daughter just born at 30 weeks...

[Guest guest]

Hi,

I posted a while back about our baby being diagnosed with a

unilateral clubfoot at an u/s and got lots of advice. Our daughter

came very early and has other issues (like breathing and eating) that

I'm mostly concerned with today. But she was breech and came out

looking like she is forever in a straddle split position. Like you

can't even tell where her knees are and both of her feet look like

they are twisted around.

I Delivered at a hospital that is different than where the ponsetti

approved doctor we had chosen to treat her is and will meet with a

pediatric orhopedic specialist today (she is 5 days old) but I think

she may have hip dysplasia? Anyone have a preemie along with the

orthopedic issues. I'm worried now that it's part of a bigger

picture, she just looks so--I hate to say it- but broken. I've read

that clubfoot and hip dysplasia together are a sign of cerebral

palsy. I am grateful that my daughter is alive, just so fearful for

what lies ahead for her tiny little body.

Thanks for listening, I'm off to the hospital

[Guest guest]

Congratulations on the birth of your daughter! My DS3 was also born early

at 33 weeks. He has a right club foot that was treated with the Ponseti

method. We are in the same town as a Shriner's hospital so it wasn't a

problem to have someone come and cast his foot at 2 days old. also

had problems with breathing and eating. He was only in the NICU for 12 days

and is " perfect " now. If you are concerned about your daughter talk to the

nurses in the NICU. Our nurses were always there to answer any of our

questions and seemed to have more time for us than the drs.

and (09/22/01, Ponseti method, right club foot)

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: daughter just born at 30 weeks...

>Date: Mon, 09 May 2005 11:11:02 -0000

>

>Hi,

>

>I posted a while back about our baby being diagnosed with a

>unilateral clubfoot at an u/s and got lots of advice. Our daughter

>came very early and has other issues (like breathing and eating) that

>I'm mostly concerned with today. But she was breech and came out

>looking like she is forever in a straddle split position. Like you

>can't even tell where her knees are and both of her feet look like

>they are twisted around.

>

>I Delivered at a hospital that is different than where the ponsetti

>approved doctor we had chosen to treat her is and will meet with a

>pediatric orhopedic specialist today (she is 5 days old) but I think

>she may have hip dysplasia? Anyone have a preemie along with the

>orthopedic issues. I'm worried now that it's part of a bigger

>picture, she just looks so--I hate to say it- but broken. I've read

>that clubfoot and hip dysplasia together are a sign of cerebral

>palsy. I am grateful that my daughter is alive, just so fearful for

>what lies ahead for her tiny little body.

>

>Thanks for listening, I'm off to the hospital

>

>

>

>

_________________________________________________________________

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[Guest guest]

Congratulations! I know having a baby in the NICU (where I guess your baby is)

can be really hard. wasn't a preemie, but he did spend some time in the

NICU for other issues. It was a very stressful time! You can't imagine how you

will cope with it until you don't have a choice. It can't hurt to meet with the

otho at your hospital; however, be cautious Your baby doesn't really need to be

casted for 2 months, so if you get the feeling that you should wait, do. They

wanted to cast in the NICU and his nurse kept pushing it. She even

ordered the casting cart to be brought up after we told her he would not be

casted there. The problem with this is often that the nurse is the one holding

the foot in place because they don't know how to apply a cast. They also don't

properly know how to hold the foot.

From what I have read, hip dysplasia can often accompany clubfoot. was

check for this when he was born but did not have it. Try not to focus on how

" broken " she looks. I am sure she is comfy and warm and very happy. Just rub

her and snuggle her as much as you can and know that her little feet with start

to look much straighter in a very short time. You will then have to look only

at pictures to remember what she looked like when she was born. Good luck with

everything! I know this is a stressful period, but it will get better.

11/19/04

daughter just born at 30 weeks...

Hi,

I posted a while back about our baby being diagnosed with a

unilateral clubfoot at an u/s and got lots of advice. Our daughter

came very early and has other issues (like breathing and eating) that

I'm mostly concerned with today. But she was breech and came out

looking like she is forever in a straddle split position. Like you

can't even tell where her knees are and both of her feet look like

they are twisted around.

