Not sure how to ask this, but going to try my best.

[Guest guest]

I have read many e mails regarding mito. I have been with this group

and adultmitos and umdf group etc. for about a month. I know this

disease attacks people differently. But, alot of you are worse off

than I am,and I truly feel for you all. I pray for you all also. I

have been going down hill in the health department for at least 5 or

so years. I have now many ailments, and been diagnosed only recently

with a biopsy and blood work up to find out I have MELAS/Mito. I

don't know how long it took for some of you to get in the bad way

you are now. But on the overall look at I would wonder if you could

give me an idea of the time span. Then I read e mails that say some

of you got drastically worse, rather very quickly. A drastic

situation from being limited a little one day, to waking up the next

day and not being able to turn over in bed. This is all very

frightning. I myself can see that sometimes this disease can move

fast,It has effected every organ in my body to some degree. I went

from legs to arms, to neck, etc. I am limited now, and the fatigue

had gotten really bad at times. But the head games this disease

plays, and being I notice the dementia getting steadly worse, I

wonder on an overall average,will it take to wind up with a TPN or J

tube or what ever.I hope I explained this ok to you, but I am

worried and wondering about many things, and the things yet to come.

If you could help in anyway to answer questions along th lines of

this e mail I would appreciate it.