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ok.. so i know that i am being impatient... grace is 17 months old

tomorrow... YEAH!!.... she was treated non-ponseti for the first 13

months and then by doctor dobb's in st louis more recently.. she was

reduced from 23/7 to 16/7 2 1/2 weeks ago... and she is standing of

course.. and she will " walk " short distnaces holding my hands.. around

the house... but she has not taken any initiative to take steps on her

own... she doesn't even try to stand alone... she was never walking

before this last tenotomy... she was in casts all that time mostly...

and i am soooo anxious for her to start walking.. dr dobb's said that

it could be 6-8 weeks before she start walking.. but i was thinking

that she would have some sort of progress within 2 weeks... am i

rushing her? am i too impatient? also.. i am starting to feel really

bad... she is very tall and looks older than she is... people think

she's almost 2 years old... and she has a cousin that is 10 weeks

younger that is walking... and i feel bad because people are starting

to look at her because she's still crawling... and i don't want anyone

to look at her that way... am i being mean for getting so over

protective? i am having a lot of mixed emotions right now.. sorry...

mommy to Grace 12-03-03 BCF Dobb's Brace 16/7

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I can't tell you when you child will walk, my cf baby is not quite to

that point yet. I can sympathize with the baby not walking and

everyone wondering what is wrong syndrome. My boy that is now two

and half didn't walk until he was 16 months (and he feet are as

normal as they could be). He was very content to crawl. He did,

however, have excellent verbal skills and was talking to us in two

and three word sentences before he could walk. He cousin who is 5

months younger than he is walked at 9 months. My sweet m-in-l who

just wants her grandchildren to be perfect, was having fits about my

son. What is wrong with him, why won't he walk, walks you

know, and he is only 9 months, blah, blah, blah? It does get old.

pretty quick. So take a big breath, and ignore everyone else. It is

hard, but it is the only way to stay sane. Your Grace will walk, she

has had a busy 17 months so far, she just has a mind of her own. I

am not an expert on development and such, I can just give you a hug

in this message and say. Hang in there, and try to ignore the

busybodies. Most mean well, some have no tact, and some definately

rub you the wrong way. Soon Grace will be running away from you, let

us know when it happens so we can celebrate.

-- In nosurgery4clubfoot , " lcaroland "

wrote:

> ok.. so i know that i am being impatient... grace is 17 months old

> tomorrow... YEAH!!.... she was treated non-ponseti for the first 13

> months and then by doctor dobb's in st louis more recently.. she

was

> reduced from 23/7 to 16/7 2 1/2 weeks ago... and she is standing of

> course.. and she will " walk " short distnaces holding my hands..

around

> the house... but she has not taken any initiative to take steps on

her

> own... she doesn't even try to stand alone... she was never walking

> before this last tenotomy... she was in casts all that time

mostly...

> and i am soooo anxious for her to start walking.. dr dobb's said

that

> it could be 6-8 weeks before she start walking.. but i was thinking

> that she would have some sort of progress within 2 weeks... am i

> rushing her? am i too impatient? also.. i am starting to feel

really

> bad... she is very tall and looks older than she is... people think

> she's almost 2 years old... and she has a cousin that is 10 weeks

> younger that is walking... and i feel bad because people are

starting

> to look at her because she's still crawling... and i don't want

anyone

> to look at her that way... am i being mean for getting so over

> protective? i am having a lot of mixed emotions right now..

sorry...

>

> mommy to Grace 12-03-03 BCF Dobb's Brace 16/7

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I can understand where you are coming from. My son , is

going on 15 months old and we are in the middle of our second round

of casting. We did the whole casting, DBB when he was first born but

our doctor was not following the method correctly. He relapsed so We

found a new doctor and had to start the whole process all over

again. He was not walking before but was pulling himself up to

stand. By the time we are through all of this and he learns to walk

he will probably be close to two!! It's a lot different when you

are going through the process with an older child. The way I think

of it though is that when he finally is walking it will hopefully be

on two good functioning feet that don't hurt him. Hang in there and

try not to worry too much about what other people think. They are not

in your situation. You are doing what is best for Grace and she will

be grateful for it later!!

Lots of luck to you,

Geneva, mommy to 2/17/04, BCF

> ok.. so i know that i am being impatient... grace is 17 months old

> tomorrow... YEAH!!.... she was treated non-ponseti for the first 13

> months and then by doctor dobb's in st louis more recently.. she

was

> reduced from 23/7 to 16/7 2 1/2 weeks ago... and she is standing of

> course.. and she will " walk " short distnaces holding my hands..

around

> the house... but she has not taken any initiative to take steps on

her

> own... she doesn't even try to stand alone... she was never walking

> before this last tenotomy... she was in casts all that time

mostly...

> and i am soooo anxious for her to start walking.. dr dobb's said

that

> it could be 6-8 weeks before she start walking.. but i was thinking

> that she would have some sort of progress within 2 weeks... am i

> rushing her? am i too impatient? also.. i am starting to feel

really

> bad... she is very tall and looks older than she is... people think

> she's almost 2 years old... and she has a cousin that is 10 weeks

> younger that is walking... and i feel bad because people are

starting

> to look at her because she's still crawling... and i don't want

anyone

> to look at her that way... am i being mean for getting so over

> protective? i am having a lot of mixed emotions right now..

sorry...

