Are you sensitive to light?

[Guest guest]

do you now wear or have worn in the past contact lenses? What your are

describing sounds like photophobia. I know through contact lens wear I have

developed it at times. Your case sounds extreme though and I would strongly

suggest

an apt with an opthomologist. Your eyes are precious and taking care of them

is important. (hugs) Vivian

[Guest guest]

Right now I am sitting in front of my computer wearing sunglasses. Much

like I must wear whenever I watch television or sit by a window with an

open drapery. Light is painful to me. I often joke with others that I

should just come out only at night, maybe go so far as to sleep in a

coffin during the day. So far no craving for blood, which is good.

Sorry for crude sense of humor but I have to joke about those things

that bother me most---sort of a coping technique. Truth is, I have

great difficulty keeping my eyes open in light. Not only is it

difficult to keep my eye lids lifted and see, but I also get a headache

within minutes. I usually just keep my gaze down or wear sunglasses.

My office has only lamps to light it and my coworkers have agreed to

staff meetings with minimal lights to accomodate me. This is very

helpful until I go out into the real world where humans live that need

light. Then I am out of my element and can't function. Does anyone

else struggle with this and what do you do? Do you where dark glasses?

Are there any that don't look like they are obviously dark? I always

feel like people are looking at me wondering what I am hiding when I

where dark glasses. I get tired of explaining them. Maybe the light

problem is unique to me, I don't know. This is all new to me.

[Guest guest]

Sensitivity to light sounds like porphyria (vampirism LOL) - some of

us have been checked for it.

Take care,

RH

>

> Right now I am sitting in front of my computer wearing sunglasses.

Much

> like I must wear whenever I watch television or sit by a window

with an

> open drapery. Light is painful to me. I often joke with others that

I

> should just come out only at night, maybe go so far as to sleep in

a

> coffin during the day. So far no craving for blood, which is

good.

> Sorry for crude sense of humor but I have to joke about those

things

> that bother me most---sort of a coping technique. Truth is, I have

> great difficulty keeping my eyes open in light. Not only is it

> difficult to keep my eye lids lifted and see, but I also get a

headache

> within minutes. I usually just keep my gaze down or wear

sunglasses.

> My office has only lamps to light it and my coworkers have agreed

to

> staff meetings with minimal lights to accomodate me. This is very

> helpful until I go out into the real world where humans live that

need

> light. Then I am out of my element and can't function. Does

anyone

> else struggle with this and what do you do? Do you where dark

glasses?

> Are there any that don't look like they are obviously dark? I

always

> feel like people are looking at me wondering what I am hiding when

I

> where dark glasses. I get tired of explaining them. Maybe the

light

> problem is unique to me, I don't know. This is all new to me.

>

[Guest guest]

I have noted an increasing sensitivity to light over the last two

years as my other symptoms have also become more prominent. It's not

so severe as you describe, but the pain is certainly increasing.

>

> Right now I am sitting in front of my computer wearing sunglasses. Much

> like I must wear whenever I watch television or sit by a window with an

> open drapery. Light is painful to me. I often joke with others that I

> should just come out only at night, maybe go so far as to sleep in a

> coffin during the day. So far no craving for blood, which is good.

> Sorry for crude sense of humor but I have to joke about those things

> that bother me most---sort of a coping technique. Truth is, I have

> great difficulty keeping my eyes open in light. Not only is it

> difficult to keep my eye lids lifted and see, but I also get a headache

> within minutes. I usually just keep my gaze down or wear sunglasses.

> My office has only lamps to light it and my coworkers have agreed to

> staff meetings with minimal lights to accomodate me. This is very

> helpful until I go out into the real world where humans live that need

> light. Then I am out of my element and can't function. Does anyone

> else struggle with this and what do you do? Do you where dark

glasses?

> Are there any that don't look like they are obviously dark? I always

> feel like people are looking at me wondering what I am hiding when I

> where dark glasses. I get tired of explaining them. Maybe the light

> problem is unique to me, I don't know. This is all new to me.

>