I Delivered at a hospital that is different than where the ponsetti

approved doctor we had chosen to treat her is and will meet with a

pediatric orhopedic specialist today (she is 5 days old) but I think

she may have hip dysplasia? Anyone have a preemie along with the

orthopedic issues. I'm worried now that it's part of a bigger

picture, she just looks so--I hate to say it- but broken. I've read

that clubfoot and hip dysplasia together are a sign of cerebral

palsy. I am grateful that my daughter is alive, just so fearful for

what lies ahead for her tiny little body.

Thanks for listening, I'm off to the hospital

[Guest guest]

NICU nurses are angels! They helped us so much! They are so good at treating

you like the only people in the room and answering any questions you have.

daughter just born at 30 weeks...

>Date: Mon, 09 May 2005 11:11:02 -0000

>

>Hi,

>

>I posted a while back about our baby being diagnosed with a

>unilateral clubfoot at an u/s and got lots of advice. Our daughter

>came very early and has other issues (like breathing and eating) that

>I'm mostly concerned with today. But she was breech and came out

>looking like she is forever in a straddle split position. Like you

>can't even tell where her knees are and both of her feet look like

>they are twisted around.

>

>I Delivered at a hospital that is different than where the ponsetti

>approved doctor we had chosen to treat her is and will meet with a

>pediatric orhopedic specialist today (she is 5 days old) but I think

>she may have hip dysplasia? Anyone have a preemie along with the

>orthopedic issues. I'm worried now that it's part of a bigger

>picture, she just looks so--I hate to say it- but broken. I've read

>that clubfoot and hip dysplasia together are a sign of cerebral

>palsy. I am grateful that my daughter is alive, just so fearful for

>what lies ahead for her tiny little body.

>

>Thanks for listening, I'm off to the hospital

>

>

>

>

_________________________________________________________________

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[Guest guest]

Congratulations!!!

My son, Aleksander, was also born at 33 1/2 weeks. He is 5 1/2

months now, and is a healthy, normal baby.

He was also breech, and there was concern about his hips, but by the

time we got him to the Ponsetti doctor, he was almost 1 month old and

his hips were fine.

He spent 10 days in the NICU, and then we roomed in for a night

before we took him home. He also had problems eating, but thankfully

his lungs were fine when he was born.

I also wanted to encourage you to ask as many questions of your NICU

nurses as possible. They are so wonderful and willing to help! I

called many times in the middle of the night to check on Aleksander's

weight, to see how much food they gave him in his feeding tube, and

later to see how much he ate from the bottle. At first, I felt so

guilty for not being there all the time, but after a while, I

realized that I needed to take care of myself too so when he was

ready to come home, I was able to give him the best I had to give.

Hang in there, and definitely ask your nurses any questions you may

have. They are used to it, and know you are only asking out of love

for your new daughter!

> Congratulations on the birth of your daughter! My DS3 was also

born early

> at 33 weeks. He has a right club foot that was treated with the

Ponseti

> method. We are in the same town as a Shriner's hospital so it

wasn't a

> problem to have someone come and cast his foot at 2 days old.

also

> had problems with breathing and eating. He was only in the NICU for

12 days

> and is " perfect " now. If you are concerned about your daughter talk

to the

> nurses in the NICU. Our nurses were always there to answer any of

our

> questions and seemed to have more time for us than the drs.

>

> and (09/22/01, Ponseti method, right club foot)

>

> >From: " autolaw55 "

> >Reply-To: nosurgery4clubfoot

> >To: nosurgery4clubfoot

> >Subject: daughter just born at 30 weeks...

> >Date: Mon, 09 May 2005 11:11:02 -0000

> >

> >Hi,

> >

> >I posted a while back about our baby being diagnosed with a

> >unilateral clubfoot at an u/s and got lots of advice. Our daughter

> >came very early and has other issues (like breathing and eating)

that

> >I'm mostly concerned with today. But she was breech and came out

> >looking like she is forever in a straddle split position. Like you

> >can't even tell where her knees are and both of her feet look like

> >they are twisted around.

> >

> >I Delivered at a hospital that is different than where the ponsetti

> >approved doctor we had chosen to treat her is and will meet with a

> >pediatric orhopedic specialist today (she is 5 days old) but I

think

> >she may have hip dysplasia? Anyone have a preemie along with the

> >orthopedic issues. I'm worried now that it's part of a bigger

> >picture, she just looks so--I hate to say it- but broken. I've read

> >that clubfoot and hip dysplasia together are a sign of cerebral

> >palsy. I am grateful that my daughter is alive, just so fearful for

> >what lies ahead for her tiny little body.