>

> mommy to Grace 12-03-03 BCF Dobb's Brace 16/7

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me and you are in the same boat. I too was hoping

would be walking by now but she still has that fear of letting go.

she does great holding on to furniture and either one or both of my

hands but still nothing.. she is scared on our hardwood floors i

just recently noticed because when we are in a carpeted room she

will let go and try to take a step and it must make her feel funny

cause she laughs and laughs, so cute to watch. but now she gets

around holding on to furniture and when there is no more she will

hold onto the walls. me and my dh think she will take off maybe in

the next few weeks. this is all new to her since us too started the

ponseti method late and before that she could not stand but on the

outside of her feet cause her feet were not corrected so it makes me

mad to wishing i would have known about the ponseti method from the

start and started treatment way sooner! ugh! but as they say there's

no use in crying over spilled milk right?

so im enjoying her. we get the looks too about her crawling but you

know people that i have talked to just tell me " my daughter was a

late walker too " or " she'll do it when she is ready " . this weekend i

met a lady and her daughter(15months) and she was walking all around

and she asked me how old she was and i told her 16months but i said

she still hasnt started walking on her own. and her husband said "

well it looks like she has got the hang of it pretty good " i had not

noticed she was walking holding on from the stroller to the table to

the chair then she would let go and try to balance herself and then

she would laugh as to say " mom im getting there. "

so dont worry i know its soo hard to be patient but just enjoy her.

believe me when the times comes for her to walk i am going to cry my

eyes out! im sure you feel the same!

by the way i saw her file. Sooo cute!!

and

BL CF 12/16/03

> ok.. so i know that i am being impatient... grace is 17 months old

> tomorrow... YEAH!!.... she was treated non-ponseti for the first

13

> months and then by doctor dobb's in st louis more recently.. she

was

> reduced from 23/7 to 16/7 2 1/2 weeks ago... and she is standing

of

> course.. and she will " walk " short distnaces holding my hands..

around

> the house... but she has not taken any initiative to take steps on

her

> own... she doesn't even try to stand alone... she was never

walking

> before this last tenotomy... she was in casts all that time

mostly...

> and i am soooo anxious for her to start walking.. dr dobb's said

that

> it could be 6-8 weeks before she start walking.. but i was

thinking

> that she would have some sort of progress within 2 weeks... am i

> rushing her? am i too impatient? also.. i am starting to feel

really

> bad... she is very tall and looks older than she is... people

think

> she's almost 2 years old... and she has a cousin that is 10 weeks

> younger that is walking... and i feel bad because people are

starting

> to look at her because she's still crawling... and i don't want

anyone

> to look at her that way... am i being mean for getting so over

> protective? i am having a lot of mixed emotions right now..

sorry...

>

> mommy to Grace 12-03-03 BCF Dobb's Brace 16/7

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You know everyone expected Everett to walk when he was 7 months old. From then

on all I heard was that he'd be walking in no time (because he could stand up

well and acted as if he did want to walk). But he did not walk until he was 14

months old, and then after a few steps, he quit for a solid month. Once he

decided to do it again though, there was no stopping him. All in due time when

they decide they can, they will! :)

s.

Re: Older Tenotomy Children

me and you are in the same boat. I too was hoping

would be walking by now but she still has that fear of letting go.

she does great holding on to furniture and either one or both of my

hands but still nothing.. she is scared on our hardwood floors i

just recently noticed because when we are in a carpeted room she

will let go and try to take a step and it must make her feel funny

cause she laughs and laughs, so cute to watch. but now she gets

around holding on to furniture and when there is no more she will

hold onto the walls. me and my dh think she will take off maybe in

the next few weeks. this is all new to her since us too started the

ponseti method late and before that she could not stand but on the

outside of her feet cause her feet were not corrected so it makes me

mad to wishing i would have known about the ponseti method from the

start and started treatment way sooner! ugh! but as they say there's

no use in crying over spilled milk right?

so im enjoying her. we get the looks too about her crawling but you

know people that i have talked to just tell me " my daughter was a

late walker too " or " she'll do it when she is ready " . this weekend i

met a lady and her daughter(15months) and she was walking all around

and she asked me how old she was and i told her 16months but i said

she still hasnt started walking on her own. and her husband said "

well it looks like she has got the hang of it pretty good " i had not

noticed she was walking holding on from the stroller to the table to

the chair then she would let go and try to balance herself and then

she would laugh as to say " mom im getting there. "

so dont worry i know its soo hard to be patient but just enjoy her.

believe me when the times comes for her to walk i am going to cry my

eyes out! im sure you feel the same!

by the way i saw her file. Sooo cute!!

and

BL CF 12/16/03

> ok.. so i know that i am being impatient... grace is 17 months old

> tomorrow... YEAH!!.... she was treated non-ponseti for the first

13

> months and then by doctor dobb's in st louis more recently.. she

was

> reduced from 23/7 to 16/7 2 1/2 weeks ago... and she is standing

of

> course.. and she will " walk " short distnaces holding my hands..

around

> the house... but she has not taken any initiative to take steps on

her

> own... she doesn't even try to stand alone... she was never

walking

> before this last tenotomy... she was in casts all that time

mostly...

