Adult with mitochondrial disease

[Guest guest]

I am a 34 yr old male with mitochondrial myopathy. Dr. Cohen in

Cleveland was my doctor. His staff tells me that he doesn't have room

for adult patients anymore, only for consults through another doctor.

Does anyone have a good mito doc?

[Guest guest]

Welcome to the group.

I am sorry to hear this as I am also one of Dr. Cohen's adult patients.

laurie

> I am a 34 yr old male with mitochondrial myopathy. Dr. Cohen in

> Cleveland was my doctor. His staff tells me that he doesn't have room

> for adult patients anymore, only for consults through another doctor.

> Does anyone have a good mito doc?

>

>

>

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail

> is entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with

> their physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

>

>

>

[Guest guest]

Thank you Laurie. I think Dr. Cohen is such a nice guy. He was so

pleasant and patient with my wife and I. Was a treat to deal with

someone with such a pleasant way about himself after dealing with so

many doctors with no bedside manner! I would sure like some

suggestions on another doctor that might be closer to New Mexico if

you know of anyone.

Randy

> > I am a 34 yr old male with mitochondrial myopathy. Dr. Cohen in

> > Cleveland was my doctor. His staff tells me that he doesn't

have room

> > for adult patients anymore, only for consults through another

doctor.

> > Does anyone have a good mito doc?

> >

> >

> >

> >

> >

> >

> >

> >

> > Medical advice, information, opinions, data and statements

contained herein

> > are not necessarily those of the list moderators. The author of

this e mail

> > is entirely responsible for its content. List members are

reminded of their

> > responsibility to evaluate the content of the postings and

consult with

> > their physicians regarding changes in their own treatment.

> >

> > Personal attacks are not permitted on the list and anyone who

sends one is

> > automatically moderated or removed depending on the severity of

the attack.

> >

> >

> >

> >

> >

> >

[Guest guest]

Randy

Cindy on the list lives in New Mexico and I think she goes to an MDA

clinic doc. Hopefully she will pick up the post and respond.

laurie

> Thank you Laurie. I think Dr. Cohen is such a nice guy. He was so

> pleasant and patient with my wife and I. Was a treat to deal with

> someone with such a pleasant way about himself after dealing with so

> many doctors with no bedside manner! I would sure like some

> suggestions on another doctor that might be closer to New Mexico if

> you know of anyone.

>

> Randy

>

>

> > > I am a 34 yr old male with mitochondrial myopathy. Dr. Cohen in

> > > Cleveland was my doctor. His staff tells me that he doesn't

> have room

> > > for adult patients anymore, only for consults through another

> doctor.

> > > Does anyone have a good mito doc?

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > Medical advice, information, opinions, data and statements

> contained herein

> > > are not necessarily those of the list moderators. The author of

> this e mail

> > > is entirely responsible for its content. List members are

> reminded of their

> > > responsibility to evaluate the content of the postings and

> consult with

> > > their physicians regarding changes in their own treatment.

> > >

> > > Personal attacks are not permitted on the list and anyone who

> sends one is

> > > automatically moderated or removed depending on the severity of

> the attack.

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

The MDA Clinic used in New Mexico is out of UNM Hospital for adults

and Tingley Hospital for children in Albuquerque. You can find

more info about them at this link:

http://www.mdausa.org/cgi-bin/lookup.pl?query=87109&type=on

I'm not sure where you are in NM - but this Health Service Coordinator

is who you should contact. You will find them very helpful.

Alice

>

> Randy

>

> Cindy on the list lives in New Mexico and I think she goes to an MDA

> clinic doc. Hopefully she will pick up the post and respond.

>

> laurie

>

[Guest guest]

Thanks so much Laurie & Alice.

Randy

-- In , " Alice " wrote:

>

> The MDA Clinic used in New Mexico is out of UNM Hospital for adults

> and Tingley Hospital for children in Albuquerque. You can

find

> more info about them at this link:

>

> http://www.mdausa.org/cgi-bin/lookup.pl?query=87109&type=on

>

>

> I'm not sure where you are in NM - but this Health Service

Coordinator

> is who you should contact. You will find them very helpful.

>

> Alice

>

>

> >

> > Randy

> >

> > Cindy on the list lives in New Mexico and I think she goes to an

MDA

> > clinic doc. Hopefully she will pick up the post and respond.

> >

> > laurie

> >

>

[Guest guest]

Thanks Laurie!

Randy

> > > > I am a 34 yr old male with mitochondrial myopathy. Dr.

Cohen in

> > > > Cleveland was my doctor. His staff tells me that he

doesn't

> > have room

> > > > for adult patients anymore, only for consults through

another

> > doctor.

> > > > Does anyone have a good mito doc?

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Medical advice, information, opinions, data and statements

> > contained herein

> > > > are not necessarily those of the list moderators. The

author of

> > this e mail

> > > > is entirely responsible for its content. List members are

> > reminded of their

> > > > responsibility to evaluate the content of the postings and

> > consult with

> > > > their physicians regarding changes in their own treatment.

> > > >

> > > > Personal attacks are not permitted on the list and anyone

who

> > sends one is

> > > > automatically moderated or removed depending on the

severity of

> > the attack.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >