Jake did attend PT as a baby, from about 9 mos to 15 mos old. For him it was because he wasn't rolling over, couldn't go from lying down to sitting, and wasn't showing any signs of crawling yet. Incidentally I think it was because he hated tummy-time so much as a baby- it was just too awkward with the casts and then the shoes. In any case, Jake crawled for the first time when he was 11 mos old. Shortly after that, he was pulling up to stand and would walk holding our hands. To encourage him to walk on his own, we tried to come up with things for him to reach for...his favorite thing at the time was bubbles. We'd blow some bubbles a couple steps away from him, and he would let go and try to get the bubbles. It worked really well!! He was finally walking on his own around 15 mos. Kassia 3/22/01 (Lt clubfoot, ATTT surgery April 2004) and 11/22/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 You know, Jake really liked his shoes too. He just incorporated it into his routine. In fact, even though he doesn't wear his shoes anymore, he still *must* have socks on or he won't go to bed! Kassia 3/22/01 (Lt clubfoot, ATTT surgery April 2004) and 11/22/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 I think it all comes down to, like someone else said, that children will focus on physical areas for awhile, neglecting the cognitive/verbal things. Jake didn't really talk much until after he turned 2. He was able to get his point across, he'd take us by the hand to whatever he wanted if we couldn't understand him. By the time he turned 3, though, he had definitely caught up. We did have him evaluated by our area education agency (it's like the state/county health area, that focuses on audiology and speech stuff) a little early, at age 3 1/2, at the suggestion of our pediatrician. She wanted him to be evaluated and be getting therapy if needed before kindergarten. He has been in speech therapy since then, but he's pronouncing things just fine now for his age. We're actually working on grammar things, like using you & me instead of the 3rd person. HTH! Kassia 3/22/01 (Lt clubfoot, ATTT surgery April 2004) and 11/22/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 , Okay I know I am way late in responding to you but I just wanted to send you hugs and tell you to just ignore the comments and looks from others as best you can. You know your baby best, and whether she is walking by herself or not, you know if there is something wrong; which obviously there isn't. Just enjoy her now, and I know she will be walking SOON! (Who wants to bet is here within 2 weeks saying " She's WALKING!!! " ) Hugs, > ok.. so i know that i am being impatient... grace is 17 months old > tomorrow... YEAH!!.... she was treated non-ponseti for the first 13 > months and then by doctor dobb's in st louis more recently.. she was > reduced from 23/7 to 16/7 2 1/2 weeks ago... and she is standing of > course.. and she will " walk " short distnaces holding my hands.. around > the house... but she has not taken any initiative to take steps on her > own... she doesn't even try to stand alone... she was never walking > before this last tenotomy... she was in casts all that time mostly... > and i am soooo anxious for her to start walking.. dr dobb's said that > it could be 6-8 weeks before she start walking.. but i was thinking > that she would have some sort of progress within 2 weeks... am i > rushing her? am i too impatient? also.. i am starting to feel really > bad... she is very tall and looks older than she is... people think > she's almost 2 years old... and she has a cousin that is 10 weeks > younger that is walking... and i feel bad because people are starting > to look at her because she's still crawling... and i don't want anyone > to look at her that way... am i being mean for getting so over > protective? i am having a lot of mixed emotions right now.. sorry... > > mommy to Grace 12-03-03 BCF Dobb's Brace 16/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 the cute things our children do.. things like this just melt your heart! samantha does not help at all w/ her shoes. when its time she just lays there as to say " ok put them on im ready. " so if grace is able to take her brace off she sounds like a very smart baby to me, my dh cant even put on/off samantha's brace WITHOUT HELP so i think she is doing quite WELL! HA! HA! as for her speech samantha does say a few words she does more of the baby talk. its so funny to watch her hold a " conversation " with her dad. she thinks that she is telling him all these important things and he answers her in " her language " and then she claps and laughs thinking she told everyone her story and got her point across! so funny! i would not worry too much ive had people come up to me at the store when smantha is screaming MAMA MAMA!! and ask how old she was when she talked. surprising they have told that their children are 2+ and dont speak. so i dont believe it is uncommon. you know i unfortunetly have me son to compare to and he did everything at a young age. its hard but i just know she is ok and i know she will do everything when she is ready. besides it has been so helpful talking to you and others knowing someone who we can relate to! im soo glad that i joined this group!! and BL CF 12/16/03 > me and you are in the same boat. I too was hoping > would be walking by now but she still has that fear of letting go. > she does great holding on to furniture and either one or both of my > hands but still nothing.. she is scared on our hardwood floors i > just recently noticed because when we are in a carpeted room she > will let go and try to take a step and it must make her feel funny > cause she laughs and laughs, so cute to watch. but now she gets > around holding on to furniture and when there is no more she will > hold onto the walls. me and my dh think she will take off maybe in > the next few weeks. this is all new to her since us too started the > ponseti method late and before that she could not stand but on the > outside of her feet cause her feet were not corrected so it makes me > mad to wishing i would have known about the ponseti method from the > start and started treatment way sooner! ugh! but as they say there's > no use in crying over spilled milk right? > so im enjoying her. we get the looks too about her crawling but you > know people that i have talked to just tell me " my daughter was a > late walker too " or " she'll do it when she is ready " . this weekend i > met a lady and her daughter(15months) and she was walking all around > and she asked me how old she was and i told her 16months but i said > she still hasnt started walking on her own. and her husband said " > well it looks like she has got the hang of it pretty good " i had not > noticed she was walking holding on from the stroller to the table to > the chair then she would let go and try to balance herself and then > she would laugh as to say " mom im getting there. " > so dont worry i know its soo hard to be patient but just enjoy her. > believe me when the times comes for her to walk i am going to cry my > eyes out! im sure you feel the same! > by the way i saw her file. Sooo cute!! > and > BL CF 12/16/03 > > > love, lisa > before i made you in the womb, i knew you... love God. > > > > > > > > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 you and me both... i am sooooo glad i found this group.. i would be lost without all of ya'll!!!! but she LOVES to help.. even though it makes it harder on me... but i don't let her know that... and your DH will get the hang of it.. but tell him that if he still has problems i'll be glad to send grace over to help.. lol... just kidding.. don't tell him that... i don't want a nasty email from him... lol.... but " thank you " to all of you here on the board who have helped me through some rough patches and emotional days... and all the wealth of info that i've found here also... THANK YOU!!! mommy to Grace 12-03-03 BCF Dobb's Brace 16/7 michelle andyandsamanthamom@...> wrote: the cute things our children do.. things like this just melt your heart! samantha does not help at all w/ her shoes. when its time she just lays there as to say " ok put them on im ready. " so if grace is able to take her brace off she sounds like a very smart baby to me, my dh cant even put on/off samantha's brace WITHOUT HELP so i think she is doing quite WELL! HA! HA! as for her speech samantha does say a few words she does more of the baby talk. its so funny to watch her hold a " conversation " with her dad. she thinks that she is telling him all these important things and he answers her in " her language " and then she claps and laughs thinking she told everyone her story and got her point across! so funny! i would not worry too much ive had people come up to me at the store when smantha is screaming MAMA MAMA!! and ask how old she was when she talked. surprising they have told that their children are 2+ and dont speak. so i dont believe it is uncommon. you know i unfortunetly have me son to compare to and he did everything at a young age. its hard but i just know she is ok and i know she will do everything when she is ready. besides it has been so helpful talking to you and others knowing someone who we can relate to! im soo glad that i joined this group!! and BL CF 12/16/03 love, lisa before i made you in the womb, i knew you... love God. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 My son is now 3.5 years old. He started walking at 15 months. He also has speech problems. We had him evaluated by our state's (MA) Early Intervention services. He received speech services one day a week for hour until he turned 3 years old. The services are wonderful and worked great on 's speech. He now is doing well and is almost up to his peers. He speaks very well and has come a long way. He started off using grunts, pointing, and hand signals. he threw lots of tantrums because he would try to get his point across and we didn't understand. It was very frustrating. But now we are the best we can be. Oh had a tongue-tie also. It doesn't hurt to get an evaluation. and (Ponseti method, possible relapse to right club foot)(09/22/01) > >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: Re: Re: Older Tenotomy Children >Date: Tue, 03 May 2005 12:09:42 -0500 > >I think it all comes down to, like someone else said, that children will >focus on physical areas for awhile, neglecting the cognitive/verbal >things. Jake didn't really talk much until after he turned 2. He was >able to get his point across, he'd take us by the hand to whatever he >wanted if we couldn't understand him. By the time he turned 3, though, >he had definitely caught up. We did have him evaluated by our area >education agency (it's like the state/county health area, that focuses >on audiology and speech stuff) a little early, at age 3 1/2, at the >suggestion of our pediatrician. She wanted him to be evaluated and be >getting therapy if needed before kindergarten. He has been in speech >therapy since then, but he's pronouncing things just fine now for his >age. We're actually working on grammar things, like using you & me >instead of the 3rd person. > >HTH! >Kassia > 3/22/01 (Lt clubfoot, ATTT surgery April 2004) >and 11/22/02 _________________________________________________________________ On the road to retirement? Check out MSN Life Events for advice on how to get there! http://lifeevents.msn.com/category.aspx?cid=Retirement Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 Wow, Jake *also* was tongue-tied! His was never clipped as he could nurse fine and was gaining weight well. Now, it's funny but his tongue almost twists when he makes certain sounds! It looks really weird (if you know to look for it), but he sounds just fine and is easy to understand. Our pediatrician was concerned about him maybe needing to have it clipped (we actually have an ENT consult next Monday), but Jake's speech therapist says she wouldn't recommend it now since he's so understandable. Kassia 3/22/01 (Lt clubfoot, ATTT surgery April 2004) and 11/22/02 Quote Link to comment Share on other sites More sharing options...
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