GI motility Problems

[Guest guest]

dear Shayna and others, Pain, bloating and gas can so often be related

to gi motility disorders which are all too common with miot disease.

There are drugs to help with these problems. the motility problems can

occur anywhere in the gut " from " gums to bum " : as my

a=gastroenterollgist would say. for great info on thesse try

www.digestivedistress.com, Celia

> > > >

> > > > Hi all thanks for your support (again..). I

> > > think panic attacks

> > > are part of mito sometimes - well if so I am sure

> > > getting them. A

> > > few days ago I was panicking about 21yo daughter

> > > blacking out and she

> > > was put in hospital for a week as the docs took me

> > > seriously about (my

> > > definite and her possible) MELAS and the possible

> > > cardiac conduction

> > > problems that sometimes go along with it. They gave

> > > her an

> > > electrophysiological study which they normally

> > > wouldn't consider in

> > > someone her age (EPS is like an angiogram only

> > > instead of going up an

> > > artery they apparently go up through a vein, so not

> > > quite as

> > > dramatic). Although they found some abnormal

> > > pathways and

> > > tachycardia they said they were quite common in the

> > > normal population

> > > and were not enough to cause her to black out. They

> > > concluded that

> > > she probably has NCS neurocardiogenic syncope which

> > > one or two of you

> > > told me about also. He doesn't think she has

> > > orthostatic hypotension.

> > > He is sending her for a tilt table test (Also by

> > > that time she may

> > > have a dx from the mito doc whom will start testing

> > > her for melas

> > > soon.) I am sure all will be revealed eventually.

> > > In the meantime it

> > > helps enormously to find out the information and

> > > hear the stories .

> > > So - at this stage they have told her regardless of

> > > whether she has

> > > mito, the blackouts were probably a result of recent

> > > extended chest

> > > infection, not getting enough sleep or not eating

> > > properly, plus

> > > possible pain triggers (from her endless extreme

> > > " dysmenorrhea " which

> > > we haven't gotten to bottom of). All makes sense

> > > to me, and I won't

> > > be at all surprised if she is dx with mito. So as

> > > well as all the

> > > fluids and rest the doc has ordered, she has sports

> > > drinks with her at

> > > all times, is being careful about getting up too

> > > quickly, having extra

> > > salt, eating regular meals and am also looking at

> > > cocktail for her.

> > > pamela

> > > >

> > > > [Non-text portions of this message have been

> > > removed]

> > > >

> > >

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> >

> > __________________________________________________

> >