> and i am soooo anxious for her to start walking.. dr dobb's said

that

> it could be 6-8 weeks before she start walking.. but i was

thinking

> that she would have some sort of progress within 2 weeks... am i

> rushing her? am i too impatient? also.. i am starting to feel

really

> bad... she is very tall and looks older than she is... people

think

> she's almost 2 years old... and she has a cousin that is 10 weeks

> younger that is walking... and i feel bad because people are

starting

> to look at her because she's still crawling... and i don't want

anyone

> to look at her that way... am i being mean for getting so over

> protective? i am having a lot of mixed emotions right now..

sorry...

>

> mommy to Grace 12-03-03 BCF Dobb's Brace 16/7

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Two functional feet that don't hurt - wow that is the prize so you all keep

your eyes on it! finally managed to walk wearing his AFO's when he was

about 18 months old or so. Prior to that he mostly hobbled and fell and was in

a lot of pain. He wanted to walk so bad and he would try so hard to get around

on feet. Just hang in there, starting over is frustrating at times but stick

it out!

s.

Re: Older Tenotomy Children

I can understand where you are coming from. My son , is

going on 15 months old and we are in the middle of our second round

of casting. We did the whole casting, DBB when he was first born but

our doctor was not following the method correctly. He relapsed so We

found a new doctor and had to start the whole process all over

again. He was not walking before but was pulling himself up to

stand. By the time we are through all of this and he learns to walk

he will probably be close to two!! It's a lot different when you

are going through the process with an older child. The way I think

of it though is that when he finally is walking it will hopefully be

on two good functioning feet that don't hurt him. Hang in there and

try not to worry too much about what other people think. They are not

in your situation. You are doing what is best for Grace and she will

be grateful for it later!!

Lots of luck to you,

Geneva, mommy to 2/17/04, BCF

> ok.. so i know that i am being impatient... grace is 17 months old

> tomorrow... YEAH!!.... she was treated non-ponseti for the first 13

> months and then by doctor dobb's in st louis more recently.. she

was

> reduced from 23/7 to 16/7 2 1/2 weeks ago... and she is standing of

> course.. and she will " walk " short distnaces holding my hands..

around

> the house... but she has not taken any initiative to take steps on

her

> own... she doesn't even try to stand alone... she was never walking

> before this last tenotomy... she was in casts all that time

mostly...

> and i am soooo anxious for her to start walking.. dr dobb's said

that

> it could be 6-8 weeks before she start walking.. but i was thinking

> that she would have some sort of progress within 2 weeks... am i

> rushing her? am i too impatient? also.. i am starting to feel

really

> bad... she is very tall and looks older than she is... people think

> she's almost 2 years old... and she has a cousin that is 10 weeks

> younger that is walking... and i feel bad because people are

starting

> to look at her because she's still crawling... and i don't want

anyone

> to look at her that way... am i being mean for getting so over

> protective? i am having a lot of mixed emotions right now..

sorry...

>

> mommy to Grace 12-03-03 BCF Dobb's Brace 16/7

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thank you very much... she doesn't talk yet and that has struck a nerve... she

has an appt with the Steps people thursday and they have already told me that

she may not start talking until she starts walking.. they feel she has had to

concentrate so much so far on getting around and being moile that she hasn't

really paid any attention to the verbal part... that once he gets to a mode of

mobility that she is comfortable with then she will start talking... so i am

trying to be patient... but it's hard some times... but thank you for your words

of encouragement...

mommy to Grace 12-03-03 BCF Dobb's Brace 16/7

jngrush jngrush@...> wrote:

I can't tell you when you child will walk, my cf baby is not quite to

that point yet. I can sympathize with the baby not walking and

everyone wondering what is wrong syndrome. My boy that is now two

and half didn't walk until he was 16 months (and he feet are as

normal as they could be). He was very content to crawl. He did,

however, have excellent verbal skills and was talking to us in two

and three word sentences before he could walk. He cousin who is 5

months younger than he is walked at 9 months. My sweet m-in-l who

just wants her grandchildren to be perfect, was having fits about my

son. What is wrong with him, why won't he walk, walks you

know, and he is only 9 months, blah, blah, blah? It does get old.

pretty quick. So take a big breath, and ignore everyone else. It is

hard, but it is the only way to stay sane. Your Grace will walk, she

has had a busy 17 months so far, she just has a mind of her own. I

am not an expert on development and such, I can just give you a hug

in this message and say. Hang in there, and try to ignore the

busybodies. Most mean well, some have no tact, and some definately

rub you the wrong way. Soon Grace will be running away from you, let

us know when it happens so we can celebrate.

love, lisa

before i made you in the womb, i knew you... love God.

__________________________________________________

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You may have tried this already, but I've been told by other parents

that they had their babies hold on to clothespins (the older wooden

ones) instead of their fingers. Then, when their child was walking

well while holding the clothespins, they'd let go of the clothespins

and let their child walk. I guess it tricks the child into thinking

they are still holding onto something, but really they are just

carrying clothespins.

I haven't tried it; my son is only 5 months. But it seemed like a

novel idea and may be worth a shot.