> >

> >Thanks for listening, I'm off to the hospital

> >

> >

> >

> >

>

> _________________________________________________________________

> Express yourself instantly with MSN Messenger! Download today -

it's FREE!

> http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/

[Guest guest]

Congratulations on the birth of your daughter. Our

son was also born at 33 1/2 weeks and spent 15 days in

the Level 2 nursery (one step down from a NICU, where

the nurses our responsible for 2-4 babies at a time).

He was born jaundiced, breathing apnea, and was tube

fed till he was taken home. It's amazing and

wonderfull to see your child, but at the same time so

scary with all the tubes and machines monitoring there

well-being. We waited until his breathing was under

control and he was in the last days of his stay in the

nursery before we worried about his foot. At such a

yong age there foot is easily correctible and that

should be the least of your worries. Ask questions of

your nurses, as the previous posters have stated,

they're a god-send and there to help your baby as well

as you through this. Every day when we'd come in we'd

have new questions for them and they always helped us

to put our mind at ease.

Tate (6/30/04, unilateral rcf)

--- kannhoudek kannhoudek@...> wrote:

> Congratulations!!!

>

> My son, Aleksander, was also born at 33 1/2 weeks.

> He is 5 1/2

> months now, and is a healthy, normal baby.

>

> He was also breech, and there was concern about his

> hips, but by the

> time we got him to the Ponsetti doctor, he was

> almost 1 month old and

> his hips were fine.

>

> He spent 10 days in the NICU, and then we roomed in

> for a night

> before we took him home. He also had problems

> eating, but thankfully

> his lungs were fine when he was born.

>

> I also wanted to encourage you to ask as many

> questions of your NICU

> nurses as possible. They are so wonderful and

> willing to help! I

> called many times in the middle of the night to

> check on Aleksander's

> weight, to see how much food they gave him in his

> feeding tube, and

> later to see how much he ate from the bottle. At

> first, I felt so

> guilty for not being there all the time, but after a

> while, I

> realized that I needed to take care of myself too so

> when he was

> ready to come home, I was able to give him the best

> I had to give.

>

> Hang in there, and definitely ask your nurses any

> questions you may

> have. They are used to it, and know you are only

> asking out of love

> for your new daughter!

>

>

>

> > Congratulations on the birth of your daughter! My

> DS3 was also

> born early

> > at 33 weeks. He has a right club foot that was

> treated with the

> Ponseti

> > method. We are in the same town as a Shriner's

> hospital so it

> wasn't a

> > problem to have someone come and cast his foot at

> 2 days old.

> also

> > had problems with breathing and eating. He was

> only in the NICU for

> 12 days

> > and is " perfect " now. If you are concerned about

> your daughter talk

> to the

> > nurses in the NICU. Our nurses were always there

> to answer any of

> our

> > questions and seemed to have more time for us than

> the drs.

> >

> > and (09/22/01, Ponseti method, right

> club foot)

> >

> > >From: " autolaw55 "

> > >Reply-To: nosurgery4clubfoot

> > >To: nosurgery4clubfoot

> > >Subject: daughter just born

> at 30 weeks...

> > >Date: Mon, 09 May 2005 11:11:02 -0000

> > >

> > >Hi,

> > >

> > >I posted a while back about our baby being

> diagnosed with a

> > >unilateral clubfoot at an u/s and got lots of

> advice. Our daughter

> > >came very early and has other issues (like

> breathing and eating)

> that

> > >I'm mostly concerned with today. But she was

> breech and came out

> > >looking like she is forever in a straddle split

> position. Like you

> > >can't even tell where her knees are and both of

> her feet look like

> > >they are twisted around.

> > >

> > >I Delivered at a hospital that is different than

> where the ponsetti

> > >approved doctor we had chosen to treat her is and

> will meet with a

> > >pediatric orhopedic specialist today (she is 5

> days old) but I

> think

> > >she may have hip dysplasia? Anyone have a preemie

> along with the

> > >orthopedic issues. I'm worried now that it's part

> of a bigger

> > >picture, she just looks so--I hate to say it- but

> broken. I've read

> > >that clubfoot and hip dysplasia together are a

> sign of cerebral

> > >palsy. I am grateful that my daughter is alive,

> just so fearful for

> > >what lies ahead for her tiny little body.

> > >

> > >Thanks for listening, I'm off to the hospital

> > >

> > >

> > >

> > >

> >

> >

>

_________________________________________________________________

> > Express yourself instantly with MSN Messenger!

