Guest guest Posted May 2, 2005 Report Share Posted May 2, 2005 Well, I wrote a long letter to Dr. Sussman finally and asked why she couldn't have a $380 brace that may help her curvy toes problem. But they could give babies $2000 AFO's across the board because they're not willing to try any of the MULTIPLE different resources I sent them months ago. In a nutshell... it was much longer than that! And got another somewhat cryptic response but this time, a little more encouraging. He said he'd look into getting Darbi some Ponseti/'s! If they're available commercially it shouldn't be a problem. OK! Insurance covered them, but after deductible and out of network provider discounts... I still was left with the $320. Yeah, I could save for it. And I actually was planning on just buying them but I thought one last plea might be worth the effort. He might just be trying to get rid of me, but it's not going to be so easy. I think once he sees one of these it'll be easier to get him to phase back into using a FAB with his patients. I'm not giving up so easy! Can't pacify me with a brace lol... it's just the beginning! So I think it'll happen. Someway it will. I will pay if I have to and am sending her impressions tomorrow. Her toes are getting worse and I am going to have to splint and/or tape them to get them to be straight. Still waiting for a response on exactly what I can do to solve this problem... having only asked in emails twice now as well as in person without any answer. But yay for Darbi, and yay for getting this brace at least SEEN here in Portland. I know they're going to love it. They have to! Kori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 Kori, Well that is good news. Yay for Darbi so maybe she won't have curly toes! I just wish you could get the Dobbs articulating bar on the shoes. They really need to get on that! > Well, I wrote a long letter to Dr. Sussman finally and asked why she > couldn't have a $380 brace that may help her curvy toes problem. But they > could give babies $2000 AFO's across the board because they're not willing > to try any of the MULTIPLE different resources I sent them months ago. In > a nutshell... it was much longer than that! > > And got another somewhat cryptic response but this time, a little more > encouraging. > > He said he'd look into getting Darbi some Ponseti/'s! If they're > available commercially it shouldn't be a problem. OK! Insurance covered > them, but after deductible and out of network provider discounts... I > still was left with the $320. Yeah, I could save for it. And I actually > was planning on just buying them but I thought one last plea might be worth > the effort. He might just be trying to get rid of me, but it's not going > to be so easy. I think once he sees one of these it'll be easier to get > him to phase back into using a FAB with his patients. I'm not giving up so > easy! Can't pacify me with a brace lol... it's just the beginning! > > So I think it'll happen. Someway it will. I will pay if I have to and am > sending her impressions tomorrow. Her toes are getting worse and I am > going to have to splint and/or tape them to get them to be straight. Still > waiting for a response on exactly what I can do to solve this problem... > having only asked in emails twice now as well as in person without any > answer. > > But yay for Darbi, and yay for getting this brace at least SEEN here in > Portland. I know they're going to love it. They have to! > > Kori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 My friend's little boy had curly toes. When our doctor was doing the casting, she used the casts to correct them. I believe that she just pushed the cast down on the toe while it was in the correct position and the cast hardened there and corrected it. This worked for her baby. Just in case you wanted to know. angie, bryce and andrew Porter Crystal Elementary Resource Room Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 his where curling sideways. Porter Crystal Elementary Resource Room Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 so this actually is happening also on the non clubfoot foot? something different from the " normal " curve of the toes on a CF baby? why do the toes curve anyawys? mommy to Grace 12-03-03 BCF Dobb's Brace 16/7 frogabog frogabog@...> wrote: Darbi's second toe is curving like a C toward the outside of her foot. They was straight when she was born, and up till about maybe a year ago when they started curving. Her toe on her non CF is the worst, when it's in the shoes and relaxed it actually sits up above the adjacent toes. I can't get the toes of her shoes loose enough to stop this, and I leave quite a bit of slack at the toes now too. As soon as she's in them, it gets pushed up and squashed and it's getting worse. From what I can tell the P/M shoes leave the toes completely exposed, and my hope is to use that to relieve the pressure as well as possibly splinting them. I don't know what exactly to *do*, but I don't want another year and a half of squashed toes going on here so that's why I want the P/M's. kori love, lisa before i made you in the womb, i knew you... love God. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 Hers never have. She has beautiful straight feet and toes... well, except for those two. And yeah, it's happening on both feet but the non CF is definitely worse. The CF toe doesn't rise up and sit on top of the other toes either. Go figure... I've heard of these curved toes, but most of the ones I've seen pics of are pointing up. Hers is curving toward the outsides. I know it's the shoes, and not a condition of the CF. I had sent pics to the CFPic list last fall, I should take another set and compare them. I know it sounds petty, but if the shoes are causing it I want to try to remedy it before her bones get too hard. What's the point of giving her a nice straight foot if her toes pointing east and west are going to make her refuse to wear sandals? A girl has the right to have pretty feet if possible methinks... I know some women who won't wear sandals because of funky toes. One in particular messed hers up in toe shoes when she was a dancer. Took some convincing to get her to pretty them up with polish and toe rings and actually leave the house. Hadn't worn sandals in 10 or more years. So hey, call me petty, but I don't want Darbi to have curvy toes if she doesn't have to. I doubt all, or even many children will experience this in the Markell's but it happened with Darbi and likely has more to do with genetic foot shaping than clubfoot. She's fitting just fine at the ankle so I doubt a wide (if they make it) would work either. I could splint her toe in the Markell's but I think it'd be uncomfortable. The P/M leaves the toes much more exposed. Heck, it is a darn fine excuse to bring a pair of P/M's into Portland Shriners so they see that there are solutions to tolerance issues... and the solutions are all FAB's that are absolutely *available*. I wonder, if she were a boy would I worry so much? The fact that it's getting worse than it was even 6mo's ago bothers me though and much more than they're curving right now I probably would still be pushing this. Kori At 02:06 PM 5/3/2005, you wrote: >so this actually is happening also on the non clubfoot foot? something >different from the " normal " curve of the toes on a CF baby? why do the >toes curve anyawys? > > mommy to Grace 12-03-03 BCF Dobb's Brace 16/7 > >frogabog frogabog@...> wrote: >Darbi's second toe is curving like a C toward the outside of her >foot. They was straight when she was born, and up till about maybe a year >ago when they started curving. Her toe on her non CF is the worst, when >it's in the shoes and relaxed it actually sits up above the adjacent >toes. I can't get the toes of her shoes loose enough to stop this, and I >leave quite a bit of slack at the toes now too. As soon as she's in them, >it gets pushed up and squashed and it's getting worse. > > From what I can tell the P/M shoes leave the toes completely exposed, and >my hope is to use that to relieve the pressure as well as possibly >splinting them. I don't know what exactly to *do*, but I don't want >another year and a half of squashed toes going on here so that's why I want >the P/M's. > >kori > > >love, lisa >before i made you in the womb, i knew you... love God. > > > > > > > > > > > > > > > > > > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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