> > ok.. so i know that i am being impatient... grace is 17 months

old

> > tomorrow... YEAH!!.... she was treated non-ponseti for the first

> 13

> > months and then by doctor dobb's in st louis more recently.. she

> was

> > reduced from 23/7 to 16/7 2 1/2 weeks ago... and she is standing

> of

> > course.. and she will " walk " short distnaces holding my hands..

> around

> > the house... but she has not taken any initiative to take steps

on

> her

> > own... she doesn't even try to stand alone... she was never

> walking

> > before this last tenotomy... she was in casts all that time

> mostly...

> > and i am soooo anxious for her to start walking.. dr dobb's said

> that

> > it could be 6-8 weeks before she start walking.. but i was

> thinking

> > that she would have some sort of progress within 2 weeks... am i

> > rushing her? am i too impatient? also.. i am starting to feel

> really

> > bad... she is very tall and looks older than she is... people

> think

> > she's almost 2 years old... and she has a cousin that is 10 weeks

> > younger that is walking... and i feel bad because people are

> starting

> > to look at her because she's still crawling... and i don't want

> anyone

> > to look at her that way... am i being mean for getting so over

> > protective? i am having a lot of mixed emotions right now..

> sorry...

> >

> > mommy to Grace 12-03-03 BCF Dobb's Brace 16/7

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thank you michelle...i can always count on you to put me right again... she has

started holding onto the walls as she runs out of furniture.... she thinks

that's the neatest.. to walk down the hallway holding onto the wall... so i

guess i didn't think of that as an improvement.. but you are right.. that is...

i am a little nervous... she has figured out how to get the velcro straps

un-done on her braces last night... she " helped " me put them on and i guess she

didn't like the way i had it.. she undid the middle velcro and redid it...

although i was freaked out about her getting it loose i thought it was too

funny.. she's picky now...

mommy to Grace 12-03-03 BCF Dobb's Brace 16/7

michelle andyandsamanthamom@...> wrote:

me and you are in the same boat. I too was hoping

would be walking by now but she still has that fear of letting go.

she does great holding on to furniture and either one or both of my

hands but still nothing.. she is scared on our hardwood floors i

just recently noticed because when we are in a carpeted room she

will let go and try to take a step and it must make her feel funny

cause she laughs and laughs, so cute to watch. but now she gets

around holding on to furniture and when there is no more she will

hold onto the walls. me and my dh think she will take off maybe in

the next few weeks. this is all new to her since us too started the

ponseti method late and before that she could not stand but on the

outside of her feet cause her feet were not corrected so it makes me

mad to wishing i would have known about the ponseti method from the

start and started treatment way sooner! ugh! but as they say there's

no use in crying over spilled milk right?

so im enjoying her. we get the looks too about her crawling but you

know people that i have talked to just tell me " my daughter was a

late walker too " or " she'll do it when she is ready " . this weekend i

met a lady and her daughter(15months) and she was walking all around

and she asked me how old she was and i told her 16months but i said

she still hasnt started walking on her own. and her husband said "

well it looks like she has got the hang of it pretty good " i had not

noticed she was walking holding on from the stroller to the table to

the chair then she would let go and try to balance herself and then

she would laugh as to say " mom im getting there. "

so dont worry i know its soo hard to be patient but just enjoy her.

believe me when the times comes for her to walk i am going to cry my

eyes out! im sure you feel the same!

by the way i saw her file. Sooo cute!!

and

BL CF 12/16/03

love, lisa

before i made you in the womb, i knew you... love God.

__________________________________________________

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,

I empathize with you completely! Devlin will be 16 months old in a

couple of days and she will only walk holding our hands. She has been

doing only that since around Christmas. I have a very close friend

who was a pediatric nurse practitioner for 30 years. She reminds me

all the time that not walking until 18 months is still perfectly

" normal " (on the scale of development for kids without any special

conditions). Her own daughter didn't walk until 18 months, almost to

the day, so she remembers every baby she's seen through her career

that didn't walk until then---and there are a lot.

People are stupid and weird. Seeing things as black-or-white is so

easy. Small minded people like to jump to conclusions quickly so they

don't have to think too hard. Conclusions such as " there's something

wrong with that kid " will allow them to dismiss the situation and stop

having to tax their brains with the " grey areas " of life.

Having a daughter with club foot has been such an eye-opener for me.

I feel like I have a filter now. I can see people for who and what

they are.

Remember that all kids develop at different rates and focus on

different areas at a time. If a baby is developing well in the social

or cognitive areas, they tend to neglect the physical for a while.

So, the way I see it is if we have a child that isn't as physically

advanced, they are smarter or more socially adept instead. At some

point everything catches up. I know it's hard when the physical

skills are the first thing people notice, but try not to worry about

it. Just think of how well she IS doing, considering what she's had

to overcome, and remember she'll be all caught up soon and you'll be

the only one who remembers this.

By the way, Early Intervention is coming on Thursday to evaluate

Devlin. We think she may be delayed by the poor muscle development in

her lower calfs (she's all tendon and no muscle). When she walks

holding our hands she puts a lot of weight on us (we've used a scale

at the orthotists office and she never takes on more than 17 of her 25

lbs. when walking). I want an outside evaluation just to see if we

are headed for an official " delay " in her development. Maybe seeing

them (EI) could give you peace of mind? At any rate, I'll post back

after that if they have anything helpful to say.