> Download today -

> it's FREE!

> >

>

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>

>

>

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[Guest guest]

Congrats on the birth of your baby girl! Once she gets healthy

enough to come home you'll know where your going with her treatment.

I'm sorry your going through so much right now. I know on our first

visit they x-rayed for hip dysplasia and said it is something

that can " commonly " go with clubfoot that they screen all clubfoot

kids with it by x-ray. Stay strong and try to get some rest.

Pam and (8-12-01)

> Hi,

>

> I posted a while back about our baby being diagnosed with a

> unilateral clubfoot at an u/s and got lots of advice. Our daughter

> came very early and has other issues (like breathing and eating)

that

> I'm mostly concerned with today. But she was breech and came out

> looking like she is forever in a straddle split position. Like you

> can't even tell where her knees are and both of her feet look like

> they are twisted around.

>

> I Delivered at a hospital that is different than where the ponsetti

> approved doctor we had chosen to treat her is and will meet with a

> pediatric orhopedic specialist today (she is 5 days old) but I

think

> she may have hip dysplasia? Anyone have a preemie along with the

> orthopedic issues. I'm worried now that it's part of a bigger

> picture, she just looks so--I hate to say it- but broken. I've read

> that clubfoot and hip dysplasia together are a sign of cerebral

> palsy. I am grateful that my daughter is alive, just so fearful for

> what lies ahead for her tiny little body.

>

> Thanks for listening, I'm off to the hospital

>

>

[Guest guest]

Hi ,

My son Aidan was born at 28 weeks so I know exactly how you feel right now. We

stayed in the NICU for 2 months. It was a 2 month rollercoaster. He had some

other issues as well. I chose for his feet not to be touched until the other

issues were under control as I didn't want to stress him out further.

I wrote to Dr. Ponseti and he actually recommended we wait as the DBB shoes

don't really fit feet that small. We didn't start treatment until after he came

home from the hospital. He's doing great now.

Please let me know if there is anything I can do for you, I'm a great listener!

:-) Hang in there it does get better and she'll continue to get strong.

Remember though you can never trust a preemie so be prepared for the unexpected.

Stay strong and let me know if there is anything I can do. If it were up to me

I'd wait on the feet.

Hugs, Jenn. Your daughter is in my prayers.

autolaw55 cargirl2000@...> wrote:

Hi,

I posted a while back about our baby being diagnosed with a

unilateral clubfoot at an u/s and got lots of advice. Our daughter

came very early and has other issues (like breathing and eating) that

I'm mostly concerned with today. But she was breech and came out

looking like she is forever in a straddle split position. Like you

can't even tell where her knees are and both of her feet look like

they are twisted around.

I Delivered at a hospital that is different than where the ponsetti

approved doctor we had chosen to treat her is and will meet with a

pediatric orhopedic specialist today (she is 5 days old) but I think

she may have hip dysplasia? Anyone have a preemie along with the

orthopedic issues. I'm worried now that it's part of a bigger

picture, she just looks so--I hate to say it- but broken. I've read

that clubfoot and hip dysplasia together are a sign of cerebral

palsy. I am grateful that my daughter is alive, just so fearful for

what lies ahead for her tiny little body.

Thanks for listening, I'm off to the hospital

[Guest guest]

,

I just wanted to say congratulations on the birth of your little girl. I

hope you get some good news from the doctors about her.

How early was she born?

-----Original Message-----

> Hi,

>

> I posted a while back about our baby being diagnosed with a

> unilateral clubfoot at an u/s and got lots of advice. Our daughter

> came very early and has other issues (like breathing and eating)

that

> I'm mostly concerned with today. But she was breech and came out

> looking like she is forever in a straddle split position. Like you

> can't even tell where her knees are and both of her feet look like

> they are twisted around.

>

> I Delivered at a hospital that is different than where the ponsetti

> approved doctor we had chosen to treat her is and will meet with a

> pediatric orhopedic specialist today (she is 5 days old) but I

think

> she may have hip dysplasia? Anyone have a preemie along with the

> orthopedic issues. I'm worried now that it's part of a bigger

> picture, she just looks so--I hate to say it- but broken. I've read

> that clubfoot and hip dysplasia together are a sign of cerebral

> palsy. I am grateful that my daughter is alive, just so fearful for

> what lies ahead for her tiny little body.

>

> Thanks for listening, I'm off to the hospital

>

>