Hang in there---she'll be walking by the time it's really important!

Mommy to Devlin

1/7/2004

Bilateral Atypical CF

> ok.. so i know that i am being impatient... grace is 17 months old

> tomorrow... YEAH!!.... she was treated non-ponseti for the first 13

> months and then by doctor dobb's in st louis more recently.. she was

> reduced from 23/7 to 16/7 2 1/2 weeks ago... and she is standing of

> course.. and she will " walk " short distnaces holding my hands.. around

> the house... but she has not taken any initiative to take steps on her

> own... she doesn't even try to stand alone... she was never walking

> before this last tenotomy... she was in casts all that time mostly...

> and i am soooo anxious for her to start walking.. dr dobb's said that

> it could be 6-8 weeks before she start walking.. but i was thinking

> that she would have some sort of progress within 2 weeks... am i

> rushing her? am i too impatient? also.. i am starting to feel really

> bad... she is very tall and looks older than she is... people think

> she's almost 2 years old... and she has a cousin that is 10 weeks

> younger that is walking... and i feel bad because people are starting

> to look at her because she's still crawling... and i don't want anyone

> to look at her that way... am i being mean for getting so over

> protective? i am having a lot of mixed emotions right now.. sorry...

>

> mommy to Grace 12-03-03 BCF Dobb's Brace 16/7

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christine...

that's funny... Early Intervention is also coming to see us thursday... so do

you live in Tennessee? she is also behind in speech and is scheduled for a

speech therapy consultation in about 3 weeks... they don't really feel it's a

big problem (her ped.) but they want the evaluation done anyway... she will be

almost 18 months when we go for that... so the Early Intervention is also going

to examine her speech as well as her legs and walking issue... i have started to

notice more and more in the last 1-2 months... her calves are starting to thin

out... i really thought for a while there that she wasn't going to have the " CF "

look in her calves... but they are starting to thin... it doesn't look bad

though... so i am hoping a little physical therapy will stregthen them and help

her along... she's such a slender little thing to begin with so it all

matches... she's so tall but very skinny... takes after her dad... don't i wish

i could say she takes after me!!! lol...

mommy to Grace 12-03-03 BCF Dobb's Brace 16/7

Seel christine_seel@...> wrote:

,

I empathize with you completely! Devlin will be 16 months old in a

couple of days and she will only walk holding our hands. She has been

doing only that since around Christmas. I have a very close friend

who was a pediatric nurse practitioner for 30 years. She reminds me

all the time that not walking until 18 months is still perfectly

" normal " (on the scale of development for kids without any special

conditions). Her own daughter didn't walk until 18 months, almost to

the day, so she remembers every baby she's seen through her career

that didn't walk until then---and there are a lot.

People are stupid and weird. Seeing things as black-or-white is so

easy. Small minded people like to jump to conclusions quickly so they

don't have to think too hard. Conclusions such as " there's something

wrong with that kid " will allow them to dismiss the situation and stop

having to tax their brains with the " grey areas " of life.

Having a daughter with club foot has been such an eye-opener for me.

I feel like I have a filter now. I can see people for who and what

they are.

Remember that all kids develop at different rates and focus on

different areas at a time. If a baby is developing well in the social

or cognitive areas, they tend to neglect the physical for a while.

So, the way I see it is if we have a child that isn't as physically

advanced, they are smarter or more socially adept instead. At some

point everything catches up. I know it's hard when the physical

skills are the first thing people notice, but try not to worry about

it. Just think of how well she IS doing, considering what she's had

to overcome, and remember she'll be all caught up soon and you'll be

the only one who remembers this.

By the way, Early Intervention is coming on Thursday to evaluate

Devlin. We think she may be delayed by the poor muscle development in

her lower calfs (she's all tendon and no muscle). When she walks

holding our hands she puts a lot of weight on us (we've used a scale

at the orthotists office and she never takes on more than 17 of her 25

lbs. when walking). I want an outside evaluation just to see if we

are headed for an official " delay " in her development. Maybe seeing

them (EI) could give you peace of mind? At any rate, I'll post back

after that if they have anything helpful to say.

Hang in there---she'll be walking by the time it's really important!

Mommy to Devlin

1/7/2004

Bilateral Atypical CF

love, lisa

before i made you in the womb, i knew you... love God.

__________________________________________________

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,

Kelsey is 18 months old now, had her tenotomy done at

12 months and she just started really walking within

the last month. She has been out of her FAB full time

since the end of February. She will still even hold

on to furniture etc quite often but she walks more

every day. Also, she doesn't talk yet either. She

will say Mama sometimes and says " boo " which means

book but that is it. Otherwise she just grunts all of

the time.

Jenni

--- Caroland lcaroland@...> wrote:

> thank you very much... she doesn't talk yet and that

> has struck a nerve... she has an appt with the Steps

> people thursday and they have already told me that

> she may not start talking until she starts walking..

> they feel she has had to concentrate so much so far

> on getting around and being moile that she hasn't

> really paid any attention to the verbal part... that

> once he gets to a mode of mobility that she is

> comfortable with then she will start talking... so i

> am trying to be patient... but it's hard some

> times... but thank you for your words of

> encouragement...

>

> mommy to Grace 12-03-03 BCF Dobb's Brace 16/7

>

> jngrush jngrush@...> wrote:

> I can't tell you when you child will walk, my cf

> baby is not quite to

> that point yet. I can sympathize with the baby not

> walking and

> everyone wondering what is wrong syndrome. My boy

> that is now two

> and half didn't walk until he was 16 months (and he

> feet are as

> normal as they could be). He was very content to

> crawl. He did,

> however, have excellent verbal skills and was

> talking to us in two

> and three word sentences before he could walk. He

> cousin who is 5

> months younger than he is walked at 9 months. My

> sweet m-in-l who

> just wants her grandchildren to be perfect, was

> having fits about my

> son. What is wrong with him, why won't he walk,

> walks you

> know, and he is only 9 months, blah, blah, blah? It

> does get old.

> pretty quick. So take a big breath, and ignore

> everyone else. It is

> hard, but it is the only way to stay sane. Your

> Grace will walk, she

> has had a busy 17 months so far, she just has a mind

> of her own. I

> am not an expert on development and such, I can just

> give you a hug

> in this message and say. Hang in there, and try to

> ignore the

> busybodies. Most mean well, some have no tact, and

> some definately

> rub you the wrong way. Soon Grace will be running

> away from you, let

> us know when it happens so we can celebrate.

>

>

>

>

>

> love, lisa

> before i made you in the womb, i knew you... love

> God.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> __________________________________________________

>

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Guest guest

,

We have gone through similar things with our daughter Audrey. She didn't

start walking until 17 months and isn't really talking much. She has been

working with a speech therapist for the last couple of months. We were

also told that Audrey's working on two big developmental tasks at one time

can be very difficult for children (walking/talking). So, once walking is

somewhat mastered, the talking will likely follow.

Best wishes,

Bess

mommy to Elena (3/31/00) and Audrey (9/27/03), bcf, dbb 12 hrs/day

At 05:24 AM 5/3/2005, you wrote:

>thank you very much... she doesn't talk yet and that has struck a nerve...

>she has an appt with the Steps people thursday and they have already told

>me that she may not start talking until she starts walking.. they feel she

>has had to concentrate so much so far on getting around and being moile

>that she hasn't really paid any attention to the verbal part... that once

>he gets to a mode of mobility that she is comfortable with then she will

>start talking... so i am trying to be patient... but it's hard some

>times... but thank you for your words of encouragement...

>

> mommy to Grace 12-03-03 BCF Dobb's Brace 16/7

>

>jngrush jngrush@...> wrote:

>I can't tell you when you child will walk, my cf baby is not quite to

>that point yet. I can sympathize with the baby not walking and

>everyone wondering what is wrong syndrome. My boy that is now two

>and half didn't walk until he was 16 months (and he feet are as

>normal as they could be). He was very content to crawl. He did,

>however, have excellent verbal skills and was talking to us in two

>and three word sentences before he could walk. He cousin who is 5

>months younger than he is walked at 9 months. My sweet m-in-l who

>just wants her grandchildren to be perfect, was having fits about my

>son. What is wrong with him, why won't he walk, walks you

>know, and he is only 9 months, blah, blah, blah? It does get old.

>pretty quick. So take a big breath, and ignore everyone else. It is

>hard, but it is the only way to stay sane. Your Grace will walk, she

>has had a busy 17 months so far, she just has a mind of her own. I

>am not an expert on development and such, I can just give you a hug

>in this message and say. Hang in there, and try to ignore the

>busybodies. Most mean well, some have no tact, and some definately

>rub you the wrong way. Soon Grace will be running away from you, let

>us know when it happens so we can celebrate.

>

>

>

>

>

>love, lisa

>before i made you in the womb, i knew you... love God.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>__________________________________________________

>

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Guest guest

This sounds like a great idea, I will be sure to try it when the time

comes.

Thanks,

> > > ok.. so i know that i am being impatient... grace is 17 months

> old

> > > tomorrow... YEAH!!.... she was treated non-ponseti for the first

> > 13

> > > months and then by doctor dobb's in st louis more recently.. she

> > was

> > > reduced from 23/7 to 16/7 2 1/2 weeks ago... and she is standing

> > of

> > > course.. and she will " walk " short distnaces holding my hands..

> > around

> > > the house... but she has not taken any initiative to take steps

> on

> > her

> > > own... she doesn't even try to stand alone... she was never

> > walking

> > > before this last tenotomy... she was in casts all that time

> > mostly...

> > > and i am soooo anxious for her to start walking.. dr dobb's said

> > that

> > > it could be 6-8 weeks before she start walking.. but i was

> > thinking

> > > that she would have some sort of progress within 2 weeks... am i

> > > rushing her? am i too impatient? also.. i am starting to feel

> > really

> > > bad... she is very tall and looks older than she is... people

> > think

> > > she's almost 2 years old... and she has a cousin that is 10 weeks

> > > younger that is walking... and i feel bad because people are

> > starting

> > > to look at her because she's still crawling... and i don't want

> > anyone

> > > to look at her that way... am i being mean for getting so over

> > > protective? i am having a lot of mixed emotions right now..

> > sorry...

> > >

> > > mommy to Grace 12-03-03 BCF Dobb's Brace 16/7

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A suggestion about encouraging your child to walk-

Jake did attend PT as a baby, from about 9 mos to 15 mos old. For him

it was because he wasn't rolling over, couldn't go from lying down to

sitting, and wasn't showing any signs of crawling yet. Incidentally I

think it was because he hated tummy-time so much as a baby- it was just

too awkward with the casts and then the shoes.

In any case, Jake crawled for the first time when he was 11 mos old.

Shortly after that, he was pulling up to stand and would walk holding

our hands. To encourage him to walk on his own, we tried to come up

with things for him to reach for...his favorite thing at the time was

bubbles. We'd blow some bubbles a couple steps away from him, and he

would let go and try to get the bubbles. It worked really well!! He

was finally walking on his own around 15 mos.

Kassia :)

3/22/01 (Lt clubfoot, ATTT surgery April 2004)

and 11/22/02

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You know, Jake really liked his shoes too. He just incorporated it into

his routine. In fact, even though he doesn't wear his shoes anymore, he

still *must* have socks on or he won't go to bed!

Kassia :)

3/22/01 (Lt clubfoot, ATTT surgery April 2004)

and 11/22/02

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I think it all comes down to, like someone else said, that children will

focus on physical areas for awhile, neglecting the cognitive/verbal

things. Jake didn't really talk much until after he turned 2. He was

able to get his point across, he'd take us by the hand to whatever he

wanted if we couldn't understand him. By the time he turned 3, though,

he had definitely caught up. We did have him evaluated by our area

education agency (it's like the state/county health area, that focuses

on audiology and speech stuff) a little early, at age 3 1/2, at the

suggestion of our pediatrician. She wanted him to be evaluated and be

getting therapy if needed before kindergarten. He has been in speech

therapy since then, but he's pronouncing things just fine now for his

age. We're actually working on grammar things, like using you & me

instead of the 3rd person.

HTH!

Kassia :)

3/22/01 (Lt clubfoot, ATTT surgery April 2004)

and 11/22/02

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,

Okay I know I am way late in responding to you but I just wanted to

send you hugs and tell you to just ignore the comments and looks from

others as best you can. You know your baby best, and whether she is

walking by herself or not, you know if there is something wrong; which

obviously there isn't. Just enjoy her now, and I know she will be

walking SOON!

(Who wants to bet is here within 2 weeks saying " She's WALKING!!! " )

Hugs,

> ok.. so i know that i am being impatient... grace is 17 months old

> tomorrow... YEAH!!.... she was treated non-ponseti for the first 13

> months and then by doctor dobb's in st louis more recently.. she was

> reduced from 23/7 to 16/7 2 1/2 weeks ago... and she is standing of

> course.. and she will " walk " short distnaces holding my hands.. around

> the house... but she has not taken any initiative to take steps on her

> own... she doesn't even try to stand alone... she was never walking

> before this last tenotomy... she was in casts all that time mostly...

> and i am soooo anxious for her to start walking.. dr dobb's said that

> it could be 6-8 weeks before she start walking.. but i was thinking

> that she would have some sort of progress within 2 weeks... am i

> rushing her? am i too impatient? also.. i am starting to feel really

> bad... she is very tall and looks older than she is... people think

> she's almost 2 years old... and she has a cousin that is 10 weeks

> younger that is walking... and i feel bad because people are starting

> to look at her because she's still crawling... and i don't want anyone

> to look at her that way... am i being mean for getting so over

> protective? i am having a lot of mixed emotions right now.. sorry...

>

> mommy to Grace 12-03-03 BCF Dobb's Brace 16/7

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the cute things our children do.. things like this just melt your

heart! samantha does not help at all w/ her shoes. when its time she

just lays there as to say " ok put them on im ready. "

so if grace is able to take her brace off she sounds like a very

smart baby to me, my dh cant even put on/off samantha's brace

WITHOUT HELP so i think she is doing quite WELL! HA! HA!

as for her speech samantha does say a few words she does more of the

baby talk. its so funny to watch her hold a " conversation " with her

dad. she thinks that she is telling him all these important things

and he answers her in " her language " and then she claps and laughs

thinking she told everyone her story and got her point across! so

funny! i would not worry too much ive had people come up to me at

the store when smantha is screaming MAMA MAMA!! and ask how old she

was when she talked. surprising they have told that their children

are 2+ and dont speak. so i dont believe it is uncommon. you know i

unfortunetly have me son to compare to and he did everything at a

young age. its hard but i just know she is ok and i know she will do

everything when she is ready. besides it has been so helpful talking

to you and others knowing someone who we can relate to! im soo glad

that i joined this group!!

and

BL CF 12/16/03

> me and you are in the same boat. I too was hoping

> would be walking by now but she still has that fear of letting go.

> she does great holding on to furniture and either one or both of

my

> hands but still nothing.. she is scared on our hardwood floors i

> just recently noticed because when we are in a carpeted room she

> will let go and try to take a step and it must make her feel funny

> cause she laughs and laughs, so cute to watch. but now she gets

> around holding on to furniture and when there is no more she will

> hold onto the walls. me and my dh think she will take off maybe in

> the next few weeks. this is all new to her since us too started

the

> ponseti method late and before that she could not stand but on the

> outside of her feet cause her feet were not corrected so it makes

me

> mad to wishing i would have known about the ponseti method from

the

> start and started treatment way sooner! ugh! but as they say

there's

> no use in crying over spilled milk right?

> so im enjoying her. we get the looks too about her crawling but

you

> know people that i have talked to just tell me " my daughter was a

> late walker too " or " she'll do it when she is ready " . this weekend

i

> met a lady and her daughter(15months) and she was walking all

around

> and she asked me how old she was and i told her 16months but i

said

> she still hasnt started walking on her own. and her husband said "

> well it looks like she has got the hang of it pretty good " i had

not

> noticed she was walking holding on from the stroller to the table

to

> the chair then she would let go and try to balance herself and

then

> she would laugh as to say " mom im getting there. "

> so dont worry i know its soo hard to be patient but just enjoy

her.

> believe me when the times comes for her to walk i am going to cry

my

> eyes out! im sure you feel the same!

> by the way i saw her file. Sooo cute!!

> and

> BL CF 12/16/03

>

>

> love, lisa

> before i made you in the womb, i knew you... love God.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> __________________________________________________

>

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Guest guest

you and me both... i am sooooo glad i found this group.. i would be lost without

all of ya'll!!!! but she LOVES to help.. even though it makes it harder on me...

but i don't let her know that... and your DH will get the hang of it.. but tell

him that if he still has problems i'll be glad to send grace over to help..

lol... just kidding.. don't tell him that... i don't want a nasty email from

him... lol.... but " thank you " to all of you here on the board who have helped

me through some rough patches and emotional days... and all the wealth of info

that i've found here also...

THANK YOU!!!

mommy to Grace 12-03-03 BCF Dobb's Brace 16/7

michelle andyandsamanthamom@...> wrote:

the cute things our children do.. things like this just melt your

heart! samantha does not help at all w/ her shoes. when its time she

just lays there as to say " ok put them on im ready. "

so if grace is able to take her brace off she sounds like a very

smart baby to me, my dh cant even put on/off samantha's brace

WITHOUT HELP so i think she is doing quite WELL! HA! HA!

as for her speech samantha does say a few words she does more of the

baby talk. its so funny to watch her hold a " conversation " with her

dad. she thinks that she is telling him all these important things

and he answers her in " her language " and then she claps and laughs

thinking she told everyone her story and got her point across! so

funny! i would not worry too much ive had people come up to me at

the store when smantha is screaming MAMA MAMA!! and ask how old she

was when she talked. surprising they have told that their children

are 2+ and dont speak. so i dont believe it is uncommon. you know i

unfortunetly have me son to compare to and he did everything at a

young age. its hard but i just know she is ok and i know she will do

everything when she is ready. besides it has been so helpful talking

to you and others knowing someone who we can relate to! im soo glad

that i joined this group!!

and

BL CF 12/16/03

love, lisa

before i made you in the womb, i knew you... love God.

__________________________________________________

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Guest guest

My son is now 3.5 years old. He started walking at 15 months. He also has

speech problems. We had him evaluated by our state's (MA) Early Intervention

services. He received speech services one day a week for hour until he

turned 3 years old. The services are wonderful and worked great on 's

speech. He now is doing well and is almost up to his peers. He speaks very

well and has come a long way. He started off using grunts, pointing, and

hand signals. he threw lots of tantrums because he would try to get his

point across and we didn't understand. It was very frustrating. But now we

are the best we can be. Oh had a tongue-tie also. It doesn't hurt to

get an evaluation.

and (Ponseti method, possible relapse to right club

foot)(09/22/01)

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Re: Re: Older Tenotomy Children

>Date: Tue, 03 May 2005 12:09:42 -0500

>

>I think it all comes down to, like someone else said, that children will

>focus on physical areas for awhile, neglecting the cognitive/verbal

>things. Jake didn't really talk much until after he turned 2. He was

>able to get his point across, he'd take us by the hand to whatever he

>wanted if we couldn't understand him. By the time he turned 3, though,

>he had definitely caught up. We did have him evaluated by our area

>education agency (it's like the state/county health area, that focuses

>on audiology and speech stuff) a little early, at age 3 1/2, at the

>suggestion of our pediatrician. She wanted him to be evaluated and be

>getting therapy if needed before kindergarten. He has been in speech

>therapy since then, but he's pronouncing things just fine now for his

>age. We're actually working on grammar things, like using you & me

>instead of the 3rd person.

>

>HTH!

>Kassia :)

> 3/22/01 (Lt clubfoot, ATTT surgery April 2004)

>and 11/22/02

_________________________________________________________________

On the road to retirement? Check out MSN Life Events for advice on how to

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Wow, Jake *also* was tongue-tied! His was never clipped as he could

nurse fine and was gaining weight well. Now, it's funny but his tongue

almost twists when he makes certain sounds! It looks really weird (if

you know to look for it), but he sounds just fine and is easy to

understand. Our pediatrician was concerned about him maybe needing to

have it clipped (we actually have an ENT consult next Monday), but

Jake's speech therapist says she wouldn't recommend it now since he's so

understandable.

Kassia :)

3/22/01 (Lt clubfoot, ATTT surgery April 2004)

and 11/22/02

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